Another question

[Guest guest]

--always get copies of your labs--without the ranges it is

pretty hard to offer advice.....the ENT's office could easily have

called your other doctors office to have them fax your labs to them

while you were there, then you could have gotten copies from

them...but you may have had to push them to do so...no one will do

anything they don't have to....at least he did hunt down the one

test......

My husband had a sleep study done...not that big a deal...they hook

electrodes all over you and then you sleep (done during the

night).....I doubt I could, though with wires hanging

everywhere.....and at one point they could not get one of them

to " stick " to hubby's beard so they told him to hold it...yeah--like

he could sleep then...sheesh....LOL.....he now uses a bi-pap

machine...course, his was four years ago and they may do things

differently...I read where one gal had one done and had to go back

for phase II, which was to try it with the c-pap machine...with

hubby's they did that all in the first study...but, just so you

know.....sue

~~~~~~~~

> You asked about my lad results. My results were..

> Free T3-34.9

> Free T4-1.10

> Thyroid Antibodies = less than 75

[Guest guest]

ly, the ENT did not know how to read that scan, since the other doctor

has already seen one " node " , i.e., nodule on your thyroid. The ENT needs to

converse with the other doctor on this, and this has become a big problem in

this day and age, no communication between treating doctors. I'd do the

scope anyway, just to make sure, but that doesn't change the fact that

you've been diagnosed with thyroiditis and a nodule. Same old thing,

doctor's trying to say that it must be something else, if they don't know

how to diagnose the thyroid problem. Besides all that, with insurance,

there's more money in it, if he runs these other tests. You know the rest.

Re: Another question

> You asked about my lad results. My results were..

> Free T3-34.9

> Free T4-1.10

> Thyroid Antibodies = less than 75

> The ultrasound showed a thickening of the thyroid(my doc called it

> thyroiditis)and a 1 cm node.

> I don't know the ranges as my dr didn't give them just the results.

> Anyway, I went to see the ENT today. He took me in a whole

> different direction. I'm getting so frustrated. Today the ENT didn't

> have the results because my doctor didn't send them. So the ENT

> finally got a hold of the thyroid scan(the one where they injected

> nuclear die into my arm). He said it showed that there were no cold

> nodules(thank God) but he said it didn't show any hot nodules

> either. He said as far as he can see it looks normal. He also felt

> my neck and said he didn't feel anything. My neck was tender but he

> didn't feel any enlargement. He did make a comment that the reason

> my doc was giving me the synthroid was because he was treating the

> patient and not the labs. That did make me feel better to hear that

> but... now the ENT said I should have a scope run down my throat to

> see why I am having problem swallowing and a tender neck. He also

> is ordering a sleep study be done on me. I know I am having

> problems sleeping but I think that is a symptom of whatever the

> problem is not the problem itself. I just don't understand why I am

> going in so many directions.

> So my scope is scheduled for next Tuesday. I don't think that is a

> bad idea but I am not thrilled about the sleep study being done.

> Have any of you had a sleep study done? Or a scope for that matter?

> Thanks for your guys help.

>

[Guest guest]

In a message dated 8/29/2004 8:20:40 PM Eastern Standard Time, bronze@...

writes:

> on the slip he has checked TPO, could some one tell me what this

> test is and what it will show?

>

That's the thyroid antibodies test for hashimito's.

cindi

[Guest guest]

In a message dated 8/29/2004 8:20:40 PM Eastern Standard Time, bronze@...

writes:

> Also I went on the Adrenal Fatigue site and I have 12 of the systems

> for adernal fatigue..is there a test that I should ask my dr to do

> that will show it?

the blood tests aren't very informative from what I understand. A 24 hr

urine test..or better yet, a saliva test...would be more informative.

Cindi

[Guest guest]

In a message dated 8/29/2004 8:20:40 PM Eastern Standard Time, bronze@...

writes:

> Also I went on the Adrenal Fatigue site and I have 12 of the systems

> for adernal fatigue..is there a test that I should ask my dr to do

> that will show it?

the blood tests aren't very informative from what I understand. A 24 hr

urine test..or better yet, a saliva test...would be more informative.

Cindi

[Guest guest]

TPO is thyoid Peroxidaise or Hashimotos antibodies. Right now, all your

symptoms will over lap with those numbers. As for an am corisol fasting, as

for the saliva test for 4 times a day, ask for a ferritin test, not just a

cbc I will bet you have Hashi and low ferritn with those numbers.

>

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: another question

>Date: Mon, 30 Aug 2004 00:19:23 -0000

>

[Guest guest]

TPO is thyoid Peroxidaise or Hashimotos antibodies. Right now, all your

symptoms will over lap with those numbers. As for an am corisol fasting, as

for the saliva test for 4 times a day, ask for a ferritin test, not just a

cbc I will bet you have Hashi and low ferritn with those numbers.

>

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: another question

>Date: Mon, 30 Aug 2004 00:19:23 -0000

>

[Guest guest]

Most 24 hour urine tests are all thrown in a giant jar and they look at the

24 hour cortisol burden. You may be too low in the morning and too high at

night, but that just shows the average. Basic fatigue seems to mostly show

low morning cortisol, so an am saliva test tells you that. The 24 hour

saliva shows the amounts broken into 4 times during the day including

midnight. Many of us having been undertreated for thyroid have high midnight

cortisol, so we never get into a deep sleep. I have found thwe phosphatidyl

serine helped with that

>From: nc2406@...

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: Re: another question

>Date: Sun, 29 Aug 2004 20:29:16 EDT

>

[Guest guest]

Most 24 hour urine tests are all thrown in a giant jar and they look at the

24 hour cortisol burden. You may be too low in the morning and too high at

night, but that just shows the average. Basic fatigue seems to mostly show

low morning cortisol, so an am saliva test tells you that. The 24 hour

saliva shows the amounts broken into 4 times during the day including

midnight. Many of us having been undertreated for thyroid have high midnight

cortisol, so we never get into a deep sleep. I have found thwe phosphatidyl

serine helped with that

>From: nc2406@...

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: Re: another question

>Date: Sun, 29 Aug 2004 20:29:16 EDT

>

[Guest guest]

Most 24 hour urine tests are all thrown in a giant jar and they look at the

24 hour cortisol burden. You may be too low in the morning and too high at

night, but that just shows the average. Basic fatigue seems to mostly show

low morning cortisol, so an am saliva test tells you that. The 24 hour

saliva shows the amounts broken into 4 times during the day including

midnight. Many of us having been undertreated for thyroid have high midnight

cortisol, so we never get into a deep sleep. I have found thwe phosphatidyl

serine helped with that

>From: nc2406@...

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: Re: another question

>Date: Sun, 29 Aug 2004 20:29:16 EDT

>

[Guest guest]

Thanks for your reply. I appreciate it. So much.

So what if there are NO physical signs of warts yet? The doctors

all said I had smooth skin etc. Do I keep using the hydrocortisone

suppository? Can they do treatment if no warts are actually present?

They did do a test that is the HPV DNA Digene Probe. The cytologic

diagnosis says " negative for high risk types of HPV " But it says on

it that it " does not rule out the presence of HPV "

So in my biopsy below...does that mean it has become active? Or

could it stop itself somehow?

Steroids slow down the immune system? He told me it would help heal

the skin???? I am so confused.

Do most women with vulvodynia also have HPV? Are they linked?

Thanks so so much

Ellie

>

> Hi ''Just for fun''.

> (sorry hon you didnt sign off and I don't know your first name)

>

> I can see all the confusion about HPV and I'm so sorry that you're

now in such pain. *sigh*

>

> But IF your biopsy read that ''superficial condylomatous

change " ....and also mentioned the word ''koilocytic atypia..and the

findings may represent early planar condyloma'' I would believe

that..

>

> It is indicative of HPV and most likely the wart variety. If I

were you? I'd definitely next ask to have the Digene hybrid test

done to determine the type(s) of HPV you might have. A simple swab

with a Q tip of the cervical/vaginal mucuous.

>

> Because....... in most vulvar cancers (which isnt that common)

the HPV is connected (I don't mean to frighten you hon but that's

just a fact).... and something to be aware of.

>

> HPV causes abnormal cellular changes in the skin or the cervix if

it becomes active and what is removed if with a leep/loop or cryo or

conization or even the topical acids are those abnormal cells, not

the HPV itself since we usually carry that for a lifetime (so far

that's what they say) just as one would with the herpes virus.

Those doggone virus's are really buggers believe me.

>

> I also agree with the doctor who suggested to NOT use the topicals

esp. the Aldara or the podolphyllin which are 'very' caustic (Unless

one is diagnosed with proven ''carcinoma in situ' by biopsy then

it's better than the surgery as a first protocol) but I've seen

women who previously had no pain with sex be left with devasting

pain afterwards if the surrounding tissue was was destroyed or

damaged with those acids.

>

> And usually they use that just for the removal of a simple little

wart which generally is not even considered pre-cancerous and in

most cases wasn't even bothering them. If it is then yes I can

understand removing it of course IF it's necessary. If it were me

though I think I'd prefer a small scalpel to remove a little wart

rather than the acids. it's clean quick and over & done with.

>

> One other thing... Seeing you mentioning using a steroid?

>

> Hon IF you do have HPV and to me with a proven biopsy I'd say it's

likely...that is so common a virus that I'd doubt a pathologist

misread that, but IF you do and you use a steroid you technically

are creating an even worse condition as the steroid will slow down

your immune system...... and it's because of a weakened immune

system the HPV can flourish in the first place. I'd be leery of

that till I knew absolutely it's Not HPV hon.

>

> Just my two cents for what it's worth. I am just so sorry you're

in that position hon... *sigh* Hang in there....

>

> hugs

> Dee~

>

[Guest guest]

HI Ellie, Nice to meet you and welcome.

It could be subclinical HPV with no visible warts on the vulvar tissue.... just as it often is with our cervix's and pap tests, microscopically small. So if a biopsy did show that, it most likely does mean it's there. In my opinion of course.

But generally if you don't have any abnormal cellular changes going on along with it, (like a specific sore or lesion or a spot that just won't heal) I don't know what they'd be treating myself but double glad hon to hear it's not the risky strains having had the Digene hybred test *smile* Good for you!

And if it were 'me' I wouldn't worry once I knew that. I only wish it were so with me. *smile* not that I worry about it but I do know I've got both types. (risky and non risky) and why I keep an eye on those paps.

One quick question hon...... do you have pain or inflammation all over or is it in one major spot moreso? If it's just one spot then yes it 'might be treated but like I said if it's not the risky strain I'm not so sure I would, the cure 'might' be worse than the condition.

As to the steroids? I'm glad you're only using a hydrocortisone, that's a low class one and not very potent, (as would be something like Temovate, or Clobetasol *the highest in potency*) .

Steroids are used to slow down the immune system that's causing any inflammation, edema, (swelling), pain or itch hon.... they help to halt the histamine et al., output by our immune system (which causes those symptoms)... so if we slow it down... it helps stop the progression of those symptoms so the skin has a chance to renew itself.

BUT... if it's a virus connected condition whether it's HPV, Shingles, Chicken pox, Measles, or Herpes, etc. etc. (all virus's) .... we need that immune system up and healthy to keep those virus's under control.

So if we lower or lessen the immune system say with a steroid or an immunomodulator like Protopic or Elidel, it's more likely to cause those specific conditions to come out or cause a flare up (say in herpes) simply because now that immune system is weaker and not as easy to keep it under control and dormant. And by the way one of the biggest things that lower our immune system is 'stress' and you'll find that over and over, especially in HPV.

Hope that made sense hon. What you can take too and might be something to consider would be an antihistamine (oral or topical) say like Benedryl. Those reverse 'histamine' too why they're called anti-histamines but they don't lower the immune system. There are others besides histamine released as well but all are called cytokines and those antihistamines can help quell inflammation, itch, burning , etc too.

Bottom line hon is after applying the steroid (and like I said at least I'm glad it's very mild one)... is how do you feel? Is it helping you or are you getting worse? Think back before you added the steroids. That's a good indicator in my book. Just my $.02 cents worth , *clink *clink*..

Hugs hon

Dee~