Re: MITO:Numb toes and feet

[Guest guest]

Assuming it's not a positional/circulation issue, it sounds like neuropathy.

Do I remember you saying before that was having some behavioral

issues? If so, neuropathy can be pretty painful and that might account for

difficulties depending on how verbal she is. My son is very verbal but

still cannot adequately express when he is not feeling well or in pain - so

he just acts like a pill - sometimes including violent behavior.

-Terri

>

>Reply-To: Mito

>To: <mito >

>Subject: MITO:Numb toes and feet

>Date: Sat, 23 Mar 2002 21:44:01 -0000

>

>Hey guys!

>Hope you all are having a great weekend!

>Have any of you experiences numb toes and feet with your kids? It is really

>weird. All of s toes are numb, you can stick them with a needle and

>she does not flinch one bit.

>Sometimes the numbness goes up her foot.

>Any clues?

> Horsley

_________________________________________________________________

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[Guest guest]

Assuming it's not a positional/circulation issue, it sounds like neuropathy.

Do I remember you saying before that was having some behavioral

issues? If so, neuropathy can be pretty painful and that might account for

difficulties depending on how verbal she is. My son is very verbal but

still cannot adequately express when he is not feeling well or in pain - so

he just acts like a pill - sometimes including violent behavior.

-Terri

>

>Reply-To: Mito

>To: <mito >

>Subject: MITO:Numb toes and feet

>Date: Sat, 23 Mar 2002 21:44:01 -0000

>

>Hey guys!

>Hope you all are having a great weekend!

>Have any of you experiences numb toes and feet with your kids? It is really

>weird. All of s toes are numb, you can stick them with a needle and

>she does not flinch one bit.

>Sometimes the numbness goes up her foot.

>Any clues?

> Horsley

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

Assuming it's not a positional/circulation issue, it sounds like neuropathy.

Do I remember you saying before that was having some behavioral

issues? If so, neuropathy can be pretty painful and that might account for

difficulties depending on how verbal she is. My son is very verbal but

still cannot adequately express when he is not feeling well or in pain - so

he just acts like a pill - sometimes including violent behavior.

-Terri

>

>Reply-To: Mito

>To: <mito >

>Subject: MITO:Numb toes and feet

>Date: Sat, 23 Mar 2002 21:44:01 -0000

>

>Hey guys!

>Hope you all are having a great weekend!

>Have any of you experiences numb toes and feet with your kids? It is really

>weird. All of s toes are numb, you can stick them with a needle and

>she does not flinch one bit.

>Sometimes the numbness goes up her foot.

>Any clues?

> Horsley

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

,

son has neuropathy in his legs and feet (it is now in his hans as well)

causing him to have frequent pain and what he describes as a burning

sensation. Sometimes his feet and legs are so blue and cold up to his knees,

then at other times the appear quite fine. Very strange.

son says when his pain is bad if he soaks his feet in warm water they

feel better - Now, I am not a doctor and have no clue if this helps or not

from a medical perspective - BUT, from a mom's perspective if soaking his

feet makes him feel more comfortable then that's what we do. He swears by it

and it makes him more comfortable.

Now that the neuropathy is affecting his hands so badly, we are looking into

starting him on Neurontin to see if it helps.

Hope this helps.

Laurel

[Guest guest]

Teri,

Thants to a T.

Violent big time.

She also complains about bad pain

and says it hurts to lay in her bed.

We got her a new one when she came home

from the hospital in Sept. because we just thought it was the old ancient bed, well guess not.

She seems to never sleep well. I am gonna ask if there

is something we can give her at night to help with the pain

and sleeplessness when she goes in the hospital Monday for 10 days.

Thanks for the info!

Have a great week!

Horsley

[Guest guest]

Teri,

Thants to a T.

Violent big time.

She also complains about bad pain

and says it hurts to lay in her bed.

We got her a new one when she came home

from the hospital in Sept. because we just thought it was the old ancient bed, well guess not.

She seems to never sleep well. I am gonna ask if there

is something we can give her at night to help with the pain

and sleeplessness when she goes in the hospital Monday for 10 days.

Thanks for the info!

Have a great week!

Horsley

[Guest guest]

Teri,

Thants to a T.

Violent big time.

She also complains about bad pain

and says it hurts to lay in her bed.

We got her a new one when she came home

from the hospital in Sept. because we just thought it was the old ancient bed, well guess not.

She seems to never sleep well. I am gonna ask if there

is something we can give her at night to help with the pain

and sleeplessness when she goes in the hospital Monday for 10 days.

Thanks for the info!

Have a great week!

Horsley

[Guest guest]

:

when my dad was ill with prostate cancer he had a foam pad on top of

his bed that seemed to help with his pain and he had a lot of bone pain.

It was an eggshell crate foam pad. It positions the body differently

than a regular mattress. You may want to ask about that and also

about what you can give her for the pain to help her sleep at night.

Have a great week. And good luck getting ready to go to the hospital.

N. mom to Leah

Tommie & Horsley wrote:

Teri,Thants

to a T.Violent big time.She

also complains about bad painand says it hurts to

lay in her bed.We got her a new one when she came

homefrom the hospital in Sept. because we just thought

it was the old ancient bed, well guess not.She seems

to never sleep well. I am gonna ask if thereis something

we can give her at night to help with the painand

sleeplessness when she goes in the hospital Monday for 10 days.Thanks

for the info!Have a great week!

Horsley

Please contact mito-owner with any problems or

questions.

[Guest guest]

Terri Mason wrote:

> Assuming it's not a positional/circulation issue, it sounds like neuropathy.

> Do I remember you saying before that was having some behavioral

> issues? If so, neuropathy can be pretty painful and that might account for

> difficulties depending on how verbal she is. My son is very verbal but

> still cannot adequately express when he is not feeling well or in pain - so

> he just acts like a pill - sometimes including violent behavior.

My daughter also has neuropathy, and is very very verbal. But I had no idea of

the pain she felt, because she didn't realize that she wasn't supposed to hurt.

She always has. She recently wrote a paper for school about her disease and my

heart sank when I read what she wrote about not ever being able to escape the

pain sometimes..... She acknowledged that she has just recently realized that

there are medicines that you can take for the pain.

Jeannine

[Guest guest]

,

I have noticed recently that my son with autism/? mito is ( well his crying

spells are back)

and he is actually biting and pulling real hard on his toes and fingers! I

ask the same question then..why might he be doing this.. I have to look at

the behaviors.. as he cannot communicate to me verbally. Are they going numb

is an intersting idea.

And then behaviorally he is trying to bring back sensation.. I wonder..or his

nerves are shot at school with a new aggressive kid in his self contained

classroom..

Intersesting ?

Kathy Foley