Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 Is Kelsey on gh? Could that be causing the headaches? My daughter is also 9 and only weighs 42.5 pounds. She hopefully will be starting the gh soon, but I am worried that maybe headaches are a side effect. Let me know. > > > Date: 2002/05/06 Mon AM 08:29:38 CDT > To: RSS-Support > Subject: my daughter > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 Is Kelsey on gh? Could that be causing the headaches? My daughter is also 9 and only weighs 42.5 pounds. She hopefully will be starting the gh soon, but I am worried that maybe headaches are a side effect. Let me know. > > > Date: 2002/05/06 Mon AM 08:29:38 CDT > To: RSS-Support > Subject: my daughter > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 Is Kelsey on gh? Could that be causing the headaches? My daughter is also 9 and only weighs 42.5 pounds. She hopefully will be starting the gh soon, but I am worried that maybe headaches are a side effect. Let me know. > > > Date: 2002/05/06 Mon AM 08:29:38 CDT > To: RSS-Support > Subject: my daughter > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 No kelsey is not on gh but has alot of other medical problems that are probably causing the migraines. It took kelsey along time to gain weight and now her body is crooked cause she has scoliosis real bad. Between her headaches and her back i don't know which is worse... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Hi Jackie I wish I could be of some help but my 9 1/2 year old RSS son has never had head aches, let alone migraines. Could it be genetic? As in someone in your immediate family has it? We so often look to the RSS as the cause, I'm just wondering if it's part of his genetic makeup? Just wondering. I hope things are better soon it's awful to see your child uncomfortable. I know! Take care Debby my daughter > Well it's monday morning and my 9 year old is still suffering with a > head ache. Just wondering does any have children who get migraines > from having RSS? My daughter has been suffering ever since she was 6 > and they don't seem to be getting any better!I'ts a terrible thing to > have! We just found out that she is only 50 inches and is still only > 25%percent on the hieght chart, her pediatrician said she should hit > aleast 50 or more percent at her age, i don't think that will ever > happen but her weight was good, 60 pounds. After she turned 7 she > started gaining some weight. It was along battle but slowly getting > there! Thanks Jackie Mom of Kelsey > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Well migraines did run in the family but not as severe as she gets them!! We think it might be a combination of family and RSS. Plus with her teeth all messed up and her scoliosis it's realy hard to pin point why they are so bad! I just know it's absolutly terrible when they hit! Thanks Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Jackie, If you can come, you really should! We were also very nervous our first year, but it made so much difference for us and especially for Storm. He was really starting to notice how much smaller he was and he thought that no one was as small as he was. Then he met lots of small kids just like him at the convention, and he knows that he is not alone in his battle! Also, getting to meet other parents who were struggling with many of the same struggles we had gave us such a sense of relief that we were not alone either! It was amazing! I hope I get to go every year, and I hope as Storm grows up he will continue to go to make a difference for those younger than him, and for their parents! The choice is yours of course! The hotel is very nice and the people from MAGIC are fantastic! Carmen, mom to Storm age 6years 9 months, 42 inches and 36.5 pounds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Carmen, I was looking at the hieght of your son storm and my daughter is 9 and is 50 inches, i guess i did'nt realize how small she is. Her weight was good but hieght small. Also thanks for the info on the convention but i'm still alittle scared!! Jackie mom of kelsey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Jackie, my daughter has also suffered migraine attacks for a number of years, she is 24 now, in saying that over the last 5 years they have been less and less, I must say that I never related it to RSS as I am also a migraine sufferer. Hope the headaches are subsiding, thinking of you. Sue Note: forwarded message attached. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Hi Cara, Kelsey is alittle less then 25% percent on her growth chart, Her pediatrician said that she should be 50 percent or more for her age, i laughed cause she has never come close to that ever! This is all new to us, we knew when she was born that she was alittle different but the doctors never diagnosed her, she was always very little and skinny and her face was different then my other children. Over all she is a beutiful child but i'll tell ya the other kids now a days can be real mean!! Kelsey weres glasses and her teeth are all mess up and they tease her all the time, she comes home from school crying alot!!! I hope you don't have to go threw that!!!! I found out with her age that alot of the RSS traits slowly diminish, but we face new problems everyday! Thanks Jackie mom of kelsey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Carmen, no i did'nt know that they have a growth chart for rss, where do you get them? This is all new to us, we did'nt realy know anything untill november when the pediatrician found her spine was mess up. When she was a baby the doctor she had did'nt know anything about rss, we just kept finding ways for her to gain weight and deal with the ear infections,ect... Her doctor now is the one that said this is it and here are all the signs, god bless her cause she has been wonderful. jackie mom of kelsey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Dear Jackie, I saw where you said your daughter Kelsey is 50 inches at 9. My daughter Dallas is 7yr8mo and is 48 in. She's also just 4opds. Do you know how Kelsey is on the growth charts? I need to take Dallas in for a big checkup on her growth, I've been wanting to chat with someone that is similar to Dallas. Seems there are so many people with a lot younger children on the chat room. Thanks, Cara >From: bigblueyes2@... >Reply-To: RSS-Support >To: RSS-Support >Subject: Re: My daughter >Date: Wed, 8 May 2002 09:13:31 EDT > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Dear Jackie, I saw where you said your daughter Kelsey is 50 inches at 9. My daughter Dallas is 7yr8mo and is 48 in. She's also just 4opds. Do you know how Kelsey is on the growth charts? I need to take Dallas in for a big checkup on her growth, I've been wanting to chat with someone that is similar to Dallas. Seems there are so many people with a lot younger children on the chat room. Thanks, Cara >From: bigblueyes2@... >Reply-To: RSS-Support >To: RSS-Support >Subject: Re: My daughter >Date: Wed, 8 May 2002 09:13:31 EDT > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Dear Jackie, I saw where you said your daughter Kelsey is 50 inches at 9. My daughter Dallas is 7yr8mo and is 48 in. She's also just 4opds. Do you know how Kelsey is on the growth charts? I need to take Dallas in for a big checkup on her growth, I've been wanting to chat with someone that is similar to Dallas. Seems there are so many people with a lot younger children on the chat room. Thanks, Cara >From: bigblueyes2@... >Reply-To: RSS-Support >To: RSS-Support >Subject: Re: My daughter >Date: Wed, 8 May 2002 09:13:31 EDT > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Jackie, If you think about it, Storm would have to grow 4 inches a year to be 50 inches by age 9. (he is almost 7) So, I would say that she is about average for an RSS girl of her age. Did you know that there are actual RSS growth charts so you can see how your child rates against other RSS kids. Storm is just below the 50% on the RSS chart for boys his age. Carmen, mom to Storm, age 6 years 9 months, 36.5 pounds, 42 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Jackie, If you think about it, Storm would have to grow 4 inches a year to be 50 inches by age 9. (he is almost 7) So, I would say that she is about average for an RSS girl of her age. Did you know that there are actual RSS growth charts so you can see how your child rates against other RSS kids. Storm is just below the 50% on the RSS chart for boys his age. Carmen, mom to Storm, age 6 years 9 months, 36.5 pounds, 42 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Jackie, Are you a member of MAGIC? If so you can call them and request a copy 1-800-3magic3 Carmen, mom to Storm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Cara, I'm 5/6 and my husband is 5/9, thats funny your as tall as he is!!! My son who is 12 will be as tall as 6/2 and my yougest daughter will be my height but kelsey will only be 4/8, it's hard for her knowing she is a little differant then her brother and sister but we just keep tellin her she is special! I live in Euclid ohio, right out side of cleveland. I bet you get and have right now real nice weather, it's 70 here right now but tonight it's suppose to go down to 40, it's raining and a cold front is moving in, typickle for cleveland weather!!! Yes i get all the junk mail, i don't know how to work this stupid computer either so don't feel bad. If you want email me direct at Bigblueyes2@... Talk to ya soon Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Dear Jackie, I'm sorry Kelsey has problems with her teeth. Dallas is slow to lose hers. She has only lost one on the bottom, however she has had a lot filled. It's funny she still has a problem with bad breath even after getting all her teeth fixed. The dentist said it might be sinus problems. Dallas' biggest problem has been in school with communication delays. She has been in a delayed program ever since two and 1/2. I know they say these learning problems get better over the years, but it sure does scare me. They just tested her for a triennial review and wanted to label her MR. I had to go through the whole big explanation of RSS and bring in medical records to have her labeled Other Health Impaired. I also know Dallas would be higher on the charts as I'm 5'9 " and I know she would be much taller. Where do you live? We live in Fredericksburg,VA an hour south of DC. Nice chatting with you. Do you get your messages off your junk mail? I know I don't have it set up right. Thanks, CAra, mother of Dallas 7 >From: bigblueyes2@... >Reply-To: RSS-Support >To: RSS-Support >Subject: Re: My daughter >Date: Wed, 8 May 2002 12:29:00 EDT > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Do you all ready have them scanned? I would love to see her pictures! Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Do you all ready have them scanned? I would love to see her pictures! Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 No but it won't take me long to scan them! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 No but it won't take me long to scan them! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2002 Report Share Posted May 11, 2002 Cara - Are you a member of MAGIC? If so, we can hook you and Dallas up with other parents of RSS children of similar ages. Dallas can even trade emails with other little girls. We could even base it only on geographic area, where you could actually maybe get-together with another family. Let me know. > Dear Jackie, I saw where you said your daughter Kelsey is 50 inches at 9. > My daughter Dallas is 7yr8mo and is 48 in. She's also just 4opds. Do you > know how Kelsey is on the growth charts? I need to take Dallas in for a big > checkup on her growth, I've been wanting to chat with someone that is > similar to Dallas. Seems there are so many people with a lot younger > children on the chat room. Thanks, Cara > > >From: bigblueyes2@a... > >Reply-To: RSS-Support@y... > >To: RSS-Support@y... > >Subject: Re: My daughter > >Date: Wed, 8 May 2002 09:13:31 EDT > > > > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: http://mobile.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 Jackie, No they were supposed to send me the materials, however the message must not have made it- do you know the number- do you mind sending the response to carachalmers@...? Thanks, Cara > >Reply-To: RSS-Support >To: RSS-Support >Subject: Re: My daughter >Date: Sun, 12 May 2002 04:01:59 -0000 > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
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