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Re: kelsey my daughter

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I'm not sure if it is RSS specific. I think it is an age thing from what I

am seeing with Colby, and his peers. School is boring when you look at the

environment kids are used to these days with the proliferation of

technology. I have a hard time understanding how it is that the school

systems are still using the old methods of teaching when kids today are used

to interactivity that would blow most adults minds away. Video games are a

good example of this. All the action that is taking place and the decisions

that need to be made throughout a game is awesome. I even thought it would

be great to have games where you scan yourself in, along with a favorite

character (like Barney for younger kids), and learn/play throughout the

lesson. Wouldn't it be cool to be racing your favorite character to win the

spelling bee or math challenge and learning at the same time. The Jumpstart

series of computer games is a great example of interactive learning that I

am talking about although it doesn't have the ability to do the scanning

part.

Again I think it is an age thing as much as RSS specific. I have a nephew

that does not have any special needs, as a matter of fact is in honors

classes, who won't even do his school work and is the same age as my son. I

also have a friend who's son is 2 years older that wa in honors for Science

and Math who's son failed Science and Math this year...because it was boring

and he didn't want to do the tedious work. As far as Colby is concerned,

sometimes its like he's right on track and other times he just doesn't seem

to get it. I have actually been in tears at work discussing this very issue

with co-workers. The problem was three-fold: Did I not work with him enough,

was he not trying hard enough, or was it the RSS and I was expecting too

much? I came to the following resolves: the school system has special

classes in place if he really needs them, if it is the RSS then I can't

change it, and finally, but most comforting is that I was not going to ruin

my relationship with Colby over this. He starts middle school next year and

I have really tried to let go of this over the past 2 months. He will be on

his own to be responsible for his grades and assignments. Currently he is

A/B honor role and has been for the most part of his academic career. I

think the biggest thing we need is to work on the school systems and their

teaching methods.

Well so much for my soapbox.

Regards,

mother of Colby almost 11 years old, 52 " , 52#

kelsey my daughter

I was just wondering if anyone is having the same problem i am? My 9

year old daughter kelsey is having a hard time paying attention in

school and can't concentrate, last year she went from being on honor

roll to this year barley passing, is this normal for a RSS child?

Thank you Jackie mom of kelsey

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Cara,

Your right, it seems like 3rd grade just killed her! I did talk to her

teacher and she said she gets along with everyone and does'nt have any

problems that way but when it comes to work and theres alot of stuff on the

paper they have to do kelsey just freaks out and can't do it, she is having a

hard time doing one thing at a time. She goes tomarrow for a c scan because

her migraines have gotten worse and more often. I have notice with kelsey if

you put her under pressure she is getting the migraines and alot of math,

ect.. on a paper is under pressure for her! It's not her to fall behind and

do bad in school. I've covered all the aspects when she is in school and

nothing seems to add up. Even at home it's gotten rough, i caught her

yesturday getting mad and she said she was going to pull her hair out and she

did!! She is'nt handleing her fustration! I almost died when she did that!!!

I just can't understand what is going on! Any advice is welcome!! Thank you

Jackie mom of kelsey

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Cara,

Your right, it seems like 3rd grade just killed her! I did talk to her

teacher and she said she gets along with everyone and does'nt have any

problems that way but when it comes to work and theres alot of stuff on the

paper they have to do kelsey just freaks out and can't do it, she is having a

hard time doing one thing at a time. She goes tomarrow for a c scan because

her migraines have gotten worse and more often. I have notice with kelsey if

you put her under pressure she is getting the migraines and alot of math,

ect.. on a paper is under pressure for her! It's not her to fall behind and

do bad in school. I've covered all the aspects when she is in school and

nothing seems to add up. Even at home it's gotten rough, i caught her

yesturday getting mad and she said she was going to pull her hair out and she

did!! She is'nt handleing her fustration! I almost died when she did that!!!

I just can't understand what is going on! Any advice is welcome!! Thank you

Jackie mom of kelsey

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Dear Jackie, I think we have chatted earlier about our daughters. Dallas is

in 1st grade - had her go thru kdg. twice bec. she had such problems with

speech and I believe the auditory procesing as well. I'm just learning

about rss but what i've read is that developmental problems inc. learning

problems will be hard in the beg. but they will catch up. My son who is npt

rss was the same way, where he did great up untill 3rd grd and then 4th grd

was a nightmare. They said that there is a big change between 3rd and 4th

and a lot more is put on the kids as far as learning. I asked teachers who

taught elem. and they said this is true. being an 8th grd spec ed teacher,

i feel like why don't we make this transition smoother then. I think there

are also a lot of other variables. How the teacher runs the classroom, is

your child bored, are there any attentional problems. Was Kelsey ever

tested for learning difficulties. You might want to consider getting some

educational testing done to get a true picture of her and rule out any

attentional problems. She could be like my other 14 year old son where he

would rather be off thinking about what motivates him instead of listening

when the directions are being given, then you get behind fast. Ask her

teacher exactly what is going on during the day, how the lessons are

presented and what Kelsey is doing whenever teacher directions are being

presented. Every child is different but like they say, Leave no child

behind. My oldest son had these kinds of problems and now finally in 8th

grade is making the honor roll. Cara

>

>Reply-To: RSS-Support

>To: RSS-Support

>Subject: kelsey my daughter

>Date: Wed, 15 May 2002 18:14:42 -0000

>

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Dear Jackie, I think we have chatted earlier about our daughters. Dallas is

in 1st grade - had her go thru kdg. twice bec. she had such problems with

speech and I believe the auditory procesing as well. I'm just learning

about rss but what i've read is that developmental problems inc. learning

problems will be hard in the beg. but they will catch up. My son who is npt

rss was the same way, where he did great up untill 3rd grd and then 4th grd

was a nightmare. They said that there is a big change between 3rd and 4th

and a lot more is put on the kids as far as learning. I asked teachers who

taught elem. and they said this is true. being an 8th grd spec ed teacher,

i feel like why don't we make this transition smoother then. I think there

are also a lot of other variables. How the teacher runs the classroom, is

your child bored, are there any attentional problems. Was Kelsey ever

tested for learning difficulties. You might want to consider getting some

educational testing done to get a true picture of her and rule out any

attentional problems. She could be like my other 14 year old son where he

would rather be off thinking about what motivates him instead of listening

when the directions are being given, then you get behind fast. Ask her

teacher exactly what is going on during the day, how the lessons are

presented and what Kelsey is doing whenever teacher directions are being

presented. Every child is different but like they say, Leave no child

behind. My oldest son had these kinds of problems and now finally in 8th

grade is making the honor roll. Cara

>

>Reply-To: RSS-Support

>To: RSS-Support

>Subject: kelsey my daughter

>Date: Wed, 15 May 2002 18:14:42 -0000

>

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

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Cara,

Thanks for the write back, no one else wrote! I don't believe we have a

committee around here at least none that i know! As far as any problems

before this year, well we realy did'nt have any! Besides kids teaseing her

about her teeth or glasses and we put a stop on that! She goes tonight for a

C Scan to see if anything is abnormal! But i have noticed that when she gets

fustrated or mad she will tighten up her muscles and shake her head and while

she is doing that she turns red, she also throws things or screems at

someone, like her brother or sister!!! I've never had this problem before and

it realy worries me. She has had 5 migraines and 3 regular headaches in the

past 2 weeks. Her homework load has cut down because it's the end of the year

and i've talked to her teacher all year and i just can't get whats going on!

I'm realy worried about her test tonight! Thanks and write back Jackie

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Cara,

Thanks for the write back, no one else wrote! I don't believe we have a

committee around here at least none that i know! As far as any problems

before this year, well we realy did'nt have any! Besides kids teaseing her

about her teeth or glasses and we put a stop on that! She goes tonight for a

C Scan to see if anything is abnormal! But i have noticed that when she gets

fustrated or mad she will tighten up her muscles and shake her head and while

she is doing that she turns red, she also throws things or screems at

someone, like her brother or sister!!! I've never had this problem before and

it realy worries me. She has had 5 migraines and 3 regular headaches in the

past 2 weeks. Her homework load has cut down because it's the end of the year

and i've talked to her teacher all year and i just can't get whats going on!

I'm realy worried about her test tonight! Thanks and write back Jackie

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Cara,

Thanks for the write back, no one else wrote! I don't believe we have a

committee around here at least none that i know! As far as any problems

before this year, well we realy did'nt have any! Besides kids teaseing her

about her teeth or glasses and we put a stop on that! She goes tonight for a

C Scan to see if anything is abnormal! But i have noticed that when she gets

fustrated or mad she will tighten up her muscles and shake her head and while

she is doing that she turns red, she also throws things or screems at

someone, like her brother or sister!!! I've never had this problem before and

it realy worries me. She has had 5 migraines and 3 regular headaches in the

past 2 weeks. Her homework load has cut down because it's the end of the year

and i've talked to her teacher all year and i just can't get whats going on!

I'm realy worried about her test tonight! Thanks and write back Jackie

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Inga,

Yes we did see a nuerologist and he put her on medication but the problem we

are having is that when she gets the migraines she gets sick and can't keep

anything down so medication does'nt help!! So it's very hard to stop the

migraines, she has to just sleep it off and hope she is better the next day!

I feel so bad for her when she is sick, and unfortunantly she normaly does'nt

know when she is getting a headache so they just pop up on her and boom she

is sick!! Thanks so much for you input

Jackie mom of kelsey

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Inga,

Yes we did see a nuerologist and he put her on medication but the problem we

are having is that when she gets the migraines she gets sick and can't keep

anything down so medication does'nt help!! So it's very hard to stop the

migraines, she has to just sleep it off and hope she is better the next day!

I feel so bad for her when she is sick, and unfortunantly she normaly does'nt

know when she is getting a headache so they just pop up on her and boom she

is sick!! Thanks so much for you input

Jackie mom of kelsey

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Guest guest

Inga,

Yes we did see a nuerologist and he put her on medication but the problem we

are having is that when she gets the migraines she gets sick and can't keep

anything down so medication does'nt help!! So it's very hard to stop the

migraines, she has to just sleep it off and hope she is better the next day!

I feel so bad for her when she is sick, and unfortunantly she normaly does'nt

know when she is getting a headache so they just pop up on her and boom she

is sick!! Thanks so much for you input

Jackie mom of kelsey

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Jackie, If Kelsey has too much on her plate and is getting frustrated to

the point of more migraines, the cycle has to stop somewhere or she will

start to give up or tell you things like I'll pull my hair out-and actually

do it! It's the end of the school year now so not too much you can do for

this year but, please go in and voice your concerns with her teacher and

possibly refer her to the child study committee. Do you have somthing like

this? Is there any summer school or remediation classes for kids that she

could take to improve her skills? Has she been tested for learning problems

through the school system? If not you would really want to get this in

order because it can take sixty working days before they have to test her if

the child study committee believes this is necessary. I have to go but

write back with some more info. Cara

>From: bigblueyes2@...

>Reply-To: RSS-Support

>To: RSS-Support

>Subject: Re: kelsey my daughter

>Date: Mon, 20 May 2002 11:27:40 EDT

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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Jackie, If Kelsey has too much on her plate and is getting frustrated to

the point of more migraines, the cycle has to stop somewhere or she will

start to give up or tell you things like I'll pull my hair out-and actually

do it! It's the end of the school year now so not too much you can do for

this year but, please go in and voice your concerns with her teacher and

possibly refer her to the child study committee. Do you have somthing like

this? Is there any summer school or remediation classes for kids that she

could take to improve her skills? Has she been tested for learning problems

through the school system? If not you would really want to get this in

order because it can take sixty working days before they have to test her if

the child study committee believes this is necessary. I have to go but

write back with some more info. Cara

>From: bigblueyes2@...

>Reply-To: RSS-Support

>To: RSS-Support

>Subject: Re: kelsey my daughter

>Date: Mon, 20 May 2002 11:27:40 EDT

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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Guest guest

Jackie, If Kelsey has too much on her plate and is getting frustrated to

the point of more migraines, the cycle has to stop somewhere or she will

start to give up or tell you things like I'll pull my hair out-and actually

do it! It's the end of the school year now so not too much you can do for

this year but, please go in and voice your concerns with her teacher and

possibly refer her to the child study committee. Do you have somthing like

this? Is there any summer school or remediation classes for kids that she

could take to improve her skills? Has she been tested for learning problems

through the school system? If not you would really want to get this in

order because it can take sixty working days before they have to test her if

the child study committee believes this is necessary. I have to go but

write back with some more info. Cara

>From: bigblueyes2@...

>Reply-To: RSS-Support

>To: RSS-Support

>Subject: Re: kelsey my daughter

>Date: Mon, 20 May 2002 11:27:40 EDT

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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Jackie,

Just in case it helps, I'll share my experience with migraines. I had a

migraine-equivalent seizure disorder through my teens. I used to see a

ball of colors, like some people see after getting a flash picture taken.

It would go around my head and I would twitch each time it did. Afterwards

I would have a bad headache and not see well. It would tend to happen

correlating with my meunstral cycle, and it went away after puberty. They

said that the hormonal shift during puberty caused it. They tried several

medications that didn't really work well, but Dilantin finally helped - I

finally got this after having a grand mal seizure. They said that the

migraine part could be hereditary. I saw the color ball in my childhood on

rare occasions.

Have you had Kelsey checked by a neurologist? We didn't get any

satisfactory care at all until my gym teacher saw me having one and

suggested the possibility of petit mal. The pediatrician didn't think of

it before then. You might want to check out what a neurologist would say -

I think they treat migraines...

Inga

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Jackie,

Just in case it helps, I'll share my experience with migraines. I had a

migraine-equivalent seizure disorder through my teens. I used to see a

ball of colors, like some people see after getting a flash picture taken.

It would go around my head and I would twitch each time it did. Afterwards

I would have a bad headache and not see well. It would tend to happen

correlating with my meunstral cycle, and it went away after puberty. They

said that the hormonal shift during puberty caused it. They tried several

medications that didn't really work well, but Dilantin finally helped - I

finally got this after having a grand mal seizure. They said that the

migraine part could be hereditary. I saw the color ball in my childhood on

rare occasions.

Have you had Kelsey checked by a neurologist? We didn't get any

satisfactory care at all until my gym teacher saw me having one and

suggested the possibility of petit mal. The pediatrician didn't think of

it before then. You might want to check out what a neurologist would say -

I think they treat migraines...

Inga

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Guest guest

Jackie,

Just in case it helps, I'll share my experience with migraines. I had a

migraine-equivalent seizure disorder through my teens. I used to see a

ball of colors, like some people see after getting a flash picture taken.

It would go around my head and I would twitch each time it did. Afterwards

I would have a bad headache and not see well. It would tend to happen

correlating with my meunstral cycle, and it went away after puberty. They

said that the hormonal shift during puberty caused it. They tried several

medications that didn't really work well, but Dilantin finally helped - I

finally got this after having a grand mal seizure. They said that the

migraine part could be hereditary. I saw the color ball in my childhood on

rare occasions.

Have you had Kelsey checked by a neurologist? We didn't get any

satisfactory care at all until my gym teacher saw me having one and

suggested the possibility of petit mal. The pediatrician didn't think of

it before then. You might want to check out what a neurologist would say -

I think they treat migraines...

Inga

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Jackie - I wish you the best of luck. I have absolutely no

experience in this area, so I am guessing that is probably why others

are not responding as well.

> Cara,

> Thanks for the write back, no one else wrote! I don't believe we

have a

> committee around here at least none that i know! As far as any

problems

> before this year, well we realy did'nt have any! Besides kids

teaseing her

> about her teeth or glasses and we put a stop on that! She goes

tonight for a

> C Scan to see if anything is abnormal! But i have noticed that when

she gets

> fustrated or mad she will tighten up her muscles and shake her head

and while

> she is doing that she turns red, she also throws things or screems

at

> someone, like her brother or sister!!! I've never had this problem

before and

> it realy worries me. She has had 5 migraines and 3 regular

headaches in the

> past 2 weeks. Her homework load has cut down because it's the end

of the year

> and i've talked to her teacher all year and i just can't get whats

going on!

> I'm realy worried about her test tonight! Thanks and write back

Jackie

>

>

>

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Guest guest

Jackie - I wish you the best of luck. I have absolutely no

experience in this area, so I am guessing that is probably why others

are not responding as well.

> Cara,

> Thanks for the write back, no one else wrote! I don't believe we

have a

> committee around here at least none that i know! As far as any

problems

> before this year, well we realy did'nt have any! Besides kids

teaseing her

> about her teeth or glasses and we put a stop on that! She goes

tonight for a

> C Scan to see if anything is abnormal! But i have noticed that when

she gets

> fustrated or mad she will tighten up her muscles and shake her head

and while

> she is doing that she turns red, she also throws things or screems

at

> someone, like her brother or sister!!! I've never had this problem

before and

> it realy worries me. She has had 5 migraines and 3 regular

headaches in the

> past 2 weeks. Her homework load has cut down because it's the end

of the year

> and i've talked to her teacher all year and i just can't get whats

going on!

> I'm realy worried about her test tonight! Thanks and write back

Jackie

>

>

>

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Jackie,

I feel so badly for not writing/responding to your message. I guess

I have been so busy with my own situations here that I have not

really done a great job of supporting others. I always feel bad

when no one responds to someone's call for help.

That being said, I think you have had some good suggestions about

lightening the workload for Kelsey. That is a good place to start.

Another thing you may want to consider is some psychotherapy

intervention. It seems like Kelsey reacts in anger a lot in the way

that Max used to react. He still does a little bit, but it is so

much better!!! While he did not have head migraines, he did have

abdominal migraines and they made his, and our, life miserable. He

started out with a great psychologist and saw her twice a week for a

year. Now he goest to her once a week and attends a Saturday

morning social skills class. He is a different child. He has

learned how to handle his anger and frustration in a much more

productive way and the stomach aches have gone away.

I don't know how you feel about medication, but there are a whole

list of meds for kids that will also help with this situation. Max

takes his share of meds and they have really helped. As you may or

may not know, last August Max was diagnosed with Tourette's Syndrome

and that made things so much more complicated and added to his

stress. Thankfully we have found the right combo of meds and

therapy and he is, for now, not having any noticeable tics. They

will return, unfortunately, but at least things are under control

for now.

If you would like to, please email me privately. I can talk to you

more about it and maybe we can brainstorm together. My address is

magicrss@ hotmail.com.

Jodi

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Jackie,

One of our pastor's wives is a nurse who gets terrible migraines, and I heard

that she has to inject herself in order to relieve them at times. As hard as

it is to start injecting (I have that experience with Tim's GH), it might be

worth looking into... I think it might not be something that is as commonly

done, but then her degree of migraines may not be so common, either.

Inga

At 03:58 PM 5/21/2002 -0400, you wrote:

>

> Inga,

> Yes we did see a nuerologist and he put her on medication but the problem we

> are having is that when she gets the migraines she gets sick and can't keep

> anything down so medication does'nt help!! So it's very hard to stop the

> migraines, she has to just sleep it off and hope she is better the next day!

> I feel so bad for her when she is sick, and unfortunantly she normaly does'nt

>

> know when she is getting a headache so they just pop up on her and boom she

> is sick!! Thanks so much for you input

> Jackie mom of kelsey

>

>

>

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Guest guest

Jackie,

One of our pastor's wives is a nurse who gets terrible migraines, and I heard

that she has to inject herself in order to relieve them at times. As hard as

it is to start injecting (I have that experience with Tim's GH), it might be

worth looking into... I think it might not be something that is as commonly

done, but then her degree of migraines may not be so common, either.

Inga

At 03:58 PM 5/21/2002 -0400, you wrote:

>

> Inga,

> Yes we did see a nuerologist and he put her on medication but the problem we

> are having is that when she gets the migraines she gets sick and can't keep

> anything down so medication does'nt help!! So it's very hard to stop the

> migraines, she has to just sleep it off and hope she is better the next day!

> I feel so bad for her when she is sick, and unfortunantly she normaly does'nt

>

> know when she is getting a headache so they just pop up on her and boom she

> is sick!! Thanks so much for you input

> Jackie mom of kelsey

>

>

>

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