diffuse cutaneous mastocytosis

December 28, 2001

Hi Friends,

I found a picture at the website listed below that

looks exactly like the spots on my calves. There are

less than a dozen on each leg and they do not itch

when I scratch them. So, anybody know what this

means, besides the fact that I probably have diffuse

cutaneous mastoctosis?

http://webmd.lycos.com/content/asset/adam_imagepage_2438

Joan

__________________________________________________

December 28, 2001

Thank goodness, No Joan - but thank you very much for the pics. I did look through them earlier when you sent the one identical to your calves and did not come across anything familiar. The ones that I was referring to are little tiny pinch vessels as Ann was describing. Something that would happen if you were to lightly but just a little too harshly, pinch someone and the vessels would rise to the top skin layer. I will be sure to snap a couple of shots next time this occurs. I do have some light brown freckle like spots on my feet at the bottom of my toes that have only been there for a few months but thought they were from the clogs that I wear on a daily basis..?? or possibly age spots of some sort. Hmmmm

Thanks again

~

December 28, 2001

Hi Joan and Ann, Masto can manifest itself in a variety of ways. The thing

with diffuse cutaneous mastocytosis is that your skin texture should be

different, like an orange peel. However, the spots themselves that look

like either moles or bruises or freckles would be urticaria pigmentosa. Now

there is another type, the broken vessel looking spots (or I call them

raspberry marks or squashed spider marks) are yet another form of

Mastocytosis called TMEP (Telangiectasia macularis eruptiva perstans). Have

you had a skin biopsy Joan? If you have there is a way for an old biopsy to

be restained for mast cells. Tricky but can be easily done. I can send you

more information about different forms of testing and the different forms of

Masto as well, in clearer detail.

I urge you to get tested and caution you being diagnosed takes a skillful

doctor and skillful pathologist. I am here to answer any questions you have

anytime!! Much Love, ~Alena's Mom

diffuse cutaneous mastocytosis

> Hey there!

>

> Check out the pictures I found on this website and see

> if any of these look like what you have. Let me know

> what you find!

>

http://www.sdinsider.com/shared/health/adam/ency/article/001466.images.html

>

> Joan

> --- march@... wrote:

> > Hey Joan? I am very new to this, as you are so

> > don't have much info. for

> > you. But, I am curious........do your spots ever

> > look similar to passion

> > mark/ hickey marks? Like little spots of red blood

> > vessels clustered

> > together or anything? I have been getting something

> > like this for the past 6

> > months now and now am wondering if it could possibly

> > be an indicator or

> > masto.

> > Thanks for any input.

> >

> > In a message dated 12/28/2001 2:20:30 PM Eastern

> > Standard Time,

> > JOANIE36109@... writes:

> >

> > > Hi Friends,

> > >

> > > I found a picture at the website listed below that

> > > looks exactly like the spots on my calves. There

> > are

> > > less than a dozen on each leg and they do not itch

> > > when I scratch them. So, anybody know what this

> > > means, besides the fact that I probably have

> > diffuse

> > > cutaneous mastoctosis?

> > >

> >

> http://webmd.lycos.com/content/asset/adam_imagepage_2438

> > >

> > > Joan

> > >

> >

>

> __________________________________________________

>

December 28, 2001