RE: new to this sisterhood

[Guest guest]

Hi Debbie and welcome. We do/did have a few ladies with Paget's. I am sorry you

went so long before getting the right diagnosis. Remember that breast cancer is

NOT the death sentence it was once thought to be. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

new to this sisterhood

Hi,

My name is Debbie and I was just diagnosed on July 21st with breast

cancer. You ladies are right, the waiting is the hardest part. I have

had a sore on my left nipple since the summer of 2004. My family doc

thought is was dermatitis. After many creams and no results, I just

figured it was something I had to live with. In April of this year I

got an e-mail from a friend of mine (you know the kind, warning you

of some hidden danger out there)telling a sister's story of Paget's

Breast Cancer. It starts with a rash like sore on the nipple. After

reading this e-mail I went to my family Dr. Her husband was the one

to see me that day and when I told him about the e-mail, he stormed

out of the room and said " Damned internet " . Well, that damned

internet probably saved my life. I then went to a dermatologist who

after 5 weeks of creams did a skin punch biopsy, which came back as

Paget's. I had a mammogram and MRI at the Clevbeland Clinic Breast

Center and they cannot find any underlying cancer, but they said

because of the Paget's they know it is there somewhere. It is

probably just very small they said.So I had to make the choice,

remove my nipple and radiation or mastectomy. I have decided to have

the lumpectomy and radiation. Although the mammogram and MRI were

clear, I am scared to death that when they go in there they are going

to find cancer everywhere. I am scheduled to have my surgery 9/18,

the day after my 43rd birthday. Has anyone here had Paget's? I have

spent hours and hours reading things on the internet, but it would

help to talk to someone that has had it. I am scared that since I

have had the problem for over 2 years that cancer is all over my

body. I do not sleep very well, even with prescribed meds. I have 2

teenage sons that I would like to see as grown men with famlies of

their own.This is so scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.405 / Virus Database: 268.11.5/426 - Release Date: 8/23/2006

[Guest guest]

Hi Debbie and welcome. We do/did have a few ladies with Paget's. I am sorry you

went so long before getting the right diagnosis. Remember that breast cancer is

NOT the death sentence it was once thought to be. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

new to this sisterhood

Hi,

My name is Debbie and I was just diagnosed on July 21st with breast

cancer. You ladies are right, the waiting is the hardest part. I have

had a sore on my left nipple since the summer of 2004. My family doc

thought is was dermatitis. After many creams and no results, I just

figured it was something I had to live with. In April of this year I

got an e-mail from a friend of mine (you know the kind, warning you

of some hidden danger out there)telling a sister's story of Paget's

Breast Cancer. It starts with a rash like sore on the nipple. After

reading this e-mail I went to my family Dr. Her husband was the one

to see me that day and when I told him about the e-mail, he stormed

out of the room and said " Damned internet " . Well, that damned

internet probably saved my life. I then went to a dermatologist who

after 5 weeks of creams did a skin punch biopsy, which came back as

Paget's. I had a mammogram and MRI at the Clevbeland Clinic Breast

Center and they cannot find any underlying cancer, but they said

because of the Paget's they know it is there somewhere. It is

probably just very small they said.So I had to make the choice,

remove my nipple and radiation or mastectomy. I have decided to have

the lumpectomy and radiation. Although the mammogram and MRI were

clear, I am scared to death that when they go in there they are going

to find cancer everywhere. I am scheduled to have my surgery 9/18,

the day after my 43rd birthday. Has anyone here had Paget's? I have

spent hours and hours reading things on the internet, but it would

help to talk to someone that has had it. I am scared that since I

have had the problem for over 2 years that cancer is all over my

body. I do not sleep very well, even with prescribed meds. I have 2

teenage sons that I would like to see as grown men with famlies of

their own.This is so scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.405 / Virus Database: 268.11.5/426 - Release Date: 8/23/2006

[Guest guest]

Hi Debbie and welcome. We do/did have a few ladies with Paget's. I am sorry you

went so long before getting the right diagnosis. Remember that breast cancer is

NOT the death sentence it was once thought to be. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

new to this sisterhood

Hi,

My name is Debbie and I was just diagnosed on July 21st with breast

cancer. You ladies are right, the waiting is the hardest part. I have

had a sore on my left nipple since the summer of 2004. My family doc

thought is was dermatitis. After many creams and no results, I just

figured it was something I had to live with. In April of this year I

got an e-mail from a friend of mine (you know the kind, warning you

of some hidden danger out there)telling a sister's story of Paget's

Breast Cancer. It starts with a rash like sore on the nipple. After

reading this e-mail I went to my family Dr. Her husband was the one

to see me that day and when I told him about the e-mail, he stormed

out of the room and said " Damned internet " . Well, that damned

internet probably saved my life. I then went to a dermatologist who

after 5 weeks of creams did a skin punch biopsy, which came back as

Paget's. I had a mammogram and MRI at the Clevbeland Clinic Breast

Center and they cannot find any underlying cancer, but they said

because of the Paget's they know it is there somewhere. It is

probably just very small they said.So I had to make the choice,

remove my nipple and radiation or mastectomy. I have decided to have

the lumpectomy and radiation. Although the mammogram and MRI were

clear, I am scared to death that when they go in there they are going

to find cancer everywhere. I am scheduled to have my surgery 9/18,

the day after my 43rd birthday. Has anyone here had Paget's? I have

spent hours and hours reading things on the internet, but it would

help to talk to someone that has had it. I am scared that since I

have had the problem for over 2 years that cancer is all over my

body. I do not sleep very well, even with prescribed meds. I have 2

teenage sons that I would like to see as grown men with famlies of

their own.This is so scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.405 / Virus Database: 268.11.5/426 - Release Date: 8/23/2006

[Guest guest]

Hi Debbie –

I haven’t had Paget’s, but I know that scary feeling of thinking the cancer

has spread throughout your body. I originally had a lumpectomy, but my

margins weren’t clear. Went back and had a mastectomy and the pathology

report came back good. I was still send to an oncologist and he recommended

4 treatments of chemo to be on the safe side. Have you been to an

oncologist, or are you waiting until after the surgery and your pathology

report?

new to this sisterhood

Hi,

My name is Debbie and I was just diagnosed on July 21st with breast

cancer. You ladies are right, the waiting is the hardest part. I have

had a sore on my left nipple since the summer of 2004. My family doc

thought is was dermatitis. After many creams and no results, I just

figured it was something I had to live with. In April of this year I

got an e-mail from a friend of mine (you know the kind, warning you

of some hidden danger out there)telling a sister's story of Paget's

Breast Cancer. It starts with a rash like sore on the nipple. After

reading this e-mail I went to my family Dr. Her husband was the one

to see me that day and when I told him about the e-mail, he stormed

out of the room and said " Damned internet " . Well, that damned

internet probably saved my life. I then went to a dermatologist who

after 5 weeks of creams did a skin punch biopsy, which came back as

Paget's. I had a mammogram and MRI at the Clevbeland Clinic Breast

Center and they cannot find any underlying cancer, but they said

because of the Paget's they know it is there somewhere. It is

probably just very small they said.So I had to make the choice,

remove my nipple and radiation or mastectomy. I have decided to have

the lumpectomy and radiation. Although the mammogram and MRI were

clear, I am scared to death that when they go in there they are going

to find cancer everywhere. I am scheduled to have my surgery 9/18,

the day after my 43rd birthday. Has anyone here had Paget's? I have

spent hours and hours reading things on the internet, but it would

help to talk to someone that has had it. I am scared that since I

have had the problem for over 2 years that cancer is all over my

body. I do not sleep very well, even with prescribed meds. I have 2

teenage sons that I would like to see as grown men with famlies of

their own.This is so scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[Guest guest]

I went to a medical oncologist and a radiation oncologist. They have

told me I will have to do radiation after surgery, probably 5 weeks.

That is what scares me, if they do not get clear margins and have to

go into another surgery. I just keep telling myself, as long as I do

not have to do Chemo, I can handle anything. Thank you for your

reply.

Debbie

>

> Hi Debbie –

>

> I haven't had Paget's, but I know that scary feeling of thinking

the cancer

> has spread throughout your body. I originally had a lumpectomy,

but my

> margins weren't clear. Went back and had a mastectomy and the

pathology

> report came back good. I was still send to an oncologist and he

recommended

> 4 treatments of chemo to be on the safe side. Have you been to an

> oncologist, or are you waiting until after the surgery and your

pathology

> report?

>

>

>

> new to this sisterhood

>

> Hi,

> My name is Debbie and I was just diagnosed on July 21st with breast

> cancer. You ladies are right, the waiting is the hardest part. I

have

> had a sore on my left nipple since the summer of 2004. My family doc

> thought is was dermatitis. After many creams and no results, I just

> figured it was something I had to live with. In April of this year I

> got an e-mail from a friend of mine (you know the kind, warning you

> of some hidden danger out there)telling a sister's story of Paget's

> Breast Cancer. It starts with a rash like sore on the nipple. After

> reading this e-mail I went to my family Dr. Her husband was the one

> to see me that day and when I told him about the e-mail, he stormed

> out of the room and said " Damned internet " . Well, that damned

> internet probably saved my life. I then went to a dermatologist who

> after 5 weeks of creams did a skin punch biopsy, which came back as

> Paget's. I had a mammogram and MRI at the Clevbeland Clinic Breast

> Center and they cannot find any underlying cancer, but they said

> because of the Paget's they know it is there somewhere. It is

> probably just very small they said.So I had to make the choice,

> remove my nipple and radiation or mastectomy. I have decided to have

> the lumpectomy and radiation. Although the mammogram and MRI were

> clear, I am scared to death that when they go in there they are

going

> to find cancer everywhere. I am scheduled to have my surgery 9/18,

> the day after my 43rd birthday. Has anyone here had Paget's? I have

> spent hours and hours reading things on the internet, but it would

> help to talk to someone that has had it. I am scared that since I

> have had the problem for over 2 years that cancer is all over my

> body. I do not sleep very well, even with prescribed meds. I have 2

> teenage sons that I would like to see as grown men with famlies of

> their own.This is so scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

>

>

>

[Guest guest]

--- Debbie wrote:

> I went to a medical oncologist and a radiation

> oncologist. They have

> told me I will have to do radiation after surgery,

> probably 5 weeks.

> That is what scares me, if they do not get clear

> margins and have to

> go into another surgery. I just keep telling myself,

> as long as I do

> not have to do Chemo, I can handle anything. Thank

> you for your

> reply.

and, if, g-d forbid, you have to have chemo, you'll be

able to handle that as well...I believe that the vast

maority of human beings have a wealth of strength that

only comes to the fore in times of crisis...

peace...

marisa

> Debbie

> >

> > Hi Debbie –

> >

> > I haven't had Paget's, but I know that scary

> feeling of thinking

> the cancer

> > has spread throughout your body. I originally had

> a lumpectomy,

> but my

> > margins weren't clear. Went back and had a

> mastectomy and the

> pathology

> > report came back good. I was still send to an

> oncologist and he

> recommended

> > 4 treatments of chemo to be on the safe side.

> Have you been to an

> > oncologist, or are you waiting until after the

> surgery and your

> pathology

> > report?

> >

> >

> >

> > new to this sisterhood

> >

> > Hi,

> > My name is Debbie and I was just diagnosed on July

> 21st with breast

> > cancer. You ladies are right, the waiting is the

> hardest part. I

> have

> > had a sore on my left nipple since the summer of

> 2004. My family doc

> > thought is was dermatitis. After many creams and

> no results, I just

> > figured it was something I had to live with. In

> April of this year I

> > got an e-mail from a friend of mine (you know the

> kind, warning you

> > of some hidden danger out there)telling a sister's

> story of Paget's

> > Breast Cancer. It starts with a rash like sore on

> the nipple. After

> > reading this e-mail I went to my family Dr. Her

> husband was the one

> > to see me that day and when I told him about the

> e-mail, he stormed

> > out of the room and said " Damned internet " . Well,

> that damned

> > internet probably saved my life. I then went to a

> dermatologist who

> > after 5 weeks of creams did a skin punch biopsy,

> which came back as

> > Paget's. I had a mammogram and MRI at the

> Clevbeland Clinic Breast

> > Center and they cannot find any underlying cancer,

> but they said

> > because of the Paget's they know it is there

> somewhere. It is

> > probably just very small they said.So I had to

> make the choice,

> > remove my nipple and radiation or mastectomy. I

> have decided to have

> > the lumpectomy and radiation. Although the

> mammogram and MRI were

> > clear, I am scared to death that when they go in

> there they are

> going

> > to find cancer everywhere. I am scheduled to have

> my surgery 9/18,

> > the day after my 43rd birthday. Has anyone here

> had Paget's? I have

> > spent hours and hours reading things on the

> internet, but it would

> > help to talk to someone that has had it. I am

> scared that since I

> > have had the problem for over 2 years that cancer

> is all over my

> > body. I do not sleep very well, even with

> prescribed meds. I have 2

> > teenage sons that I would like to see as grown men

> with famlies of

> > their own.This is so

> scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> >

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

--- Debbie wrote:

> I went to a medical oncologist and a radiation

> oncologist. They have

> told me I will have to do radiation after surgery,

> probably 5 weeks.

> That is what scares me, if they do not get clear

> margins and have to

> go into another surgery. I just keep telling myself,

> as long as I do

> not have to do Chemo, I can handle anything. Thank

> you for your

> reply.

and, if, g-d forbid, you have to have chemo, you'll be

able to handle that as well...I believe that the vast

maority of human beings have a wealth of strength that

only comes to the fore in times of crisis...

peace...

marisa

> Debbie

> >

> > Hi Debbie –

> >

> > I haven't had Paget's, but I know that scary

> feeling of thinking

> the cancer

> > has spread throughout your body. I originally had

> a lumpectomy,

> but my

> > margins weren't clear. Went back and had a

> mastectomy and the

> pathology

> > report came back good. I was still send to an

> oncologist and he

> recommended

> > 4 treatments of chemo to be on the safe side.

> Have you been to an

> > oncologist, or are you waiting until after the

> surgery and your

> pathology

> > report?

> >

> >

> >

> > new to this sisterhood

> >

> > Hi,

> > My name is Debbie and I was just diagnosed on July

> 21st with breast

> > cancer. You ladies are right, the waiting is the

> hardest part. I

> have

> > had a sore on my left nipple since the summer of

> 2004. My family doc

> > thought is was dermatitis. After many creams and

> no results, I just

> > figured it was something I had to live with. In

> April of this year I

> > got an e-mail from a friend of mine (you know the

> kind, warning you

> > of some hidden danger out there)telling a sister's

> story of Paget's

> > Breast Cancer. It starts with a rash like sore on

> the nipple. After

> > reading this e-mail I went to my family Dr. Her

> husband was the one

> > to see me that day and when I told him about the

> e-mail, he stormed

> > out of the room and said " Damned internet " . Well,

> that damned

> > internet probably saved my life. I then went to a

> dermatologist who

> > after 5 weeks of creams did a skin punch biopsy,

> which came back as

> > Paget's. I had a mammogram and MRI at the

> Clevbeland Clinic Breast

> > Center and they cannot find any underlying cancer,

> but they said

> > because of the Paget's they know it is there

> somewhere. It is

> > probably just very small they said.So I had to

> make the choice,

> > remove my nipple and radiation or mastectomy. I

> have decided to have

> > the lumpectomy and radiation. Although the

> mammogram and MRI were

> > clear, I am scared to death that when they go in

> there they are

> going

> > to find cancer everywhere. I am scheduled to have

> my surgery 9/18,

> > the day after my 43rd birthday. Has anyone here

> had Paget's? I have

> > spent hours and hours reading things on the

> internet, but it would

> > help to talk to someone that has had it. I am

> scared that since I

> > have had the problem for over 2 years that cancer

> is all over my

> > body. I do not sleep very well, even with

> prescribed meds. I have 2

> > teenage sons that I would like to see as grown men

> with famlies of

> > their own.This is so

> scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> >

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

--- Debbie wrote:

> I went to a medical oncologist and a radiation

> oncologist. They have

> told me I will have to do radiation after surgery,

> probably 5 weeks.

> That is what scares me, if they do not get clear

> margins and have to

> go into another surgery. I just keep telling myself,

> as long as I do

> not have to do Chemo, I can handle anything. Thank

> you for your

> reply.

and, if, g-d forbid, you have to have chemo, you'll be

able to handle that as well...I believe that the vast

maority of human beings have a wealth of strength that

only comes to the fore in times of crisis...

peace...

marisa

> Debbie

> >

> > Hi Debbie –

> >

> > I haven't had Paget's, but I know that scary

> feeling of thinking

> the cancer

> > has spread throughout your body. I originally had

> a lumpectomy,

> but my

> > margins weren't clear. Went back and had a

> mastectomy and the

> pathology

> > report came back good. I was still send to an

> oncologist and he

> recommended

> > 4 treatments of chemo to be on the safe side.

> Have you been to an

> > oncologist, or are you waiting until after the

> surgery and your

> pathology

> > report?

> >

> >

> >

> > new to this sisterhood

> >

> > Hi,

> > My name is Debbie and I was just diagnosed on July

> 21st with breast

> > cancer. You ladies are right, the waiting is the

> hardest part. I

> have

> > had a sore on my left nipple since the summer of

> 2004. My family doc

> > thought is was dermatitis. After many creams and

> no results, I just

> > figured it was something I had to live with. In

> April of this year I

> > got an e-mail from a friend of mine (you know the

> kind, warning you

> > of some hidden danger out there)telling a sister's

> story of Paget's

> > Breast Cancer. It starts with a rash like sore on

> the nipple. After

> > reading this e-mail I went to my family Dr. Her

> husband was the one

> > to see me that day and when I told him about the

> e-mail, he stormed

> > out of the room and said " Damned internet " . Well,

> that damned

> > internet probably saved my life. I then went to a

> dermatologist who

> > after 5 weeks of creams did a skin punch biopsy,

> which came back as

> > Paget's. I had a mammogram and MRI at the

> Clevbeland Clinic Breast

> > Center and they cannot find any underlying cancer,

> but they said

> > because of the Paget's they know it is there

> somewhere. It is

> > probably just very small they said.So I had to

> make the choice,

> > remove my nipple and radiation or mastectomy. I

> have decided to have

> > the lumpectomy and radiation. Although the

> mammogram and MRI were

> > clear, I am scared to death that when they go in

> there they are

> going

> > to find cancer everywhere. I am scheduled to have

> my surgery 9/18,

> > the day after my 43rd birthday. Has anyone here

> had Paget's? I have

> > spent hours and hours reading things on the

> internet, but it would

> > help to talk to someone that has had it. I am

> scared that since I

> > have had the problem for over 2 years that cancer

> is all over my

> > body. I do not sleep very well, even with

> prescribed meds. I have 2

> > teenage sons that I would like to see as grown men

> with famlies of

> > their own.This is so

> scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> >

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

Well I wish pray that everything is good for you.. good luck .. it's okay to be

scared just stay strong.. we can all be here for you when you are falling..

signia

Debbie wrote:

I went to a medical oncologist and a radiation oncologist. They have

told me I will have to do radiation after surgery, probably 5 weeks.

That is what scares me, if they do not get clear margins and have to

go into another surgery. I just keep telling myself, as long as I do

not have to do Chemo, I can handle anything. Thank you for your

reply.

Debbie

>

> Hi Debbie –

>

> I haven't had Paget's, but I know that scary feeling of thinking

the cancer

> has spread throughout your body. I originally had a lumpectomy,

but my

> margins weren't clear. Went back and had a mastectomy and the

pathology

> report came back good. I was still send to an oncologist and he

recommended

> 4 treatments of chemo to be on the safe side. Have you been to an

> oncologist, or are you waiting until after the surgery and your

pathology

> report?

>

>

>

> new to this sisterhood

>

> Hi,

> My name is Debbie and I was just diagnosed on July 21st with breast

> cancer. You ladies are right, the waiting is the hardest part. I

have

> had a sore on my left nipple since the summer of 2004. My family doc

> thought is was dermatitis. After many creams and no results, I just

> figured it was something I had to live with. In April of this year I

> got an e-mail from a friend of mine (you know the kind, warning you

> of some hidden danger out there)telling a sister's story of Paget's

> Breast Cancer. It starts with a rash like sore on the nipple. After

> reading this e-mail I went to my family Dr. Her husband was the one

> to see me that day and when I told him about the e-mail, he stormed

> out of the room and said " Damned internet " . Well, that damned

> internet probably saved my life. I then went to a dermatologist who

> after 5 weeks of creams did a skin punch biopsy, which came back as

> Paget's. I had a mammogram and MRI at the Clevbeland Clinic Breast

> Center and they cannot find any underlying cancer, but they said

> because of the Paget's they know it is there somewhere. It is

> probably just very small they said.So I had to make the choice,

> remove my nipple and radiation or mastectomy. I have decided to have

> the lumpectomy and radiation. Although the mammogram and MRI were

> clear, I am scared to death that when they go in there they are

going

> to find cancer everywhere. I am scheduled to have my surgery 9/18,

> the day after my 43rd birthday. Has anyone here had Paget's? I have

> spent hours and hours reading things on the internet, but it would

> help to talk to someone that has had it. I am scared that since I

> have had the problem for over 2 years that cancer is all over my

> body. I do not sleep very well, even with prescribed meds. I have 2

> teenage sons that I would like to see as grown men with famlies of

> their own.This is so scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

>

>

>

[Guest guest]

Hi Debbie and welcome! I did not have Pagets, but would agree with

you that THIS is the scariest part of the whole thing. Radiation is

not that bad (just finished my 33 treatments) and although Chemo is

rough, you just get through it. I also had similar feelings about

cancer being " everywhere " ! It's scary - will agree. Best you (we

all) can do with this diagnosis is limit the odds of recurrance - i

think. And pray a lot. Tell me - do they grade you as well as

stage you for this diagnosis? Although I was a stage 1, no lymph

node involvement, her2-nu neg and est pos, I was also a Grade 3

(which means poorly differentiated) so that is why I had to have the

Chemo with the radiation. Best of luck with everything ahead of

you. Hang in there and keep believing!

Ellen

>

> Hi,

> My name is Debbie and I was just diagnosed on July 21st with

breast

> cancer. You ladies are right, the waiting is the hardest part. I

have

> had a sore on my left nipple since the summer of 2004. My family

doc

> thought is was dermatitis. After many creams and no results, I

just

> figured it was something I had to live with. In April of this year

I

> got an e-mail from a friend of mine (you know the kind, warning

you

> of some hidden danger out there)telling a sister's story of

Paget's

> Breast Cancer. It starts with a rash like sore on the nipple.

After

> reading this e-mail I went to my family Dr. Her husband was the

one

> to see me that day and when I told him about the e-mail, he

stormed

> out of the room and said " Damned internet " . Well, that damned

> internet probably saved my life. I then went to a dermatologist

who

> after 5 weeks of creams did a skin punch biopsy, which came back

as

> Paget's. I had a mammogram and MRI at the Clevbeland Clinic Breast

> Center and they cannot find any underlying cancer, but they said

> because of the Paget's they know it is there somewhere. It is

> probably just very small they said.So I had to make the choice,

> remove my nipple and radiation or mastectomy. I have decided to

have

> the lumpectomy and radiation. Although the mammogram and MRI were

> clear, I am scared to death that when they go in there they are

going

> to find cancer everywhere. I am scheduled to have my surgery 9/18,

> the day after my 43rd birthday. Has anyone here had Paget's? I

have

> spent hours and hours reading things on the internet, but it would

> help to talk to someone that has had it. I am scared that since I

> have had the problem for over 2 years that cancer is all over my

> body. I do not sleep very well, even with prescribed meds. I have

2

> teenage sons that I would like to see as grown men with famlies of

> their own.This is so scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

[Guest guest]

I can understand your fear of chemo, it was the only news that really made

me cry. I think it was because it finally made everything real to me. Plus

what we talked about that there still may be cancer after two surgeries and

reconstruction. In the end, the chemo was harsh, but if I have to do it

again, I will. Good luck!

new to this sisterhood

>

> Hi,

> My name is Debbie and I was just diagnosed on July 21st with breast

> cancer. You ladies are right, the waiting is the hardest part. I

have

> had a sore on my left nipple since the summer of 2004. My family doc

> thought is was dermatitis. After many creams and no results, I just

> figured it was something I had to live with. In April of this year I

> got an e-mail from a friend of mine (you know the kind, warning you

> of some hidden danger out there)telling a sister's story of Paget's

> Breast Cancer. It starts with a rash like sore on the nipple. After

> reading this e-mail I went to my family Dr. Her husband was the one

> to see me that day and when I told him about the e-mail, he stormed

> out of the room and said " Damned internet " . Well, that damned

> internet probably saved my life. I then went to a dermatologist who

> after 5 weeks of creams did a skin punch biopsy, which came back as

> Paget's. I had a mammogram and MRI at the Clevbeland Clinic Breast

> Center and they cannot find any underlying cancer, but they said

> because of the Paget's they know it is there somewhere. It is

> probably just very small they said.So I had to make the choice,

> remove my nipple and radiation or mastectomy. I have decided to have

> the lumpectomy and radiation. Although the mammogram and MRI were

> clear, I am scared to death that when they go in there they are

going

> to find cancer everywhere. I am scheduled to have my surgery 9/18,

> the day after my 43rd birthday. Has anyone here had Paget's? I have

> spent hours and hours reading things on the internet, but it would

> help to talk to someone that has had it. I am scared that since I

> have had the problem for over 2 years that cancer is all over my

> body. I do not sleep very well, even with prescribed meds. I have 2

> teenage sons that I would like to see as grown men with famlies of

> their own.This is so scary!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

>

>

>