Watch out for falling teeth!

[Guest guest]

Well, we had quite a rough weekend. Chelsea has been doing very well lately.

Saturday morning she was a bit on the sleepy side, but happy and playful. At

about 11:30 I put her down to play and she immediately had a severe,

convulsive seizure with cyanosis. I put O2 on her, but it seemed she was

having trouble coming out of the seizure. She appeared to doze off, but about

an hour later she had another seizure, slightly less intense. Now she was

really out of it. She had a fixed, glazed stare and was totally unresponsive.

I began to worry about status, but I have never seen that before. As I called

her dr(s), she continued to have short convulsions, and was still

unresponsive. I packed her up and headed to the ER. Once there and in a bed,

I noticed she was focusing on people and looking at me, but not moving at

all. There was concern that her lungs sounded bad, so a chest xray was done.

The ER doc came in with the xray and pointed out something in her lungs. The

words immediately popped out of Jeff's mouth, " her tooth! " , and that is

exactly what it was! Chelsea had aspirated a tooth she had lost on Jan. 15.

Well, to make a long story short, she had an emergency bronchoscopy and the

tooth was removed (quite a souvenir!). Chelsea handled the surgery superbly.

They were going to leave the tube down her lungs in case she needed

ventilation. But she was gagging so bad, they pulled it out. This from a

child who presented with no gag at her swallow study 2 years ago! She was

having minor breathing difficulties after the tube was pulled, but the resp.

tech. did some sort of jaw thrust and her breathing improved, and she only

needed 0.5lph O2. They kept her thru mon. morning, just to make sure the

swelling was staying down and she was fighting the infection. She is still

doing wonderfully! She was awake, alert, and smiling after her first feeding

on Sunday. She is still quite worn out and needing O2, but only a small

amount. I am still astounded that she was not sicker. I had been posting a

while back about her being sick for so long. She became ill with a resp.

infection early Jan. that lingered on until mid Feb. I am now wondering if

her tooth aggravated her condition for so long. The surgeons said the tooth

was lodged quite far down, and we are wondering if it had been stuck up

higher when she was sick and then became lodged down farther allowing her to

adequately oxygenate herself again. She was probably on her way to getting

very sick, the seizures must have been the first sign. Her activity has

returned to norm. Also, I have been keeping short notes since the first of

this year and her first cyanotic seizure seems to be about a week after she

inhaled the tooth. I am hoping there is a connection, but it will have to be

wait and see, I guess. I am posting this so you can all learn from our

ordeal. We will be keeping a much closer eye on her teeth, since she has lost

4 since July. The first one we never found either, but that seems to have

gone the right way! I feel very blessed that Chelsea has done so well, she

went thru quite a bit of trauma Saturday.

Well, I need to get back to catching up on mail! Hope you all are healthy!

e, Chelsea's mom(non-specific mito) & a super trooper!

[Guest guest]

e

I am so glad that Chelsea is doing well!! What an ordeal! You never think to worry about teeth falling out but you never know I guess. Thank God she is ok.

Sincerely,

Bridget

Watch out for falling teeth!

Well, we had quite a rough weekend. Chelsea has been doing very well lately. Saturday morning she was a bit on the sleepy side, but happy and playful. At about 11:30 I put her down to play and she immediately had a severe, convulsive seizure with cyanosis. I put O2 on her, but it seemed she was having trouble coming out of the seizure. She appeared to doze off, but about an hour later she had another seizure, slightly less intense. Now she was really out of it. She had a fixed, glazed stare and was totally unresponsive. I began to worry about status, but I have never seen that before. As I called her dr(s), she continued to have short convulsions, and was still unresponsive. I packed her up and headed to the ER. Once there and in a bed, I noticed she was focusing on people and looking at me, but not moving at all. There was concern that her lungs sounded bad, so a chest xray was done. The ER doc came in with the xray and pointed out something in her lungs. The words immediately popped out of Jeff's mouth, "her tooth!", and that is exactly what it was! Chelsea had aspirated a tooth she had lost on Jan. 15. Well, to make a long story short, she had an emergency bronchoscopy and the tooth was removed (quite a souvenir!). Chelsea handled the surgery superbly. They were going to leave the tube down her lungs in case she needed ventilation. But she was gagging so bad, they pulled it out. This from a child who presented with no gag at her swallow study 2 years ago! She was having minor breathing difficulties after the tube was pulled, but the resp. tech. did some sort of jaw thrust and her breathing improved, and she only needed 0.5lph O2. They kept her thru mon. morning, just to make sure the swelling was staying down and she was fighting the infection. She is still doing wonderfully! She was awake, alert, and smiling after her first feeding on Sunday. She is still quite worn out and needing O2, but only a small amount. I am still astounded that she was not sicker. I had been posting a while back about her being sick for so long. She became ill with a resp. infection early Jan. that lingered on until mid Feb. I am now wondering if her tooth aggravated her condition for so long. The surgeons said the tooth was lodged quite far down, and we are wondering if it had been stuck up higher when she was sick and then became lodged down farther allowing her to adequately oxygenate herself again. She was probably on her way to getting very sick, the seizures must have been the first sign. Her activity has returned to norm. Also, I have been keeping short notes since the first of this year and her first cyanotic seizure seems to be about a week after she inhaled the tooth. I am hoping there is a connection, but it will have to be wait and see, I guess. I am posting this so you can all learn from our ordeal. We will be keeping a much closer eye on her teeth, since she has lost 4 since July. The first one we never found either, but that seems to have gone the right way! I feel very blessed that Chelsea has done so well, she went thru quite a bit of trauma Saturday. Well, I need to get back to catching up on mail! Hope you all are healthy!e, Chelsea's mom(non-specific mito) & a super trooper!Please contact mito-owner with any problems or questions.

[Guest guest]

e,

What an amazing story!! Thanks for sharing this, as it is very handy to

know with being at the tooth loosing stage.

& Savage.

Watch out for falling teeth!

> Well, we had quite a rough weekend. Chelsea has been doing very well

lately.

> Saturday morning she was a bit on the sleepy side, but happy and playful.

At

> about 11:30 I put her down to play and she immediately had a severe,

> convulsive seizure with cyanosis. I put O2 on her, but it seemed she was

> having trouble coming out of the seizure. She appeared to doze off, but

about

> an hour later she had another seizure, slightly less intense. Now she was

> really out of it. She had a fixed, glazed stare and was totally

unresponsive.

> I began to worry about status, but I have never seen that before. As I

called

> her dr(s), she continued to have short convulsions, and was still

> unresponsive. I packed her up and headed to the ER. Once there and in a

bed,

> I noticed she was focusing on people and looking at me, but not moving at

> all. There was concern that her lungs sounded bad, so a chest xray was

done.

> The ER doc came in with the xray and pointed out something in her lungs.

The

> words immediately popped out of Jeff's mouth, " her tooth! " , and that is

> exactly what it was! Chelsea had aspirated a tooth she had lost on Jan.

15.

> Well, to make a long story short, she had an emergency bronchoscopy and

the

> tooth was removed (quite a souvenir!). Chelsea handled the surgery

superbly.

> They were going to leave the tube down her lungs in case she needed

> ventilation. But she was gagging so bad, they pulled it out. This from a

> child who presented with no gag at her swallow study 2 years ago! She was

> having minor breathing difficulties after the tube was pulled, but the

resp.

> tech. did some sort of jaw thrust and her breathing improved, and she only

> needed 0.5lph O2. They kept her thru mon. morning, just to make sure the

> swelling was staying down and she was fighting the infection. She is still

> doing wonderfully! She was awake, alert, and smiling after her first

feeding

> on Sunday. She is still quite worn out and needing O2, but only a small

> amount. I am still astounded that she was not sicker. I had been posting a

> while back about her being sick for so long. She became ill with a resp.

> infection early Jan. that lingered on until mid Feb. I am now wondering if

> her tooth aggravated her condition for so long. The surgeons said the

tooth

> was lodged quite far down, and we are wondering if it had been stuck up

> higher when she was sick and then became lodged down farther allowing her

to

> adequately oxygenate herself again. She was probably on her way to getting

> very sick, the seizures must have been the first sign. Her activity has

> returned to norm. Also, I have been keeping short notes since the first of

> this year and her first cyanotic seizure seems to be about a week after

she

> inhaled the tooth. I am hoping there is a connection, but it will have to

be

> wait and see, I guess. I am posting this so you can all learn from our

> ordeal. We will be keeping a much closer eye on her teeth, since she has

lost

> 4 since July. The first one we never found either, but that seems to have

> gone the right way! I feel very blessed that Chelsea has done so well, she

> went thru quite a bit of trauma Saturday.

> Well, I need to get back to catching up on mail! Hope you all are healthy!

>

> e, Chelsea's mom(non-specific mito) & a super trooper!