Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 In a message dated 4/21/02 9:36:13 PM Pacific Daylight Time, 31528@... writes: << Did someone say there is a prepared rice pudding that covers the taste and texture? >> There is a commercial brand of rice pudding which my kids used to love to eat, but due to their low protein diet now, I make my own, putting raw rice in a sauce pan with a combination of rice milk, DariFree (have also used just rice milk too), Mocha Mix--whatever I have on hand. I then add some cinnamon, vanilla, rice syrup for sweetener (and extra carbs) and cook it slowly. My kids like it for breakfast too, and it's cheaper than buying rice pudding! :-) I haven't added cornstarch, because I found some USDA sponsored research that showed that rice starch products work as well as cornstarch for many diabetics. Also, anecdotally, other KUD families I talked with found that rice milk products helped them avoid hypoglycemia at night. I asked our doc if we could use this and it has worked well. But, I imagine it would help cover the taste of cornstarch too, although my understanding with cornstarch is that it can't be cooked, so you'd have to cool the rice pudding before adding the cornstarch. Dena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 In a message dated 4/21/02 9:36:13 PM Pacific Daylight Time, 31528@... writes: << Did someone say there is a prepared rice pudding that covers the taste and texture? >> There is a commercial brand of rice pudding which my kids used to love to eat, but due to their low protein diet now, I make my own, putting raw rice in a sauce pan with a combination of rice milk, DariFree (have also used just rice milk too), Mocha Mix--whatever I have on hand. I then add some cinnamon, vanilla, rice syrup for sweetener (and extra carbs) and cook it slowly. My kids like it for breakfast too, and it's cheaper than buying rice pudding! :-) I haven't added cornstarch, because I found some USDA sponsored research that showed that rice starch products work as well as cornstarch for many diabetics. Also, anecdotally, other KUD families I talked with found that rice milk products helped them avoid hypoglycemia at night. I asked our doc if we could use this and it has worked well. But, I imagine it would help cover the taste of cornstarch too, although my understanding with cornstarch is that it can't be cooked, so you'd have to cool the rice pudding before adding the cornstarch. Dena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 In a message dated 4/21/02 9:36:13 PM Pacific Daylight Time, 31528@... writes: << We were told not to use a lot of sugar, and that her diet should be somewhat low fat. Did someone say there is a prepared rice pudding that covers the taste and texture? >> p.s. A metabolic nurse recommended DariFree, as it is full of carbs (made from potato starch I believe) and it cooks very well too. I order it from www.darifree.com or vernonfoods.com (I think that's the website), and it comes in a powder, which is mixed with water. If you order this, it's well worth it to pay the extra $6 for their mixing pitcher, since it has a contraption in it to fully dissolve the powder and reaerate the milk before pouring it each time. It is also low fat. Dena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 .. She gave up 13 tubes of blood "for a good cause", as she put it, and now we are waiting for results of the tests they are running. when we got the bill from Shoffner...I could 131 collected samples of blood, urine, tissue, muscle and CSF...good thing he was sleepign through it all... deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 .. She gave up 13 tubes of blood "for a good cause", as she put it, and now we are waiting for results of the tests they are running. when we got the bill from Shoffner...I could 131 collected samples of blood, urine, tissue, muscle and CSF...good thing he was sleepign through it all... deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 .. She gave up 13 tubes of blood "for a good cause", as she put it, and now we are waiting for results of the tests they are running. when we got the bill from Shoffner...I could 131 collected samples of blood, urine, tissue, muscle and CSF...good thing he was sleepign through it all... deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 ...... You're going to get lots of recipes from other parents on here. I had the same question when my kids were diagnosed! I just saw a new product at the pharmacy last week called Nite Bites, it's made from cornstarch and it's for diabetics. Looks like something that would help our kids out though...... Kind of expensive, a little less than a buck a bar, 6 bars in a box. Carol Home from Cleveland > Hello all, > > Emilie had her initial appointment at Cleveland Clinic last week. She > gave up 13 tubes of blood " for a good cause " , as she put it, and now we > are waiting for results of the tests they are running. > > In the meantime, she is supposed to start taking 2 tablespoons of > cornstarch at bedtime. I'd love to hear ideas on how to get this stuff > down. We were told not to use a lot of sugar, and that her diet should > be somewhat low fat. Did someone say there is a prepared rice pudding > that covers the taste and texture? > > Thanks! > > -- Mom to: > Emilie (15), cerebral palsy; also undiagnosed episodic vomiting, > flushing, pallor, purple hands after meals, purple when chilled, dark > circles under eyes, sudden drowsiness, fatigue, low-grade fevers, reduced > muscle tone, glassy eyes, dilated pupils, irritability, diarrhea, > constipation, tachycardia, heat intolerance, difficulty with fasting, > etc. Positive response to carnitine (improved energy & mood) > Kaitlin (15), cerebral palsy, asthma, mild autonomic symptoms > Ian (20) migraines > > > > > > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 In a message dated 4/22/02 10:10:36 PM Pacific Daylight Time, 31528@... writes: << No, the doctor didn't say why we shouldn't use much sugar. It may be something that just applies to Emilie--or not. I hope someone who knows more about this stuff will jump in here! >> Again, I'm not a doc, but the way I understand it is that if you give too much sugar, then your child's sugar level will go up quickly, but then down quickly...which you don't want. That's why you use a complex carb (the cornstarch or whatever else is prescribed) to keep even blood sugars throughout the night. Dena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 In a message dated 4/22/02 10:10:36 PM Pacific Daylight Time, 31528@... writes: << No, the doctor didn't say why we shouldn't use much sugar. It may be something that just applies to Emilie--or not. I hope someone who knows more about this stuff will jump in here! >> Again, I'm not a doc, but the way I understand it is that if you give too much sugar, then your child's sugar level will go up quickly, but then down quickly...which you don't want. That's why you use a complex carb (the cornstarch or whatever else is prescribed) to keep even blood sugars throughout the night. Dena Quote Link to comment Share on other sites More sharing options...
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