Re: Thank you for the warm welcome!

[Guest guest]

Hi, Ellen -

Yes, I had Taxol - 4 doses at 3-week intervals, last

September/October/November. That gave me bad (stay-in-bed-with-painkillers)

bone pains from day 3 to day 6; made me bald (from dose 1's day 24-ish) but

the hair came back a couple of months after the last dose; and gave me

peripheral neuropathy gradually getting worse throughout the treatment and

still not better 8 months on - I have 3 numb toes on each foot and my

fingerprints are dead too.

Neulasta - I had a shot after each dose of Navelbine last

December/January/February/March/April. The first shot gave me a sharp pain

in my lower back, on day 3 only. No more pain from the Neulasta at all.

One week of radiation done - hooray!

Have a great weekend,

Love,

Margery.

============================================

margery@... in North Herts, UK

============================================

> Thank you for the warm welcome!

>

> Hi everyone,

> Thanks to many of you who have welcomed me to this group. I wish I

> had discovered you all earlier. Initially, I did not feel part

> of " any " kind of cancer survivor group - probably a denial thing -

> but have found that going through the process is much easier to deal

> with if you have the support of others, especially those who have

> experienced some or all of what you have. Thanks to those of you who

> commented on the " taste " side effect and I'm glad to know that

> eventually, my tastes will return to normal.

>

> Does anyone have info on Taxol? I did not receive it as part of my

> treatment but I think it's because my Her2nu marker was negative. I

> have met others with lower stages than 3 who did get it. Wanted to

> talk with my Dr. about it, but looking to be more informed (which I'm

> sure many here will have this info). One other question, anyone who

> had Neulasta shots - did you experience bone pain? If so, how long

> after your last shot did that end? I still have quite a bit of bone

> and joint pain and am wondering if this is normal.

>

> Well, we're in for a heat wave here in New England this weekend.

> We'll probably take the kids to the beach (me-under my umbrella, of

> course). With four kids, and a summer filled with radiation

> appointments 5 days a week, we're only doing weekend stuff. I hope

> everyone has a good weekend. Best to all.

>

> Ellen

>

>

>

>

>

>

>

>

[Guest guest]

Hi, Ellen -

Yes, I had Taxol - 4 doses at 3-week intervals, last

September/October/November. That gave me bad (stay-in-bed-with-painkillers)

bone pains from day 3 to day 6; made me bald (from dose 1's day 24-ish) but

the hair came back a couple of months after the last dose; and gave me

peripheral neuropathy gradually getting worse throughout the treatment and

still not better 8 months on - I have 3 numb toes on each foot and my

fingerprints are dead too.

Neulasta - I had a shot after each dose of Navelbine last

December/January/February/March/April. The first shot gave me a sharp pain

in my lower back, on day 3 only. No more pain from the Neulasta at all.

One week of radiation done - hooray!

Have a great weekend,

Love,

Margery.

============================================

margery@... in North Herts, UK

============================================

> Thank you for the warm welcome!

>

> Hi everyone,

> Thanks to many of you who have welcomed me to this group. I wish I

> had discovered you all earlier. Initially, I did not feel part

> of " any " kind of cancer survivor group - probably a denial thing -

> but have found that going through the process is much easier to deal

> with if you have the support of others, especially those who have

> experienced some or all of what you have. Thanks to those of you who

> commented on the " taste " side effect and I'm glad to know that

> eventually, my tastes will return to normal.

>

> Does anyone have info on Taxol? I did not receive it as part of my

> treatment but I think it's because my Her2nu marker was negative. I

> have met others with lower stages than 3 who did get it. Wanted to

> talk with my Dr. about it, but looking to be more informed (which I'm

> sure many here will have this info). One other question, anyone who

> had Neulasta shots - did you experience bone pain? If so, how long

> after your last shot did that end? I still have quite a bit of bone

> and joint pain and am wondering if this is normal.

>

> Well, we're in for a heat wave here in New England this weekend.

> We'll probably take the kids to the beach (me-under my umbrella, of

> course). With four kids, and a summer filled with radiation

> appointments 5 days a week, we're only doing weekend stuff. I hope

> everyone has a good weekend. Best to all.

>

> Ellen

>

>

>

>

>

>

>

>

[Guest guest]

-Hi Margery,

Thanks for all the great information. After hearing about all of

those awful side effects, I'm hoping I don't have to get Taxol.

Yikes! Yes - it feels great to be finished with the first week of

radiation - huh? Congrat's on finishing your first week also.

Have a great weekend!

Ellen

-- In breastcancer2 , " Margery Allcock "

wrote:

>

> Hi, Ellen -

>

> Yes, I had Taxol - 4 doses at 3-week intervals, last

> September/October/November. That gave me bad (stay-in-bed-with-

painkillers)

> bone pains from day 3 to day 6; made me bald (from dose 1's day 24-

ish) but

> the hair came back a couple of months after the last dose; and

gave me

> peripheral neuropathy gradually getting worse throughout the

treatment and

> still not better 8 months on - I have 3 numb toes on each foot and

my

> fingerprints are dead too.

>

> Neulasta - I had a shot after each dose of Navelbine last

> December/January/February/March/April. The first shot gave me a

sharp pain

> in my lower back, on day 3 only. No more pain from the Neulasta

at all.

>

> One week of radiation done - hooray!

>

> Have a great weekend,

> Love,

> Margery.

> ============================================

> margery@... in North Herts, UK

> ============================================

>

>

>

>

> > Thank you for the warm welcome!

> >

> > Hi everyone,

> > Thanks to many of you who have welcomed me to this group. I

wish I

> > had discovered you all earlier. Initially, I did not feel part

> > of " any " kind of cancer survivor group - probably a denial

thing -

> > but have found that going through the process is much easier to

deal

> > with if you have the support of others, especially those who

have

> > experienced some or all of what you have. Thanks to those of

you who

> > commented on the " taste " side effect and I'm glad to know that

> > eventually, my tastes will return to normal.

> >

> > Does anyone have info on Taxol? I did not receive it as part

of my

> > treatment but I think it's because my Her2nu marker was

negative. I

> > have met others with lower stages than 3 who did get it. Wanted

to

> > talk with my Dr. about it, but looking to be more informed

(which I'm

> > sure many here will have this info). One other question, anyone

who

> > had Neulasta shots - did you experience bone pain? If so, how

long

> > after your last shot did that end? I still have quite a bit of

bone

> > and joint pain and am wondering if this is normal.

> >

> > Well, we're in for a heat wave here in New England this

weekend.

> > We'll probably take the kids to the beach (me-under my umbrella,

of

> > course). With four kids, and a summer filled with radiation

> > appointments 5 days a week, we're only doing weekend stuff. I

hope

> > everyone has a good weekend. Best to all.

> >

> > Ellen

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

-Hi Margery,

Thanks for all the great information. After hearing about all of

those awful side effects, I'm hoping I don't have to get Taxol.

Yikes! Yes - it feels great to be finished with the first week of

radiation - huh? Congrat's on finishing your first week also.

Have a great weekend!

Ellen

-- In breastcancer2 , " Margery Allcock "

wrote:

>

> Hi, Ellen -

>

> Yes, I had Taxol - 4 doses at 3-week intervals, last

> September/October/November. That gave me bad (stay-in-bed-with-

painkillers)

> bone pains from day 3 to day 6; made me bald (from dose 1's day 24-

ish) but

> the hair came back a couple of months after the last dose; and

gave me

> peripheral neuropathy gradually getting worse throughout the

treatment and

> still not better 8 months on - I have 3 numb toes on each foot and

my

> fingerprints are dead too.

>

> Neulasta - I had a shot after each dose of Navelbine last

> December/January/February/March/April. The first shot gave me a

sharp pain

> in my lower back, on day 3 only. No more pain from the Neulasta

at all.

>

> One week of radiation done - hooray!

>

> Have a great weekend,

> Love,

> Margery.

> ============================================

> margery@... in North Herts, UK

> ============================================

>

>

>

>

> > Thank you for the warm welcome!

> >

> > Hi everyone,

> > Thanks to many of you who have welcomed me to this group. I

wish I

> > had discovered you all earlier. Initially, I did not feel part

> > of " any " kind of cancer survivor group - probably a denial

thing -

> > but have found that going through the process is much easier to

deal

> > with if you have the support of others, especially those who

have

> > experienced some or all of what you have. Thanks to those of

you who

> > commented on the " taste " side effect and I'm glad to know that

> > eventually, my tastes will return to normal.

> >

> > Does anyone have info on Taxol? I did not receive it as part

of my

> > treatment but I think it's because my Her2nu marker was

negative. I

> > have met others with lower stages than 3 who did get it. Wanted

to

> > talk with my Dr. about it, but looking to be more informed

(which I'm

> > sure many here will have this info). One other question, anyone

who

> > had Neulasta shots - did you experience bone pain? If so, how

long

> > after your last shot did that end? I still have quite a bit of

bone

> > and joint pain and am wondering if this is normal.

> >

> > Well, we're in for a heat wave here in New England this

weekend.

> > We'll probably take the kids to the beach (me-under my umbrella,

of

> > course). With four kids, and a summer filled with radiation

> > appointments 5 days a week, we're only doing weekend stuff. I

hope

> > everyone has a good weekend. Best to all.

> >

> > Ellen

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Ellen,

I didn't have Taxol but I am sure someone will answer your question. In the

meantime you could go to www.webmd.com and type it in the search box.

I didn't have Neulasta either as it wasn't around in 1990 but I have heard the

ladies talk about bone pain. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of breast cancer info and gifts at:

www.cancerclub.com

Thank you for the warm welcome!

Hi everyone,

Thanks to many of you who have welcomed me to this group. I wish I

had discovered you all earlier. Initially, I did not feel part

of " any " kind of cancer survivor group - probably a denial thing -

but have found that going through the process is much easier to deal

with if you have the support of others, especially those who have

experienced some or all of what you have. Thanks to those of you who

commented on the " taste " side effect and I'm glad to know that

eventually, my tastes will return to normal.

Does anyone have info on Taxol? I did not receive it as part of my

treatment but I think it's because my Her2nu marker was negative. I

have met others with lower stages than 3 who did get it. Wanted to

talk with my Dr. about it, but looking to be more informed (which I'm

sure many here will have this info). One other question, anyone who

had Neulasta shots - did you experience bone pain? If so, how long

after your last shot did that end? I still have quite a bit of bone

and joint pain and am wondering if this is normal.

Well, we're in for a heat wave here in New England this weekend.

We'll probably take the kids to the beach (me-under my umbrella, of

course). With four kids, and a summer filled with radiation

appointments 5 days a week, we're only doing weekend stuff. I hope

everyone has a good weekend. Best to all.

Ellen

[Guest guest]

Ellen,

I didn't have Taxol but I am sure someone will answer your question. In the

meantime you could go to www.webmd.com and type it in the search box.

I didn't have Neulasta either as it wasn't around in 1990 but I have heard the

ladies talk about bone pain. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of breast cancer info and gifts at:

www.cancerclub.com

Thank you for the warm welcome!

Hi everyone,

Thanks to many of you who have welcomed me to this group. I wish I

had discovered you all earlier. Initially, I did not feel part

of " any " kind of cancer survivor group - probably a denial thing -

but have found that going through the process is much easier to deal

with if you have the support of others, especially those who have

experienced some or all of what you have. Thanks to those of you who

commented on the " taste " side effect and I'm glad to know that

eventually, my tastes will return to normal.

Does anyone have info on Taxol? I did not receive it as part of my

treatment but I think it's because my Her2nu marker was negative. I

have met others with lower stages than 3 who did get it. Wanted to

talk with my Dr. about it, but looking to be more informed (which I'm

sure many here will have this info). One other question, anyone who

had Neulasta shots - did you experience bone pain? If so, how long

after your last shot did that end? I still have quite a bit of bone

and joint pain and am wondering if this is normal.

Well, we're in for a heat wave here in New England this weekend.

We'll probably take the kids to the beach (me-under my umbrella, of

course). With four kids, and a summer filled with radiation

appointments 5 days a week, we're only doing weekend stuff. I hope

everyone has a good weekend. Best to all.

Ellen

[Guest guest]

Ellen –

I had the Neulasta shot after each chemo treatment and didn’t have any joint

pain. There are a number of women in this group that did though, so I’m

sure you’ll hear from them.

Thank you for the warm welcome!

Hi everyone,

Thanks to many of you who have welcomed me to this group. I wish I

had discovered you all earlier. Initially, I did not feel part

of " any " kind of cancer survivor group - probably a denial thing -

but have found that going through the process is much easier to deal

with if you have the support of others, especially those who have

experienced some or all of what you have. Thanks to those of you who

commented on the " taste " side effect and I'm glad to know that

eventually, my tastes will return to normal.

Does anyone have info on Taxol? I did not receive it as part of my

treatment but I think it's because my Her2nu marker was negative. I

have met others with lower stages than 3 who did get it. Wanted to

talk with my Dr. about it, but looking to be more informed (which I'm

sure many here will have this info). One other question, anyone who

had Neulasta shots - did you experience bone pain? If so, how long

after your last shot did that end? I still have quite a bit of bone

and joint pain and am wondering if this is normal.

Well, we're in for a heat wave here in New England this weekend.

We'll probably take the kids to the beach (me-under my umbrella, of

course). With four kids, and a summer filled with radiation

appointments 5 days a week, we're only doing weekend stuff. I hope

everyone has a good weekend. Best to all.

Ellen

[Guest guest]

Ellen –

I had the Neulasta shot after each chemo treatment and didn’t have any joint

pain. There are a number of women in this group that did though, so I’m

sure you’ll hear from them.

Thank you for the warm welcome!

Hi everyone,

Thanks to many of you who have welcomed me to this group. I wish I

had discovered you all earlier. Initially, I did not feel part

of " any " kind of cancer survivor group - probably a denial thing -

but have found that going through the process is much easier to deal

with if you have the support of others, especially those who have

experienced some or all of what you have. Thanks to those of you who

commented on the " taste " side effect and I'm glad to know that

eventually, my tastes will return to normal.

Does anyone have info on Taxol? I did not receive it as part of my

treatment but I think it's because my Her2nu marker was negative. I

have met others with lower stages than 3 who did get it. Wanted to

talk with my Dr. about it, but looking to be more informed (which I'm

sure many here will have this info). One other question, anyone who

had Neulasta shots - did you experience bone pain? If so, how long

after your last shot did that end? I still have quite a bit of bone

and joint pain and am wondering if this is normal.

Well, we're in for a heat wave here in New England this weekend.

We'll probably take the kids to the beach (me-under my umbrella, of

course). With four kids, and a summer filled with radiation

appointments 5 days a week, we're only doing weekend stuff. I hope

everyone has a good weekend. Best to all.

Ellen

[Guest guest]

Where you from in New England ,Ellen? I live in Vermont.....Had Mastectomy in

January...and now after chemo and 8 times ......4 which were Taxol and i still

have numb fingers and toes.... taking neurontin for it... made my fingernails

nasty.also.. had the neulasta too and no pain...Ginny

Thank you for the warm welcome!

Hi everyone,

Thanks to many of you who have welcomed me to this group. I wish I

had discovered you all earlier. Initially, I did not feel part

of " any " kind of cancer survivor group - probably a denial thing -

but have found that going through the process is much easier to deal

with if you have the support of others, especially those who have

experienced some or all of what you have. Thanks to those of you who

commented on the " taste " side effect and I'm glad to know that

eventually, my tastes will return to normal.

Does anyone have info on Taxol? I did not receive it as part of my

treatment but I think it's because my Her2nu marker was negative. I

have met others with lower stages than 3 who did get it. Wanted to

talk with my Dr. about it, but looking to be more informed (which I'm

sure many here will have this info). One other question, anyone who

had Neulasta shots - did you experience bone pain? If so, how long

after your last shot did that end? I still have quite a bit of bone

and joint pain and am wondering if this is normal.

Well, we're in for a heat wave here in New England this weekend.

We'll probably take the kids to the beach (me-under my umbrella, of

course). With four kids, and a summer filled with radiation

appointments 5 days a week, we're only doing weekend stuff. I hope

everyone has a good weekend. Best to all.

Ellen

[Guest guest]

Where you from in New England ,Ellen? I live in Vermont.....Had Mastectomy in

January...and now after chemo and 8 times ......4 which were Taxol and i still

have numb fingers and toes.... taking neurontin for it... made my fingernails

nasty.also.. had the neulasta too and no pain...Ginny

Thank you for the warm welcome!

Hi everyone,

Thanks to many of you who have welcomed me to this group. I wish I

had discovered you all earlier. Initially, I did not feel part

of " any " kind of cancer survivor group - probably a denial thing -

but have found that going through the process is much easier to deal

with if you have the support of others, especially those who have

experienced some or all of what you have. Thanks to those of you who

commented on the " taste " side effect and I'm glad to know that

eventually, my tastes will return to normal.

Does anyone have info on Taxol? I did not receive it as part of my

treatment but I think it's because my Her2nu marker was negative. I

have met others with lower stages than 3 who did get it. Wanted to

talk with my Dr. about it, but looking to be more informed (which I'm

sure many here will have this info). One other question, anyone who

had Neulasta shots - did you experience bone pain? If so, how long

after your last shot did that end? I still have quite a bit of bone

and joint pain and am wondering if this is normal.

Well, we're in for a heat wave here in New England this weekend.

We'll probably take the kids to the beach (me-under my umbrella, of

course). With four kids, and a summer filled with radiation

appointments 5 days a week, we're only doing weekend stuff. I hope

everyone has a good weekend. Best to all.

Ellen

[Guest guest]

Hi Ginny,

I live about 30 minutes south of Boston. I have heard that the

Taxol has that side effect, numbness of fingers and toes - that must

be incredibly annoying, to say the least. Vermont is beautiful -

especially in the fall..... my husband and I have a bed and breakfast

gift certificate and plan on using it somewhere in Vermont this fall

(I hope) - just have to figure out what to do with the four kiddo's.

Nice to meet you - fellow " New Englander " .

Ellen

>

> Where you from in New England ,Ellen? I live in Vermont.....Had

Mastectomy in January...and now after chemo and 8 times ......4 which

were Taxol and i still have numb fingers and toes.... taking

neurontin for it... made my fingernails nasty.also.. had the neulasta

too and no pain...Ginny

> Thank you for the warm welcome!

>

> Hi everyone,

> Thanks to many of you who have welcomed me to this group. I wish I

> had discovered you all earlier. Initially, I did not feel part

> of " any " kind of cancer survivor group - probably a denial thing -

> but have found that going through the process is much easier to

deal

> with if you have the support of others, especially those who have

> experienced some or all of what you have. Thanks to those of you

who

> commented on the " taste " side effect and I'm glad to know that

> eventually, my tastes will return to normal.

>

> Does anyone have info on Taxol? I did not receive it as part of my

> treatment but I think it's because my Her2nu marker was negative.

I

> have met others with lower stages than 3 who did get it. Wanted to

> talk with my Dr. about it, but looking to be more informed (which

I'm

> sure many here will have this info). One other question, anyone

who

> had Neulasta shots - did you experience bone pain? If so, how long

> after your last shot did that end? I still have quite a bit of

bone

> and joint pain and am wondering if this is normal.

>

> Well, we're in for a heat wave here in New England this weekend.

> We'll probably take the kids to the beach (me-under my umbrella,

of

> course). With four kids, and a summer filled with radiation

> appointments 5 days a week, we're only doing weekend stuff. I hope

> everyone has a good weekend. Best to all.

>

> Ellen

>

>