Re: nerve block/radiofrequency

March 25, 2001

Hello:

I just joined this group today. My husband and I need a support system. I

have chronic pancreatitis. We live in an area that does not have a doctor

with any knowledge of this. I get very frustrated when I eat anything and

get sick. I was reading some of the emails in this group and decided to

write and hopefully get some feedback. I'm glad to know that I'm not the

only one who is in pain all the time.

March 25, 2001

Hello:

I just joined this group today. My husband and I need a support system. I

have chronic pancreatitis. We live in an area that does not have a doctor

with any knowledge of this. I get very frustrated when I eat anything and

get sick. I was reading some of the emails in this group and decided to

write and hopefully get some feedback. I'm glad to know that I'm not the

only one who is in pain all the time.

March 25, 2001

Hi Lorrie & Jim!

I'm so sorry Jim had such an awful time with the nerve blocks. I

went through the exact same thing he did with the blocks through the

back. As I said before, I will never, ever let anyone do a block

that way again. You ask if I had anything else to tell you. I've

been thinking about this, and I'm not real sure I know enough about

it myself. All I know is the medication they used to sedate me was

not versed/demerol combo I had in the past. And I'm sorry, but I can

not remember what the medication was. Whatever it was, it put me

right out, and I woke as soon as the procedure was over, and I didn't

have that groggy feeling. How they explained it to me was, they did

an ultrasound of my pancreas first, then they used an anesectic

(shot! spelling is way off! numbing medicine) then they injected

steriods. The numbing wore off about 24 hrs. later, but I only had

the soreness, not the pain. I was kept on ice chips only, and when I

came home I stayed on clear liquids for 5 more days. I was suppose to

stay in Indy for another week to 10 days after the block, but my

father-in-law had passed away and I had to come home 4 days after the

block was done. Now here it is 18 days later, and I'm having pain

when I eat anything. When I don't eat, the pain is just a dull

annoying pain. I'm sorry I can't help you much here. Thanks for

asking me about my experience though. And, PLEASE!!! talk to them at

the Cleveland Clinic about this type of blocks. I would recommend

over the needles-shoved-into-the-back-until-you-cry-out-in-pain. At

least, that was my experience with them. <shutter,shutter> Good

Luck, and if you would like, I can call them in Indy and find out

more info you may want to know. Just let me know the questions, and

I'd be happy to find out. By the way, are your from Ohio? I live in

Springfield, Ohio. I have never been to the Cleveland Clinic, and

this new lady doctor I have now told me if I wasn't already set-up at

IU, her referral would be to the Cleveland Clinic. OK, I'm really

done now. Sorry this is so long, but when I'm feeling pretty good, I

just can't seem to stop myself!!

Lots of Hugs & Love,

**********************************************************************

March 25, 2001

You are not alone. I have just recently joined this group myself and have

found many friends who have given me more information. Sorry that you have

pancreatitis. Glad you came here. You will get a lot of valuable information.

Hope your week is pain free,

Kim

Re: nerve block/radiofrequency

Hello:

I just joined this group today. My husband and I need a support system. I

have chronic pancreatitis. We live in an area that does not have a doctor

with any knowledge of this. I get very frustrated when I eat anything and

get sick. I was reading some of the emails in this group and decided to

write and hopefully get some feedback. I'm glad to know that I'm not the

only one who is in pain all the time.

March 25, 2001

Hello Goodbucks & Hubby!

First, let me say WELCOME! You are gonna love the people here. They

sure have helped & supported me through a lot of things lately. I'm

so happy I found this place and I have a feeling you are gonna be

just as happy. I have cried on alot of shoulders here lately, and no

one has told me to get lost. Would you mind telling me where you

live? Everytime I see anything that has to do with " bucks " I think

of Ohio - Buckeyes, so I was wondering if you are from Ohio? I am, I

live in Springfield. Oh no! You are diffently not the only person

who has this nasty, annoying pain everyday. I hate it as much as you

do. I'm sure you will find alot of answers here. Maybe if you post

where you are from, then someone from this board just may know a good

doctor fairly close to where you live. I travel 2 1/2 to 3 hours to

Indianapolis to see a wonderful specialist at Indiana University. If

you have any specific questions, please fire away! I hope to hear

from you alot more, my new-found friend!

Lots of Hugs,

<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Hello:

I just joined this group today. My husband and I need a support

system. I have chronic pancreatitis. We live in an area that does

not have a doctor with any knowledge of this. I get very frustrated

when I eat anything and get sick. I was reading some of the emails

in this group and decided to write and hopefully get some feedback.

I'm glad to know that I'm not the only one who is in pain all the

time.

March 26, 2001

:

I'm sitting here trying to figure out why I haven't written you before!!!!!!!

I had an attack yesterday that was so bad I thought I would die!!!!! It was

on my right side though and even going to a doctor here is out of the

question. They have already told me they don't know what to do. We are now

living in Coos Bay, OR. We are looking for new jobs to get out of here. I

haven't been on any pain meds for over a year because in Montana, and

Colorado I was on so much morphing, fentinol patches (400) that 99% of the

year in CO I don't remember. I hate trying to explain to anyone that 10 mg

of codeine etc just does not work anymore. I have had my right breast taken,

feeding tubes, drains, gall bladder gone, I won't even look in the mirror

anymore and heaven forbid let my wonderful husband see me. We got back

together after 24 years of being apart. We were engaged back in 71 and went

our separate ways. I married a preacher (ugh) and finally had the courage to

leave a very abusive preacher and and I found each other and we have

been married 6 years. He is my true soul mate and without him I know I

wouldn't be here. I don't work and have no friends here so I am alone all

day with just my dog to talk to. Sometimes I really think of just slipping

out of life, and I see no light at the end of the tunnel.

Sorry about having a mini pity party.

Thanks again for emailing

Cheri

March 26, 2001