Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Could you share Roni what supplements you have been taking? I too have SD and would be very interested to know. Dr. T is my Dr.W. but I often think of seeing Dr. W. I am originally from NJ, and would love to combine a visit to family there with a trip to Dr. W. as well. **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Hi Roni I like to know what supplements you take if you don't mind to share? I see Dr whitman too. thanks soheila From: ONYX8257@... <ONYX8257@...> Subject: Re: rheumatic For Roni rheumatic Date: Friday, August 29, 2008, 1:40 PM Could you share Roni what supplements you have been taking? I too have SD and would be very interested to know. Dr. T is my Dr.W. but I often think of seeing Dr. W. I am originally from NJ, and would love to combine a visit to family there with a trip to Dr. W. as well. ************ **It's only a deal if it's where you want to go. Find your travel deal here. (http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Thanks so much - seems like I am on the right track. I am currently taking a few of the supplements you are taking, as well as the cell food. Thanks again. Gail **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Hi, Here are the supplements that I take along with the AP for the scleroderma. Serrapeptase (breakes up scar tissue) Nattokinase - just started, supposed to take circulation, too soon to tell Tocopheryl - Natural Vitamin E Uva Ursi - at the moment to get rid of a yeast infection Genestra Brand Replete - Acidophilus Cell Food - drops in water Rejuvenate - prescribed by my doctor to help DNA Cod Liver Oil Flax Seed Evening Primrose Oil MSM Vitamin C Grape Seed Extract Aloe Vera (by Coats) multi-vitamin Calcium/Magnesium Adrenal - a supplement prescribed by my doc to support the adrenal system Dhea - 25mg a day When needed for illness - oregano oil and olive leaf Tribulus to help with menopause symptoms I had been taking a product called Glycomanna for inflammation. It was wonderful. But the company was sued by a multimarketing level company, so the product is no longer available. Now I am taking Even Better Now glyconutrients. It is too soon to tell if the products are equal in effectivenss. Hope this helps. Roni Re: rheumatic For Roni > rheumatic@grou> ps.com > Date: Friday, August 29, 2008, 1:40 PM > Could you share Roni what supplements you have been taking? I too have SD > and would be very interested to know. > Dr. T is my Dr.W. but I often think of seeing Dr. W. I am originally from > NJ, and would love to combine a visit to family there with a trip to Dr. W. as > well. > ************ **It's only a deal if it's where you want to go. Find your travel > deal here. (> http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 I think any difference I feel with the cell food may be mind over matter at this point, because I have not been faithful in taking it, and have only recently began taking it again. I used to take it every morning without fail prior to having scleroderma, and I found that drinking hot water with lemon in the morning, and also cell food helped a lot, especially with my tongue which was white-coated. Roni, you mentioned that Dr. W. was surprised with your fingers after having SD for so long. Can I ask firstly, if your SD is Diffuse, and how long you have had it? Thanks Gail **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Hi Roni - Thanks for telling me your story! It helps me so to hear from others going through the same thing. My SD is Diffuse, but I hope each day for the best, and do all that I can to try to help myself. I knew myself that I had it for coming up on two years now, but 9 doctors later, I had to seek out Dr. T. in Boston to confirm what I already knew. My final diagnosis did not come until Feburary of this year. As for the lemon and water, I just take enough water as you would take to have a cup of tea or instant coffee, and heat it up in the microwave, and either give a full squeeze of the real lemon, or bottled real lemon, probably the equivalent of two teaspoons, or give a couple squeezes for a fresh lemon if that is what I have in the house at the time. It actually didn't take me long to actually enjoy the taste. Gail **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Have you noticed any difference with the cell food? I've only been taking it for about a month and a half? Roni Re: rheumatic For Roni rheumatic > Thanks so much - seems like I am on the right track. I am currently taking a > few of the supplements you are taking, as well as the cell food. Thanks > again. Gail > ************> **It's only a deal if it's where you want to go. Find your travel > deal here. (> http://information.> travel.aol.> com/deals?> ncid=aoltrv00050> 000000047) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 HI Gail, I was diagnosed with CREST scleroderma in Oct. of 1997. At that time the skin on the back of my neck was like an elephant's skin, my hands and fingers were swollen, stiff and the skin was dry, and shinny. Every joint in my body ached and I slept 15+hours a day. Stomach problems, etc. the classic case. (although never had trouble swallowing, thankgoodness). The doc that diagnosed me thought that due to the numbers and my physical condition, that I may have had it a good ten years before being diagnosed. Prior to that I kept going to the doctors saying " I don't feel good, etc. " After a while I began to think that it was in my head and that I was becoming mentally unstable. Never again will I hand my health over to someone to manage. Dr. W. did not know me then, I lived in NY at this time. The doc in NY should be disbarred due to poor bedside manner. After he told my husband and me my diagnosis, he basically said that they would keep me comfortable and " manage the pain " . After we left his office, we had to go on the internet to actually find out what Scleroderma is and what it does. We were not educated, informed, etc. I went back to that doctor on my next appointment and gave me a huge piece of my mind and told him he had better not talk to me that way again or without hold information from me again like that. It was such a shock to have to read all of this for yourself. I should get the records from this hospital so Dr. W. has something to compare my progress to. While I am doing well, I am not satisfied and want to be doing better. However, on the positive side, my fingers are doing well, some Raynauds, but I am starting Harp lessons in 2 weeks. I finally have a chance to do something for myself after going to graudate school and taking care of my mother for the last 4 years! I hope you are doing well. BTW, how much lemon and hot water did you drink in the morning? Roni Re: rheumatic For Roni rheumatic > I think any difference I feel with the cell food may be mind over matter at > this point, because I have not been faithful in taking it, and have only > recently began taking it again. I used to take it every morning without fail > prior to having scleroderma, and I found that drinking hot water with lemon in the > morning, and also cell food helped a lot, especially with my tongue which was > white-coated. > Roni, you mentioned that Dr. W. was surprised with your fingers after having > SD for so long. Can I ask firstly, if your SD is Diffuse, and how long you > have had it? > Thanks Gail > ************> **It's only a deal if it's where you want to go. Find your travel > deal here. (> http://information.> travel.aol.> com/deals?> ncid=aoltrv00050> 000000047) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Gail you wrote to heat water in the microwave.....read it on internet,what the microwave does.....plants will not grow with the water heated in microwaves. see the website: http://www.museumofhoaxes.com/hoax/weblog/comments/4108/P40 http://www.eclecticscience.net/experiments/001-microwave-plants/index.html More websites on Internet with pictures......please heat the waternot in the microwave. TAKE CARE Trudy Re: rheumatic For Roni Hi Roni - Thanks for telling me your story! It helps me so to hear from others going through the same thing. My SD is Diffuse, but I hope each day for the best, and do all that I can to try to help myself. I knew myself that I had it for coming up on two years now, but 9 doctors later, I had to seek out Dr. T. in Boston to confirm what I already knew. My final diagnosis did not come until Feburary of this year. As for the lemon and water, I just take enough water as you would take to have a cup of tea or instant coffee, and heat it up in the microwave, and either give a full squeeze of the real lemon, or bottled real lemon, probably the equivalent of two teaspoons, or give a couple squeezes for a fresh lemon if that is what I have in the house at the time. It actually didn't take me long to actually enjoy the taste. Gail **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 I will check that out, thank you. Gail **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 What do you mean by " Cell Food " ? Every living thing on this earth is made out of cells. Please explain the difference. I've heard of raw food, cruciferous food, juicing food, but never heard of cell food. What is that?---Dolores & Mike From: rbarna dejazzd.com <rbarna@...> Subject: Re: rheumatic For Roni rheumatic Date: Saturday, August 30, 2008, 7:21 PM Have you noticed any difference with the cell food? I've only been taking it for about a month and a half? Roni Re: rheumatic For Roni rheumatic@grou ps.com > Thanks so much - seems like I am on the right track. I am currently taking a > few of the supplements you are taking, as well as the cell food. Thanks > again. Gail > ************ > **It's only a deal if it's where you want to go. Find your travel > deal here. (> http://information.> travel.aol.> com/deals?> ncid=aoltrv00050> 000000047) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Dolores and Mike, I've copied the link below for you and some information from the website. I'm trying it for a while to see if it does help. CELLFOOD is a proprietary ionic fomula containing dissolved oxygen, electrolytes, 78 ionic minerals, 34 enzymes and 17 amino acids? which provides an unsurpassed oxygenating source, and nutritional delivery system, to every cell of the body. CELLFOOD's unique structure oxygenates and feeds the cells? cleaning and 'tuning up' our body's systems all day long. http://www.contactplus.com/cellfood/cellfood.htm Roni Re: rheumatic For Roni > rheumatic@grou ps.com > > Thanks so much - seems like I am on the right track. I am currently taking a > > few of the supplements you are taking, as well as the cell food. Thanks > > again. Gail > > ************ > **It's only a deal if it's where you want to go. Find your travel > > deal here. > (> http://information.> travel.aol.> com/deals?> ncid=aoltrv00050> 000000047) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Roni - do you have a perception of which supp helps the most? Thanks Amy rbarna dejazzd.com wrote: > > > Hi, > > Here are the supplements that I take along with the AP for the > scleroderma. > > Serrapeptase (breakes up scar tissue) > Nattokinase - just started, supposed to take circulation, too soon to tell > Tocopheryl - Natural Vitamin E > Uva Ursi - at the moment to get rid of a yeast infection > Genestra Brand Replete - Acidophilus > Cell Food - drops in water > Rejuvenate - prescribed by my doctor to help DNA > Cod Liver Oil > Flax Seed > Evening Primrose Oil > MSM > Vitamin C > Grape Seed Extract > Aloe Vera (by Coats) > multi-vitamin > Calcium/Magnesium > Adrenal - a supplement prescribed by my doc to support the adrenal system > Dhea - 25mg a day > > When needed for illness - oregano oil and olive leaf > Tribulus to help with menopause symptoms > > I had been taking a product called Glycomanna for inflammation. It was > wonderful. But the company was sued by a multimarketing level company, > so the product is no longer available. Now I am taking Even Better Now > glyconutrients. It is too soon to tell if the products are equal in > effectivenss. > > Hope this helps. > > Roni > Re: rheumatic For Roni > > rheumatic@grou> ps.com > > Date: Friday, August 29, 2008, 1:40 PM > > > Could you share Roni what supplements you have been taking? I too > have SD > > and would be very interested to know. > > > Dr. T is my Dr.W. but I often think of seeing Dr. W. I am originally > from > > NJ, and would love to combine a visit to family there with a trip to > Dr. W. as > > well. > > > ************ **It's only a deal if it's where you want to go. Find > your travel > > deal here. > (> http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Also, about the Serrapeptase - where is the scar tissue that you want to break up? Thanks Amy rbarna dejazzd.com wrote: > > > Hi, > > Here are the supplements that I take along with the AP for the > scleroderma. > > Serrapeptase (breakes up scar tissue) > Nattokinase - just started, supposed to take circulation, too soon to tell > Tocopheryl - Natural Vitamin E > Uva Ursi - at the moment to get rid of a yeast infection > Genestra Brand Replete - Acidophilus > Cell Food - drops in water > Rejuvenate - prescribed by my doctor to help DNA > Cod Liver Oil > Flax Seed > Evening Primrose Oil > MSM > Vitamin C > Grape Seed Extract > Aloe Vera (by Coats) > multi-vitamin > Calcium/Magnesium > Adrenal - a supplement prescribed by my doc to support the adrenal system > Dhea - 25mg a day > > When needed for illness - oregano oil and olive leaf > Tribulus to help with menopause symptoms > > I had been taking a product called Glycomanna for inflammation. It was > wonderful. But the company was sued by a multimarketing level company, > so the product is no longer available. Now I am taking Even Better Now > glyconutrients. It is too soon to tell if the products are equal in > effectivenss. > > Hope this helps. > > Roni > Re: rheumatic For Roni > > rheumatic@grou> ps.com > > Date: Friday, August 29, 2008, 1:40 PM > > > Could you share Roni what supplements you have been taking? I too > have SD > > and would be very interested to know. > > > Dr. T is my Dr.W. but I often think of seeing Dr. W. I am originally > from > > NJ, and would love to combine a visit to family there with a trip to > Dr. W. as > > well. > > > ************ **It's only a deal if it's where you want to go. Find > your travel > > deal here. > (> http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047) > > > Quote Link to comment Share on other sites More sharing options...
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