Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Hi, . Thanks for the message. It was a nice thing to read this time of night when I am tired from a long, long day. Please do not get the impression that Max is gh resistant because of the timing of the start of the treatment. I am not sure that this is the reason for it and I do not want anyone to get the wrong idea. Dr. Harbison herself has said that she does not exactly know why this has happened. And, to be honest, when I press her, she avoids the subject. We could press her some more, but we decided that it is more important at this point to know how to deal with it than it is to know why it happened. I get the impression, however, that it is the luck of the draw. And, of course, if it's going to happen, it seems to happen to Max. Dr. Harbison has told us repeatedly that Max will make it to at least 5'2 " . It is hard to believe when he is now 13 and just 4'8 " , but we have faith in her. Once I get Max over to the radiology department, I will be able to have his bone age done and she will then be able to tell us more about his projected height. There is a push to have the bone age done because he has gained so much weight from the Risperdal he was on, that he could be secreting some other hormone that could interfere with his growth. I don't quite understand it yet, but I will get there. Now that he is off Risperdal and on Clonidine (to control his tics) we have seen a big drop in his appetite. Would you believe he gained 14 pounds in 7 months???? As you have said, our boys have great personalities. I think it is part of the RSS. If you have not heard me say it before, I have said for 13 years that this is God's way of making up for something that has made our kids different. I, too, am looking forward to the convention. I'm presenting this year, too!!! Yikes!!! Well, if I can teach several reading classes of kids with learning disabilities, I can certainly speak in front of a group of parents. It will be so great to see everyone again and for the first time, too! Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 thoughts and prayers were with you this a.m.- hope you're ok :-) eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Hi Eileen, Just got home.. doing well. Prep went well, I was totally clean. The scope and propofol went well too unfortunately my stricturing in my colon is so severe they could not do the whole colonoscopy even with a pediatric scope. So I am back to square 1. Anyway, will post later.. Thanks all for your prayers- it means a great deal.. I am feeling fine except for the abundant amount of air they pumped into my colon to dilate the area. Jodi > > thoughts and prayers were with you this a.m.- hope you're ok :-) > eileen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 At 03:26 PM 4/6/2009, you wrote: Just got home.. doing well. Prep went well, I was totally clean. The scope and propofol went well too unfortunately my stricturing in my colon is so severe they could not do the whole colonoscopy even with a pediatric scope. So I am back to square 1. Anyway, will post later.. Thanks all for your prayers- it means a great deal.. I am feeling fine except for the abundant amount of air they pumped into my colon to dilate the area. Jodi, You've been in my thoughts and prayers all yesterday and today. Harry sends his best, too -- he knows how stressed out I was about my colonoscopy. I'm so sorry they couldn't make it all the way up. But that you are feeling OK, in spite of the prep, in spite of all the air... that's wonderful! Amazing what happens when you prepare for every contingency, and know what your body's parameters are! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Jodi, I too, thought about you this am, driving to work, hoping that all went well. Even though it is discouraging that the strictures impeded the procedure, I wonder how much worse you would be at this stage of the game if you did not follow SCD. It is because you do follow SCD that your quality of life has improved and that you are as healthy as you are--so congratulations for all you do and just take each day as it comes and deal with each day. I know that you'll do well and I am praying for you too. Terry ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Dear Jodi,A sigh of delight and relief for you.Hope you can rest, gain strength, and be comfortable.wishing you moments of peace, and pleasure as Spring sometimes appears,Ruthso glad it went well--reasonably well--At 03:26 PM 4/6/2009, you wrote:>Just got home.. doing well. Prep went well, I was totally clean.>The scope and propofol went well too >unfortunately my stricturing in my colon is so >severe they could not do the whole colonoscopy >even with a pediatric scope. So I am back to square 1.>Anyway, will post later..>>Thanks all for your prayers- it means a great >deal.. I am feeling fine except for the abundant >amount of air they pumped into my colon to dilate the area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Dear Jodi,A sigh of delight and relief for you.Hope you can rest, gain strength, and be comfortable.wishing you moments of peace, and pleasure as Spring sometimes appears,Ruthso glad it went well--reasonably well--At 03:26 PM 4/6/2009, you wrote:>Just got home.. doing well. Prep went well, I was totally clean.>The scope and propofol went well too >unfortunately my stricturing in my colon is so >severe they could not do the whole colonoscopy >even with a pediatric scope. So I am back to square 1.>Anyway, will post later..>>Thanks all for your prayers- it means a great >deal.. I am feeling fine except for the abundant >amount of air they pumped into my colon to dilate the area. Quote Link to comment Share on other sites More sharing options...
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