Re: OH man,,,, is it gonna get better? need support.-VENTING

[Guest guest]

I think you're doing the right thing... I don't see how you could possibly eliminate all of those foods so I'd just cut out the wheat, rye, barley and go on the antibiotics for lyme and I think you'll feel much better.

OH man,,,, is it gonna get better? need support.-VENTING

So this last week has brought me so much new information to my table of health, and to say the least I am severely overwhelmed.SO WEDNESDAY I found out I am allergic to everything!soy, dairy, eggs, bakers yeast, wheat, oats, rice, tomato, potato, corn, red meat, chicken, and almonds. dust mites, dust and mold.THURSDAYI find out I have Lyme disease.TODAYI found out I am gluten sensitive.ARRARRRRGGGGGGaccording to enterolab LYME and GLUTEN is so common.....actually Lyme causes food allergies...I think this bug has me in a corner....THE VULVODYNIA BEING THE WORST.I have a lot on my plate. I know I cant weed out all the foods realistically , I will jump off a brige trying to do ALL this. so.................. I decided to go gluten free and aggressively address the LYME.Im feeling so down....HELPloveSARAH

[Guest guest]

That's interesting, though, that you say lyme causes food allergies but I guess that makes sense.

I was to call my doctor yesterday with an update and I casually asked if I had already been tested for lyme or if I could be tested for it. I haven't heard back yet from her. I thought there was a possibility she'd already done that.

I'm still haunted by that awful bug bite 9 or 10 years ago now that I hear all of you talking about lyme....

tell me if this sounds suspect.... I woke up one morning with a red place about the size of a quarter on my face near the hair line. My face was actually numb and tingly on that side of my face for a looong time... weeks...the sharp stabbing pains lasted for over a month. There was a brownish spot in the middle of the round red place. It got slightly bigger. Eventually I was left with something that looked like a chicken pox scar. At the time, we had these little brown spiders running around the house... wood spiders... I assumed one of those got me while I was sleeping. Well, actually I killed one with a shoe, got online to see what a brown recluse looked like and then compared the two, deciding that we had an infestation of wood spiders and I shouldn't worry about it. But.... hmmm.... never actually saw the spider.

What did your tick bites look like?

OH man,,,, is it gonna get better? need support.-VENTING

So this last week has brought me so much new information to my table of health, and to say the least I am severely overwhelmed.SO WEDNESDAY I found out I am allergic to everything!soy, dairy, eggs, bakers yeast, wheat, oats, rice, tomato, potato, corn, red meat, chicken, and almonds. dust mites, dust and mold.THURSDAYI find out I have Lyme disease.TODAYI found out I am gluten sensitive.ARRARRRRGGGGGGaccording to enterolab LYME and GLUTEN is so common.....actually Lyme causes food allergies...I think this bug has me in a corner....THE VULVODYNIA BEING THE WORST.I have a lot on my plate. I know I cant weed out all the foods realistically , I will jump off a brige trying to do ALL this. so.................. I decided to go gluten free and aggressively address the LYME.Im feeling so down....HELPloveSARAH

[Guest guest]

O

Hon I'm just so so sorry and you sure have your plate full hon... no wonder you're overwhelmed, who wouldn't be to be hit with so much all at once. But I think you've got the right attitude hon.... it's dealing with each thing individually and focusing in on that. If we think of everything wrong all at once we'd never get through it. Hey we'd never get married if we thought of all the cooking, cleaning and dishwashing (and more) we'd have to do in a lifetime either. LOL but day by day hon...

It'd be too much to handle if we didnt, then a depression would set in and that's certainly not something else to add to that heap. You'd be immobilized for sure. Hang in there hon and I think the two main things you mentioned are the Biggies and good to work on those. And if those 2 can be controlled hopefully hon that'll lead to relief for your V pain as well. I'm just so sorry but keep the faith hon.... PLUS we're here with big shoulders to cry on (or to hug) and you can rant, rave and bawl & vent all you want to. We most definitely understand. BIG hugs

Dee~

[Guest guest]

They call they Lyme Bite Rash a " Bulls Eye " rash, although only 30

percent of Lyme patients remember having one. It sounds like you may

have Lyme. Even if you've been tested ask if the test came from

Igenex. My BIL's sister has been sick for years, has had several Lyme

tests over the years and finally was tested at Igenex (at my

insistance) and viola she has Lyme. She suffered needlessly for many

years without a proper diagnosis.

These days I think anyone who has Fibromyalgia, Chronic Fatige

Symptoms and/or Vuvlodynia shoud be tested for Lyme.

Mojo

[Guest guest]

They call they Lyme Bite Rash a " Bulls Eye " rash, although only 30

percent of Lyme patients remember having one. It sounds like you may

have Lyme. Even if you've been tested ask if the test came from

Igenex. My BIL's sister has been sick for years, has had several Lyme

tests over the years and finally was tested at Igenex (at my

insistance) and viola she has Lyme. She suffered needlessly for many

years without a proper diagnosis.

These days I think anyone who has Fibromyalgia, Chronic Fatige

Symptoms and/or Vuvlodynia shoud be tested for Lyme.

Mojo

[Guest guest]

Hi Molly, How are you doing? Did your v pain get a lot worse when your Lyme treatment began? Is your BIL's sister better? Did she have v pain to with her Lyme? I am learning more and more about Lyme through the Fibro Center, you and and this list. But I am still scared of the treatment! THANKS, Love, Sandi

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[Guest guest]

Hi Molly, How are you doing? Did your v pain get a lot worse when your Lyme treatment began? Is your BIL's sister better? Did she have v pain to with her Lyme? I am learning more and more about Lyme through the Fibro Center, you and and this list. But I am still scared of the treatment! THANKS, Love, Sandi

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[Guest guest]

Hi Molly, How are you doing? Did your v pain get a lot worse when your Lyme treatment began? Is your BIL's sister better? Did she have v pain to with her Lyme? I am learning more and more about Lyme through the Fibro Center, you and and this list. But I am still scared of the treatment! THANKS, Love, Sandi

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[Guest guest]

Hi Sandi:

My V pain did not get worse with my Lyme treatment but I also

changed my diet drastically to a high alkaline/low acid diet which

helped a lot. I do notice when I herx now (very mild herxes now) I

get a little more V pain but I was a 10 last year and now I'm only a

3 so it's barely noticeable. When I changed from Doxy to Zithromax

for a couple months my V pain started to come back. I've been on

Doxy again for two weeks so I hope to see a reduction in pain again -

I'll keep you posted. I bought a pair of jeans and can wear them

for about a minute or two (LOL) - hoping to be able to wear them

this winter sometime, that may be wishful thinking.

My BIL's sister was just diagnosed with her Lyme a few weeks ago and

is only a couple of weeks into her treatment. Not sure how she's

doing. My sister says she's questioning her diagnosis (which is

very typical - I did the same thing with my Lyme and my Lichen

Sclerosis). I'm looking forward to speaking with her - we go to the

same Dr., but I'm waiting for her to be " ready " . I remember when I

just couldn't talk about my Lyme without totally freaking out. She

does not have the V pain.

I'm glad your FFC is good with Lyme. The Dr, at my FFC is more

knowledgable now and I've heard several positive comments about

her. My twin still goes to her for her CFIS and is being treated

very well. My new Dr. takes my insurance and his supplements are

way cheaper, but the IV's aren't covered. Overall, I'm saving lots

of money and I really like him so I'm going to stay with him.

Wishing you may pain free days ahead

Hugs

Molly

>

> Hi Molly,

>

> How are you doing? Did your v pain get a lot worse when your

Lyme treatment began? Is your BIL's sister better? Did she have v

pain to with her Lyme?

>

> I am learning more and more about Lyme through the Fibro Center,

you and and this list. But I am still scared of the treatment!

>

> THANKS,

>

> Love,

> Sandi

>

>

>

>

> ---------------------------------

> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

[Guest guest]

Hi Molly, Thanks so much for your reply. Sorry if you have already answered this question but if you could enlighten me it would be great. Did you take anything to offset the herx reaction? I know my doc at the FFC said there are a few cholesterol meds to take to neutralizxe and also he gave me a high bblood pressure med called Benicar. Also, did you have the blood hypercoaguability /fibrin problem and if so did you treat that yet? Thanks, Love Sandi

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[Guest guest]

Hey Sandi:

A good thing to take for the herx is a detox from Nutramedix called

Burbur. The FFC has it. They use it with the Samento and Cumanda

but you can use the Burbur first if you haven't started their

herbals yet.

I do have the hypercoagulation and they had me on the Lumbrokinase

but I'm not on it anymore. My current LLMD tends to go slower and

treat one thing at a time. I was taking too much stuff while at the

FFC and my body freaked out. I can see from posts on other boards

that the FFC docs can be flexible about that and I should have gone

slower.

I was planning on asking my new doc about my blood issue at my next

visit.

The cholestoral med (Questran) is for detoxing the neurotoxins and I

understand it can make people feel better by removing the toxins

that cause our " brain fog " Most Lyme people herx like crazy on it

so they(the FFC) use it with a diabetic drug called Actos to avoid

the herx. My dr. ordered for me twice and changed her mind because

it's pretty intense and she worried it would be too much for me. I

think I may try it at the end of my Lyme treatment

The best thing that helped me with herxing was Xanax.

Hugs

Molly

[Guest guest]

Hey Sandi:

A good thing to take for the herx is a detox from Nutramedix called

Burbur. The FFC has it. They use it with the Samento and Cumanda

but you can use the Burbur first if you haven't started their

herbals yet.

I do have the hypercoagulation and they had me on the Lumbrokinase

but I'm not on it anymore. My current LLMD tends to go slower and

treat one thing at a time. I was taking too much stuff while at the

FFC and my body freaked out. I can see from posts on other boards

that the FFC docs can be flexible about that and I should have gone

slower.

I was planning on asking my new doc about my blood issue at my next

visit.

The cholestoral med (Questran) is for detoxing the neurotoxins and I

understand it can make people feel better by removing the toxins

that cause our " brain fog " Most Lyme people herx like crazy on it

so they(the FFC) use it with a diabetic drug called Actos to avoid

the herx. My dr. ordered for me twice and changed her mind because

it's pretty intense and she worried it would be too much for me. I

think I may try it at the end of my Lyme treatment

The best thing that helped me with herxing was Xanax.

Hugs

Molly

[Guest guest]

Hey Sandi:

A good thing to take for the herx is a detox from Nutramedix called

Burbur. The FFC has it. They use it with the Samento and Cumanda

but you can use the Burbur first if you haven't started their

herbals yet.

I do have the hypercoagulation and they had me on the Lumbrokinase

but I'm not on it anymore. My current LLMD tends to go slower and

treat one thing at a time. I was taking too much stuff while at the

FFC and my body freaked out. I can see from posts on other boards

that the FFC docs can be flexible about that and I should have gone

slower.

I was planning on asking my new doc about my blood issue at my next

visit.

The cholestoral med (Questran) is for detoxing the neurotoxins and I

understand it can make people feel better by removing the toxins

that cause our " brain fog " Most Lyme people herx like crazy on it

so they(the FFC) use it with a diabetic drug called Actos to avoid

the herx. My dr. ordered for me twice and changed her mind because

it's pretty intense and she worried it would be too much for me. I

think I may try it at the end of my Lyme treatment

The best thing that helped me with herxing was Xanax.

Hugs

Molly

[Guest guest]

What is Herx?

> The best thing that helped me with herxing was Xanax. > > Hugs > > Molly > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS** > > Our HOME page is http://groups.yahoo.com/group/VulvarDisorders > to search our archives, files, articles, etc. > > ***

[Guest guest]

I found this online...

http://www.angelfire.com/biz/romarkaraoke/Herx.html

"

The herxheimer reaction, nicknamed "herx" or otherwise referred to as Jarisch- Herxheimer (J-H) is a phenomena originally observed in the treatment of syphilis, but later found in other illness. In general terms, it is described as a temporary increase of symptoms when anti-syphilitic drugs (antibiotics) are administered. What is known or speculated about Lyme disease herxheimers are based heavily on the reactions seen in syphilis. This is due to the fact both diseases are caused by a bacteria known as a spirochete, the former being Treponema pallidum, the latter Borrelia burgdoferi (B.. However the herxheimer reactions in Lyme disease are not identical to those seen in syphilis, especially in terms of timing, frequency and duration as noted below. In Lyme disease it is thought that the cause of herxheimers are the result of endotoxin release, that is toxin(s) within the spirochete that are released as the B.b are killed or broken down. This may be a result of the toxin(s) itself or the body's immune response to such. "

Re: OH man,,,, is it gonna get better? need support.-VENTING

What is Herx?

> The best thing that helped me with herxing was Xanax. > > Hugs > > Molly > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS** > > Our HOME page is http://groups.yahoo.com/group/VulvarDisorders > to search our archives, files, articles, etc. > > ***

[Guest guest]

>

> What is Herx?

>

> > The best thing that helped me with herxing was Xanax.

> >

> > Hugs

> >

> > Molly

> >

> >

> >

> >

> >

> >

> > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

THANKS**

> >

> > Our HOME page is http://groups.yahoo.com/group/VulvarDisorders

> > to search our archives, files, articles, etc.

> >

> > ***

[Guest guest]

>

> What is Herx?

>

> > The best thing that helped me with herxing was Xanax.

> >

> > Hugs

> >

> > Molly

> >

> >

> >

> >

> >

> >

> > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

THANKS**

> >

> > Our HOME page is http://groups.yahoo.com/group/VulvarDisorders

> > to search our archives, files, articles, etc.

> >

> > ***

[Guest guest]

>

> What is Herx?

>

> > The best thing that helped me with herxing was Xanax.

> >

> > Hugs

> >

> > Molly

> >

> >

> >

> >

> >

> >

> > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

THANKS**

> >

> > Our HOME page is http://groups.yahoo.com/group/VulvarDisorders

> > to search our archives, files, articles, etc.

> >

> > ***

[Guest guest]

A " Herx " or " Herxheimer Reaction " is when you are killing off germs

and the body can't handle the " die off " (it is also referred to

a " die off " reaction.) It happens to people with Lyme and was first

discovered when they started using antibiotics to treat syphillis.

Some people also get it when they have Systemic Yeast (my twin had

it bad and she herxed for a few months when she started her

treatment) or other auto-immune issues (stealth infections)

It's actually a positive thing as it indicates that the meds are

working - but not fun to experience.

Molly

>

> What is Herx?

>

> > The best thing that helped me with herxing was Xanax.

> >

> > Hugs

> >

> > Molly

> >

> >

> >

> >

> >

> >

> > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

THANKS**

> >

> > Our HOME page is http://groups.yahoo.com/group/VulvarDisorders

> > to search our archives, files, articles, etc.

> >

> > ***