Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Same here. I would like to know the same about Tamoxifen. I am supposed to begin this after chemo and jointly with zoladex. " H. McGill" wrote: Hi Janice,I'm new to this group but I joined because I wasinterested in women's responses to Tamoxifen (whichI'm on), specifically sexually related side effects. I was single when I had my mastectomy in 2004, stayedsingle thru chemo, and wondered if there was evergoing to be sex after mastectomy. As of this summer,I can say YES but not w/o some trepidation (on mypart, not his). I'm still not over my own selfconsciousness and feel rather tentative about my body,not just the lack of breast (I opted not to havereconstructive surgery) but also because I'm convincedthe Tamoxifen is affecting me in that department (toodry and sort of hmmm, how to explain, not supple orsomething, I feel too sensitive like I could just ripto shreds...). I found the hardest part to be thedisclosure -- I really felt like I needed to explainwhat was going on but found it VERY hard to begin thatconversation (which is completely ridiculous since I'dalready told him I'd had breast cancer -- why such abig deal to tell him I'd had a mastectomy?!). Anyway,I'd love to hear your thoughts since I'm still reallystruggling with this...----- Ms Janice Thornton <jthor0824> wrote:> To anyone out there> > I am single and had a double mascetomy, I haven't> had> a relationship with an man since then, now I think I> may be ready. But I am shy about my tram flap, and> all> the resulting surgical scars on my abdomen and> chest.> My skin keloids and so they are not pretty. I am> wondering if the married couples out there are> anyone> with an man friend in their lives, how do they react> to them> Jan.> > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 , I haven't had any sexual contact since my surgery. I am to self-conscious about all the scar, I also had a reconstruction, but my skin keloids, so I have mega scars. I developed an hernia after the reconstruction, and I am an older woman in my early 50's. I will say that I have no desire for sex. I am now on Femara. It is just like the Arimedex, for woman that are post menopause. I could not take the Tamoxifen, because of the horrible side effect, Lost of hair, migraines, swelling, joint aches. The Ameridex was a little better, but I couldn't do anything because of the fatigue. The Femara is good, I have some achy joints, and thinning of my hair but I feel good, and I go fishing everyday. I take effextor (not spell right) for the hot flashes, and I have some swelling, but I feel good. Jan. --- Pinheiro wrote: > Same here. I would like to know the same about > Tamoxifen. I am supposed to begin this after chemo > and jointly with zoladex. > > > " H. McGill " wrote: > Hi Janice, > I'm new to this group but I joined because I was > interested in women's responses to Tamoxifen (which > I'm on), specifically sexually related side effects. > > I was single when I had my mastectomy in 2004, > stayed > single thru chemo, and wondered if there was ever > going to be sex after mastectomy. As of this summer, > I can say YES but not w/o some trepidation (on my > part, not his). I'm still not over my own self > consciousness and feel rather tentative about my > body, > not just the lack of breast (I opted not to have > reconstructive surgery) but also because I'm > convinced > the Tamoxifen is affecting me in that department > (too > dry and sort of hmmm, how to explain, not supple or > something, I feel too sensitive like I could just > rip > to shreds...). I found the hardest part to be the > disclosure -- I really felt like I needed to explain > what was going on but found it VERY hard to begin > that > conversation (which is completely ridiculous since > I'd > already told him I'd had breast cancer -- why such a > big deal to tell him I'd had a mastectomy?!). > Anyway, > I'd love to hear your thoughts since I'm still > really > struggling with this... > -- > > --- Ms Janice Thornton wrote: > > > To anyone out there > > > > I am single and had a double mascetomy, I haven't > > had > > a relationship with an man since then, now I think > I > > may be ready. But I am shy about my tram flap, and > > all > > the resulting surgical scars on my abdomen and > > chest. > > My skin keloids and so they are not pretty. I am > > wondering if the married couples out there are > > anyone > > with an man friend in their lives, how do they > react > > to them > > Jan. > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 , I haven't had any sexual contact since my surgery. I am to self-conscious about all the scar, I also had a reconstruction, but my skin keloids, so I have mega scars. I developed an hernia after the reconstruction, and I am an older woman in my early 50's. I will say that I have no desire for sex. I am now on Femara. It is just like the Arimedex, for woman that are post menopause. I could not take the Tamoxifen, because of the horrible side effect, Lost of hair, migraines, swelling, joint aches. The Ameridex was a little better, but I couldn't do anything because of the fatigue. The Femara is good, I have some achy joints, and thinning of my hair but I feel good, and I go fishing everyday. I take effextor (not spell right) for the hot flashes, and I have some swelling, but I feel good. Jan. --- Pinheiro wrote: > Same here. I would like to know the same about > Tamoxifen. I am supposed to begin this after chemo > and jointly with zoladex. > > > " H. McGill " wrote: > Hi Janice, > I'm new to this group but I joined because I was > interested in women's responses to Tamoxifen (which > I'm on), specifically sexually related side effects. > > I was single when I had my mastectomy in 2004, > stayed > single thru chemo, and wondered if there was ever > going to be sex after mastectomy. As of this summer, > I can say YES but not w/o some trepidation (on my > part, not his). I'm still not over my own self > consciousness and feel rather tentative about my > body, > not just the lack of breast (I opted not to have > reconstructive surgery) but also because I'm > convinced > the Tamoxifen is affecting me in that department > (too > dry and sort of hmmm, how to explain, not supple or > something, I feel too sensitive like I could just > rip > to shreds...). I found the hardest part to be the > disclosure -- I really felt like I needed to explain > what was going on but found it VERY hard to begin > that > conversation (which is completely ridiculous since > I'd > already told him I'd had breast cancer -- why such a > big deal to tell him I'd had a mastectomy?!). > Anyway, > I'd love to hear your thoughts since I'm still > really > struggling with this... > -- > > --- Ms Janice Thornton wrote: > > > To anyone out there > > > > I am single and had a double mascetomy, I haven't > > had > > a relationship with an man since then, now I think > I > > may be ready. But I am shy about my tram flap, and > > all > > the resulting surgical scars on my abdomen and > > chest. > > My skin keloids and so they are not pretty. I am > > wondering if the married couples out there are > > anyone > > with an man friend in their lives, how do they > react > > to them > > Jan. > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Well, after my Herceptin treatment yesterday, I asked my oncology nurses if he would be changing my Tamoxifen now that the Lupron injections shut down my ovaries. The answer was (1) year on Lupron am I considered post-menopausal enough for Arimidex or Femara. I have my three month checkup in September and will find out more about the " whys " and " whens, " but needless to say, I'm a bit " bummed " as I thought I could switch now that the periods have stopped. My issue is not only the side effects I don't need (like Uterine Cancer, blood clots, etc.) - my eyesight has I believe become compromised because of Tamoxifen. I've read up on it and it can cause several ocular problems with corneas, etc. I think I will make an appointment with an eye specialist, as I'm tired of going to the optician 3 times a year to tell him I'm a bit blurry. What's the expression: Sometimes the cure is worse than ???? Have a wonderful weekend and hugs to all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I was receptro negative so couldn't take the Tamoxifen. Its better if you can, from what drs say, it supposedly helps to keep your cancer from returning. On the other hand I couldn't take it and its been 16 yrs since my breast cancer. Its a decision only you can make.I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com tamoxifen Hi, I am new to the group, I am 65 and recently had radical mastectomy the lymph nodes were negative. I don't need radiation or chemo. The Dr. gave me perscription for tamoxifen but I am so afraid of the side effects that I haven't had it filled. But what if I don't take it what then? ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.405 / Virus Database: 268.11.7/432 - Release Date: 8/29/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I've been on Tamoxifen since 1/05 with no problems to report. I wouldn't even " think " of asking " what could happen if I don't. " I think we all know that answer. I would say each of us is an individual and side-effects are as well. I would try it, and like Betsy said, you could possibly switch if you have any problems. I have to be on it another year because they're shutting down my ovaries (premenopausal) with Lupron injections. My oncologist indicated it would take 12 months and then I can switch to Arimidex or Femara. Good luck. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I’m definitely not giving medical advice – just sharing the “little” I know. The reason I’m on hormone therapy – in my case Arimidex since I’m postmenopausal – is because my cancer was estrogen positive. That means that the estrogen in my body fed the cancer. Tamoxifen does have more side affects then Arimidex. You might want to talk to your doctor about switching you to Arimidex, if you’re postmenopausal. If you don’t take either of these – my oncologist tells me that my chance of reoccurrence in the next 5 years is 10% higher. Hope that helps, tamoxifen Hi, I am new to the group, I am 65 and recently had radical mastectomy the lymph nodes were negative. I don't need radiation or chemo. The Dr. gave me perscription for tamoxifen but I am so afraid of the side effects that I haven't had it filled. But what if I don't take it what then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I’m definitely not giving medical advice – just sharing the “little” I know. The reason I’m on hormone therapy – in my case Arimidex since I’m postmenopausal – is because my cancer was estrogen positive. That means that the estrogen in my body fed the cancer. Tamoxifen does have more side affects then Arimidex. You might want to talk to your doctor about switching you to Arimidex, if you’re postmenopausal. If you don’t take either of these – my oncologist tells me that my chance of reoccurrence in the next 5 years is 10% higher. Hope that helps, tamoxifen Hi, I am new to the group, I am 65 and recently had radical mastectomy the lymph nodes were negative. I don't need radiation or chemo. The Dr. gave me perscription for tamoxifen but I am so afraid of the side effects that I haven't had it filled. But what if I don't take it what then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I’m definitely not giving medical advice – just sharing the “little” I know. The reason I’m on hormone therapy – in my case Arimidex since I’m postmenopausal – is because my cancer was estrogen positive. That means that the estrogen in my body fed the cancer. Tamoxifen does have more side affects then Arimidex. You might want to talk to your doctor about switching you to Arimidex, if you’re postmenopausal. If you don’t take either of these – my oncologist tells me that my chance of reoccurrence in the next 5 years is 10% higher. Hope that helps, tamoxifen Hi, I am new to the group, I am 65 and recently had radical mastectomy the lymph nodes were negative. I don't need radiation or chemo. The Dr. gave me perscription for tamoxifen but I am so afraid of the side effects that I haven't had it filled. But what if I don't take it what then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I take Arimidex also but now I also take Fosamax. I am post menopausal. I asked about Raxilene (?) and it is for women that are premenapausal. Sharon wrote: I’m definitely not giving medical advice – just sharing the “little” I know. The reason I’m on hormone therapy – in my case Arimidex since I’m postmenopausal – is because my cancer was estrogen positive. That means that the estrogen in my body fed the cancer. Tamoxifen does have more side affects then Arimidex. You might want to talk to your doctor about switching you to Arimidex, if you’re postmenopausal. If you don’t take either of these – my oncologist tells me that my chance of reoccurrence in the next 5 years is 10% higher. Hope that helps, tamoxifen Hi, I am new to the group, I am 65 and recently had radical mastectomy the lymph nodes were negative. I don't need radiation or chemo. The Dr. gave me perscription for tamoxifen but I am so afraid of the side effects that I haven't had it filled. But what if I don't take it what then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I take Arimidex also but now I also take Fosamax. I am post menopausal. I asked about Raxilene (?) and it is for women that are premenapausal. Sharon wrote: I’m definitely not giving medical advice – just sharing the “little” I know. The reason I’m on hormone therapy – in my case Arimidex since I’m postmenopausal – is because my cancer was estrogen positive. That means that the estrogen in my body fed the cancer. Tamoxifen does have more side affects then Arimidex. You might want to talk to your doctor about switching you to Arimidex, if you’re postmenopausal. If you don’t take either of these – my oncologist tells me that my chance of reoccurrence in the next 5 years is 10% higher. Hope that helps, tamoxifen Hi, I am new to the group, I am 65 and recently had radical mastectomy the lymph nodes were negative. I don't need radiation or chemo. The Dr. gave me perscription for tamoxifen but I am so afraid of the side effects that I haven't had it filled. But what if I don't take it what then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I take Arimidex also but now I also take Fosamax. I am post menopausal. I asked about Raxilene (?) and it is for women that are premenapausal. Sharon wrote: I’m definitely not giving medical advice – just sharing the “little” I know. The reason I’m on hormone therapy – in my case Arimidex since I’m postmenopausal – is because my cancer was estrogen positive. That means that the estrogen in my body fed the cancer. Tamoxifen does have more side affects then Arimidex. You might want to talk to your doctor about switching you to Arimidex, if you’re postmenopausal. If you don’t take either of these – my oncologist tells me that my chance of reoccurrence in the next 5 years is 10% higher. Hope that helps, tamoxifen Hi, I am new to the group, I am 65 and recently had radical mastectomy the lymph nodes were negative. I don't need radiation or chemo. The Dr. gave me perscription for tamoxifen but I am so afraid of the side effects that I haven't had it filled. But what if I don't take it what then? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 hi, I have been taking tamoxifen for 3 yrs. I haven't had any side effects. Marisa Steffers wrote: welcome Here's a link to the STAR Trial http://www.cancer.gov/star perhaps you can take it and see how it goes...some of the other women here are taking either tam. or arimedex - they'll be able to let you know what their experiences have been with the drug(s) marisa --- second_daughter60 wrote: > Hi, I am new to the group, I am 65 and recently had > radical mastectomy > the lymph nodes were negative. I don't need > radiation or chemo. The > Dr. gave me perscription for tamoxifen but I am so > afraid of the side > effects that I haven't had it filled. But what if I > don't take it > what then? > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. Well, i hope i can help you. Anggy. --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. Well, i hope i can help you. Anggy. --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 I was taking tamoxifen just for a few months and one of the side effects to that med.is blood clots it can cause.i ended up in the hospital for 10 with over 100 blood clots in my lungs and in both legs.they say i am lucky to be alive.so please read the side effects on all meds.i know i stop taking that med and got on somethings else. Manunta wrote: Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. Well, i hope i can help you. Anggy. --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 I was taking tamoxifen just for a few months and one of the side effects to that med.is blood clots it can cause.i ended up in the hospital for 10 with over 100 blood clots in my lungs and in both legs.they say i am lucky to be alive.so please read the side effects on all meds.i know i stop taking that med and got on somethings else. Manunta wrote: Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. Well, i hope i can help you. Anggy. --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Oh my gosh - 100 blood clots! I did hear about that side effect from my oncol. She said, for me, arimidex was the way to go because of the reduced chance of blood clots. Although, my Mom took tamoxifin for 5 years with no side effects. Go figure. It's such a guessing game sometimes isn't it??? Anyway.......you ARE lucky to be alive and thanks for sharing the info. Ellen Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. > Well, i hope i can help you. > Anggy. > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Oh my gosh - 100 blood clots! I did hear about that side effect from my oncol. She said, for me, arimidex was the way to go because of the reduced chance of blood clots. Although, my Mom took tamoxifin for 5 years with no side effects. Go figure. It's such a guessing game sometimes isn't it??? Anyway.......you ARE lucky to be alive and thanks for sharing the info. Ellen Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. > Well, i hope i can help you. > Anggy. > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Oh my gosh - 100 blood clots! I did hear about that side effect from my oncol. She said, for me, arimidex was the way to go because of the reduced chance of blood clots. Although, my Mom took tamoxifin for 5 years with no side effects. Go figure. It's such a guessing game sometimes isn't it??? Anyway.......you ARE lucky to be alive and thanks for sharing the info. Ellen Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. > Well, i hope i can help you. > Anggy. > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 yw yea im lucky to me alive and have to take blood thinner for 6 months. but im fighting to win this battle with breast cancer i can win this one to with the blood clots. Ellen wrote: Oh my gosh - 100 blood clots! I did hear about that side effect from my oncol. She said, for me, arimidex was the way to go because of the reduced chance of blood clots. Although, my Mom took tamoxifin for 5 years with no side effects. Go figure. It's such a guessing game sometimes isn't it??? Anyway.......you ARE lucky to be alive and thanks for sharing the info. Ellen Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. > Well, i hope i can help you. > Anggy. > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 yw yea im lucky to me alive and have to take blood thinner for 6 months. but im fighting to win this battle with breast cancer i can win this one to with the blood clots. Ellen wrote: Oh my gosh - 100 blood clots! I did hear about that side effect from my oncol. She said, for me, arimidex was the way to go because of the reduced chance of blood clots. Although, my Mom took tamoxifin for 5 years with no side effects. Go figure. It's such a guessing game sometimes isn't it??? Anyway.......you ARE lucky to be alive and thanks for sharing the info. Ellen Hi catherin, well, maybe for you is better that medicine but i was reading about it and i guess tamoxifen is better less risk than recurrence and side effect, if you wanna have more information you should call american cancer society, they answer u 24 hours and send you the material that u need, they are so nice, every time that i have a dubt i called them and tehn send me what i need, phone number is 1-800-ACS-2345. > Well, i hope i can help you. > Anggy. > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.