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Re: How do you vacation?

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At 10:04 AM 4/14/2009, you wrote:

We are planning a trip to Disney

this summer. My son has Crohn's and my daughter is has autism. Both are

following SCD. We are trying to figure out how we eat on vacation? I

don't want to have to have a sit down table service meal for each meal -

our entire time will be spent eating!!! How do you navigate it? We will

be staying in a hotel room, no kitchen.

First question -- will you be traveling by car or air?

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

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>

>> >

>

> First question -- will you be traveling by car or air?

We will travel by plane - I know that I can stock up on non perishable snacks

and either bring or send to the hotel, but I'm really concerned about the 3 main

meals - I've heard that Disney is great in modifying at the sit down type meals,

but, again, I don't want to spend all of our time at meals that take 2 hours! I

feel like I won't have control on the food, which is overwhelming - Another

question, is there any products that one could use to off set an illegal food?

If something isn't made as it should be, etc, what could I use to help offset

some of the symptoms - mostly with my daughter - it is extremely noticiable if

she gets an illegal food - behavior, cognition, etc.

Thanks!!!!!

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

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I did Disney on intro they are AWESOME!!! we drove 24 hours I brought lots of

soup - cold at times or heated at rest stops - chick carrots eggs - then down

there at the Nickelodeon hotel they cooked those things again plus steak and I

had them whenever needed and to take into the parks - also call ahead and speak

to them about food allergies and speak to each chef ahead of time AND when ou

arrive at the restaurant - some were so kind they cooked my carrots for 4 hours

while we did the park and then came back and got steak with those carrots and

sat with my family to eat - only time it's happemed since SCD - menat so much

hope to be well enough to attempt a restuarant again someday :-) but they are no

joke with food allergies good place to go!!! PS if you use honey put in a

plastic container - they'll let you carry food in but hard time with glass

Eileen scd 15 months

> >

> >> >

> >

> > First question -- will you be traveling by car or air?

>

> We will travel by plane - I know that I can stock up on non perishable snacks

and either bring or send to the hotel, but I'm really concerned about the 3 main

meals - I've heard that Disney is great in modifying at the sit down type meals,

but, again, I don't want to spend all of our time at meals that take 2 hours! I

feel like I won't have control on the food, which is overwhelming - Another

question, is there any products that one could use to off set an illegal food?

If something isn't made as it should be, etc, what could I use to help offset

some of the symptoms - mostly with my daughter - it is extremely noticiable if

she gets an illegal food - behavior, cognition, etc.

> Thanks!!!!!

> >

> >

> > — Marilyn

> > New Orleans, Louisiana, USA

> > Undiagnosed IBS since 1976, SCD since 2001

> > Darn Good SCD Cook

> > No Human Children

> > Shadow & Sunny Longhair Dachshund

> >

>

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