Guest guest Posted September 18, 1999 Report Share Posted September 18, 1999 , I would put the tea tree oil directly on the fungus areas at least 3 times a day.. It can't hurt! Of course, if it is psorisis, it might not help either! I know I have put the tea tree oil on my open sores of psorisis and they have healed quickly, then once healed, I turned to the Oregon grape which is really working great.. I don't have alot of psorisis, just my one elbow which is the most bothersome but it has helped that alot. kathy, what I describe as nail pits is this, I can actually look at my nail sideways, and the profile of my nail shows an indentation on three nails on my right hand. I was wondering if this is what people are talking about too.. last night was my first good night sleep in awhile and I am grateful. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Hi , Your Mom is blessed to have such a wonderful daughter...Thanks for all of your hard work! :-) Joan NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 - Do you know if this laser surgery is the same as an endoscopic discectomy? I really think you need to see a neurologist as well. This may have been suggested before, but just wanted to make sure you got that advice. joe > Thank you for reponding , > > I had a laminectomy by a neurosurgeon in 96, that didn't help much, but > didn't want to go back to him. I'd found this Spine Center at St. 's in > San Francisco by searching for a place that had the disk replacement study. > However it turned out I wasn't a candidate for that but he offered this, > first before disk fusion, for L-1 and L-2, and he's an orthopedic Dr., so > I'll try it. He said I still might need disk fusion tho. > > I don't see anyone in the group having L-1 affected, mostly L-4 and 5. > He'd said L-1 was unusual. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 - Do you know if this laser surgery is the same as an endoscopic discectomy? I really think you need to see a neurologist as well. This may have been suggested before, but just wanted to make sure you got that advice. joe > Thank you for reponding , > > I had a laminectomy by a neurosurgeon in 96, that didn't help much, but > didn't want to go back to him. I'd found this Spine Center at St. 's in > San Francisco by searching for a place that had the disk replacement study. > However it turned out I wasn't a candidate for that but he offered this, > first before disk fusion, for L-1 and L-2, and he's an orthopedic Dr., so > I'll try it. He said I still might need disk fusion tho. > > I don't see anyone in the group having L-1 affected, mostly L-4 and 5. > He'd said L-1 was unusual. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 ANGELA, THE ONLY RHEUMATOID DRUG I TAKE THAT MAKES ME SICK IS METHOTREXATE AND MY DR. LOWERED MY INJECTABLE DOSAGE SO IT IS SOME WHAT MORE TOLERABLE. MY DOCTOR DOES NOT OFFER THE DURAGESIC PATCH. SO THAT ANSWERS THAT QUESTION. ALSO, I HAVE SEVERAL OTHER AUTO-IMMUNE DISEASES, SO MY TREATMENT IN NO WAY WOULD FOLLOW ANYONE ELSES EXACT TREATMENT,AND JUST MASKING PAIN IS NOT AN ANSWER IN MY SITUATION, THAT IS JUST COVERING A SYPTOM, WHICH COULD GET ME CRIPPLED OR KILLED. I HAVE JUST BEGUN WORKING WITH THE HEAD ANETHESIOLOGIST THAT RUNS THE CHRONIC PAIN MANAGEMENT CLINIC. MONDAY I HAD AN MRI AND OTHER PROBLEMS WERE FOUND, HE IS SETTING HIS OWN FORM OF PAIN MANAGEMENT WITH A NEUROLOGIST AND I HAVE BLOOD TESTS EVERY 6 WEEKS AND HAVE NO KIDNEY,LIVER OR ANY OTHER ORGAN PROBLEMS WHATSOEVER AT THIS TIME. I HAVE LEARNED THAT YOU DO NOT TELL A DOCTOR WHAT TO DO, IF IT IS NOT WORKING TO YOUR MUTUAL SATISFACTION, AND YOU BOTH DISCUSS AND REALIZE THIS, YOU FIND A NEW DOCTOR. AFTER ALL, I AM NOT THE ONE WHO WENT TO MED SCHOOL, NOW AM I ? CINDI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 , Why wouldn't cipro be a wise choice? I have bartonella which cipro treats. I have also had arthritis go away years ago when I took cipro for an infection. I am herxing almost non-stop on it. > > i was on doxy for a while and it was ok but my stomache would hurt and > I felt like I had a bad sunburn all the time.. I was on 600 mgs for > two weeks and it did not compare to even 100mg of mino...mino is much > much better at hitting those areas that were bad.. my liver function > went back to normal after 2 weeks of mino on its own..I dont think > cipro is the wise choice right now so ask your doc... > eric > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 , Be sure to ask your doctor this question! Medical answers found in support groups aren't always accurate. =) Robynn [ ] Re: angela , Why wouldn't cipro be a wise choice? I have bartonella which cipro treats. I have also had arthritis go away years ago when I took cipro for an infection. I am herxing almost non-stop on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 I can't ask my doctor. My LLMD dropped me and all his other western patients. I don't take anyone's word online as gospel. But if was told something by his dr or read a reliable article on Cipro I would like to know about it. At least it gives you some reference to start researching. It seems like with Lyme if your research on particular aspects you either get way too much info to sift through or cannot find a single source of documentation on item in question. So if you have a reference point that really helps, or at least it does for me. In my situation I did find a dr within the state who agreed to take over my Lyme treatment. However he basically does whatever his Lyme patients ask. So it is up to me to come up with my own regimen for treatment of lyme and my co-infections and unless it sounds dangerous or stupid then he said he will write the scripts and do the usual bloodwork to make sure the meds don't cause other problems. He said he would consult with my former LLMD Dr. J in PA, but I have my doubts just knowing in general how all drs seem to have delicate egos. I did take the new dr a load of printouts including Dr. B's 2005 updated guidelines, all 33 pages and he thanked me for it so I think he will at least glance at it. > > , > > Be sure to ask your doctor this question! Medical answers found in support > groups aren't always accurate. > > =) > Robynn > > > [ ] Re: angela > > > , > > Why wouldn't cipro be a wise choice? I have bartonella which cipro > treats. I have also had arthritis go away years ago when I took cipro > for an infection. I am herxing almost non-stop on it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 , A good place to look for medical information regarding Lyme disease is here: http://search.lymenet.org/ This site only provides abstracts, but if you found something you wanted to read your library may be able to help you find it. Or even a search of the internet will often result in full text of medical articles. Even non-LLMD docs can be a good resource. They can explain the differences in antibiotics and why they usually prescribe one over another. Even if they don't know how to relate that to Lyme exactly it can offer some wonderful hints that you and your doctor can think through together. =) Robynn [ ] Re: angela I can't ask my doctor. My LLMD dropped me and all his other western patients. I don't take anyone's word online as gospel. But if was told something by his dr or read a reliable article on Cipro I would like to know about it. At least it gives you some reference to start researching. It seems like with Lyme if your research on particular aspects you either get way too much info to sift through or cannot find a single source of documentation on item in question. So if you have a reference point that really helps, or at least it does for me. In my situation I did find a dr within the state who agreed to take over my Lyme treatment. However he basically does whatever his Lyme patients ask. So it is up to me to come up with my own regimen for treatment of lyme and my co-infections and unless it sounds dangerous or stupid then he said he will write the scripts and do the usual bloodwork to make sure the meds don't cause other problems. He said he would consult with my former LLMD Dr. J in PA, but I have my doubts just knowing in general how all drs seem to have delicate egos. I did take the new dr a load of printouts including Dr. B's 2005 updated guidelines, all 33 pages and he thanked me for it so I think he will at least glance at it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2009 Report Share Posted February 15, 2009 What a difference a couple of days can make right? I am glad you all are safe and sound and Dakota is improving. Tell him to take it slow and not to get discourage if things don't feel that they are progressing fast enough. For me it took a good six weeks to eat what i wanted and to put the past frustrations of not being able to eat behind me. Lets start planing another get togther soon. We all want to be able to sit down and eat a nice meal together Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2009 Report Share Posted February 16, 2009 katie- things have been so different this past weekend. no tubefeeding, having to cook, no pump alarming, and most important sharing a meal. yes, yes, let's really try to get something going this spring. michelle met me at a starbucks in va beach over thankgiving. it was so awesome to met someone face to face. I do feel as if I have known you all for months now. I have laughed, cried, complained, whined, and celebrated with you. I feel so connected to this group. I received notice of jury duty for the whole month of march, so that months out for me. I really hope spring comes early as I am so ready for some warmth and sunshine. dakota is doing remarkable. he eats eggs, yogurt, soup, I made boiled chicken and rice in a sauce and he ate all of it. a little incsional pain and some stiff shoulders but dr rice says he can go back to school this week. we're shooting for tuesday. follow up with dakota's primary care today. if all goes well we'll pick up our lives and begin to live the next chapter. I can't wait...angela Re:ANGELA What a difference a couple of days can make right? I am glad you all are safe and sound and Dakota is improving. Tell him to take it slow and not to get discourage if things don't feel that they are progressing fast enough. For me it took a good six weeks to eat what i wanted and to put the past frustrations of not being able to eat behind me. Lets start planing another get togther soon. We all want to be able to sit down and eat a nice meal together Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 , you doctor is wrong. It's never too late to start AP. There are a lot of people who started AP and they were in wheelchairs and got so well the are climbing mountains! You can take metho with AP till you feel better after AP kicks in. Your RF will go down on AP. Check out http://rheumatic.org/support.htm for more info. Cooky Has anybody taken MTX without side effects. Has any body been able to reduce thier RF factor on MTX and then been able to start AP therapy as my RF is 980 and my doctor says I'm to far gone for AP therapy with this reading. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Cooky I'm the reverse. on AP my knee got as big as a balloon for over a year whereas 3 months of MTX brought the swelling right down and my knee is normal. It may have been because Minocin was withdrawn from the market for over a year so they could change the flyer, the generic didn't work but I may return to AP one day. Ken From: Cooky Stonkey <cookee1@...> Subject: RE: rheumatic angela rheumatic Date: Sunday, May 10, 2009, 7:10 PM , you doctor is wrong. It's never too late to start AP. There are a lot of people who started AP and they were in wheelchairs and got so well the are climbing mountains! You can take metho with AP till you feel better after AP kicks in. Your RF will go down on AP. Check out http://rheumatic. org/support. htm for more info. Cooky Has anybody taken MTX without side effects. Has any body been able to reduce thier RF factor on MTX and then been able to start AP therapy as my RF is 980 and my doctor says I'm to far gone for AP therapy with this reading. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 > Has anybody taken MTX without side effects. No. > Has any body been able to reduce thier RF factor on MTX and then been able > to start AP therapy as my RF is 980 and my doctor says I'm to far gone for > AP therapy with this reading. > Quote Link to comment Share on other sites More sharing options...
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