Entrolab

[Guest guest]

I have not tested with Entrolab, however I did do a complete Celiac

Bloodwork Panal and an endoscopy with 8 small bowl biopsies. I do not have

celiac disease, however my Gliadin IGG was a hair high (this is the old

blood test that is TOO sensitive and is not specific enough...it gives too

many false positives. That is why the came up with the Imunoglobulin A test

which is supposed to be more specific). This is interesting because I

tested positive in bloodwork for a wheat ALLERGY. So I guess while I do not

have Celiac, I do have a sensitivity. I have often wondered if these labs

like Entrolab are really picking up sensitivities to wheat and or gluten and

not true Celiac.

Bunny

_________________________________________________________________

Find a local pizza place, music store, museum and more…then map the best

route! http://local.live.com

[Guest guest]

,

The test at Enterolab for Celiac IS for Immunoglobulin

A and because it is taken from the stool where the

reaction takes place, it is almost 100% accurate. The

blood tests are less than 50% accurate.

The biopsies are also not very accurate. The small

intestine is about 25 feet long and even if there are

multiple biopsies one cannot expect that the entire

intestine is damaged and then there is the factor

where the people reading the biopsies all to often

don't know what they are looking at.

If one finds the IgA specific to gliadin (the part of

the protein in gluten that gives the trouble from

wheat) one has an IgA reaction to gluten whether it is

taken from the blood or from the stool. There is no

such thing as " real " Celiac disease. Either you have

it or you don't. If the IgA is there, one has it

regardless of what they want to call it or where they

get it. If one does a biopsy on one's kidney and finds

the IgA specific for gluten, one has it. It doesn't

have to be found in the small intestine. If they do a

biopsy on the skin of somebody who has the skin

involvement and they find IgA specific to gliadin

(wheat gluten), they have it. It is a very specific

test and not one where they can be confused with some

other reaction.

Enterolab has the most accurate tests, the best there

is because it is taken directly from the intestine

where the reaction takes place. If one wants to know

whether or not one has this thing with gluten, getting

the most accurate up to date test seems the sensible

thing to do instead of choosing one that is over fifty

per cent inaccurate.

Just my thought on the subject.

Arline

> I have not tested with Entrolab, however I did do a

> complete Celiac

> Bloodwork Panal and an endoscopy with 8 small bowl

> biopsies.

I do not have

> celiac disease, however my Gliadin IGG was a hair

> high (this is the old

> blood test that is TOO sensitive and is not specific

> enough...it gives too

> many false positives. That is why the came up with

> the Imunoglobulin A test

> which is supposed to be more specific). This is

> interesting because I

> tested positive in bloodwork for a wheat ALLERGY. So

> I guess while I do not

> have Celiac, I do have a sensitivity. I have often

> wondered if these labs

> like Entrolab are really picking up sensitivities to

> wheat and or gluten and

> not true Celiac.

>

> Bunny

>

>

_________________________________________________________________

> Find a local pizza place, music store, museum and

> more…then map the best

> route! http://local.live.com

>

>

>

> **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> POST, THANKS**

>

> Our HOME page is

> http://groups.yahoo.com/group/VulvarDisorders

> to search our archives, files, articles, etc.

>

> ***

[Guest guest]

I guess I disagree on the accuracy percentages you report. The biopsys are

considered even by most of the celiac sites to be the most accurate test for

celiac. I also have to wonder about a lab test that everyone tests positive

for. I have never known anyone who took that test who tested negative.

Also, the Entrolab test is not supported by all physicians. Many doctors

would not support a diagnosis of Celiac Sprue without a biopsy comming back

positive (I had 8 biopys. The doctor took them all the way down the small

bowl).

And yes, you can be sensitive to wheat and not have celiac disease which is

a conditon where the villi are distroyed by gluten. A sensitivity may be an

allergy which reacts with the T cells but not with the lining of the gut. I

have an allergy to wheat. This was found with a completely different blood

test.

_________________________________________________________________

All-in-one security and maintenance for your PC. Get a free 90-day trial!

http://clk.atdmt.com/MSN/go/msnnkwlo0050000002msn/direct/01/?href=http://www.win\

dowsonecare.com/?sc_cid=msn_hotmail

[Guest guest]

I guess I disagree on the accuracy percentages you report. The biopsys are

considered even by most of the celiac sites to be the most accurate test for

celiac. I also have to wonder about a lab test that everyone tests positive

for. I have never known anyone who took that test who tested negative.

Also, the Entrolab test is not supported by all physicians. Many doctors

would not support a diagnosis of Celiac Sprue without a biopsy comming back

positive (I had 8 biopys. The doctor took them all the way down the small

bowl).

And yes, you can be sensitive to wheat and not have celiac disease which is

a conditon where the villi are distroyed by gluten. A sensitivity may be an

allergy which reacts with the T cells but not with the lining of the gut. I

have an allergy to wheat. This was found with a completely different blood

test.

_________________________________________________________________

All-in-one security and maintenance for your PC. Get a free 90-day trial!

http://clk.atdmt.com/MSN/go/msnnkwlo0050000002msn/direct/01/?href=http://www.win\

dowsonecare.com/?sc_cid=msn_hotmail

[Guest guest]

On Wed, 18 Oct 2006 10:56:45 -0500, " Bunny "

wrote:

I had a series of allergy tests long ago because of cat allergy and the tests

showed that I am allergic to wheat. But I am a breadoholic and occasionally

quit eating bread for perods of time to lose weight and always feel better when

I resume eating bread. It is my comfort food. But my vulvodynia flares up when

I eat whole wheat bread. No problem with white bread.

Ora

>And yes, you can be sensitive to wheat and not have celiac disease which is

>a conditon where the villi are distroyed by gluten. A sensitivity may be an

>allergy which reacts with the T cells but not with the lining of the gut. I

>have an allergy to wheat. This was found with a completely different blood

>test.

>

>

[Guest guest]

Hi ,

--- Bunny

wrote:

> I guess I disagree on the accuracy percentages you

> report.

You are entitled but I am not making it up.

The biopsies are

> considered even by most of the celiac sites to be

> the most accurate test for

> celiac.

Yes, I know and that is the problem. Old beliefs and

practices die hard. They have been for several decades

and they aren't accurate. It may take more years than

any of us want to wait to get these ideas changed.

I also have to wonder about a lab test that

> everyone tests positive

> for.

For some reason you have made that up or have received

information that is incorrect.

I have never known anyone who took that test

> who tested negative.

Keep looking.

> Also, the Entrolab test is not supported by all

> physicians.

All physicians never all support anything but they do

profess to carry on their diagnostic procedures

according to some accepted practice whether it is up

to date, accurate or not. The good physicians read new

stuff beyond what is accepted and in the NIH I think

because they have imaginations, character, and

intellectual curiosity. The ones who don't diagnose

with acronyms and prescribe steroids, etc.

If you want to continue to be healed by pills as a

result of acronyms which are collections of symptoms,

you can remain with the rest of the people who are not

going to get well if they happen to be gluten

sensitive. I wonder why we are all so loyal to the

medical profession and the doctors who cannot make you

well. I am loyal to the ones who make me better. I

consider the ones who can't to be ones who can't and

don't-- and I look for something else.

Many doctors

> would not support a diagnosis of Celiac Sprue

> without a biopsy comming back

> positive

So??? It would be wonderful if the doctors really

understood this disease instead of the nonsense they

have been fed but I have to just look at them as being

poor children and mentally pat them on their heads and

accept what care they are capable of giving me like

enough antibiotics for my bladder infections and go on

my own way to getting better. Since a gluten and dairy

free diet is the only way to get better I don't need

them anyway. (Thank Yahweh)

..

(I had 8 biopys. The doctor took them all

> the way down the small

> bowl).

I bet he didn't get to the ileum.

I had twelve biopsies on my vulvar and anal skin and

got twelve positive results for Lichen Sclerosis but I

don't believe it and didn't believe it then. I don't

have LS now, or whatever it was, as it all went away

when I became gluten free and got the yeast under

control?????

>

> And yes, you can be sensitive to wheat and not have

> celiac disease which is

> a conditon where the villi are distroyed by gluten.

Sometimes the villi are only slightly damaged and that

is one reason why the blood tests are not accurate.

(there are others).

Sometimes the disease completely annihilates another

part of the body before the small intestine and villi

are destroyed.

> A sensitivity may be an

> allergy which reacts with the T cells but not with

> the lining of the gut. I

> have an allergy to wheat. This was found with a

> completely different blood

> test.

Yes, you can have a wheat allergy and also have Celiac

Disease which are two completely separate things. I

don't think a wheat allergy would cause the kind of

pain that the people on this list usually have. I do

think the autoimmune attacks where the nerves are

proliferated and destroyed would and that is not the

reaction of an allergy.??

The difference usually between white bread and whole

grain bread is that there is less gluten in the white

bread as it has been processed out to make it fluffy

instead of chewy. Gluten is chewy like in bagels and

pizza dough.

It is good to discuss these things.

We all have choices and my choice involved believing

new up to date research and real life experiences and

the words of hundreds of others. I was realliy tired

of being told that I had a dozen acronyms and there

was no cure--LS IBS FMS and I can't even remember the

rest. They didn't mean anything. I could not and would

not accept sickness any longer. If you are getting

well and happy with your health I suggest that you

continue in that way. I do wish you good health

though.

Arline

__________________________________________________

[Guest guest]

Hi ,

--- Bunny

wrote:

> I guess I disagree on the accuracy percentages you

> report.

You are entitled but I am not making it up.

The biopsies are

> considered even by most of the celiac sites to be

> the most accurate test for

> celiac.

Yes, I know and that is the problem. Old beliefs and

practices die hard. They have been for several decades

and they aren't accurate. It may take more years than

any of us want to wait to get these ideas changed.

I also have to wonder about a lab test that

> everyone tests positive

> for.

For some reason you have made that up or have received

information that is incorrect.

I have never known anyone who took that test

> who tested negative.

Keep looking.

> Also, the Entrolab test is not supported by all

> physicians.

All physicians never all support anything but they do

profess to carry on their diagnostic procedures

according to some accepted practice whether it is up

to date, accurate or not. The good physicians read new

stuff beyond what is accepted and in the NIH I think

because they have imaginations, character, and

intellectual curiosity. The ones who don't diagnose

with acronyms and prescribe steroids, etc.

If you want to continue to be healed by pills as a

result of acronyms which are collections of symptoms,

you can remain with the rest of the people who are not

going to get well if they happen to be gluten

sensitive. I wonder why we are all so loyal to the

medical profession and the doctors who cannot make you

well. I am loyal to the ones who make me better. I

consider the ones who can't to be ones who can't and

don't-- and I look for something else.

Many doctors

> would not support a diagnosis of Celiac Sprue

> without a biopsy comming back

> positive

So??? It would be wonderful if the doctors really

understood this disease instead of the nonsense they

have been fed but I have to just look at them as being

poor children and mentally pat them on their heads and

accept what care they are capable of giving me like

enough antibiotics for my bladder infections and go on

my own way to getting better. Since a gluten and dairy

free diet is the only way to get better I don't need

them anyway. (Thank Yahweh)

..

(I had 8 biopys. The doctor took them all

> the way down the small

> bowl).

I bet he didn't get to the ileum.

I had twelve biopsies on my vulvar and anal skin and

got twelve positive results for Lichen Sclerosis but I

don't believe it and didn't believe it then. I don't

have LS now, or whatever it was, as it all went away

when I became gluten free and got the yeast under

control?????

>

> And yes, you can be sensitive to wheat and not have

> celiac disease which is

> a conditon where the villi are distroyed by gluten.

Sometimes the villi are only slightly damaged and that

is one reason why the blood tests are not accurate.

(there are others).

Sometimes the disease completely annihilates another

part of the body before the small intestine and villi

are destroyed.

> A sensitivity may be an

> allergy which reacts with the T cells but not with

> the lining of the gut. I

> have an allergy to wheat. This was found with a

> completely different blood

> test.

Yes, you can have a wheat allergy and also have Celiac

Disease which are two completely separate things. I

don't think a wheat allergy would cause the kind of

pain that the people on this list usually have. I do

think the autoimmune attacks where the nerves are

proliferated and destroyed would and that is not the

reaction of an allergy.??

The difference usually between white bread and whole

grain bread is that there is less gluten in the white

bread as it has been processed out to make it fluffy

instead of chewy. Gluten is chewy like in bagels and

pizza dough.

It is good to discuss these things.

We all have choices and my choice involved believing

new up to date research and real life experiences and

the words of hundreds of others. I was realliy tired

of being told that I had a dozen acronyms and there

was no cure--LS IBS FMS and I can't even remember the

rest. They didn't mean anything. I could not and would

not accept sickness any longer. If you are getting

well and happy with your health I suggest that you

continue in that way. I do wish you good health

though.

Arline

__________________________________________________

[Guest guest]

I think that even if I were able to do the test from Enterolab I

would follow up with a biopsy of my small intestines to see the

comparative results.

It may have to wait til next year however to do that b/c I'm

waiting to see if our insurance is going to stay the same or

not.

Kristy

__________________________________________________

[Guest guest]

Hi ,

Your email about the probiotic was interesting. I

noticed that it was mostly lactobacillus which is

probably desirable.

If you are talking about me, no I am not offended but

I do do get impatient trying to encourage people to

get the best tests and not the ones that are

notoriously inaccurate. When I say notoriously

inaccurate, I don't expect the docs in your local

offices to say that. I know very well what they say. I

have lived through most of my life having test after

test, being declared healthy as a horse, and sent on

my way. I wasn't healthy as a horse and was barely

functioning. They are the ones who don't know. The

profession is closely controlled to say the right

things. They're not encouraged to look beyond the

gospels they are supposed to treat and diagnose by.

The doctors who care to look for more than the same

old any kind of test is the doctor I want although I

certainly will find out as much as I can on my own.

There are all kinds of wars going on in medicine about

this sort of thing. For example what do you think

about the mercury thing and the epidemic occurrences

of autism. The injectons are still being given. Along

with that, injections are often given with the guns

that shoot the air with a chemical (I forget) which

apparently is giving babies and children some sort of

brain effect. Some have said that since 1989 the

children being born are the most unhealthy ever. ??

The best medicine is the one where doctors can use

their heads and do the best for their patients without

being constrained by fifty year old stereotypes and

forced to use obviously outdated bad diagnostics and

meds. That is how we have progress-- in medicine and

everything else. The parents and people and doctors

who are fighting to change this are heroes.

You are right, not eating wheat because you are

allergic means getting less gluten but gluten also is

in rye, barley, and most oats which are contaminated,

Most processed food has gluten in it. However I notice

more and more foods that are taking it out. But less

gluten is better than more.

All the best,

Arline

--- Bunny

wrote:

> I too am frustrated with the symptom collection

> diagnosis aproach and I have

> been long searching for real diagnosis. Hoever I

> think that for now I will

> wait until Entrolab and others who preform similar

> stool testing recieve

> more support before recieving a diagnosis that is

> not supported by my other

> physicians. The treatment for both Wheat Allergy

> and Celiac are pretty much

> the same anyways: Avoid eatting wheat.

>

> I hope you understand that I was simply sharing my

> opinions and information

> that I have recieved from doctors and I did not mean

> anything personal by

> it. I hope I have not offended.

>

>

> Bunny

>

>

_________________________________________________________________

> Try Search Survival Kits: Fix up your home and

> better handle your cash with

> Live Search!

>

http://imagine-windowslive.com/search/kits/default.aspx?kit=improve & locale=en-US\

& source=hmtagline

>

>

__________________________________________________

[Guest guest]

Hi ,

Your email about the probiotic was interesting. I

noticed that it was mostly lactobacillus which is

probably desirable.

If you are talking about me, no I am not offended but

I do do get impatient trying to encourage people to

get the best tests and not the ones that are

notoriously inaccurate. When I say notoriously

inaccurate, I don't expect the docs in your local

offices to say that. I know very well what they say. I

have lived through most of my life having test after

test, being declared healthy as a horse, and sent on

my way. I wasn't healthy as a horse and was barely

functioning. They are the ones who don't know. The

profession is closely controlled to say the right

things. They're not encouraged to look beyond the

gospels they are supposed to treat and diagnose by.

The doctors who care to look for more than the same

old any kind of test is the doctor I want although I

certainly will find out as much as I can on my own.

There are all kinds of wars going on in medicine about

this sort of thing. For example what do you think

about the mercury thing and the epidemic occurrences

of autism. The injectons are still being given. Along

with that, injections are often given with the guns

that shoot the air with a chemical (I forget) which

apparently is giving babies and children some sort of

brain effect. Some have said that since 1989 the

children being born are the most unhealthy ever. ??

The best medicine is the one where doctors can use

their heads and do the best for their patients without

being constrained by fifty year old stereotypes and

forced to use obviously outdated bad diagnostics and

meds. That is how we have progress-- in medicine and

everything else. The parents and people and doctors

who are fighting to change this are heroes.

You are right, not eating wheat because you are

allergic means getting less gluten but gluten also is

in rye, barley, and most oats which are contaminated,

Most processed food has gluten in it. However I notice

more and more foods that are taking it out. But less

gluten is better than more.

All the best,

Arline

--- Bunny

wrote:

> I too am frustrated with the symptom collection

> diagnosis aproach and I have

> been long searching for real diagnosis. Hoever I

> think that for now I will

> wait until Entrolab and others who preform similar

> stool testing recieve

> more support before recieving a diagnosis that is

> not supported by my other

> physicians. The treatment for both Wheat Allergy

> and Celiac are pretty much

> the same anyways: Avoid eatting wheat.

>

> I hope you understand that I was simply sharing my

> opinions and information

> that I have recieved from doctors and I did not mean

> anything personal by

> it. I hope I have not offended.

>

>

> Bunny

>

>

_________________________________________________________________

> Try Search Survival Kits: Fix up your home and

> better handle your cash with

> Live Search!

>

http://imagine-windowslive.com/search/kits/default.aspx?kit=improve & locale=en-US\

& source=hmtagline

>

>

__________________________________________________