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Good Afternoon Darlene,

This here is one sick puppy, besides my usual head fog i now have a wonderful

upper respiratory infection brewing. I'm trying to treat it with over the

counter meds until monday if its not better then I suppose I better see about

seeing my ding a ling PCP I'm going to be seeing a new PCP on march 29th.

I have two MRI's scheduled for next week one for my neck regarding the disc in

my neck and the other because of my headaches they doing one of my brain maybe

they will find there's nothing there but air....LOL no the last one showed there

were white patches on my brain and then they did a spinal tap that was over a

year ago.

He said depending on what the MRI show I may need a LP again, I hope not.

How are you doing today?

Sending lots of hugs and prayers you way also,

Time is a very precious gift of God;

so precious that it's only given to us

moment by moment..............

~~~~~~Amelia Barr

Jan

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Hello Darlene Baby!

Yes, very quiet because very sick, but I'm learning a rhythm and my

lovely hubby has allowed me to use his grand titanium G4 laptop. I

signed up for Earthlink (I cancelled my AOL, as the modem card I

finally found for my older MAC laptop was only 28.8. Also, I finally

saturated out on bad television. Today is a good day for email as I am

finally on my back today (LOTS of pain killers as this rainy day has my

arthritis killing me all over...), have cut off my beautiful nails (as

well as the front of my long-overdue-for-a-haircut bangs) and am ready

to type at normal speed with two hands at a time.....

Nothing new here. As you have read in my email to Jeanna, I am

completely without pride and will share every intimate detail about

sphincter disfunction (PLEASE, ROSE, SPARE ME THE BUTT JOKES) When I

finally admitted to the daily bleeding that Aisha suffered through to

my main chemo doc, he about had a fit. I did not know that bleeding

from the old bum is dangerous when one is immunosuppressed. Well, I

knew to use sterile surgical gloves to provide a secure wall through my

female orifice because a rectal prolapse has removed my natural one,

and I was also cleaning the area with antibacterial wipes until the

bleeding stopped, it was not until the nurse advised me to use KY jelly

to lubricate the sphincter that the bleeding immediately ceased. good

thing! Because I absolutely refused to go through the humiliation and

further nausea and discomfort of that oh so lovely prep one has to go

through before a colonoscopy, just to be told that the doc can do

nothing to help the " sphincteritis " as I call it (the inability for the

sphincter to open wider than a pencil on most occasions), They cannot

and will not do the kind of surgery that will help because I also have

periodic spells of the opposite problem, thus the lifetime supply of

adult depends in my bathroom closet (this problem, I am happy to say,

was corrected almost immediately after I started the remicade). I am

so glad that Ishburger was able to get the surgery, but I very much

doubt that a new doc will think differently.

Anywho, with the wonders of the KY, the entire subject is now moot. I

hope this story has helped some of you who suffer the same problems. I

also hope I can spare you that insanely horrid prep before the

colonoscopy (the procedure is a breeze, it's the prep that sucks).

Well, Darlene. I hope that makes you feel a bit better. If I

remember, you don't live too far. My redecoration of my living room

and bedroom are just about done, so feel free to visit Friday-Monday,

and you are welcome to stay the night -- just TELL me upfront at least

a day in advance. My mother will tell you I am too sick to talk, but

that never means I am too sick to be a hostess. With the mostest.

After all, I am one half of the greatest sarc goddess ever created by

the fiction of the internet. The Ishnee Goddess has risen again. Sick

as we both are, we are fearless in our fight to relieve the suffering

of every sarc patient and every unfortunate person suffering similar

symptoms without a definite diagnosis.

The fight continues.

PS The way I got the rectal prolapse and bladder prolapse was when my

uterus fell very suddenly because of massive fibroid tumors. I am

unsure why they did not chose to correct the prolapses when I was

having surgery other than the fact that I had a traditional

hysterectomy due to the large size of my uterus. I had one ovary

removed because there was a very large cyst on it. They left one small

ovary which apparently continued to work for five more years and quit I

know because I had a test in 2001 which showed I was not yet

pre-menopausal, and another a few months ago that showed I am very

post-menopausal. I had the original hysterectomy in 1999. Yes. I do

suffer from TMI (too much information) but remember, I warned you that

I have had a lot of pain medication for my arthritis. Sorry if I'm

over the top, but at least I'm here....)

Love you, girlfriend,

> Hi everyone,

>      The list is VERY quiet and I am hoping it is NOT because you are

> ALL so VERY SICK!    I know Aisha is extremely ill at the moment so as

> a reminder, if you need anything, PLEASE contact one of us other

> moderators for the time being. Aisha is just too sick to answer. We

> will try our best to help you.

>      I have not seen very many posts and I am hoping you are all busy

> doing something else....NOT just being sick........

>      Sending lots of hugs, prayers, whatever you need..........

> Hugs,

> darlene

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Hello Darlene Baby!

Yes, very quiet because very sick, but I'm learning a rhythm and my

lovely hubby has allowed me to use his grand titanium G4 laptop. I

signed up for Earthlink (I cancelled my AOL, as the modem card I

finally found for my older MAC laptop was only 28.8. Also, I finally

saturated out on bad television. Today is a good day for email as I am

finally on my back today (LOTS of pain killers as this rainy day has my

arthritis killing me all over...), have cut off my beautiful nails (as

well as the front of my long-overdue-for-a-haircut bangs) and am ready

to type at normal speed with two hands at a time.....

Nothing new here. As you have read in my email to Jeanna, I am

completely without pride and will share every intimate detail about

sphincter disfunction (PLEASE, ROSE, SPARE ME THE BUTT JOKES) When I

finally admitted to the daily bleeding that Aisha suffered through to

my main chemo doc, he about had a fit. I did not know that bleeding

from the old bum is dangerous when one is immunosuppressed. Well, I

knew to use sterile surgical gloves to provide a secure wall through my

female orifice because a rectal prolapse has removed my natural one,

and I was also cleaning the area with antibacterial wipes until the

bleeding stopped, it was not until the nurse advised me to use KY jelly

to lubricate the sphincter that the bleeding immediately ceased. good

thing! Because I absolutely refused to go through the humiliation and

further nausea and discomfort of that oh so lovely prep one has to go

through before a colonoscopy, just to be told that the doc can do

nothing to help the " sphincteritis " as I call it (the inability for the

sphincter to open wider than a pencil on most occasions), They cannot

and will not do the kind of surgery that will help because I also have

periodic spells of the opposite problem, thus the lifetime supply of

adult depends in my bathroom closet (this problem, I am happy to say,

was corrected almost immediately after I started the remicade). I am

so glad that Ishburger was able to get the surgery, but I very much

doubt that a new doc will think differently.

Anywho, with the wonders of the KY, the entire subject is now moot. I

hope this story has helped some of you who suffer the same problems. I

also hope I can spare you that insanely horrid prep before the

colonoscopy (the procedure is a breeze, it's the prep that sucks).

Well, Darlene. I hope that makes you feel a bit better. If I

remember, you don't live too far. My redecoration of my living room

and bedroom are just about done, so feel free to visit Friday-Monday,

and you are welcome to stay the night -- just TELL me upfront at least

a day in advance. My mother will tell you I am too sick to talk, but

that never means I am too sick to be a hostess. With the mostest.

After all, I am one half of the greatest sarc goddess ever created by

the fiction of the internet. The Ishnee Goddess has risen again. Sick

as we both are, we are fearless in our fight to relieve the suffering

of every sarc patient and every unfortunate person suffering similar

symptoms without a definite diagnosis.

The fight continues.

PS The way I got the rectal prolapse and bladder prolapse was when my

uterus fell very suddenly because of massive fibroid tumors. I am

unsure why they did not chose to correct the prolapses when I was

having surgery other than the fact that I had a traditional

hysterectomy due to the large size of my uterus. I had one ovary

removed because there was a very large cyst on it. They left one small

ovary which apparently continued to work for five more years and quit I

know because I had a test in 2001 which showed I was not yet

pre-menopausal, and another a few months ago that showed I am very

post-menopausal. I had the original hysterectomy in 1999. Yes. I do

suffer from TMI (too much information) but remember, I warned you that

I have had a lot of pain medication for my arthritis. Sorry if I'm

over the top, but at least I'm here....)

Love you, girlfriend,

> Hi everyone,

>      The list is VERY quiet and I am hoping it is NOT because you are

> ALL so VERY SICK!    I know Aisha is extremely ill at the moment so as

> a reminder, if you need anything, PLEASE contact one of us other

> moderators for the time being. Aisha is just too sick to answer. We

> will try our best to help you.

>      I have not seen very many posts and I am hoping you are all busy

> doing something else....NOT just being sick........

>      Sending lots of hugs, prayers, whatever you need..........

> Hugs,

> darlene

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Hello Darlene Baby!

Yes, very quiet because very sick, but I'm learning a rhythm and my

lovely hubby has allowed me to use his grand titanium G4 laptop. I

signed up for Earthlink (I cancelled my AOL, as the modem card I

finally found for my older MAC laptop was only 28.8. Also, I finally

saturated out on bad television. Today is a good day for email as I am

finally on my back today (LOTS of pain killers as this rainy day has my

arthritis killing me all over...), have cut off my beautiful nails (as

well as the front of my long-overdue-for-a-haircut bangs) and am ready

to type at normal speed with two hands at a time.....

Nothing new here. As you have read in my email to Jeanna, I am

completely without pride and will share every intimate detail about

sphincter disfunction (PLEASE, ROSE, SPARE ME THE BUTT JOKES) When I

finally admitted to the daily bleeding that Aisha suffered through to

my main chemo doc, he about had a fit. I did not know that bleeding

from the old bum is dangerous when one is immunosuppressed. Well, I

knew to use sterile surgical gloves to provide a secure wall through my

female orifice because a rectal prolapse has removed my natural one,

and I was also cleaning the area with antibacterial wipes until the

bleeding stopped, it was not until the nurse advised me to use KY jelly

to lubricate the sphincter that the bleeding immediately ceased. good

thing! Because I absolutely refused to go through the humiliation and

further nausea and discomfort of that oh so lovely prep one has to go

through before a colonoscopy, just to be told that the doc can do

nothing to help the " sphincteritis " as I call it (the inability for the

sphincter to open wider than a pencil on most occasions), They cannot

and will not do the kind of surgery that will help because I also have

periodic spells of the opposite problem, thus the lifetime supply of

adult depends in my bathroom closet (this problem, I am happy to say,

was corrected almost immediately after I started the remicade). I am

so glad that Ishburger was able to get the surgery, but I very much

doubt that a new doc will think differently.

Anywho, with the wonders of the KY, the entire subject is now moot. I

hope this story has helped some of you who suffer the same problems. I

also hope I can spare you that insanely horrid prep before the

colonoscopy (the procedure is a breeze, it's the prep that sucks).

Well, Darlene. I hope that makes you feel a bit better. If I

remember, you don't live too far. My redecoration of my living room

and bedroom are just about done, so feel free to visit Friday-Monday,

and you are welcome to stay the night -- just TELL me upfront at least

a day in advance. My mother will tell you I am too sick to talk, but

that never means I am too sick to be a hostess. With the mostest.

After all, I am one half of the greatest sarc goddess ever created by

the fiction of the internet. The Ishnee Goddess has risen again. Sick

as we both are, we are fearless in our fight to relieve the suffering

of every sarc patient and every unfortunate person suffering similar

symptoms without a definite diagnosis.

The fight continues.

PS The way I got the rectal prolapse and bladder prolapse was when my

uterus fell very suddenly because of massive fibroid tumors. I am

unsure why they did not chose to correct the prolapses when I was

having surgery other than the fact that I had a traditional

hysterectomy due to the large size of my uterus. I had one ovary

removed because there was a very large cyst on it. They left one small

ovary which apparently continued to work for five more years and quit I

know because I had a test in 2001 which showed I was not yet

pre-menopausal, and another a few months ago that showed I am very

post-menopausal. I had the original hysterectomy in 1999. Yes. I do

suffer from TMI (too much information) but remember, I warned you that

I have had a lot of pain medication for my arthritis. Sorry if I'm

over the top, but at least I'm here....)

Love you, girlfriend,

> Hi everyone,

>      The list is VERY quiet and I am hoping it is NOT because you are

> ALL so VERY SICK!    I know Aisha is extremely ill at the moment so as

> a reminder, if you need anything, PLEASE contact one of us other

> moderators for the time being. Aisha is just too sick to answer. We

> will try our best to help you.

>      I have not seen very many posts and I am hoping you are all busy

> doing something else....NOT just being sick........

>      Sending lots of hugs, prayers, whatever you need..........

> Hugs,

> darlene

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Jan,

Just a quicky.... If you have a nebulizer, use it. It really keeps the

lower resp. infections from settling in for a long stay. Other advice

-- sleep in a recliner or with a wedge if you have it.

Love lots,

> Good Afternoon Darlene,

> This here is one sick puppy, besides my usual head fog i now have a

> wonderful upper respiratory infection brewing. I'm trying to treat it

> with over the counter meds until monday if its not better then I

> suppose I better see about seeing my ding a ling PCP I'm going to be

> seeing a new PCP on march 29th.

> I have two MRI's scheduled for next week one for my neck regarding the

> disc in my neck and the other because of my headaches they doing one

> of my brain maybe they will find there's nothing there but air....LOL

> no the last one showed there were white patches on my brain and then

> they did a spinal tap that was over a year ago.

> He said depending on what the MRI show I may need a LP again, I hope

> not.

> How are you doing today?

> Sending lots of hugs and prayers you way also,

>

> Time is a very precious gift of God;

> so precious that it's only given to us

> moment by moment..............

>

> ~~~~~~Amelia Barr

>

> Jan

>

>

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Guest guest

Darlene, It's a good thing to check in on people. Thank you. As for me, I've

been feeling down. I think it's a combination of things. Besides the physical

stuff.(which is bad enough)...my son is leaving in two weeks for the Marines;

my husband has a problem with chronic lying...my son says he is

truth-constipated. and sometimes it just wears on me; winter just doesn't seem

to want to end in Wisconsin; I'm going through another awake all night...sleep

all day cycle...; I'm trying to eat better and maybe lose weight but I only lost

5 lbs. this month and I am really tired from all the extra work of meal

planning, etc.; oh, and let's add in all the typical financial problems from

being sick(yes, you guessed right..I still have to do all the bills even though

I've been so sick); and Finally... for the last two weeks all I want to do is

cry. If I didn't have my painting..I think I'd go quite mad. This is why I

haven't checked in lately. S.

Darlene wrote:Hi everyone,

The list is VERY quiet and I am hoping it is NOT because you are

ALL so VERY SICK! I know Aisha is extremely ill at the moment so as

a reminder, if you need anything, PLEASE contact one of us other

moderators for the time being. Aisha is just too sick to answer. We

will try our best to help you.

I have not seen very many posts and I am hoping you are all busy

doing something else....NOT just being sick........

Sending lots of hugs, prayers, whatever you need..........

Hugs,

darlene

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

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Guest guest

what is this about? why were you bleeding and what about the proapse and the

muscle not opening. just curious i just had sugery this past month( one of

the reasons i haved posted this past month) but im wondering about the subject

to see if the sarc had something to do with the complications i ran into

thanks

kim

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Guest guest

,

My best friend, th eonly friend I have left who still calls every day,

or maybe it would not be unusual if we would call each other four or

five times a day, recently threw me for a real loop. I was a bit

worried because her family had been making excuses why my friend

couldn't come to the phone. When I finally got her to answer on

Tuesday (we hadn't spoken since Friday, which had been one of those

call an hour days. She admitted that she had slashed her wrists during

and argument with her husband on Friday night. She had sworn her

family to secrecy, and made them promise not to call me. I knew she

had fallen into a pretty bad depression which is why I was calling her

with silliness even though I've been nosediving physically for the past

week.

I was so hurt. So many of my friends who used to make my life feel

like it was worth something because they would use me as a kind of free

and ever-available shrink (everyone has teased me for years that the

are going to band together and buy me a white coat and give me an

honorary degree -- and all this started years before I got sick). Well

all of those friends have stopped as of late because they don't want to

'bother me " with their problems. They say they feel that my problems

and challenges make their situations seem insignificant. That makes me

so sad and frustrated. But I could always count on this one friend not

to treat me differently now that I'm hardly out of bed.

I was so hurt that she didn't call me to talk her out of hurting

herself. Plus, she did it two more times before I finally got her

husband to take her to the hospital. And what's the worst part? She's

still depressed over the scare the insurance company gave me when they

offered me a lump sum of six years of benefits (private disability co)

because after they got a bad report from my doc and consulted their

charts and death experts they felt I didn't have much time left.

Luckily, my next visit with the doc had him saying I have at least ten

years if nothing changes in the field of medicine, and he is very

optimistic that it will. Now he did kind of bum me out when he said

that he did not expect much improvement in my day-to-day for a while,

but even though I'm weak and bored, most of my pain and nausea is

manageable. I'm very optimistic that I will follow in my grandmother's

footsteps and hit three digits or at least come close.

So all this time I though every one was back to normal, and my best

friend cannot get over the threat of losing me. I feel so bad. But at

least she called right after the second and third time she cut herself

and I was able to talk her through cleaning herself up and kept her on

the phone until her husband got home (one time we just watched a movie

together over the phone. Now that the doctors have put her on some

good meds and her husband is standing over her I can feel free to get a

stomach flu. haha.

So , I can imagine you are wondering why I've told you about this.

It's because I'm a little hurt. I thought we were friends. Yes, I've

been absent, but I'll be getting my email daily (well, I may miss a day

a week from weekly chemo. Please write me when you are sad or over

whelmed. Or you can feel free to call me 24/7 at . Shar

and I used to talk a couple of times a month. I can't wait until I get

another phone call from her! It makes me feel worthwhile to help

people, and this is just about the last thing I can do from the comfort

of my own bed.

I hope you are feeling much better soon. I know winter gives many

people the blues, especially my own husband. Know I am thinking of you

when I pray for all my friends and family. You are such a great

person. I hate thinking of you as being sad.

Love,

Reneness

> Darlene,  It's a good thing to check in on people.  Thank you.  As for

> me,  I've been feeling down.  I think it's a combination of things. 

> Besides the physical stuff.(which is bad enough)...my son is leaving

> in two weeks for the Marines;  my husband has a problem with chronic

> lying...my son says he is truth-constipated.  and sometimes it just

> wears on me; winter just doesn't seem to want to end in Wisconsin; I'm

> going through another awake all night...sleep all day cycle...; I'm

> trying to eat better and maybe lose weight but I only lost 5 lbs. this

> month and I am really tired from all the extra work of meal planning,

> etc.; oh, and let's add in all the typical financial problems from

> being sick(yes, you guessed right..I still have to do all the bills

> even though I've been so sick); and Finally... for the last two weeks

> all I want to do is cry.   If I didn't have my painting..I think I'd

> go quite mad.  This is why I haven't checked in lately.  S.

>

> Darlene wrote:Hi everyone,

>      The list is VERY quiet and I am hoping it is NOT because you are

> ALL so VERY SICK!    I know Aisha is extremely ill at the moment so as

> a reminder, if you need anything, PLEASE contact one of us other

> moderators for the time being.  Aisha is just too sick to answer.  We

> will try our best to help you.

>      I have not seen very many posts and I am hoping you are all busy

> doing something else....NOT just being sick........

>      Sending lots of hugs, prayers, whatever you need..........

> Hugs,

> darlene

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Guest guest

, I will keep your son in my prayers, I know it must be very difficult

sending someone you love to fight this horrible old war even if I believe in

what they are doing and are really proud of all of them. As far as your

husband goes hopefully someone will give him some truth serum since he can't

seem to tell the truth on his own, what do you think. I do know about the

bill paying even though you are sick, my husband is really good about most

everything but when I had all that mess happen in August with the shunt

coming out and having to be in ICU with tube out of my head and iv

antibiotics he brought the bills up to hospital for me to write out. My

doctor probably would have had a fit if he would have come in. My thoughts

are with you though that things get better for you real soon. I am glad you

have painting, I am not very talented at artistic things but I am going to

try and do something like that for my mother for mother's day. Your friend

in Texas, Jeanna

-- Re: Good afternoon all....checking on you

Darlene, It's a good thing to check in on people. Thank you. As for me,

I've been feeling down. I think it's a combination of things. Besides the

physical stuff.(which is bad enough)...my son is leaving in two weeks for

the Marines; my husband has a problem with chronic lying...my son says he

is truth-constipated. and sometimes it just wears on me; winter just doesn

t seem to want to end in Wisconsin; I'm going through another awake all

night...sleep all day cycle...; I'm trying to eat better and maybe lose

weight but I only lost 5 lbs. this month and I am really tired from all the

extra work of meal planning, etc.; oh, and let's add in all the typical

financial problems from being sick(yes, you guessed right..I still have to

do all the bills even though I've been so sick); and Finally... for the last

two weeks all I want to do is cry. If I didn't have my painting..I think I

d go quite mad. This is why I haven't checked in lately. S.

Darlene wrote:Hi everyone,

The list is VERY quiet and I am hoping it is NOT because you are

ALL so VERY SICK! I know Aisha is extremely ill at the moment so as

a reminder, if you need anything, PLEASE contact one of us other

moderators for the time being. Aisha is just too sick to answer. We

will try our best to help you.

I have not seen very many posts and I am hoping you are all busy

doing something else....NOT just being sick........

Sending lots of hugs, prayers, whatever you need..........

Hugs,

darlene

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

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Share on other sites

  • 2 weeks later...
Guest guest

Darlene, I have been trying to go through the hundreds of messages that

accumulated while Sparky the computer was sick. Plus the usual crises at

home, like my disability check disappearing into the Bermuda Triangle. I

should have gotten it the middle of last week; they said it was mailed 3/29;

but it's never come. So I have bills piling up and no money. I'm going to

call the company tomorrow & see if they can stop payment & deposit the money

electronically. I haven't gotten around to filling out the form for auto

deposit, but maybe I can fax it to them tomorrow. I'll be back when I get

all this caught up. Rose

Good afternoon all....checking on you

> Hi everyone,

> The list is VERY quiet and I am hoping it is NOT because you are

> ALL so VERY SICK! I know Aisha is extremely ill at the moment so as

> a reminder, if you need anything, PLEASE contact one of us other

> moderators for the time being. Aisha is just too sick to answer. We

> will try our best to help you.

> I have not seen very many posts and I am hoping you are all busy

> doing something else....NOT just being sick........

> Sending lots of hugs, prayers, whatever you need..........

> Hugs,

> darlene

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Darlene, I have been trying to go through the hundreds of messages that

accumulated while Sparky the computer was sick. Plus the usual crises at

home, like my disability check disappearing into the Bermuda Triangle. I

should have gotten it the middle of last week; they said it was mailed 3/29;

but it's never come. So I have bills piling up and no money. I'm going to

call the company tomorrow & see if they can stop payment & deposit the money

electronically. I haven't gotten around to filling out the form for auto

deposit, but maybe I can fax it to them tomorrow. I'll be back when I get

all this caught up. Rose

Good afternoon all....checking on you

> Hi everyone,

> The list is VERY quiet and I am hoping it is NOT because you are

> ALL so VERY SICK! I know Aisha is extremely ill at the moment so as

> a reminder, if you need anything, PLEASE contact one of us other

> moderators for the time being. Aisha is just too sick to answer. We

> will try our best to help you.

> I have not seen very many posts and I am hoping you are all busy

> doing something else....NOT just being sick........

> Sending lots of hugs, prayers, whatever you need..........

> Hugs,

> darlene

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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