Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi there , No its not in your head, I am 44 years young, and I get stares all the time too. Your response to that woman was great. My hubby and I get stares all the time, I walk with my huge AFO at times with my cane, and on my bad days in my wheelchair. My husband walks with a cane because of his stroke 2 years ago. It used to make him very angry, but I told him you know there just very curious, just smile at them and say hi. That generally embaresses them and they turn away. Have a great day, Sandy Questions Hello Friends, I just turned 40 this August but everybody tells me I look like Im in my late 20,s.When I go out with my wife I take my cane to help steady myself,but I feel like people are looking at me and that makes my condition worse.I get stiff legged and trip alot more than usual.My wife says its all in my mind, but I had a woman come by me the other day in a store and said I was to young to be using a cane.I told her it wasnt my idea of fun either and just laughed and went on.Does anybody else have that problem or is it all in my head. Your Friend; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 No, its not in your head. People do look and wonder what's wrong. I'm 58 (yes I'm no spring chicken) but I went to the movies with my girlfriend a few years back (often people thought we were sister) and she got her ticket at regular price but when I went up they asked if I wanted senior citizen tickets. I was so degraded but managed top say " NO " I have a few more years to go. I use a walker so I guess it ages us. The stiffness is common when we are out and people stare it just stresses us out. After having this for more then 12 years it doesn't bother me anymore. You just can't let it bother you either. It just takes time and you handled yourself well by your remark..............Take care my friend...Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 It is NOT in your head. When I started using a cane in May I immediately noticed a change in people around me. There were stares but even more, people start getting getting into your personal space....you know ...standing too close to you when you are in line. Some will rush more than usual to get in front on you. Especially when I was eating out and therefore sitting while, I would stand up stiff and be wobbly. People in the whole section of the restaurant would stop eating and stare. I would smile as best I could while trying to get flexiblity back. But the stares caused me to tighten up even more and that started the vicious cycle of anxiety, imbalance, and stiffness. Seemed like an eternity walking out of the situation. Then when I had to go to a rolling walker in September I noticed more changes. People stare unabashed. I've had people park their cars and sit to waatch me drag my walker out of the car. And EVERYBODY must stop and ask me 'what happened'. But at least the walker allows me to stand up straighter, balance quicker, and exit faster. Being 50, looking younger, single, blonde, and traveling alone with a walker I'm accumulating quite a bulk of pecular situations. I've been encouraged to write a book. lol Eva in WV PS When going out with family and friends, I've noticed there is always you in the group that is so aware of others stares that they get anxious and self-conscious themselves. > > Hello Friends, > > I just turned 40 this August but everybody tells me I look like Im > in my late 20,s.When I go out with my wife I take my cane to help > steady myself,but I feel like people are looking at me and that > makes my condition worse.I get stiff legged and trip alot more than > usual.My wife says its all in my mind, but I had a woman come by me > the other day in a store and said I was to young to be using a > cane.I told her it wasnt my idea of fun either and just laughed and > went on.Does anybody else have that problem or is it all in my head. > Your Friend; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Hi , I usually don't know if people are looking at me or not because I am always looking at the ground when I walk. I did have a woman in church tell me she didn't like my cane and to get rid of it. It took me by surprise because I have a very pretty flowered came and I was a little insulted at first. I just said sorry and turned around. Later I figured that she meant she didn't like the idea that I had to use a cane. Next time she said it to me I smiled and said I wish I didn't have to use it but I do and let it go at that. Every time I see her and she tells me the same thing, " I don't like that cane, get rid of it " . She is an older lady I have know for a long time and I just smile at her now and let it go. Susieq in Calif ellerbert wrote: Hello Friends, I just turned 40 this August but everybody tells me I look like Im in my late 20,s.When I go out with my wife I take my cane to help steady myself,but I feel like people are looking at me and that makes my condition worse.I get stiff legged and trip alot more than usual.My wife says its all in my mind, but I had a woman come by me the other day in a store and said I was to young to be using a cane.I told her it wasnt my idea of fun either and just laughed and went on.Does anybody else have that problem or is it all in my head. Your Friend; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Hi , It is hard to get used to the stares, but as Flora said, after a while you just get used to it. I try to put a smile on my face, hopefully, not an idiot's grin, and carry on with my business. I find people are really very kind, but most don't know how to treat a handicapped person. They are trying to figure out what is wrong with you. When I first had problems people used to ask me if I hurt my knee. Then later with a walker I think a bunch assumed I had knee surgery. One later actually asked me " how long do you have? " and I couldn't think of what she meant so I just said " who know how long any of us have " but somehow I don't think she meant how long I had to live, but maybe how long I had to use the walker? Who knows what she was thinking. She is probably kicking herself today for her comment, since by now she probably knows I have PLS, as she goes to our church. Anyway, just carry on with whatever you are doing and after awhile it will be easier for you. Promise! Keep your chin up. Thomson Solana Beach, Ca als-pls.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Hello , I just turned 40 and there is NO doubt I look 40--what's your secret? ;o) Saying that was maybe the person's way of saying I am sorry you have to use a cane--you are so young, because people don't know what to say to us young people who use canes or other walking aides. I had someone come up to me and ask me why I walked with a cane the other night at my friend's 50th birthday party and I told her and she told me she admired me and she would pray for me...and I told her thank you! She was not one of the nosy type--just a really nice lady. I have had the nosy type ask me stuff too. I went up to a lady that was at the same party as me that night and she was in a wheelchair and nobody else seemed to be talking to her...some people think because we have a physical handicap that we are mentally handicapped too...really they do! I am glad I took the time to talk to her because she is a lovely lady and the rest of them...some of them could walk normally, but I really don't care for them and their attitudes! Sue Me > I just turned 40 this August but everybody tells me I look like Im > in my late 20,s.When I go out with my wife I take my cane to help > steady myself,but I feel like people are looking at me and that > makes my condition worse.I get stiff legged and trip alot more than > usual.My wife says its all in my mind, but I had a woman come by me > the other day in a store and said I was to young to be using a > cane.I told her it wasnt my idea of fun either and just laughed and > went on.Does anybody else have that problem or is it all in my head. > Your Friend; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Susie, Tell her the next time... " I don't like your attitude...get rid of it! " lol...and then see what she says! ;o) Every time I see her and she tells me the same thing, " I don't like that cane, get rid of it " . She is an older lady I have know for a long time and I just smile at her now and let it go. Susieq in Calif > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 My son has a severe/profound hearing loss, was diagnosed at age 2, misdiagnosed after that, and finally received hearing aids at age 5. He had very little speech up to that point...he actually started his own " language " , which the doctors said was to compensate for what he couldnt hear and understand. Once he received his hearing aids and began auditory-verbal therapy the change was unbelievable.He is now 11 and we ended up choosing a different route than A-V, but people are always surprised at how great his speech is, especially when they see what his loss is at. All kids are different, but I think with hard work good things are possible Good luck, J WA state mom to , 11 on 1-7-05, severe/profound loss,Widex Bravo bicross aids,SEE/oral, SID, asthma ,9, finally out of speech therapy for hypernasality, yeah!!! ph,6, speech therapy for articulation > If she has mod-severe hearing loss, no understandable words at 28 months, will she be able to learn to communicate orally still? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 My son has a severe/profound hearing loss, was diagnosed at age 2, misdiagnosed after that, and finally received hearing aids at age 5. He had very little speech up to that point...he actually started his own " language " , which the doctors said was to compensate for what he couldnt hear and understand. Once he received his hearing aids and began auditory-verbal therapy the change was unbelievable.He is now 11 and we ended up choosing a different route than A-V, but people are always surprised at how great his speech is, especially when they see what his loss is at. All kids are different, but I think with hard work good things are possible Good luck, J WA state mom to , 11 on 1-7-05, severe/profound loss,Widex Bravo bicross aids,SEE/oral, SID, asthma ,9, finally out of speech therapy for hypernasality, yeah!!! ph,6, speech therapy for articulation > If she has mod-severe hearing loss, no understandable words at 28 months, will she be able to learn to communicate orally still? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 My son has a severe/profound hearing loss, was diagnosed at age 2, misdiagnosed after that, and finally received hearing aids at age 5. He had very little speech up to that point...he actually started his own " language " , which the doctors said was to compensate for what he couldnt hear and understand. Once he received his hearing aids and began auditory-verbal therapy the change was unbelievable.He is now 11 and we ended up choosing a different route than A-V, but people are always surprised at how great his speech is, especially when they see what his loss is at. All kids are different, but I think with hard work good things are possible Good luck, J WA state mom to , 11 on 1-7-05, severe/profound loss,Widex Bravo bicross aids,SEE/oral, SID, asthma ,9, finally out of speech therapy for hypernasality, yeah!!! ph,6, speech therapy for articulation > If she has mod-severe hearing loss, no understandable words at 28 months, will she be able to learn to communicate orally still? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 , I had three unsucccessful stick while lying flat - uncomfortable (pain going down my leg). My neuro entered the room and said sit her up. That was a piece of cake - no pain at all, no headache either. So, if you have a choice - sit instead of lay. > , > > Sent my email to soon, sorry. The puncture is uncomfortable with > pressure vs hurt. The purpose is to remove some fluid and for some > people the removal of the fluid causes bad headaches for several days. > I understand, there are two ways doctors remove the fluid. One way is > to lay you flat on the table and draw the fluid out and I think this is > the way that causes headaches. The other way is to elevate ones head > about 10-20 degrees above ones feet so the fluid gravity flows from the > body. I've had the second way done twice and have never experienced a > headache, however, they still make you lay on you back for fours > afterwards to make sure you are Okay. > > Norton > > > Questions > > > > Hi Everyone, > The people at the MDA clinic in Atlanta have been trying to get me > on Medicaid for a few months now.They called me yesterday and told > me my Dr put it down as possible PLS not Dx as having PLS.I talked > to him and he says I need one more test to do.A lumbar puncture or > spinal tap.He says hes pretty sure I have PLS but it could be 4 > other diseases too.He knows its neurological but he wants to make > its PLS. > My questions are;Has everybody else had this test done and does it > hurt bad.They are going to run the test next month.It doesnt sound > like a fun test but neither were the other 50 million test Ive > already been through. > Your Friend: Eller > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Kat, I know about RAI and I know it can worsen eye problems.There is no way I am getting it,if the Dr gives me a hard time I'll find another Dr. He cant make me do anything.. Im trying to find out about Graves Disease and hypersctive thyroid caused by a nodule..I heard you can have both.Hopefully Ill find out something possitive tomorrow. Thanks! Stacey > > > > Hello everyone, > > > > Ive been lurking here for the past week.Let me tell you about my > > situation... > > > > I blood test said I was hyperactive so I went for another blood > test > > and an ultrasound of my thyroid. > > They found a single nodule and I of course freaked even though I > hear > > nodules are very common. > > I was diagnosed with Graves disease from the bloodwork and I have > some > > eye involvement. > > This has all transpired in the past month so forgive me because I > am > > more than overwhelmed. > > I went this past Mon and Tues for an rai uptake scan and will get > the > > results from my Dr tomorrow. > > The physisist that I was talking to and was in there said my > uptake > > was high and probably a hot nodule..but I wondered wouldnt the > Graves > > make it high too? > > Im just really scared because I know I have Graves and I dont > think > > nodules cause Graves so now Im panicking that I have cancer. > > My anxiety is getting bad last night and today although I felt > great > > before that.Im on only beta blockers for now and they really > seemed to > > help.I guess Im more nervous because my appt is tomorrow. > > Does anyone here know or have any experience or knowledge about > when > > one has Graves and a nodule? > > > > Thanks so much, > > Stacey > > > Grave's disease is an autoimmune disease, the antibodies stimulate > the thyroid and cause it to produce excessive thyroid hormones. > Grave's disease is called Grave's disease after the physician Dr. > Grave who first listed the symptoms together back in the 1800's not > because it is grave.. > Warning..the next step your doctor may try to do is called RAI..in > which is similair to the scan you just had but at a much higher > dose. This will control symptoms of hyper thyroid but it will worsen > your eye symptoms.. eye symptoms tend to run there own course but > will calm down when thyroid levels are kept optimal..not too high > and not too low. > Yahoo has a Grave's support thyroid group..I suggest you check it > out as they can explain to you what to expect..Antithyroid drugs, > proper monitoring etc. > > Kats3boys > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Kat, I know about RAI and I know it can worsen eye problems.There is no way I am getting it,if the Dr gives me a hard time I'll find another Dr. He cant make me do anything.. Im trying to find out about Graves Disease and hypersctive thyroid caused by a nodule..I heard you can have both.Hopefully Ill find out something possitive tomorrow. Thanks! Stacey > > > > Hello everyone, > > > > Ive been lurking here for the past week.Let me tell you about my > > situation... > > > > I blood test said I was hyperactive so I went for another blood > test > > and an ultrasound of my thyroid. > > They found a single nodule and I of course freaked even though I > hear > > nodules are very common. > > I was diagnosed with Graves disease from the bloodwork and I have > some > > eye involvement. > > This has all transpired in the past month so forgive me because I > am > > more than overwhelmed. > > I went this past Mon and Tues for an rai uptake scan and will get > the > > results from my Dr tomorrow. > > The physisist that I was talking to and was in there said my > uptake > > was high and probably a hot nodule..but I wondered wouldnt the > Graves > > make it high too? > > Im just really scared because I know I have Graves and I dont > think > > nodules cause Graves so now Im panicking that I have cancer. > > My anxiety is getting bad last night and today although I felt > great > > before that.Im on only beta blockers for now and they really > seemed to > > help.I guess Im more nervous because my appt is tomorrow. > > Does anyone here know or have any experience or knowledge about > when > > one has Graves and a nodule? > > > > Thanks so much, > > Stacey > > > Grave's disease is an autoimmune disease, the antibodies stimulate > the thyroid and cause it to produce excessive thyroid hormones. > Grave's disease is called Grave's disease after the physician Dr. > Grave who first listed the symptoms together back in the 1800's not > because it is grave.. > Warning..the next step your doctor may try to do is called RAI..in > which is similair to the scan you just had but at a much higher > dose. This will control symptoms of hyper thyroid but it will worsen > your eye symptoms.. eye symptoms tend to run there own course but > will calm down when thyroid levels are kept optimal..not too high > and not too low. > Yahoo has a Grave's support thyroid group..I suggest you check it > out as they can explain to you what to expect..Antithyroid drugs, > proper monitoring etc. > > Kats3boys > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 In a message dated 7/30/2006 10:40:28 A.M. Eastern Standard Time, lferguson9413@... writes: The first one is easy... what does a/c stand for? I've seen it on posts numerous times but can't figure it out. I believe it relates to chemo, but not sure. It stands for Adriamycin and Cytoxan- chemotherapy drugs. Blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 nne and , Thanks so much for your replies. Something tells me that on Thursday, after I get the pathology report back, I'll have MANY more questions, and maybe even some emotions to express. Thanks to all for being here. -->. Dear , That is what we are here for! We've all been there, and we do know how you feel. You will be in my thoughts and prayers this week. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 I have a few questions; hopefully someone has some answers. The first one is easy... what does a/c stand for? I've seen it on posts numerous times but can't figure it out. I believe it relates to chemo, but not sure. The second one is kind of a series of questions... Did anyone here first start with a finding of clustered calcifications on their mammograms? Does anyone know if such a finding always or usually leads to tumors if not caught in time? I've tried doing research on this online, and have found lots of info on calcifications... but I honestly don't know how worried I should be at this point of the significance of this; meaning... can clustered calcifications ever be benign? And if so, are they typically benign or are they typically not? I heard from a nurse that it's not so much the calcificationss that's the issue but the surrounding tissue that's hardening and forcing the calcifications together that is the isssue. Meaning, we want to know why is the tissue hardening and what's pushing everything together. I'm having a stereotactic biopsy done on Tuesday, and am guessing they will use the vacuum procedure to remove tissue. I believe this will collect the surrounding tissue as well as calcifications for more complete pathology. Anyone have experience with this they can pass along? Guess that's more than two questions. Sorry. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 A/C is Adriamycin and Cytoxan which is a chemo. There are two kinds of calcifications. Macrocalcifications, which are large deposits and are usually not related to cancer, microcalcifications, which are specks of calcium that may be found in an area of rapidly dividing cells. When these specks form a certain pattern, it is called a cluster. A cluster signifies to a doctor that the tissues surrounding the calciuum specks may be cancerous. If the pattern is not clear, the doctor may advise you to have another mammogran in three to six months. If the pattern of clacifications look suspicious the doctor does a biopsy I will keep you in my prayers. Please feel free to ask as many questions as you can think of. Knowledge is power. Hugs nne. Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Questions I have a few questions; hopefully someone has some answers. The first one is easy... what does a/c stand for? I've seen it on posts numerous times but can't figure it out. I believe it relates to chemo, but not sure. The second one is kind of a series of questions... Did anyone here first start with a finding of clustered calcifications on their mammograms? Does anyone know if such a finding always or usually leads to tumors if not caught in time? I've tried doing research on this online, and have found lots of info on calcifications... but I honestly don't know how worried I should be at this point of the significance of this; meaning... can clustered calcifications ever be benign? And if so, are they typically benign or are they typically not? I heard from a nurse that it's not so much the calcificationss that's the issue but the surrounding tissue that's hardening and forcing the calcifications together that is the isssue. Meaning, we want to know why is the tissue hardening and what's pushing everything together. I'm having a stereotactic biopsy done on Tuesday, and am guessing they will use the vacuum procedure to remove tissue. I believe this will collect the surrounding tissue as well as calcifications for more complete pathology. Anyone have experience with this they can pass along? Guess that's more than two questions. Sorry. -- ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.10.5/403 - Release Date: 7/28/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 nne and , Thanks so much for your replies. Something tells me that on Thursday, after I get the pathology report back, I'll have MANY more questions, and maybe even some emotions to express. Thanks to all for being here. -- Quote Link to comment Share on other sites More sharing options...
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