Re: PELVIC PAIN AND VULVODYNIA

[Guest guest]

Dee,

Thanks for sending this. I wish that they would have included

endometriosis as well.

Well, I do have the fibro, the IBS, and of course the

vulvodynia.

Going to do some more research on RSD at some point as well.

Kristy

__________________________________________________

[Guest guest]

Dee,

Thanks for sending this. I wish that they would have included

endometriosis as well.

Well, I do have the fibro, the IBS, and of course the

vulvodynia.

Going to do some more research on RSD at some point as well.

Kristy

__________________________________________________

[Guest guest]

Dee,

Thanks for sending this. I wish that they would have included

endometriosis as well.

Well, I do have the fibro, the IBS, and of course the

vulvodynia.

Going to do some more research on RSD at some point as well.

Kristy

__________________________________________________

[Guest guest]

Hi Dee,

Thanks for article.

I think the most important thing is said was:

" Many books, websites and research that discuss the

nonplus conditions mention that they frequently occur

together and some suggest a common underlying

mechanism is responsible for them. "

COMMON UNDERLYING MECHANISM=Find the real thing that

is causing all these syndromes--like Gluten

Sensitivity/Celiac Disease is high on the list and the

easiest to test for if you get an accurate test from

the only lab that has one in the country:

http://www.Enterolab.com

If you have a blood test from your doctor you will not

get the accurate diagnosis as they cannot find the

antibodies in the blood. By the time they get to the

blood stream they are so diffused they can't find

them. The stool tests at this particular lab is state

of the art and accurate. The immune reaction occurs in

the stool and if they are there, they can be found.

All of these syndromes Fibromyalgia, Myfascial Pain

Syndrome, Chronic Fatique, Irritable Bowel Syndrome

are simply clusters of symptoms. I was diagnosed with

them all. When you are diagnosed with one of these you

are tempted to think that this is the real disease.

They aren't. They are real indications of sickness

however. This article says it--find the underlying

mechanism or real primary cause. Keep looking in other

words and just don't accept the treatment for these

symptoms alone.

Just my opinion.

Arline

--- DeeTroll wrote:

> Hi all

> Small clip mainly abt. Fibro, etc. but mentions

> Vulvar pain and IB

> Dee ~

>

> Of the nonplus conditions, three can be considered

> core:

>

> a.. Chronic Fatigue,

> b.. Fibromyalgia and

> c.. Irritable Bowel.

> This is because they are the most common and may

> occur alone. The remaining nonplus conditions can be

> considered satellite conditions. This is because

> they are not as likely to occur alone but commonly

> attend one or all three of the core nonplus

> conditions. If you have one or more of the core

> conditions then you are likely to also have one or

> more of the satellite nonplus conditions. Many

> books, websites and research that discuss the

> nonplus conditions mention that they frequently

> occur together and some suggest a common underlying

> mechanism is responsible for them.

>

__________________________________________________

[Guest guest]

Hi Dee,

Thanks for article.

I think the most important thing is said was:

" Many books, websites and research that discuss the

nonplus conditions mention that they frequently occur

together and some suggest a common underlying

mechanism is responsible for them. "

COMMON UNDERLYING MECHANISM=Find the real thing that

is causing all these syndromes--like Gluten

Sensitivity/Celiac Disease is high on the list and the

easiest to test for if you get an accurate test from

the only lab that has one in the country:

http://www.Enterolab.com

If you have a blood test from your doctor you will not

get the accurate diagnosis as they cannot find the

antibodies in the blood. By the time they get to the

blood stream they are so diffused they can't find

them. The stool tests at this particular lab is state

of the art and accurate. The immune reaction occurs in

the stool and if they are there, they can be found.

All of these syndromes Fibromyalgia, Myfascial Pain

Syndrome, Chronic Fatique, Irritable Bowel Syndrome

are simply clusters of symptoms. I was diagnosed with

them all. When you are diagnosed with one of these you

are tempted to think that this is the real disease.

They aren't. They are real indications of sickness

however. This article says it--find the underlying

mechanism or real primary cause. Keep looking in other

words and just don't accept the treatment for these

symptoms alone.

Just my opinion.

Arline

--- DeeTroll wrote:

> Hi all

> Small clip mainly abt. Fibro, etc. but mentions

> Vulvar pain and IB

> Dee ~

>

> Of the nonplus conditions, three can be considered

> core:

>

> a.. Chronic Fatigue,

> b.. Fibromyalgia and

> c.. Irritable Bowel.

> This is because they are the most common and may

> occur alone. The remaining nonplus conditions can be

> considered satellite conditions. This is because

> they are not as likely to occur alone but commonly

> attend one or all three of the core nonplus

> conditions. If you have one or more of the core

> conditions then you are likely to also have one or

> more of the satellite nonplus conditions. Many

> books, websites and research that discuss the

> nonplus conditions mention that they frequently

> occur together and some suggest a common underlying

> mechanism is responsible for them.

>

__________________________________________________

[Guest guest]

Arline said : "I think the most important thing is said was:"Many books, websites and research that discuss thenonplus conditions mention that they frequently occurtogether and some suggest a common underlyingmechanism is responsible for them."

HI Ar.... I smiled when I saw that as well and of course thought of you and it definitely made your point and agree. But besides the gluten or food connection it could just as well be a virus or bacteria that's the cause of so much.

And that's what's so darn frustrating nailing it down and why I do agree it's best to at least rule out the Gluten & food connection as a first priori, That just makes so much sense to me.. if not, then prob. try the Lyme connection with the 'bugs' but with virus's? We're up the proverbial estuary with no means of locomotion.

Hugs

Dee~

[Guest guest]

Arline said : "I think the most important thing is said was:"Many books, websites and research that discuss thenonplus conditions mention that they frequently occurtogether and some suggest a common underlyingmechanism is responsible for them."

HI Ar.... I smiled when I saw that as well and of course thought of you and it definitely made your point and agree. But besides the gluten or food connection it could just as well be a virus or bacteria that's the cause of so much.

And that's what's so darn frustrating nailing it down and why I do agree it's best to at least rule out the Gluten & food connection as a first priori, That just makes so much sense to me.. if not, then prob. try the Lyme connection with the 'bugs' but with virus's? We're up the proverbial estuary with no means of locomotion.

Hugs

Dee~

[Guest guest]

My IBS was caused by a sugar overdose 12 years ago. It came b/c

of eating two super sweet pies within a matter of about 10

minutes without giving my body a break. Up until that time I

had never had bowel problems.

But eventually I do intend to get checked for Celiac as part of

putting all of the rest of my puzzle in to place like with the

possibility of IC and some other things I need to have checked

out.

Kristy

__________________________________________________

[Guest guest]

My IBS was caused by a sugar overdose 12 years ago. It came b/c

of eating two super sweet pies within a matter of about 10

minutes without giving my body a break. Up until that time I

had never had bowel problems.

But eventually I do intend to get checked for Celiac as part of

putting all of the rest of my puzzle in to place like with the

possibility of IC and some other things I need to have checked

out.

Kristy

__________________________________________________

[Guest guest]

Hi Dee,

Yes, I agree and that is why I say do the easy thing

first and have good test for gluten (the right one or

don't bother) or LYme or whatever other idea you might

have. If that isn't part of the answer, keep looking.

And of course there could be multiple problems--gluten

sensitivity and Lyme. Actually with gluten sensitivity

there most likely will be other things because of

malabsorption and the damage it causes. I don't know

anything about LYme Disease except the symptoms are

similar. If the bowel flora is upset like in

inflammatory bowel diseases (including and most

especially gluten sensitivity which is an autotimmune

attack) there is going to be bacteria all over the

place because a damaged intestine is a very fertile

place for bacteria to grow. Bacteria travels to

bladders and vaginas and stomachs and upwards.

Something has to mess up the bowel. There is a reason

for an unhealthy bowel with overgrowths of yeast and

bacteria. I don't think any of these things stand by

themselves unless it is Herpes, a virus, but that has

to do damage too which can produce bacteria. There is

always a primary reason, a beginning thing that causes

most disease. The meds don't really get into causes

and that is why we should.

Since the only autoimmune disease where we know the

cause is caused by food, that is where I think it

makes sense to look. There are others I am sure. When

I eat dairy I can hardly walk at all because my legs

hurt so much and because they just don't work. The

nerves are affected. I was sick Sunday and Monday and

didn't eat anything those two days except my powdered

amino acid non allergenic complete meal replacement

with orange juice. My legs felt wonderful. If I could

just stop eating foof and eat non allergic amino acids

I would feel wonderful. I think it is about

" circulating immune complexes " . I can't wait to see

more studies about that.

I just think first we should look to the food the

right way with the right tests until we can rule out

the easiest things to test and allergy tests won't do

the job.

Anyway thanks, Dee. I am just rambling as usual.

Arline

--- DeeTroll wrote:

> Arline said : " I think the most important thing is

> said was:

>

> " Many books, websites and research that discuss the

> nonplus conditions mention that they frequently

> occur

> together and some suggest a common underlying

> mechanism is responsible for them. "

>

>

> HI Ar.... I smiled when I saw that as well and of

> course thought of you and it definitely made your

> point and agree. But besides the gluten or food

> connection it could just as well be a virus or

> bacteria that's the cause of so much.

>

> And that's what's so darn frustrating nailing it

> down and why I do agree it's best to at least rule

> out the Gluten & food connection as a first priori,

> That just makes so much sense to me.. if not, then

> prob. try the Lyme connection with the 'bugs' but

> with virus's? We're up the proverbial estuary with

> no means of locomotion.

>

> Hugs

> Dee~

>

>

__________________________________________________

[Guest guest]

HI Arline.... always love your rambles so keep on keeping on...

When I was talking about those 'bugs' and virus's, I wasnt talking about the 'known' standard ones but the stealth ones, that some people are just now realizing may be part and parcel but have been totally missed or not looked for or can't think out of the box.

Ahhh we all should have been scientific researchers eh? Bet the group as whole all working on various things could have come up with some pretty exciting findings.

I do wish and hope that anyone who's got a myriad of things going on, far more than just V pain, (tho that's enough) at the minimum get that Gluten test done and at Enterolabs. *smile*.... You've definitely convinced me and Lyme also has so many of the exact same symptoms and takes years to tie it all together too and by then so much damage has been done as well. *sigh*

Take care

Hugs

Dee~