Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Rose, Here are some things I didn't put in the other post it took some soul searching but here gives and i'm bearing my soul with hopes that you guys will still be my friends! My childhood there was abuse my father abused me and my mother didn't believe me and we lived on a farm so it bothered me so bad when I could Ieft when I was 16 to get married and any ways over a period of years we moved several times some good places some not well in 1992 in December my husband was arrested for child molestation well talking about embarassment and of course keeping the kids safe and in therapy and all that that intaled and come to find out that was most likely why we were moving so much............ So I felt really low and like trash and God only knows what else, But of course I didn't know what was going on. I immediately filed for a divorce and his arse is in prison and good ridons. I lost my good decent car and had to get an old clunker, had to move from our good neighborhood to a lesser somewhat good neighborhood etc.......It was my first time to have to things all alone etc.......... So I'm saying I can understand how you feel here I had worked and became just an LPN but I was proud of it and it seemed like everything was going downhill but I managed to do ok for quite a while. You are in my prayers Rose, Love ya hun. Happiness is inward and not outward; and it does not depend on what we have, but on what we are................. ~~~~~~Henry Van Dyke Jan Bovitz ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Rose, Here are some things I didn't put in the other post it took some soul searching but here gives and i'm bearing my soul with hopes that you guys will still be my friends! My childhood there was abuse my father abused me and my mother didn't believe me and we lived on a farm so it bothered me so bad when I could Ieft when I was 16 to get married and any ways over a period of years we moved several times some good places some not well in 1992 in December my husband was arrested for child molestation well talking about embarassment and of course keeping the kids safe and in therapy and all that that intaled and come to find out that was most likely why we were moving so much............ So I felt really low and like trash and God only knows what else, But of course I didn't know what was going on. I immediately filed for a divorce and his arse is in prison and good ridons. I lost my good decent car and had to get an old clunker, had to move from our good neighborhood to a lesser somewhat good neighborhood etc.......It was my first time to have to things all alone etc.......... So I'm saying I can understand how you feel here I had worked and became just an LPN but I was proud of it and it seemed like everything was going downhill but I managed to do ok for quite a while. You are in my prayers Rose, Love ya hun. Happiness is inward and not outward; and it does not depend on what we have, but on what we are................. ~~~~~~Henry Van Dyke Jan Bovitz ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Rose, Here are some things I didn't put in the other post it took some soul searching but here gives and i'm bearing my soul with hopes that you guys will still be my friends! My childhood there was abuse my father abused me and my mother didn't believe me and we lived on a farm so it bothered me so bad when I could Ieft when I was 16 to get married and any ways over a period of years we moved several times some good places some not well in 1992 in December my husband was arrested for child molestation well talking about embarassment and of course keeping the kids safe and in therapy and all that that intaled and come to find out that was most likely why we were moving so much............ So I felt really low and like trash and God only knows what else, But of course I didn't know what was going on. I immediately filed for a divorce and his arse is in prison and good ridons. I lost my good decent car and had to get an old clunker, had to move from our good neighborhood to a lesser somewhat good neighborhood etc.......It was my first time to have to things all alone etc.......... So I'm saying I can understand how you feel here I had worked and became just an LPN but I was proud of it and it seemed like everything was going downhill but I managed to do ok for quite a while. You are in my prayers Rose, Love ya hun. Happiness is inward and not outward; and it does not depend on what we have, but on what we are................. ~~~~~~Henry Van Dyke Jan Bovitz ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Poohbear wrote: > *Rose hun, ((((Hugs)))) I didn't fall asleep you are a sweet and > caring person just as you always have been.* > *Hun I know you are going thru some really bad times and having to > move and start over you have had some major changes in the past 6 > months or so and thats a lot to deal with both physically and > psycologically.* > *You have always been there for me in time of crisis when my world was > turned upside down and helped me put the pieces back in place I don't > know if I'll be much help but I'll give it a shot.* > *Hun it doesn't matter as some of the others have said what kind of > house you live it doesn't make you trash, hun you can never be that, > you are one of the kindest loving ladies I know on here you are always > giving of yourself.* > *I've had to start over many times and many times its been down > classing if thats a word? But hun that didn't make me any less better > of who I was I was still me if not made me a stronger person. I'm not > saying it won't be hard but it will take some time to adjust to all > these changes and do something just for you something that makes you > feel good about yourself no matter what it is.* > *If you ever want to talk you can e-mail me anytime.* > *I hope I made some kind of sense and didn't offend you in any way I > wouldn't want to do that just sometimes this old noodle don't work > right you know.......lol* > *And remember God loves you and so do I..............* > *Love and prayers.............* > > Jan, you are so good with words, even made up ones!! you inspire us all! Marla > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Poohbear wrote: > *Rose hun, ((((Hugs)))) I didn't fall asleep you are a sweet and > caring person just as you always have been.* > *Hun I know you are going thru some really bad times and having to > move and start over you have had some major changes in the past 6 > months or so and thats a lot to deal with both physically and > psycologically.* > *You have always been there for me in time of crisis when my world was > turned upside down and helped me put the pieces back in place I don't > know if I'll be much help but I'll give it a shot.* > *Hun it doesn't matter as some of the others have said what kind of > house you live it doesn't make you trash, hun you can never be that, > you are one of the kindest loving ladies I know on here you are always > giving of yourself.* > *I've had to start over many times and many times its been down > classing if thats a word? But hun that didn't make me any less better > of who I was I was still me if not made me a stronger person. I'm not > saying it won't be hard but it will take some time to adjust to all > these changes and do something just for you something that makes you > feel good about yourself no matter what it is.* > *If you ever want to talk you can e-mail me anytime.* > *I hope I made some kind of sense and didn't offend you in any way I > wouldn't want to do that just sometimes this old noodle don't work > right you know.......lol* > *And remember God loves you and so do I..............* > *Love and prayers.............* > > Jan, you are so good with words, even made up ones!! you inspire us all! Marla > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Thanks Marla they are heart felt sincere ones............. Jan Happiness is inward and not outward; and it does not depend on what we have, but on what we are................. ~~~~~~Henry Van Dyke Jan Bovitz ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Hello, I just now read some of my email, it is one of those days with the old eyeballs, I just feel really old at 43, old bones,old worn out eyes. I am sure that at 55 your are not old at all. I hope you have a nice evening and that tomorrow with bring you nothing but the best with no pain or bother with this illness. your friend in Texas, Jeanna ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 Rose, I too have those on my fingers. at the end, under and around the tip of my two index fingers. I had it bad a few years ago, had it froze, came back, had it cut out, came back, went to derm and she used a special solution for warts, they went away for awhile, but have come back. I cut them back just like the ones on my arms, I cut them back, they don't hurt too much, unless I get deep. The ones on the tip of my fingers hurt if I let them go, so I cut them back, they hurt for a couple days, the stop. but they do come back, I was thinking of trying the derm again too. I think I will and see what she has to say about it. But wart stuff OTC doesn't do a thing!! I think it has to be sarc!! I have a couple swollen joints now too, my right little fingers middle joint is bigger then the finger, and can be come very painful. I'm noticing it in other joints too, mostly hands, some feet. but hips just kill my some days!! I am doing better on the Metho though, but still think I would like to try Remicade I got the treatment info regarding Sarc, from the Remicade drug company, and need to take it to my doc to look at, he said he wanted to save it for the " next " flare. I wish I could just get this in remission for awhile, as I know we all do!! I think about you a lot Rose, and pray for you often, I read the postings just don't post much, and you have been through so much, just know that I was praying for you. God Bless, Love, Marla > Kay, is the Remicade supposed to help with all types of sarcoidosis? > Does it do anything for the fatigue & muscle weakness? I'm trying to > get into the study at IU. I talked to Sheryl Lynch back in December, > but I was on Trental, another antiTNF drug, which didn't do anything. > She said I would have to be off the Trental for 3 months before being > considered for the Remicade study. I called her back last week to > tell her I had been off it for over 3 months and she said that she > thought ever taking it would exclude me from the trial, and that she > must have told me wrong in December. However, she said that she would > check with the doctors to be sure. I haven't heard back from her. If > I can't be in the study, I'm going to ask my neuro about it & see if > my insurance will cover it. I will still have the hospital insurance, > for the same premium, until October. Then, if I'm still unable to > work, I don't know if I would qualify for Medicaid or keep my > insurance at a much higher cost. Do you know if Medicaid covers > Remicade for sarc? > > Re: skin nodules. I'm getting these weird painful bumps just on my > left hand. It started out last year with what looked a plantar wart > on the tip of my middle finger. I used OTC wart treatment & TCA (used > for venereal warts), and it just kept getting bigger & more painful, > until I had trouble typing & other daily activities. I saw a > dermatologist, who froze it 3 times without response & finally cut out > a big divot in my finger. My insurance won't cover treatment for this > kind of wart and I've had to pay about $400 out of pocket. Now the > thing is starting back! I also have a similar lesion on my first > finger that started out as a small bump with a hole in the center; > It's getting bigger & more painful and a couple of weeks ago another > one appeared in the palm of my hand! I can't afford the dermatologist > if they are warts, but I'm a little concerned that they might be > sarc. Has anyone had lesions like this? They are flesh-colored and > tender to touch. The one on my palm is about the size of a BB, the > others have gotten bigger. > > Kay, I hope to see you again sometime. Did you enjoy your retreat > awhile back? Rose > > * Re: Skin Nodules > > Jane, > > I've dealt with nodules in and around my eyelids. One started out > pea size and within weeks grew to the size of my thumb. Biopsy > was positive for sarc. If you want more details, I'll be glad to > provide them. It developed into a major ordeal. I continued to > have small ones for a couple years. When I began Remicade, they > just melted away after 3 treatments. I've had to discontinue the > Remicade for a severe allergic reaction after the 4th one and they > are starting to come back, but tiny so far. I am getting pencil > eraser size whitish/red places on my arms and legs now. I'm sure > they are skin sarc., but they really don't bother me yet. We'll see. > > Kay > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 Rose, I too have those on my fingers. at the end, under and around the tip of my two index fingers. I had it bad a few years ago, had it froze, came back, had it cut out, came back, went to derm and she used a special solution for warts, they went away for awhile, but have come back. I cut them back just like the ones on my arms, I cut them back, they don't hurt too much, unless I get deep. The ones on the tip of my fingers hurt if I let them go, so I cut them back, they hurt for a couple days, the stop. but they do come back, I was thinking of trying the derm again too. I think I will and see what she has to say about it. But wart stuff OTC doesn't do a thing!! I think it has to be sarc!! I have a couple swollen joints now too, my right little fingers middle joint is bigger then the finger, and can be come very painful. I'm noticing it in other joints too, mostly hands, some feet. but hips just kill my some days!! I am doing better on the Metho though, but still think I would like to try Remicade I got the treatment info regarding Sarc, from the Remicade drug company, and need to take it to my doc to look at, he said he wanted to save it for the " next " flare. I wish I could just get this in remission for awhile, as I know we all do!! I think about you a lot Rose, and pray for you often, I read the postings just don't post much, and you have been through so much, just know that I was praying for you. God Bless, Love, Marla > Kay, is the Remicade supposed to help with all types of sarcoidosis? > Does it do anything for the fatigue & muscle weakness? I'm trying to > get into the study at IU. I talked to Sheryl Lynch back in December, > but I was on Trental, another antiTNF drug, which didn't do anything. > She said I would have to be off the Trental for 3 months before being > considered for the Remicade study. I called her back last week to > tell her I had been off it for over 3 months and she said that she > thought ever taking it would exclude me from the trial, and that she > must have told me wrong in December. However, she said that she would > check with the doctors to be sure. I haven't heard back from her. If > I can't be in the study, I'm going to ask my neuro about it & see if > my insurance will cover it. I will still have the hospital insurance, > for the same premium, until October. Then, if I'm still unable to > work, I don't know if I would qualify for Medicaid or keep my > insurance at a much higher cost. Do you know if Medicaid covers > Remicade for sarc? > > Re: skin nodules. I'm getting these weird painful bumps just on my > left hand. It started out last year with what looked a plantar wart > on the tip of my middle finger. I used OTC wart treatment & TCA (used > for venereal warts), and it just kept getting bigger & more painful, > until I had trouble typing & other daily activities. I saw a > dermatologist, who froze it 3 times without response & finally cut out > a big divot in my finger. My insurance won't cover treatment for this > kind of wart and I've had to pay about $400 out of pocket. Now the > thing is starting back! I also have a similar lesion on my first > finger that started out as a small bump with a hole in the center; > It's getting bigger & more painful and a couple of weeks ago another > one appeared in the palm of my hand! I can't afford the dermatologist > if they are warts, but I'm a little concerned that they might be > sarc. Has anyone had lesions like this? They are flesh-colored and > tender to touch. The one on my palm is about the size of a BB, the > others have gotten bigger. > > Kay, I hope to see you again sometime. Did you enjoy your retreat > awhile back? Rose > > * Re: Skin Nodules > > Jane, > > I've dealt with nodules in and around my eyelids. One started out > pea size and within weeks grew to the size of my thumb. Biopsy > was positive for sarc. If you want more details, I'll be glad to > provide them. It developed into a major ordeal. I continued to > have small ones for a couple years. When I began Remicade, they > just melted away after 3 treatments. I've had to discontinue the > Remicade for a severe allergic reaction after the 4th one and they > are starting to come back, but tiny so far. I am getting pencil > eraser size whitish/red places on my arms and legs now. I'm sure > they are skin sarc., but they really don't bother me yet. We'll see. > > Kay > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 Rose, Thank you for the name of the book, I'll call the book store and see if they can find it for me. I would imagine you are busy right now with a wedding coming up soon. Take care of yourself and have a good day. Patti How are you? Good morning, Sorry I have not been around much these last few days...I have beenhaving a big flare-up and hopefully I am about through it! I havelots of mail to read so if anyone is expecting an answer, please bepatient.I hope you are all doing well. Please check in with us and let us know how you are. we DO worryabout each of you and when you do not post, we worry MORE! Iknow.....I did not post and let you know I was really sick, but Iwill do better! :-) Take care and have a good day ......sending lots of hugs,DarleneModerator/List Owner~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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