Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Hello Everyone, I am a silent member. I just read the e-mails most of the time. I treasure this group. But I have a problem I need your help with. Because of an inflammation in my brain my neurologist put me on 20 mg of predisione. I was tapered down to 2 1/2 and stopped on the 1st. I had an appointment with a Rheum on that Wednesday (new doc, first RH appt). I took all my medical records with me from the Pulm, Card, and Nuero. The Pulm found blebs and bulla in my lungs and said that my lymph nodes in my chest were inflamed. He said he did not think it was sarc. He did not know what it was. Now mind you I did had a large brain lesion 2 years ago. It came back, that’s why the 20 mg. I saw on the CT report that they found small cysts in my liver and spleen. I was not told about this because they said they were so small and did not know what they were. Anyway, after 2 rheumey's examine me they tell my I have to go back on steroids. Of course I am devastated. I ask why !? They tell me my paritoid glands (in the neck?) are swollen and because of the other stuff I've told them (pain in hands and feet, achy all the time, fatigue, facial numbness and twitching). They tell me if I don't go back on pred I could risk facial paralysis or maybe even stroke (I have a lot of cranial nerve involvement). They also tell me the sarc is probably spreading and I'll probably be on steroids at some dose the rest of my life because this disease doesn’t go away. Of course I call my Neuro. He calls them and he agrees with them saying " you won't be on them forever, but they fee you need to be on something. Anyway, the Rheum sends me for blood work and also to a Derm for a biopsy of my salivary glands. I go back in four weeks. They are going to look at the CT scan that the Pulm did to see if they can get a good biopsy of some lymph tissue in my chest. I hate them, but am also grateful. I asked him about the other drugs. He said the insurance company had not approved them for use for this disease yet and they are very expensive. What to do? What to do? I guess I can only do what they tell me huh ? I'm tempted to not take the steroids at all. I've already gain 30 pounds in the last 6 months. Opinions ? Advise ? Comments ? Anything... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi Everyone, This is in relation to the e-mail below. I got some tests results back from the Rheum doc. It stated that my C-reactive protein was 10 (high) and my bicarbonate was 18 (low). I've done some research but come up with nothing I'm satisfied with. I have an appointment with him on March 5. I spoke with him and he told me it just means I have inflammation (some evidence of sarc) in my body. He will discuss further on next visit. Does anyone know what these levels could indicate ? Feeling discouraged Hello Everyone, I am a silent member. I just read the e-mails most of the time. I treasure this group. But I have a problem I need your help with. Because of an inflammation in my brain my neurologist put me on 20 mg of predisione. I was tapered down to 2 1/2 and stopped on the 1st. I had an appointment with a Rheum on that Wednesday (new doc, first RH appt). I took all my medical records with me from the Pulm, Card, and Nuero. The Pulm found blebs and bulla in my lungs and said that my lymph nodes in my chest were inflamed. He said he did not think it was sarc. He did not know what it was. Now mind you I did had a large brain lesion 2 years ago. It came back, that’s why the 20 mg. I saw on the CT report that they found small cysts in my liver and spleen. I was not told about this because they said they were so small and did not know what they were. Anyway, after 2 rheumey's examine me they tell my I have to go back on steroids. Of course I am devastated. I ask why !? They tell me my paritoid glands (in the neck?) are swollen and because of the other stuff I've told them (pain in hands and feet, achy all the time, fatigue, facial numbness and twitching). They tell me if I don't go back on pred I could risk facial paralysis or maybe even stroke (I have a lot of cranial nerve involvement). They also tell me the sarc is probably spreading and I'll probably be on steroids at some dose the rest of my life because this disease doesn’t go away. Of course I call my Neuro. He calls them and he agrees with them saying " you won't be on them forever, but they fee you need to be on something. Anyway, the Rheum sends me for blood work and also to a Derm for a biopsy of my salivary glands. I go back in four weeks. They are going to look at the CT scan that the Pulm did to see if they can get a good biopsy of some lymph tissue in my chest. I hate them, but am also grateful. I asked him about the other drugs. He said the insurance company had not approved them for use for this disease yet and they are very expensive. What to do? What to do? I guess I can only do what they tell me huh ? I'm tempted to not take the steroids at all. I've already gain 30 pounds in the last 6 months. Opinions ? Advise ? Comments ? Anything... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi Everyone, This is in relation to the e-mail below. I got some tests results back from the Rheum doc. It stated that my C-reactive protein was 10 (high) and my bicarbonate was 18 (low). I've done some research but come up with nothing I'm satisfied with. I have an appointment with him on March 5. I spoke with him and he told me it just means I have inflammation (some evidence of sarc) in my body. He will discuss further on next visit. Does anyone know what these levels could indicate ? Feeling discouraged Hello Everyone, I am a silent member. I just read the e-mails most of the time. I treasure this group. But I have a problem I need your help with. Because of an inflammation in my brain my neurologist put me on 20 mg of predisione. I was tapered down to 2 1/2 and stopped on the 1st. I had an appointment with a Rheum on that Wednesday (new doc, first RH appt). I took all my medical records with me from the Pulm, Card, and Nuero. The Pulm found blebs and bulla in my lungs and said that my lymph nodes in my chest were inflamed. He said he did not think it was sarc. He did not know what it was. Now mind you I did had a large brain lesion 2 years ago. It came back, that’s why the 20 mg. I saw on the CT report that they found small cysts in my liver and spleen. I was not told about this because they said they were so small and did not know what they were. Anyway, after 2 rheumey's examine me they tell my I have to go back on steroids. Of course I am devastated. I ask why !? They tell me my paritoid glands (in the neck?) are swollen and because of the other stuff I've told them (pain in hands and feet, achy all the time, fatigue, facial numbness and twitching). They tell me if I don't go back on pred I could risk facial paralysis or maybe even stroke (I have a lot of cranial nerve involvement). They also tell me the sarc is probably spreading and I'll probably be on steroids at some dose the rest of my life because this disease doesn’t go away. Of course I call my Neuro. He calls them and he agrees with them saying " you won't be on them forever, but they fee you need to be on something. Anyway, the Rheum sends me for blood work and also to a Derm for a biopsy of my salivary glands. I go back in four weeks. They are going to look at the CT scan that the Pulm did to see if they can get a good biopsy of some lymph tissue in my chest. I hate them, but am also grateful. I asked him about the other drugs. He said the insurance company had not approved them for use for this disease yet and they are very expensive. What to do? What to do? I guess I can only do what they tell me huh ? I'm tempted to not take the steroids at all. I've already gain 30 pounds in the last 6 months. Opinions ? Advise ? Comments ? Anything... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi check out these sites, the first one explains the bicarbonate, it has to do with metabolism.... http://yourhealth.stlukesonline.org/library/healthguide/MedicalTests/topic.asp?hwid=hw3427 Then this site is about CRP.. which is C-Reactive Protein http://www.haps.nsw.gov.au/edrsrch/edinfo/crp.html Now don't be fooled about these sites cause they don't mention sarcoid.. most sites don't they have never heard of the disease, but any time they mention inflammatory disease they are talking to us, because Sarcoidosis is a inflammatory disease as well as being a granulomas disease ... Hope this helps. Hugs, -- Fw: Feeling discouraged Hi Everyone, This is in relation to the e-mail below. I got some tests results back from the Rheum doc. It stated that my C-reactive protein was 10 (high) and my bicarbonate was 18 (low). I've done some research but come up with nothing I'm satisfied with. I have an appointment with him on March 5. I spoke with him and he told me it just means I have inflammation (some evidence of sarc) in my body. He will discuss further on next visit. Does anyone know what these levels could indicate ? Feeling discouraged Hello Everyone, I am a silent member. I just read the e-mails most of the time. I treasure this group. But I have a problem I need your help with. Because of an inflammation in my brain my neurologist put me on 20 mg of predisione. I was tapered down to 2 1/2 and stopped on the 1st. I had an appointment with a Rheum on that Wednesday (new doc, first RH appt). I took all my medical records with me from the Pulm, Card, and Nuero. The Pulm found blebs and bulla in my lungs and said that my lymph nodes in my chest were inflamed. He said he did not think it was sarc. He did not know what it was. Now mind you I did had a large brain lesion 2 years ago. It came back, that’s why the 20 mg. I saw on the CT report that they found small cysts in my liver and spleen. I was not told about this because they said they were so small and did not know what they were. Anyway, after 2 rheumey's examine me they tell my I have to go back on steroids. Of course I am devastated. I ask why !? They tell me my paritoid glands (in the neck?) are swollen and because of the other stuff I've told them (pain in hands and feet, achy all the time, fatigue, facial numbness and twitching). They tell me if I don't go back on pred I could risk facial paralysis or maybe even stroke (I have a lot of cranial nerve involvement). They also tell me the sarc is probably spreading and I'll probably be on steroids at some dose the rest of my life because this disease doesn’t go away. Of course I call my Neuro. He calls them and he agrees with them saying " you won't be on them forever, but they fee you need to be on something. Anyway, the Rheum sends me for blood work and also to a Derm for a biopsy of my salivary glands. I go back in four weeks. They are going to look at the CT scan that the Pulm did to see if they can get a good biopsy of some lymph tissue in my chest. I hate them, but am also grateful. I asked him about the other drugs. He said the insurance company had not approved them for use for this disease yet and they are very expensive. What to do? What to do? I guess I can only do what they tell me huh ? I'm tempted to not take the steroids at all. I've already gain 30 pounds in the last 6 months. Opinions ? Advise ? Comments ? Anything... ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi check out these sites, the first one explains the bicarbonate, it has to do with metabolism.... http://yourhealth.stlukesonline.org/library/healthguide/MedicalTests/topic.asp?hwid=hw3427 Then this site is about CRP.. which is C-Reactive Protein http://www.haps.nsw.gov.au/edrsrch/edinfo/crp.html Now don't be fooled about these sites cause they don't mention sarcoid.. most sites don't they have never heard of the disease, but any time they mention inflammatory disease they are talking to us, because Sarcoidosis is a inflammatory disease as well as being a granulomas disease ... Hope this helps. Hugs, -- Fw: Feeling discouraged Hi Everyone, This is in relation to the e-mail below. I got some tests results back from the Rheum doc. It stated that my C-reactive protein was 10 (high) and my bicarbonate was 18 (low). I've done some research but come up with nothing I'm satisfied with. I have an appointment with him on March 5. I spoke with him and he told me it just means I have inflammation (some evidence of sarc) in my body. He will discuss further on next visit. Does anyone know what these levels could indicate ? Feeling discouraged Hello Everyone, I am a silent member. I just read the e-mails most of the time. I treasure this group. But I have a problem I need your help with. Because of an inflammation in my brain my neurologist put me on 20 mg of predisione. I was tapered down to 2 1/2 and stopped on the 1st. I had an appointment with a Rheum on that Wednesday (new doc, first RH appt). I took all my medical records with me from the Pulm, Card, and Nuero. The Pulm found blebs and bulla in my lungs and said that my lymph nodes in my chest were inflamed. He said he did not think it was sarc. He did not know what it was. Now mind you I did had a large brain lesion 2 years ago. It came back, that’s why the 20 mg. I saw on the CT report that they found small cysts in my liver and spleen. I was not told about this because they said they were so small and did not know what they were. Anyway, after 2 rheumey's examine me they tell my I have to go back on steroids. Of course I am devastated. I ask why !? They tell me my paritoid glands (in the neck?) are swollen and because of the other stuff I've told them (pain in hands and feet, achy all the time, fatigue, facial numbness and twitching). They tell me if I don't go back on pred I could risk facial paralysis or maybe even stroke (I have a lot of cranial nerve involvement). They also tell me the sarc is probably spreading and I'll probably be on steroids at some dose the rest of my life because this disease doesn’t go away. Of course I call my Neuro. He calls them and he agrees with them saying " you won't be on them forever, but they fee you need to be on something. Anyway, the Rheum sends me for blood work and also to a Derm for a biopsy of my salivary glands. I go back in four weeks. They are going to look at the CT scan that the Pulm did to see if they can get a good biopsy of some lymph tissue in my chest. I hate them, but am also grateful. I asked him about the other drugs. He said the insurance company had not approved them for use for this disease yet and they are very expensive. What to do? What to do? I guess I can only do what they tell me huh ? I'm tempted to not take the steroids at all. I've already gain 30 pounds in the last 6 months. Opinions ? Advise ? Comments ? Anything... ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Thanks . I found that second sight that you passed on to quite interesting. It was helpful in some research I am doing. Luv , Debbie > Hi check out these sites, the first one explains the bicarbonate, it > has to do with metabolism.... http://yourhealth.stlukesonline > org/library/healthguide/MedicalTests/topic.asp?hwid=hw3427 > > Then this site is about CRP.. which is C-Reactive Protein http://www.haps > nsw.gov.au/edrsrch/edinfo/crp.html Now don't be fooled about these sites > cause they don't mention sarcoid.. most sites don't they have never heard of > the disease, but any time they mention inflammatory disease they are > talking to us, because Sarcoidosis is a inflammatory disease as well as > being a granulomas disease ... Hope this helps. > > Hugs, > > -- Fw: Feeling discouraged > > Hi Everyone, > > This is in relation to the e-mail below. I got some tests results back from > the Rheum doc. It stated that my C-reactive protein was 10 (high) and my > bicarbonate was 18 (low). I've done some research but come up with nothing > I'm satisfied with. I have an appointment with him on March 5. I spoke > with him and he told me it just means I have inflammation (some evidence of > sarc) in my body. He will discuss further on next visit. Does anyone know > what these levels could indicate ? > > > Feeling discouraged > > > Hello Everyone, > > I am a silent member. I just read the e-mails most of the time. I treasure > this group. But I have a problem I need your help with. > > Because of an inflammation in my brain my neurologist put me on 20 mg of > predisione. I was tapered down to 2 1/2 and stopped on the 1st. I had an > appointment with a Rheum on that Wednesday (new doc, first RH appt). I took > all my medical records with me from the Pulm, Card, and Nuero. The Pulm > found blebs and bulla in my lungs and said that my lymph nodes in my chest > were inflamed. He said he did not think it was sarc. He did not know what > it was. > > Now mind you I did had a large brain lesion 2 years ago. It came back, > that's why the 20 mg. > > I saw on the CT report that they found small cysts in my liver and spleen. > I was not told about this because they said they were so small and did not > know what they were. > > Anyway, after 2 rheumey's examine me they tell my I have to go back on > steroids. Of course I am devastated. I ask why !? They tell me my > paritoid glands (in the neck?) are swollen and because of the other stuff I > ve told them (pain in hands and feet, achy all the time, fatigue, facial > numbness and twitching). They tell me if I don't go back on pred I could > risk facial paralysis or maybe even stroke (I have a lot of cranial nerve > involvement). They also tell me the sarc is probably spreading and I'll > probably be on steroids at some dose the rest of my life because this > disease doesn't go away. > > Of course I call my Neuro. He calls them and he agrees with them saying " > you won't be on them forever, but they fee you need to be on something. > Anyway, the Rheum sends me for blood work and also to a Derm for a biopsy of > my salivary glands. I go back in four weeks. They are going to look at the > CT scan that the Pulm did to see if they can get a good biopsy of some lymph > tissue in my chest. I hate them, but am also grateful. I asked him about > the other drugs. He said the insurance company had not approved them for > use for this disease yet and they are very expensive. What to do? What to > do? I guess I can only do what they tell me huh ? I'm tempted to not take > the steroids at all. I've already gain 30 pounds in the last 6 months. > Opinions ? Advise ? Comments ? Anything... > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Thanks . I found that second sight that you passed on to quite interesting. It was helpful in some research I am doing. Luv , Debbie > Hi check out these sites, the first one explains the bicarbonate, it > has to do with metabolism.... http://yourhealth.stlukesonline > org/library/healthguide/MedicalTests/topic.asp?hwid=hw3427 > > Then this site is about CRP.. which is C-Reactive Protein http://www.haps > nsw.gov.au/edrsrch/edinfo/crp.html Now don't be fooled about these sites > cause they don't mention sarcoid.. most sites don't they have never heard of > the disease, but any time they mention inflammatory disease they are > talking to us, because Sarcoidosis is a inflammatory disease as well as > being a granulomas disease ... Hope this helps. > > Hugs, > > -- Fw: Feeling discouraged > > Hi Everyone, > > This is in relation to the e-mail below. I got some tests results back from > the Rheum doc. It stated that my C-reactive protein was 10 (high) and my > bicarbonate was 18 (low). I've done some research but come up with nothing > I'm satisfied with. I have an appointment with him on March 5. I spoke > with him and he told me it just means I have inflammation (some evidence of > sarc) in my body. He will discuss further on next visit. Does anyone know > what these levels could indicate ? > > > Feeling discouraged > > > Hello Everyone, > > I am a silent member. I just read the e-mails most of the time. I treasure > this group. But I have a problem I need your help with. > > Because of an inflammation in my brain my neurologist put me on 20 mg of > predisione. I was tapered down to 2 1/2 and stopped on the 1st. I had an > appointment with a Rheum on that Wednesday (new doc, first RH appt). I took > all my medical records with me from the Pulm, Card, and Nuero. The Pulm > found blebs and bulla in my lungs and said that my lymph nodes in my chest > were inflamed. He said he did not think it was sarc. He did not know what > it was. > > Now mind you I did had a large brain lesion 2 years ago. It came back, > that's why the 20 mg. > > I saw on the CT report that they found small cysts in my liver and spleen. > I was not told about this because they said they were so small and did not > know what they were. > > Anyway, after 2 rheumey's examine me they tell my I have to go back on > steroids. Of course I am devastated. I ask why !? They tell me my > paritoid glands (in the neck?) are swollen and because of the other stuff I > ve told them (pain in hands and feet, achy all the time, fatigue, facial > numbness and twitching). They tell me if I don't go back on pred I could > risk facial paralysis or maybe even stroke (I have a lot of cranial nerve > involvement). They also tell me the sarc is probably spreading and I'll > probably be on steroids at some dose the rest of my life because this > disease doesn't go away. > > Of course I call my Neuro. He calls them and he agrees with them saying " > you won't be on them forever, but they fee you need to be on something. > Anyway, the Rheum sends me for blood work and also to a Derm for a biopsy of > my salivary glands. I go back in four weeks. They are going to look at the > CT scan that the Pulm did to see if they can get a good biopsy of some lymph > tissue in my chest. I hate them, but am also grateful. I asked him about > the other drugs. He said the insurance company had not approved them for > use for this disease yet and they are very expensive. What to do? What to > do? I guess I can only do what they tell me huh ? I'm tempted to not take > the steroids at all. I've already gain 30 pounds in the last 6 months. > Opinions ? Advise ? Comments ? Anything... > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Thanks . I found that second sight that you passed on to quite interesting. It was helpful in some research I am doing. Luv , Debbie > Hi check out these sites, the first one explains the bicarbonate, it > has to do with metabolism.... http://yourhealth.stlukesonline > org/library/healthguide/MedicalTests/topic.asp?hwid=hw3427 > > Then this site is about CRP.. which is C-Reactive Protein http://www.haps > nsw.gov.au/edrsrch/edinfo/crp.html Now don't be fooled about these sites > cause they don't mention sarcoid.. most sites don't they have never heard of > the disease, but any time they mention inflammatory disease they are > talking to us, because Sarcoidosis is a inflammatory disease as well as > being a granulomas disease ... Hope this helps. > > Hugs, > > -- Fw: Feeling discouraged > > Hi Everyone, > > This is in relation to the e-mail below. I got some tests results back from > the Rheum doc. It stated that my C-reactive protein was 10 (high) and my > bicarbonate was 18 (low). I've done some research but come up with nothing > I'm satisfied with. I have an appointment with him on March 5. I spoke > with him and he told me it just means I have inflammation (some evidence of > sarc) in my body. He will discuss further on next visit. Does anyone know > what these levels could indicate ? > > > Feeling discouraged > > > Hello Everyone, > > I am a silent member. I just read the e-mails most of the time. I treasure > this group. But I have a problem I need your help with. > > Because of an inflammation in my brain my neurologist put me on 20 mg of > predisione. I was tapered down to 2 1/2 and stopped on the 1st. I had an > appointment with a Rheum on that Wednesday (new doc, first RH appt). I took > all my medical records with me from the Pulm, Card, and Nuero. The Pulm > found blebs and bulla in my lungs and said that my lymph nodes in my chest > were inflamed. He said he did not think it was sarc. He did not know what > it was. > > Now mind you I did had a large brain lesion 2 years ago. It came back, > that's why the 20 mg. > > I saw on the CT report that they found small cysts in my liver and spleen. > I was not told about this because they said they were so small and did not > know what they were. > > Anyway, after 2 rheumey's examine me they tell my I have to go back on > steroids. Of course I am devastated. I ask why !? They tell me my > paritoid glands (in the neck?) are swollen and because of the other stuff I > ve told them (pain in hands and feet, achy all the time, fatigue, facial > numbness and twitching). They tell me if I don't go back on pred I could > risk facial paralysis or maybe even stroke (I have a lot of cranial nerve > involvement). They also tell me the sarc is probably spreading and I'll > probably be on steroids at some dose the rest of my life because this > disease doesn't go away. > > Of course I call my Neuro. He calls them and he agrees with them saying " > you won't be on them forever, but they fee you need to be on something. > Anyway, the Rheum sends me for blood work and also to a Derm for a biopsy of > my salivary glands. I go back in four weeks. They are going to look at the > CT scan that the Pulm did to see if they can get a good biopsy of some lymph > tissue in my chest. I hate them, but am also grateful. I asked him about > the other drugs. He said the insurance company had not approved them for > use for this disease yet and they are very expensive. What to do? What to > do? I guess I can only do what they tell me huh ? I'm tempted to not take > the steroids at all. I've already gain 30 pounds in the last 6 months. > Opinions ? Advise ? Comments ? Anything... > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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