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Mimi,

Storm (now 6) used to be like that. Slowly he seems to be doing better.

Occasionally he still freaks out over loud noises. ( I think maybe he has

sensitive ears due to all the ear infections) If this is even possible. I hope

this helps you.

Carmen, mom to Storm, 6yrs, RSS, 33lbs. 40.5 "

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Hello - I am new to the message board. My son Logan is 7 months old

and since birth has been very sensitive to loud noises, he startles

very easily (i.e. if I sneeze while holding him he'll cry) and is

easily over stimulated. Is this common with RSS kids? Do they ever

outgrow it?

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Hi,

Welcome to our group.

I only have one child and he has RSS. Just based on my experience

many children without RSS are very sensitive to loud noises and it

often makes them cry.

Some children do have sensory integration problems, in which they need

extra input in some areas but are very sensitive in others. This seems

to be true with RSS kids as well and generally it seems that a higher

percentage of RSS kids have some sensory issues than do other children

without RSS.

But this is just my observation and it would be best to check with

your doctor if you think this maybe a problem.

Also, you might want to contact your local Early Intervention

agency. You might be able to have an occupational therapist or

physical therapist come and evaluate your child for sessory issues.

I hope this helps.

Ken M

:)

> Hello - I am new to the message board. My son Logan is 7 months old

> and since birth has been very sensitive to loud noises, he startles

> very easily (i.e. if I sneeze while holding him he'll cry) and is

> easily over stimulated. Is this common with RSS kids? Do they ever

> outgrow it?

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My daughter too was very sensitive to noises and touch, even before she was

born. Constant loud noise (like music) would send her so high in the womb that

I was sure that if I burped she would be delivered via my esophagus (o.k., I

exaggerate, but she sure was way up there!). And the doctor never could

determine her position, even after I went into labor, because every time he

tried to feel her through my uterine wall she would move away from him. Her

sensitivities continued after she was born. She has had therapy for Sensory

Integration Dysfunction (lots of info on the internet on it) and it has helped

some.

We have some unanswered questions though, and are scheduled for another genetics

evaluation the end of this month, since it has been a *long* time since her last

one. I'll let you know what we find out....

Chris

mom of Charissa (17 yrs., 5 ft 2.5 in., 111 lbs. still, RSS(?), GHD,

graduate of Protropin and Periactin, ADD, immature & late puberty, ???,

and (13 yrs., none of the above :)

wife of Dave

> Subject: RE: Sensory Issues

>

> Hello - I am new to the message board. My son Logan is 7 months old

> and since birth has been very sensitive to loud noises, he startles

> very easily (i.e. if I sneeze while holding him he'll cry) and is

> easily over stimulated. Is this common with RSS kids? Do they ever

> outgrow it?

>

>

.....................................

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HI MIMI,

GRAINNE HAS ALWAYS HAD MANY SENSORY INTEGRATION ISSUES . SHE OFTEN CRYIIES AND

SHAKES JUST AT THE ANTICIPATION OF .... A BAD SMELL , A LOUD NOISE . SHE

RECEIVES OT AND IT REALLY HELPS HER.

REGARDS

MAGGIE

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HI MIMI,

GRAINNE HAS ALWAYS HAD MANY SENSORY INTEGRATION ISSUES . SHE OFTEN CRYIIES AND

SHAKES JUST AT THE ANTICIPATION OF .... A BAD SMELL , A LOUD NOISE . SHE

RECEIVES OT AND IT REALLY HELPS HER.

REGARDS

MAGGIE

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HI MIMI,

GRAINNE HAS ALWAYS HAD MANY SENSORY INTEGRATION ISSUES . SHE OFTEN CRYIIES AND

SHAKES JUST AT THE ANTICIPATION OF .... A BAD SMELL , A LOUD NOISE . SHE

RECEIVES OT AND IT REALLY HELPS HER.

REGARDS

MAGGIE

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HI MIMI,

GRAINNE HAS ALWAYS HAD MANY SENSORY INTEGRATION ISSUES . SHE OFTEN CRYIIES AND

SHAKES JUST AT THE ANTICIPATION OF .... A BAD SMELL , A LOUD NOISE . SHE

RECEIVES OT AND IT REALLY HELPS HER.

REGARDS

MAGGIE

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HI MIMI,

GRAINNE HAS ALWAYS HAD MANY SENSORY INTEGRATION ISSUES . SHE OFTEN CRYIIES AND

SHAKES JUST AT THE ANTICIPATION OF .... A BAD SMELL , A LOUD NOISE . SHE

RECEIVES OT AND IT REALLY HELPS HER.

REGARDS

MAGGIE

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Thank you to all who applied, Logan is my first child and it's hard

to tell what's " normal " since he has the RSS. Ken thank you for the

Early Childhood suggestion Logan is actually being evaluated now to

see what they can do for him I'll ask about sensory evaluation.

Thanks again, Stacey :) My son Logan, RSS with assemetry, reflux.

> HI MIMI,

> GRAINNE HAS ALWAYS HAD MANY SENSORY INTEGRATION ISSUES . SHE

OFTEN CRYIIES AND SHAKES JUST AT THE ANTICIPATION OF .... A BAD

SMELL , A LOUD NOISE . SHE RECEIVES OT AND IT REALLY HELPS HER.

> REGARDS

> MAGGIE

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Thank you to all who applied, Logan is my first child and it's hard

to tell what's " normal " since he has the RSS. Ken thank you for the

Early Childhood suggestion Logan is actually being evaluated now to

see what they can do for him I'll ask about sensory evaluation.

Thanks again, Stacey :) My son Logan, RSS with assemetry, reflux.

> HI MIMI,

> GRAINNE HAS ALWAYS HAD MANY SENSORY INTEGRATION ISSUES . SHE

OFTEN CRYIIES AND SHAKES JUST AT THE ANTICIPATION OF .... A BAD

SMELL , A LOUD NOISE . SHE RECEIVES OT AND IT REALLY HELPS HER.

> REGARDS

> MAGGIE

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Whilst watching my 12 month old (non-RSS)daughter carefully and

painstakingly removing a number of rice crispies from her hand yesterday

(after she had been pushing fistfuls of them into her mouth) it struck me

that there was no way that Greg (3 yrs, RSS) would EVER do that. A single

rice crispie, or any other morsel that would 'stick' to the skin, would

create a minor panic, hand waving about, screaming, tears etc. until someone

removed the offending item. I would never, of course, occur to him to just

pick/flick it off himself.

Up until about 18 months he also 'suffered' from the recently documented

loathing of any skin contact with grass. This was however often very

useful, as during his crawling stage he could be left on a rug on the lawn

without any fear of him wandering off!

Craig.

Dad to Greg, 3 years 3 months, 90.5 cms, current weight escape me at

present, and , 12 mths, chubby and cheerful.

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