Re: Like to hear from parents of a child with Crohn's

[Guest guest]

> Our 7 y/o son was just diagnosed with Crohn's. While researching

> about it, I came across the book BTVC and read the reviews. I want

> to implement this lifestyle. I was told by the doctor that we didn't

> need to change his diet but that doesn't make sense to me sense to

> me because at a minimum, I would think it prudent to know what foods

> will cause him discomfort. I look forward to all of the cooking

> involved but I admit that making homemade yogurt scares me! I've

> started talking to my son about changing his diet and trying to

> present it as a way for him to hopefully not have to go to the

> hospital for his Remicade treatment. I keep a food journal now and

> also I've started to eliminate some of the things that he won't be

> able to have. I don't want to jump into the diet but I'm hoping that

> we can start it next month, that way we can shore up supplies like

> almond flour and yogurt starter.

>

> I'd love to hear from other parents in this situation. Glad to know

> there is a group dedicated to BTVC! Thanks.

Hi whatever your name is,

You might want to check out pecanbread.com, which is online group for

parents of kids on

the SCD, many of them with autism which has a huge gut component, but

also with other

gut inflictions:

To subscribe:

http://www.pecanbread.com/new/local1.html

To begin the diet:

http://www.pecanbread.com/new/begindiet1.html

Mara

[Guest guest]

Thanks Mara for your response. LOL I'm Tracie, forgot to include my name! I'm

really looking forward to the SCD and fail to understand what the big deal is

about 'gasp' cooking your own healthy food. Good luck to you.

Tracie

[Guest guest]

Hi! About the being scared about yogurt, I was too! But it's actually one of the easiest things I make now. (I'm not sure if that's reassuring or not =) ) I got a yogurt maker for 20$ online, and it makes making yogurt very easy. It is a little time consuming heating the milk, but if you have a book or some music to listen to it goes pretty fast. I myself eased into the diet over time, just eliminating things one by one.Good luck!ALyssaUC Sept 08SCD 1 monthno meds!Our 7 y/o son was just diagnosed with Crohn's. While researching about it, I came across the book BTVC and read the reviews. I want to implement this lifestyle. I was told by the doctor that we didn't need to change his diet but that doesn't make sense to me sense to me because at a minimum, I would think it prudent to know what foods will cause him discomfort. I look forward to all of the cooking involved but I admit that making homemade yogurt scares me! I've started talking to my son about changing his diet and trying to present it as a way for him to hopefully not have to go to the hospital for his Remicade treatment. I keep a food journal now and also I've started to eliminate some of the things that he won't be able to have. I don't want to jump into the diet but I'm hoping that we can start it next month, that way we can shore up supplies like almond flour and yogurt starter. I'd love to hear from other parents in this situation. Glad to know there is a group dedicated to BTVC! Thanks.

[Guest guest]

Thanks Alyssa for your thoughts. I did check out a video on www.ccccibs.com and

it showed how to make it. I like your idea about getting a yogurt maker and

wrote that down on my list of things to get. I'm so thankful that there is this

group!

Tracie

Crohn's (son) April 09

[Guest guest]

At 01:25 PM 5/7/2009, you wrote:

I'm Tracie, forgot to include my

name! I'm really looking forward to the SCD and fail to understand what

the big deal is about 'gasp' cooking your own healthy food. Good luck to

you.

Hi, Tracie... welcome to the list.

I'm running around like crazy at the moment because my Mom just had a

heart attack, and we're trying to arrange things.

The main thing with making everything from scratch is that before you can

make something, you sometimes have to make the ingredients! I just about

went crazy my first year, because I'd think, " Oh I'm going to

make... " and then I'd remember that I needed to make yogurt first.

Or I was going to make... and I didn't have any homemade tomato sauce.

And so forth and so on.

Now, though, I can't imagine eating any other way.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

>

>

>

> I'm running around like crazy at the moment because my Mom just had

> a heart attack, and we're trying to arrange things.

Marilyn, so sorry to hear it.

How is she doing now?

Mara

[Guest guest]

>

>

>

> I'm running around like crazy at the moment because my Mom just had

> a heart attack, and we're trying to arrange things.

Marilyn, so sorry to hear it.

How is she doing now?

Mara

[Guest guest]

I know what you mean! I don't get why cooking horrifies people so much? I'm not

exactly good at it (yet), but it doesn't horrify me. Funny story: A few years

ago I was visiting family, and some of us were enjoying the leftovers of my

grandma's superb cooking. My aunt shows up with Taco Bell and Mc's and

announces, " The REAL food is here! " Can you imagine thinking that crap was

better than grandma's home cooking? My aunt has had cancer twice now, but has

yet to answer the clue phone.

Good luck! Your son is very lucky that you're willing to put a lot of work into

helping him get well! There are a lot of yummy SCD recipe sites out there, so

there will be no shortage of ideas on what to cook .

Holly

Crohn's

SCD 12/01/08

>

> Thanks Mara for your response. LOL I'm Tracie, forgot to include my name! I'm

really looking forward to the SCD and fail to understand what the big deal is

about 'gasp' cooking your own healthy food. Good luck to you.

>

> Tracie

>

[Guest guest]

I know what you mean! I don't get why cooking horrifies people so much? I'm not

exactly good at it (yet), but it doesn't horrify me. Funny story: A few years

ago I was visiting family, and some of us were enjoying the leftovers of my

grandma's superb cooking. My aunt shows up with Taco Bell and Mc's and

announces, " The REAL food is here! " Can you imagine thinking that crap was

better than grandma's home cooking? My aunt has had cancer twice now, but has

yet to answer the clue phone.

Good luck! Your son is very lucky that you're willing to put a lot of work into

helping him get well! There are a lot of yummy SCD recipe sites out there, so

there will be no shortage of ideas on what to cook .

Holly

Crohn's

SCD 12/01/08

>

> Thanks Mara for your response. LOL I'm Tracie, forgot to include my name! I'm

really looking forward to the SCD and fail to understand what the big deal is

about 'gasp' cooking your own healthy food. Good luck to you.

>

> Tracie

>

[Guest guest]

I splurged on the Excalibur dehydrator. Making yogurt it a lot easier when you

can do 8 quarts at once! Sometimes ebay has some good coupons, which can bring

down the price a bit (I used a 30% off coupon for my Excalibur).

Holly

Crohn's

SCD 12/01/08

> >

> > Thanks Alyssa for your thoughts. I did check out a video on www.ccccibs.com

and it showed how to make it. I like your idea about getting a yogurt maker and

wrote that down on my list of things to get. I'm so thankful that there is this

group!

> >

> > Tracie

> > Crohn's (son) April 09

> >

>

[Guest guest]

Tell me about it! I bothers me to no end how people are always looking down their noses at healthy food. What's so bad about caring about your body?! Oh well, WE'LL be the ones who get the last laugh! ALyssaI know what you mean! I don't get why cooking horrifies people so much? I'm not exactly good at it (yet), but it doesn't horrify me. Funny story: A few years ago I was visiting family, and some of us were enjoying the leftovers of my grandma's superb cooking. My aunt shows up with Taco Bell and Mc's and announces, "The REAL food is here!" Can you imagine thinking that crap was better than grandma's home cooking? My aunt has had cancer twice now, but has yet to answer the clue phone.Good luck! Your son is very lucky that you're willing to put a lot of work into helping him get well! There are a lot of yummy SCD recipe sites out there, so there will be no shortage of ideas on what to cook .HollyCrohn'sSCD 12/01/08 >> Thanks Mara for your response. LOL I'm Tracie, forgot to include my name! I'm really looking forward to the SCD and fail to understand what the big deal is about 'gasp' cooking your own healthy food. Good luck to you. > > Tracie>

[Guest guest]

I'm amazed at the number of times people ask me, " When do your kids get to eat

real food again?! " Sometimes I just sort of let there be a long pause before

answering and " sometimes " it clicks that what they're eating is not food at all!

Kelley W.

> >

> > Thanks Mara for your response. LOL I'm Tracie, forgot to include my name!

I'm really looking forward to the SCD and fail to understand what the big deal

is about 'gasp' cooking your own healthy food. Good luck to you.

> >

> > Tracie

> >

>

[Guest guest]

Hi,

It takes a bit of getting-used to!

This List is incredibly supportive and kind, and knowledgeable.

There are lots of yogurt makers available. Essentially, they just

keep it at the right temp while it ferments. Many come with little

containers. I have been using a borrowed one to see if I'd actually

do it; I have now made yogurt for a number of months. Have taken to

using microwave to heat milk in glass measuring cup sometimes, stove,

sometimes.

Have found the EasiYo, which accepts all sizes of container--as does

the Excalibur dehydrator. After some thinking and getting feedback,

decided to go with the EasiYo. My friend's Excalibur is great for

yogurt, but neither of us had great luck with dehydrating; I have a

dehydrator, found that I was not getting the hoped-for crunch snacks,

and making jerky, which it does well, was not a priority. So: EasiYo.

Am interested in knowing if other folks have been more successful

with dehydrator snacks? Would love to hear experiences.

best wishes, Tracie,

oh, and your son gets to have yummie smoothies! Hooray for frozen

bananas!

[Guest guest]

At 06:17 AM 5/8/2009, you wrote:

After some thinking and getting

feedback, decided to go with the EasiYo.

The EasiYo is, I believe, a thermos-type yogurt maker, and will not make

SCD yogurt because it does not maintain the temperature for the full

24-28 hours.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 06:17 AM 5/8/2009, you wrote:

After some thinking and getting

feedback, decided to go with the EasiYo.

The EasiYo is, I believe, a thermos-type yogurt maker, and will not make

SCD yogurt because it does not maintain the temperature for the full

24-28 hours.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 06:17 AM 5/8/2009, you wrote:

After some thinking and getting

feedback, decided to go with the EasiYo.

The EasiYo is, I believe, a thermos-type yogurt maker, and will not make

SCD yogurt because it does not maintain the temperature for the full

24-28 hours.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

I hope your mom recovers well. Thank you for your help!

Tracie

Crohn's (son) April 2009