Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 Thanks Rose, I just wish Shar wasn't so sick. I haven't been able to be in touch with you guys like I would have liked to have been and I feel like I have let my online family down. You guys were there for me when my own family wasn't in my time of need and for that I am grateful. I apologize to everyone for letting you down. But I am back in somewhat copacity I feel very broken down and I may need some strength from you all but I would like a second chance. All you newcomers I would like to say hello and welcome this is a great group. I thought I was gonna lose my mind until I found this group, now I have a lot of great people of whom to share my thought and fears with and who understand cause no matter how hard I try my family or friends here don't understand how sick I am. They think I can take a pill and be all better. Get some exercise lose weight and be ok well I have lost over 100 pounds since last year and i'm still sick. Sorry I just needed to vent a little. Much love and prayers, Jan attn: Jan I love the snowflake idea you posted for Shar & her family. For those who missed it, Jan reminded us that even though a snowflake is one of natures most fragile creations, look what they can do when they stick together. That is a powerful thought. Question re: joint pain. I know that many of you have joint pain from sarc. I have low back pain that I've had for 20 years; I'm pretty sure it's from lifting too many patients without help & poor body mechanics. My right knee aches frequently, but I've torn it up twice. What I can't explain is pain below the thumbs. A few weeks ago the left thumb area hurt almost constantly; finallly subsided to just a tender feeling. Now the right one is aching. It's not the thumb itself, but the base of the thumb down to the wrist. I've not injured it that I know of. There is no swelling, redness, etc. Could this be sarc or just old age? Rose~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 Thanks Rose, I just wish Shar wasn't so sick. I haven't been able to be in touch with you guys like I would have liked to have been and I feel like I have let my online family down. You guys were there for me when my own family wasn't in my time of need and for that I am grateful. I apologize to everyone for letting you down. But I am back in somewhat copacity I feel very broken down and I may need some strength from you all but I would like a second chance. All you newcomers I would like to say hello and welcome this is a great group. I thought I was gonna lose my mind until I found this group, now I have a lot of great people of whom to share my thought and fears with and who understand cause no matter how hard I try my family or friends here don't understand how sick I am. They think I can take a pill and be all better. Get some exercise lose weight and be ok well I have lost over 100 pounds since last year and i'm still sick. Sorry I just needed to vent a little. Much love and prayers, Jan attn: Jan I love the snowflake idea you posted for Shar & her family. For those who missed it, Jan reminded us that even though a snowflake is one of natures most fragile creations, look what they can do when they stick together. That is a powerful thought. Question re: joint pain. I know that many of you have joint pain from sarc. I have low back pain that I've had for 20 years; I'm pretty sure it's from lifting too many patients without help & poor body mechanics. My right knee aches frequently, but I've torn it up twice. What I can't explain is pain below the thumbs. A few weeks ago the left thumb area hurt almost constantly; finallly subsided to just a tender feeling. Now the right one is aching. It's not the thumb itself, but the base of the thumb down to the wrist. I've not injured it that I know of. There is no swelling, redness, etc. Could this be sarc or just old age? Rose~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 I feel like I have let my online family down. You guys were there for me when my own family wasn't in my time of need and for that I am grateful. I apologize to everyone for letting you down. Jan, you haven't let anyone down. But I am back in somewhat copacity I feel very broken down and I may need some strength from you all but I would like a second chance. We are here to help you--not enable you- but to help and support you. Jan, I'm going to make a suggestion here-- I know that you have guilt issues, and that the idea of being alone is so scary to you. I think I read somewhere that you have never lived alone in the past, (with the exception of this last fall.) Anyway, what I want to share with you is that you have the power to change your train of thought. YOU can continue to tell yourself that you've let people down, or that you've done something bad to need to ask for forgiveness-- Or YOU can stop this line of self talk and lift yourself up. To do that you have to start by telling yourself to STOP this line of thought. You are a good person. You deserve happiness in your life. You are surrounded by people that want to help you, and you deserve their company. You can start by walking to the mirror, and looking the lady in the eye, and telling her she is worthy of love. Then, everytime that you hear yourself degrading yourself-- say STOP- out loud. Use that time to honor yourself and your goodness. This is a simple place to start, and you are worthy of self-compassion. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 I feel like I have let my online family down. You guys were there for me when my own family wasn't in my time of need and for that I am grateful. I apologize to everyone for letting you down. Jan, you haven't let anyone down. But I am back in somewhat copacity I feel very broken down and I may need some strength from you all but I would like a second chance. We are here to help you--not enable you- but to help and support you. Jan, I'm going to make a suggestion here-- I know that you have guilt issues, and that the idea of being alone is so scary to you. I think I read somewhere that you have never lived alone in the past, (with the exception of this last fall.) Anyway, what I want to share with you is that you have the power to change your train of thought. YOU can continue to tell yourself that you've let people down, or that you've done something bad to need to ask for forgiveness-- Or YOU can stop this line of self talk and lift yourself up. To do that you have to start by telling yourself to STOP this line of thought. You are a good person. You deserve happiness in your life. You are surrounded by people that want to help you, and you deserve their company. You can start by walking to the mirror, and looking the lady in the eye, and telling her she is worthy of love. Then, everytime that you hear yourself degrading yourself-- say STOP- out loud. Use that time to honor yourself and your goodness. This is a simple place to start, and you are worthy of self-compassion. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 I feel like I have let my online family down. You guys were there for me when my own family wasn't in my time of need and for that I am grateful. I apologize to everyone for letting you down. Jan, you haven't let anyone down. But I am back in somewhat copacity I feel very broken down and I may need some strength from you all but I would like a second chance. We are here to help you--not enable you- but to help and support you. Jan, I'm going to make a suggestion here-- I know that you have guilt issues, and that the idea of being alone is so scary to you. I think I read somewhere that you have never lived alone in the past, (with the exception of this last fall.) Anyway, what I want to share with you is that you have the power to change your train of thought. YOU can continue to tell yourself that you've let people down, or that you've done something bad to need to ask for forgiveness-- Or YOU can stop this line of self talk and lift yourself up. To do that you have to start by telling yourself to STOP this line of thought. You are a good person. You deserve happiness in your life. You are surrounded by people that want to help you, and you deserve their company. You can start by walking to the mirror, and looking the lady in the eye, and telling her she is worthy of love. Then, everytime that you hear yourself degrading yourself-- say STOP- out loud. Use that time to honor yourself and your goodness. This is a simple place to start, and you are worthy of self-compassion. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Rose dear I have that same pain in my left thumb started with my last sarc monster flair up . My neuro said it was arthritis and he is sending me to a rheumatoltist(sp) the preds helped .I had this when I was 15yrs old docs called it juvenile rhumatiod arthritis due to sarcoidosis. sending you ((((BIG KISS ))))) TO MAKE IT FEELL BETTER.......QUINT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Rose dear I have that same pain in my left thumb started with my last sarc monster flair up . My neuro said it was arthritis and he is sending me to a rheumatoltist(sp) the preds helped .I had this when I was 15yrs old docs called it juvenile rhumatiod arthritis due to sarcoidosis. sending you ((((BIG KISS ))))) TO MAKE IT FEELL BETTER.......QUINT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Faith makes all things possible,Love makes it easy! Janjanbovi@... Powered by Plaxo Want a signature like this? Add me to your address book... Thank you Tracie, Yes this is very true. I have had trouble with guilt issues it results with my past and everyone pushing me around and me allowing it to happen and now i'm trying to stand on my own two feet and seems my family and so called friends here locally don't understand. Like I said if it weren't for my online friends I would have gone nuts by now. This May was the first time I have ever had to live totally alone with no kids etc........ and that was nice but yet scarry and I was on some meds that made it worse and now that they are gone and i'm finally getting the courage and strength through my good friends real friends and my own new perceptions that yes indeed i am a nice person. I haven't done anything to anyone for me to feel bad about so yes I am trying to get all that out of my head all those issues are from my past during my child hood and past marriages. I appreciate all of you guys and I appreciate you for pointing out things that maybe I wouldn't necessarily see otherwise. So yes I may have a crisis every now and then but I come to you guys cause you are all I have really, because no matter how hard I try I can't make my family understand my medical issues. And yes you are right I am a good person. I truely appreciate your friendship and as far as being alone its no longer an issue right now with baby sitting the grand kids i'm glad to have a break and be alone now. Just wish that Janice would wise up and see how she is hurting these kids but maybe all is for the best we shall see. Thanks and hope you are feeling better today. Much love and prayers, Jan ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.521 / Virus Database: 319 - Release Date: 9/24/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Jan, I can relate to your concern about how your daughter's choices will affect her kids. There is no doubt that my daughter's repeated choices to return to unhealthy, violent relationships greatly contributed to the problems Sam has now. There is a book by Dr. called "Ten Stupid Things Women do to Mess up Their Lives." Even if you are not a Dr. fan, the book is very good. One chapter is subtitled "Don't let him hurt your babies." I get heartsick when I think of how Theresa's husband & boyfriends have hurt these kids, not just physically, but emotionally & relationally also. Just try to be a stabilizing influence in their lives, someone they know they can count on to love & accept them. As far as the guilt, is it something we are born with, or is it pounded into us so thoroughly we can never escape it? I always thought it was from being raised Catholic (no offense intended, Marla & Shar). I feel guilty every time I pass a Salvation Army bell ringer & don't put money in. I feel like I should say, I already put money in at Target, or something! Usually I just send what I can give to the Santa Fund, which our local newspaper collects for the Salvation Army. But then I still feel guilty passing those bell ringers! One year, I kept a wad of ones & fives in my purse, so that I could put something in every kettle I passed! This year money is really tight & I'm not spending much on gifts, but I still feel guilty. Isn't there a pill I can take or something?!? Rose Re: attn: Jan Faith makes all things possible,Love makes it easy! Janjanbovi@... Powered by Plaxo Want a signature like this? Add me to your address book... Thank you Tracie, Yes this is very true. I have had trouble with guilt issues it results with my past and everyone pushing me around and me allowing it to happen and now i'm trying to stand on my own two feet and seems my family and so called friends here locally don't understand. Like I said if it weren't for my online friends I would have gone nuts by now. This May was the first time I have ever had to live totally alone with no kids etc........ and that was nice but yet scarry and I was on some meds that made it worse and now that they are gone and i'm finally getting the courage and strength through my good friends real friends and my own new perceptions that yes indeed i am a nice person. I haven't done anything to anyone for me to feel bad about so yes I am trying to get all that out of my head all those issues are from my past during my child hood and past marriages. I appreciate all of you guys and I appreciate you for pointing out things that maybe I wouldn't necessarily see otherwise. So yes I may have a crisis every now and then but I come to you guys cause you are all I have really, because no matter how hard I try I can't make my family understand my medical issues. And yes you are right I am a good person. I truely appreciate your friendship and as far as being alone its no longer an issue right now with baby sitting the grand kids i'm glad to have a break and be alone now. Just wish that Janice would wise up and see how she is hurting these kids but maybe all is for the best we shall see. Thanks and hope you are feeling better today. Much love and prayers, Jan ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.521 / Virus Database: 319 - Release Date: 9/24/03~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
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