Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Also, B-12. I tested for B-1,2,3,5, and 6 as well. Pantothenic Acid (B-5) showed no recovery. Re-tested twice after supplementation and still deficient. As I understand, B-5 and Biotin are the only two B's with receptors in the colon instead of the small intestine and they evidently compete with each other for those receptors. B-5 is an essential vitamin and without it ones gut does not work properly, not to mention many other primary functions in other areas. Human deficiency is extremely rare, only seen in severely malnourished prisoners of war and concentration camp victims, etc., as B-5 is plentiful in many foods, that's why it's called " Pan " tothenic Acid. No one has been able to come up with any explanation for my deficiency. If anyone on this list has any ideas or experience with this, I would be extremely grateful for any information on the subject. Many thanks... Dinah > > Hi Ann, > > Make sure you test " Vitamin D3 25 Hydroxy " Quest Labs apparently changed their guidelines and testing techniques after that whole fiasco a couple of months back. > > Also, DHEA is produced in Adrenals. > Many of us with chronic disease have adrenal insufficiency or " adrenal issues " and thyroid issues as well. Not too mention what happens to our adrenals due to steroids or just the stresses of being ill. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Also, B-12. I tested for B-1,2,3,5, and 6 as well. Pantothenic Acid (B-5) showed no recovery. Re-tested twice after supplementation and still deficient. As I understand, B-5 and Biotin are the only two B's with receptors in the colon instead of the small intestine and they evidently compete with each other for those receptors. B-5 is an essential vitamin and without it ones gut does not work properly, not to mention many other primary functions in other areas. Human deficiency is extremely rare, only seen in severely malnourished prisoners of war and concentration camp victims, etc., as B-5 is plentiful in many foods, that's why it's called " Pan " tothenic Acid. No one has been able to come up with any explanation for my deficiency. If anyone on this list has any ideas or experience with this, I would be extremely grateful for any information on the subject. Many thanks... Dinah > > Hi Ann, > > Make sure you test " Vitamin D3 25 Hydroxy " Quest Labs apparently changed their guidelines and testing techniques after that whole fiasco a couple of months back. > > Also, DHEA is produced in Adrenals. > Many of us with chronic disease have adrenal insufficiency or " adrenal issues " and thyroid issues as well. Not too mention what happens to our adrenals due to steroids or just the stresses of being ill. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Also, B-12. I tested for B-1,2,3,5, and 6 as well. Pantothenic Acid (B-5) showed no recovery. Re-tested twice after supplementation and still deficient. As I understand, B-5 and Biotin are the only two B's with receptors in the colon instead of the small intestine and they evidently compete with each other for those receptors. B-5 is an essential vitamin and without it ones gut does not work properly, not to mention many other primary functions in other areas. Human deficiency is extremely rare, only seen in severely malnourished prisoners of war and concentration camp victims, etc., as B-5 is plentiful in many foods, that's why it's called " Pan " tothenic Acid. No one has been able to come up with any explanation for my deficiency. If anyone on this list has any ideas or experience with this, I would be extremely grateful for any information on the subject. Many thanks... Dinah > > Hi Ann, > > Make sure you test " Vitamin D3 25 Hydroxy " Quest Labs apparently changed their guidelines and testing techniques after that whole fiasco a couple of months back. > > Also, DHEA is produced in Adrenals. > Many of us with chronic disease have adrenal insufficiency or " adrenal issues " and thyroid issues as well. Not too mention what happens to our adrenals due to steroids or just the stresses of being ill. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Hi Dinah, How did you test for B5? Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Hi Dinah, How did you test for B5? Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Hi Dinah, How did you test for B5? Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 This is interesting since I am deficient in other B's (never checked B5) but if I supplement B's (B12, B6 and B2 seem to be ok sometimes) in IV's I get such a bad headache- B5 makes me really over the top exhausted. My B12 is high but my other integrative doc still puts it in my IV. There is controversy on what a good B12 level really is. Apparently the amounts here in the US are much lower than EU standards. Another thing to read about. LOL. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 This is interesting since I am deficient in other B's (never checked B5) but if I supplement B's (B12, B6 and B2 seem to be ok sometimes) in IV's I get such a bad headache- B5 makes me really over the top exhausted. My B12 is high but my other integrative doc still puts it in my IV. There is controversy on what a good B12 level really is. Apparently the amounts here in the US are much lower than EU standards. Another thing to read about. LOL. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 This is interesting since I am deficient in other B's (never checked B5) but if I supplement B's (B12, B6 and B2 seem to be ok sometimes) in IV's I get such a bad headache- B5 makes me really over the top exhausted. My B12 is high but my other integrative doc still puts it in my IV. There is controversy on what a good B12 level really is. Apparently the amounts here in the US are much lower than EU standards. Another thing to read about. LOL. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Blood serum...as with all other B's. All others were within normal range. I had to laugh when told deficiency in humans was almost unknown...just what I always suspected about myself. LOL Dinah > > Hi Dinah, > > How did you test for B5? > > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Blood serum...as with all other B's. All others were within normal range. I had to laugh when told deficiency in humans was almost unknown...just what I always suspected about myself. LOL Dinah > > Hi Dinah, > > How did you test for B5? > > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Blood serum...as with all other B's. All others were within normal range. I had to laugh when told deficiency in humans was almost unknown...just what I always suspected about myself. LOL Dinah > > Hi Dinah, > > How did you test for B5? > > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Dinah, You are beyond hilarious.. I just laughed out loud so hard. My goodness. Maybe I should check myself for ape parts too! Jodi > I had to laugh when told deficiency in humans was almost unknown...just what I always suspected about myself. LOL > > Dinah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Dinah, You are beyond hilarious.. I just laughed out loud so hard. My goodness. Maybe I should check myself for ape parts too! Jodi > I had to laugh when told deficiency in humans was almost unknown...just what I always suspected about myself. LOL > > Dinah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 How do you know B-5 makes you over the top, etc? Have you taken it all by itself? Orally or IM or IV? How B's are given (amounts in relation to one and other) is vitally important, and anyway, cannot be formulated exactly to reproduce how they appear in food. If the relationship between them is off, a deficiency in one or the other can be created and cause big problems. Best to get your B's from food if at all possible. Nutritional yeast is a good source. Is it legal? I would think not. Also, be careful with the ongoing B-12, as unlike the other B's it is stored in the body and too much is no good. Dinah > > This is interesting since I am deficient in other B's (never checked B5) but if I supplement B's (B12, B6 and B2 seem to be ok sometimes) in IV's I get such a bad headache- B5 makes me really over the top exhausted. > My B12 is high but my other integrative doc still puts it in my IV. There is controversy on what a good B12 level really is. Apparently the amounts here in the US are much lower than EU standards. > > Another thing to read about. LOL. > > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Jodi...I was born aberrant. Perfectly normal in appearance, but my mind...well that's a different story. However...it took a course of unnecessary abx eight years ago to reveal the fragility of my ability to tolerate same...ending in gut disaster. Dinah > > Dinah, > > You are beyond hilarious.. > I just laughed out loud so hard. > My goodness. > > Maybe I should check myself for ape parts too! > > Jodi > > > > I had to laugh when told deficiency in humans was almost unknown...just what I always suspected about myself. LOL > > > > Dinah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Dinah, I very much relate to this. Although I was DX'd with CD a couple of years prior to this event ABX- I got a long course of Clindamycin for really bad impacted wisdom teeth- my stamina and health completely changed. Utter disaster. It is amazing I am alive really. I have never been the same since. Jodi > > Jodi...I was born aberrant. Perfectly normal in appearance, but my mind...well that's a different story. However...it took a course of unnecessary abx eight years ago to reveal the fragility of my ability to tolerate same...ending in gut disaster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Dinah, I very much relate to this. Although I was DX'd with CD a couple of years prior to this event ABX- I got a long course of Clindamycin for really bad impacted wisdom teeth- my stamina and health completely changed. Utter disaster. It is amazing I am alive really. I have never been the same since. Jodi > > Jodi...I was born aberrant. Perfectly normal in appearance, but my mind...well that's a different story. However...it took a course of unnecessary abx eight years ago to reveal the fragility of my ability to tolerate same...ending in gut disaster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 So Alyssa, I see we are very similar as some of these " illegal " questions irk me too... I think it makes many of us question the " why " behind some of Elaine's choices- and she isn't here to give us full on explanations. Even then, do you think she would have the time for every little " why " question LOL. It's a blessing she did what she did. One of the things you need to ask yourself when it comes to illegals in general " what can it be feeding or contributing to the gut dysbiosis environment " This is why for instance Candida can be a real problem for some. Some people don't know how bad their Candida is and being fruit heavy in the begining of the diet will damper their progress. I think in the case of nutritional yeast it's like this wild card- as it seems to me whether dead or alive it would totally feed some nasty critters. I would love one of our home brew scientists or SCD'er with knowledge on the subject to speak up!! We always have some -expert- in our bunch.. But people are busy feeling well. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 So Alyssa, I see we are very similar as some of these " illegal " questions irk me too... I think it makes many of us question the " why " behind some of Elaine's choices- and she isn't here to give us full on explanations. Even then, do you think she would have the time for every little " why " question LOL. It's a blessing she did what she did. One of the things you need to ask yourself when it comes to illegals in general " what can it be feeding or contributing to the gut dysbiosis environment " This is why for instance Candida can be a real problem for some. Some people don't know how bad their Candida is and being fruit heavy in the begining of the diet will damper their progress. I think in the case of nutritional yeast it's like this wild card- as it seems to me whether dead or alive it would totally feed some nasty critters. I would love one of our home brew scientists or SCD'er with knowledge on the subject to speak up!! We always have some -expert- in our bunch.. But people are busy feeling well. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Hi Alyssa.. It's pretty much safe to presume that we with IBD have gut dysbiosis it goes hand n' hand. There are so many microbes at play in any given individual that it's hard when things are labeled under the way over generalized term of " Candida " . The SCD calls for fanatical adherence for it to work. I personally wouldn't keep something like Brewers Yeast in. If you aren't improving that should be one of the first things to pull for sure. Have you read " Gut and Psychology Syndrome " by Dr Natasha McBride? She basically took the SCD and expanded on it (it is still the regular diet with subtle differences as she focuses more on Brain issues) anyway, in this book IMO she really does a good job explaining what Gut Dysbiosis and Candida really are. She also gives different reasons why we come down with it and are plagued with it in our society. Really a fascinating read and a must for any SCD'er! Jodi > > Yeah, I guess so. At this point, it's still all an experiment for me > to see what will and won't work. I was never diagnosed with Candida, > so Im not sure how to tell if I have it or not, but it seems it goes > together with UC very often. > ALyssa Quote Link to comment Share on other sites More sharing options...
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