Re: possible lyme and genital pain story....SHERRI

[Guest guest]

this isnt my personal story,,,,I was just sharing someting I found. I am currently on doxycyline for the lyme. love sarahShopper56@... wrote: Hi : Which antibiotic are you taking? I will probably be starting Vancomycin. Can't get rid of the Strep B and had a culture show E Coli. Glad to hear you have some improvement. Sherri to . He

reviewed my options - > start treatment on antibiotics> etc. So I started antibiotics with Dr. Cameron. Within 3 weeks all > my gynecological symptoms had disappeared. After 3 years of > deterioration! It's like I have a new lease on life. My joints are > getting better too. But I have been exercising a lot, and I don't > know if the improvement there is due to the antibiotics. > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS** > > Our HOME page is http://groups.yahoo.com/group/VulvarDisorders > to search our archives, files, articles, etc. > > ***

[Guest guest]

this isnt my personal story,,,,I was just sharing someting I found. I am currently on doxycyline for the lyme. love sarahShopper56@... wrote: Hi : Which antibiotic are you taking? I will probably be starting Vancomycin. Can't get rid of the Strep B and had a culture show E Coli. Glad to hear you have some improvement. Sherri to . He

reviewed my options - > start treatment on antibiotics> etc. So I started antibiotics with Dr. Cameron. Within 3 weeks all > my gynecological symptoms had disappeared. After 3 years of > deterioration! It's like I have a new lease on life. My joints are > getting better too. But I have been exercising a lot, and I don't > know if the improvement there is due to the antibiotics. > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS** > > Our HOME page is http://groups.yahoo.com/group/VulvarDisorders > to search our archives, files, articles, etc. > > ***

[Guest guest]

Hello,

Im gonna try to be fast. I havnt been on a

couple of weeks and I have tons of mail. I also have

Lyme. I went to a Lyme specialist 2 weeks ago today.

She kept me on amoxicillin (I got from family care dr.

because I couldnt tolerate doxy.)and she added 3

" meds " that I purchased at her office. Liquid Cats

Claw ( cant be just any cats claw I have some info. on

it the dr. gave me) If I get time in the next couple

of days I'll type out everything important i got from

her. B-12 that I stick under my tounge that melts ( It

doesnt tast bad) and Magnesium 160 mg. 4x a day. It

all cost me $77 but I want to tell you with in a week

I went down 60mg. of moriphin yay. Thats been a

blessing. I HATE pain meds. and I was up to 8 a day

and still suffering. now im down to 6 and its ok.

Thats just 1 week. im really optimistic. From the

stuff she gave me it says to stay on this for 8-12

months to get rid of all those little bugers. i have

had a set back though. Ive narrowed it down to the

cats claw. It makes me very nauses. I noticed with in

5 days I had already went through die off. which is

when I felt the effects of the neuro-toxins that the

bacteria gives off when it dies. So im having a

problem currently keeping up the doses I need to be on

due to nausea. Ahhh I'll type it out (the parts I high

lighted) hek here is the paper my Lyme dr. gave me:

Feature Article: Lyme Disease: Nutraceutical

Breakthrough Using TOA-Free Cats Claw

Experimental Group 100% of patients experienced

marked clinical improvment; 85% were seronegative for

Lyme disease at the end of the study. Pentacyclic

Alkaloid Chemotype Uncaria tomentosa, also known as

TOA-Free Cats Claw, is a rare chemotype of a medicinal

plant commonly known as Cats Claw, botanical name

Uncaria tomentosa. Unlike traditional Cats Claw

products, this chemotype does not contain a group of

chemical antagonist called tetacyclic oxindole

alkaloids (TOAs) that act upon the central nervous

system and can greatly inhibit the positive effect of

the pentacyclic oxindole alkaloids (POAs) " Im skipping

aROUND TO THE NEXT HIGH LIGHTED AREA, I cant type out

everything today " ~ How Pentacyclic Alkaloid Chemotype

Uncaria tomentosa May Eliminate the Pathogen: The

latest research on Bb show that it exsist in at least

three different forms: the spirochete, the spheroplast

(also known as L-form), and the cyst. During the

course of infection, Bb can shift among these three

forms, converting from the spirochete form to the

other when presented with an unfavorable environment

(antibiotics, changes in pH of body fluids in chronic

inflammation, ect.), and reverting back to the

spirochete form to grow and reproduce upon being

released from naturally aging and dying infected

cells. It is during the growth period after

re-conversion to the spirochete form, as well as in

adult spirochete form, that Bb is most vulnerable and

susceptible to antibiotics and natural elimination by

the body's immune system. THE SEVERITY OF LYME

Presentation is directly related to the spirochete

load: low loads result in mild or even asymptomatic

infections. With increased spirochete load from

subsequent repeated infections and/or reactivated

dormant infections, the severity of the disease

increases. Higher loads also impair key cells of the

immune system and modify the immune response, thus

making the immune system unable to fight the pathogen.

The negative effects on the immune system increase the

longer the spirochetes are present. To prevail in the

effort to fight Lyme disease, it is necessary to not

only restore the immune system to normal functioning,

but to boost it as well. Even a normal functioning

immune system is unable to attack and eliminate Bb in

all its forms. The results of research on TOA-free

Chemotype Cats Claw demonstrate its powerful immune

system modulating and stimulating properties, along

with pronounced anti inflammatory, antioxidant, and

anti infectious effects. The diverse spectrum of the

biological, activities of TOA-free Chemotype Cats Claw

is due to its biologically active compounds. The

pentacyclic oxindole alkaloids (POAs) contain in this

chemotype are generally accepted as the principal

immunomodulating and immunostimulating agents.POAs are

actively involved in the repAIR OF many elements and

functional mechanisms of both the innate and acquired

immunity damage by Bb and other co-infections,

assisting in restoration of structural and functional

integrity of the immune system , enhancing its ability

to eliminate the pathogens in a natural way. In

addition, this Chemotype contains quinovic acid

glycosides-compounds with strong natural antibiotic

properties (the latest generations of conventional

synthetic antibiotics, " Quinolones " , are based on

quinovic acid glycosides), which further enhance the

medicinal effect of TOA-free Chemotype Cats Claw in

fighting the infection. Considering the life span of

intracellular forms of Bb equivalent to the life span

of the cells invaded by these forms, they are

cinstantly released into the surrounding environment

upon natural cell death and destruction.The release of

intrcellular forms of Bb is gradual over time due to

the various life spans of various invaded cells. Since

about 90% of these forms reside in various cells

(including all blood cells) which have a life span of

2-3 weeks to 6-8 months, it may be assumed that with

in a 6-8 month period, a significant majority of all

intracellular forms of Bb will be released into the

environment where they can be successfully attacked by

properly functioning immune system and a natural

powerful antibiotic. Continous use of TOA-free

Chemotype Cats Claw over a period of time consistent

with the life span of several generations of various

infected cells (8-12 months), would more likely result

in gradual killing and elimintaing of Bb and

co-existing infectious pathogens, with subsequent

reduction of infection loads in the body and

restoration of the persons health. Ok this is all I

can type my carpul tunnel is acting up. This was given

to me with a Article: Break throughs in Lyme Disease.

I also wanted to say last fri. I didnt take any of the

meds. and that night my pain was through the roof. so

it appears at this stage if I dont take it my body

relapses. This Cats Claw is a liquid I put in 5 drops

in a small cup of water raising the drops every three

days. When I go through die off I have to lessen

thecats claw. It seems it would be good for not just

Lyme patients but, anyone who has immune system

problems. I paid $30 for a small bottle. It will last

a couple of months she sais. Since you only use drops

of it. I also had blood work done. im not sure what

but, they said I need to come in. I have an apt. to go

back to the Lyme specialist tues.

:)Tami

--- sarah devore wrote:

> this isnt my personal story,,,,I was just sharing

> someting I found. I am currently on doxycyline for

> the lyme.

> love sarah

>

> Shopper56@... wrote:

> Hi :

>

> Which antibiotic are you taking? I will probably

> be starting Vancomycin. Can't get rid of the Strep

> B and had a culture show E Coli. Glad to hear you

> have some improvement.

>

> Sherri

>

> to . He reviewed my options -

> > start treatment on antibiotics> etc. So I started

> antibiotics with Dr. Cameron. Within 3 weeks all

> > my gynecological symptoms had disappeared. After 3

> years of

> > deterioration! It's like I have a new lease on

> life. My joints are

> > getting better too. But I have been exercising a

> lot, and I don't

> > know if the improvement there is due to the

> antibiotics. >

> >

> >

> >

> >

> > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> POST, THANKS**

> >

> > Our HOME page is

> http://groups.yahoo.com/group/VulvarDisorders

> > to search our archives, files, articles, etc.

> >

> > ***

[Guest guest]

Hey,

I just got tested for lyme today, although my family doc really wasn't at all convinced by my list of symptoms. He said he also wanted to have a more general test to detect inflammation and I said ok. He normally just did the ELISA test but I kept insisting that I wanted the Western Blot too so he called the lab and they said it was ok to go ahead an do both tests at the same time. But, he told me it would be very expensive...

how expensive, just curious?

So, we'll see and then I can stop worrying about this if I don't need to. : )

Re: possible lyme and genital pain story....SHERRI

Hello,Im gonna try to be fast. I havnt been on acouple of weeks and I have tons of mail. I also haveLyme. I went to a Lyme specialist 2 weeks ago today.She kept me on amoxicillin (I got from family care dr.because I couldnt tolerate doxy.)and she added 3"meds" that I purchased at her office. Liquid CatsClaw ( cant be just any cats claw I have some info. onit the dr. gave me) If I get time in the next coupleof days I'll type out everything important i got fromher. B-12 that I stick under my tounge that melts ( Itdoesnt tast bad) and Magnesium 160 mg. 4x a day. Itall cost me $77 but I want to tell you with in a weekI went down 60mg. of moriphin yay. Thats been ablessing. I HATE pain meds. and I was up to 8 a dayand still suffering. now im down to 6 and its ok.Thats just 1 week. im really optimistic. From thestuff she gave me it says to stay on this for 8-12months to get rid of all those little bugers. i havehad a set back though. Ive narrowed it down to thecats claw. It makes me very nauses. I noticed with in5 days I had already went through die off. which iswhen I felt the effects of the neuro-toxins that thebacteria gives off when it dies. So im having aproblem currently keeping up the doses I need to be ondue to nausea. Ahhh I'll type it out (the parts I highlighted) hek here is the paper my Lyme dr. gave me:Feature Article: Lyme Disease: NutraceuticalBreakthrough Using TOA-Free Cats ClawExperimental Group 100% of patients experiencedmarked clinical improvment; 85% were seronegative forLyme disease at the end of the study. PentacyclicAlkaloid Chemotype Uncaria tomentosa, also known asTOA-Free Cats Claw, is a rare chemotype of a medicinalplant commonly known as Cats Claw, botanical nameUncaria tomentosa. Unlike traditional Cats Clawproducts, this chemotype does not contain a group ofchemical antagonist called tetacyclic oxindolealkaloids (TOAs) that act upon the central nervoussystem and can greatly inhibit the positive effect ofthe pentacyclic oxindole alkaloids (POAs) "Im skippingaROUND TO THE NEXT HIGH LIGHTED AREA, I cant type outeverything today" ~ How Pentacyclic Alkaloid ChemotypeUncaria tomentosa May Eliminate the Pathogen: Thelatest research on Bb show that it exsist in at leastthree different forms: the spirochete, the spheroplast(also known as L-form), and the cyst. During thecourse of infection, Bb can shift among these threeforms, converting from the spirochete form to theother when presented with an unfavorable environment(antibiotics, changes in pH of body fluids in chronicinflammation, ect.), and reverting back to thespirochete form to grow and reproduce upon beingreleased from naturally aging and dying infectedcells. It is during the growth period afterre-conversion to the spirochete form, as well as inadult spirochete form, that Bb is most vulnerable andsusceptible to antibiotics and natural elimination bythe body's immune system. THE SEVERITY OF LYMEPresentation is directly related to the spirocheteload: low loads result in mild or even asymptomaticinfections. With increased spirochete load fromsubsequent repeated infections and/or reactivateddormant infections, the severity of the diseaseincreases. Higher loads also impair key cells of theimmune system and modify the immune response, thusmaking the immune system unable to fight the pathogen.The negative effects on the immune system increase thelonger the spirochetes are present. To prevail in theeffort to fight Lyme disease, it is necessary to notonly restore the immune system to normal functioning,but to boost it as well. Even a normal functioningimmune system is unable to attack and eliminate Bb inall its forms. The results of research on TOA-freeChemotype Cats Claw demonstrate its powerful immunesystem modulating and stimulating properties, alongwith pronounced anti inflammatory, antioxidant, andanti infectious effects. The diverse spectrum of thebiological, activities of TOA-free Chemotype Cats Clawis due to its biologically active compounds. Thepentacyclic oxindole alkaloids (POAs) contain in thischemotype are generally accepted as the principalimmunomodulating and immunostimulating agents.POAs areactively involved in the repAIR OF many elements andfunctional mechanisms of both the innate and acquiredimmunity damage by Bb and other co-infections,assisting in restoration of structural and functionalintegrity of the immune system , enhancing its abilityto eliminate the pathogens in a natural way. Inaddition, this Chemotype contains quinovic acidglycosides-compounds with strong natural antibioticproperties (the latest generations of conventionalsynthetic antibiotics, "Quinolones", are based onquinovic acid glycosides), which further enhance themedicinal effect of TOA-free Chemotype Cats Claw infighting the infection. Considering the life span ofintracellular forms of Bb equivalent to the life spanof the cells invaded by these forms, they arecinstantly released into the surrounding environmentupon natural cell death and destruction.The release ofintrcellular forms of Bb is gradual over time due tothe various life spans of various invaded cells. Sinceabout 90% of these forms reside in various cells(including all blood cells) which have a life span of2-3 weeks to 6-8 months, it may be assumed that within a 6-8 month period, a significant majority of allintracellular forms of Bb will be released into theenvironment where they can be successfully attacked byproperly functioning immune system and a naturalpowerful antibiotic. Continous use of TOA-freeChemotype Cats Claw over a period of time consistentwith the life span of several generations of variousinfected cells (8-12 months), would more likely resultin gradual killing and elimintaing of Bb andco-existing infectious pathogens, with subsequentreduction of infection loads in the body andrestoration of the persons health. Ok this is all Ican type my carpul tunnel is acting up. This was givento me with a Article: Break throughs in Lyme Disease.I also wanted to say last fri. I didnt take any of themeds. and that night my pain was through the roof. soit appears at this stage if I dont take it my bodyrelapses. This Cats Claw is a liquid I put in 5 dropsin a small cup of water raising the drops every threedays. When I go through die off I have to lessenthecats claw. It seems it would be good for not justLyme patients but, anyone who has immune systemproblems. I paid $30 for a small bottle. It will lasta couple of months she sais. Since you only use dropsof it. I also had blood work done. im not sure whatbut, they said I need to come in. I have an apt. to goback to the Lyme specialist tues. :)Tami--- sarah devore <sarahvanessa17> wrote:> this isnt my personal story,,,,I was just sharing> someting I found. I am currently on doxycyline for> the lyme.> love sarah> > Shopper56comcast (DOT) net wrote:> Hi :> > Which antibiotic are you taking? I will probably> be starting Vancomycin. Can't get rid of the Strep> B and had a culture show E Coli. Glad to hear you> have some improvement.> > Sherri> > to . He reviewed my options - > > start treatment on antibiotics> etc. So I started> antibiotics with Dr. Cameron. Within 3 weeks all > > my gynecological symptoms had disappeared. After 3> years of > > deterioration! It's like I have a new lease on> life. My joints are > > getting better too. But I have been exercising a> lot, and I don't > > know if the improvement there is due to the> antibiotics. > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL> POST, THANKS** > > > > Our HOME page is> http://groups.yahoo.com/group/VulvarDisorders > > to search our archives, files, articles, etc. > > > > ***

[Guest guest]

He was polite but by the way he left in a hurry I think he was a little offended so I didn't ask him which lab...

Since IGenex is a specialty lab (doing Lyme and related co-infection tests is

the ONLY thing they do) and testing with them requires a special kit, i'd say

that it's pretty clear it's NOT going to them.

If your test results come back negative, you could always consider a second

test with IGenex. They really are the best and most reliable lab in the country

for these serum tests.

Hollis

[Guest guest]

--Did you get your test from Igenex?

> > Hi :

> >

> > Which antibiotic are you taking? I will probably

> > be starting Vancomycin. Can't get rid of the Strep

> > B and had a culture show E Coli. Glad to hear you

> > have some improvement.

> >

> > Sherri

> >

> > to . He reviewed my options -

> > > start treatment on antibiotics> etc. So I started

> > antibiotics with Dr. Cameron. Within 3 weeks all

> > > my gynecological symptoms had disappeared. After 3

> > years of

> > > deterioration! It's like I have a new lease on

> > life. My joints are

> > > getting better too. But I have been exercising a

> > lot, and I don't

> > > know if the improvement there is due to the

> > antibiotics. >

> > >

> > >

> > >

> > >

> > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > POST, THANKS**

> > >

> > > Our HOME page is

> > http://groups.yahoo.com/group/VulvarDisorders

> > > to search our archives, files, articles, etc.

> > >

> > > ***

[Guest guest]

--Did you get your test from Igenex?

> > Hi :

> >

> > Which antibiotic are you taking? I will probably

> > be starting Vancomycin. Can't get rid of the Strep

> > B and had a culture show E Coli. Glad to hear you

> > have some improvement.

> >

> > Sherri

> >

> > to . He reviewed my options -

> > > start treatment on antibiotics> etc. So I started

> > antibiotics with Dr. Cameron. Within 3 weeks all

> > > my gynecological symptoms had disappeared. After 3

> > years of

> > > deterioration! It's like I have a new lease on

> > life. My joints are

> > > getting better too. But I have been exercising a

> > lot, and I don't

> > > know if the improvement there is due to the

> > antibiotics. >

> > >

> > >

> > >

> > >

> > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > POST, THANKS**

> > >

> > > Our HOME page is

> > http://groups.yahoo.com/group/VulvarDisorders

> > > to search our archives, files, articles, etc.

> > >

> > > ***

[Guest guest]

--Did you get your test from Igenex?

> > Hi :

> >

> > Which antibiotic are you taking? I will probably

> > be starting Vancomycin. Can't get rid of the Strep

> > B and had a culture show E Coli. Glad to hear you

> > have some improvement.

> >

> > Sherri

> >

> > to . He reviewed my options -

> > > start treatment on antibiotics> etc. So I started

> > antibiotics with Dr. Cameron. Within 3 weeks all

> > > my gynecological symptoms had disappeared. After 3

> > years of

> > > deterioration! It's like I have a new lease on

> > life. My joints are

> > > getting better too. But I have been exercising a

> > lot, and I don't

> > > know if the improvement there is due to the

> > antibiotics. >

> > >

> > >

> > >

> > >

> > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > POST, THANKS**

> > >

> > > Our HOME page is

> > http://groups.yahoo.com/group/VulvarDisorders

> > > to search our archives, files, articles, etc.

> > >

> > > ***

[Guest guest]

I'm not sure which lab they are using. I think maybe I offended the doc a little because I came in with a written list of my symptoms and kept insisting I get tested for lyme. I got the impression he didn't know a whole lot about the tests. I asked him if the test was the ELISA or Western Blot and he said he didn't know, he'd have to ask the folks at the lab. He called the lab and came back in and said the initial test they usually gave for lyme was the ELISA and then if the ELISA results were positive they ran the Western Blot. I begged him to have both at the same time and told him I'd heard that lots of people with Lyme tested negative with the ELISA and positive with the Western Blot. He asked the lab folks and they said I could go ahead and do both at the same time. He was polite but by the way he left in a hurry I think he was a little offended so I didn't ask him which lab...

Re: possible lyme and genital pain story....SHERRI

--Did you get your test from Igenex?> > Hi :> > > > Which antibiotic are you taking? I will probably> > be starting Vancomycin. Can't get rid of the Strep> > B and had a culture show E Coli. Glad to hear you> > have some improvement.> > > > Sherri> > > > to . He reviewed my options - > > > start treatment on antibiotics> etc. So I started> > antibiotics with Dr. Cameron. Within 3 weeks all > > > my gynecological symptoms had disappeared. After 3> > years of > > > deterioration! It's like I have a new lease on> > life. My joints are > > > getting better too. But I have been exercising a> > lot, and I don't > > > know if the improvement there is due to the> > antibiotics. > > > > > > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL> > POST, THANKS** > > > > > > Our HOME page is> > http://groups.yahoo.com/group/VulvarDisorders > > > to search our archives, files, articles, etc. > > > > > > ***

[Guest guest]

These were the labs I found online that test for lyme:

IGeneX, Inc.797 San RdPalo Alto, CA 94303Tests include: Lyme Disease (Serology [ELISA], Western Blot, Dot-Blot Assay [LDA], Multiplex [tissue, CSF, etc.]); Bartonella henselae PCF (blood, tick); Babesia PCR (blood, tick); Erlichiosis PCR.

LabCorpWest Coast Division (see other divisions)5601 Oberlin Drive, Suite 100San Diego, CA 92121; General lab services; Stricker NK Panel CD-57 for Lyme patients

Medical Diagnostic Laboratories (MDL)133 Gaither Drive, Suite CMt. Laurel NJ 08054Toll Free Western Blot (IgG/IgM) for Lyme; New: PCR for West Nile Virus

HealthCheckUSAOffers home testing for thyroid (see also www.thyroid-info.com), ABO and Rh, Chlamydia antibody, Combination Allergy Panel, Comprehensive Food Allergy, HIV, Hemochromatosis, Herpes Simplex 1 & 2 IgG & IgM, Lupus Diagnostic ANA, and Lyme Disease (Western Blot/Enzyme Immunassay). See their website for more information on what the tests are and how to ordering and submit them.

Are there others?

Re: possible lyme and genital pain story....SHERRI

--Did you get your test from Igenex?> > Hi :> > > > Which antibiotic are you taking? I will probably> > be starting Vancomycin. Can't get rid of the Strep> > B and had a culture show E Coli. Glad to hear you> > have some improvement.> > > > Sherri> > > > to . He reviewed my options - > > > start treatment on antibiotics> etc. So I started> > antibiotics with Dr. Cameron. Within 3 weeks all > > > my gynecological symptoms had disappeared. After 3> > years of > > > deterioration! It's like I have a new lease on> > life. My joints are > > > getting better too. But I have been exercising a> > lot, and I don't > > > know if the improvement there is due to the> > antibiotics. > > > > > > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL> > POST, THANKS** > > > > > > Our HOME page is> > http://groups.yahoo.com/group/VulvarDisorders > > > to search our archives, files, articles, etc. > > > > > > ***

[Guest guest]

The two Wester Blots from Igenex are either $85.00 or $95

each, as I recall. You can submit to your insurance and they may

reimburse at least part of it - especially if you have a PPO.

> > Hi :

> >

> > Which antibiotic are you taking? I will probably

> > be starting Vancomycin. Can't get rid of the Strep

> > B and had a culture show E Coli. Glad to hear you

> > have some improvement.

> >

> > Sherri

> >

> > to . He reviewed my options -

> > > start treatment on antibiotics> etc. So I started

> > antibiotics with Dr. Cameron. Within 3 weeks all

> > > my gynecological symptoms had disappeared. After 3

> > years of

> > > deterioration! It's like I have a new lease on

> > life. My joints are

> > > getting better too. But I have been exercising a

> > lot, and I don't

> > > know if the improvement there is due to the

> > antibiotics. >

> > >

> > >

> > >

> > >

> > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > POST, THANKS**

> > >

> > > Our HOME page is

> > http://groups.yahoo.com/group/VulvarDisorders

> > > to search our archives, files, articles, etc.

> > >

> > > ***

[Guest guest]

I agree with Hollis - doesn't sound like Igenex at all. In fact it

sound an awful lot like Quest Diagnostics, which is a good lab

overall but NOT for Lyme.

I am very proud of you to request the Western Blots and confront the

Dr. with your information even though he was uncomfortable. It's

your health. Congratulations!

Hugs

Molly

>

> In a message dated 9/26/2006 8:48:35 PM Eastern Daylight Time,

> lberry@... writes:

>

>

> > He was polite but by the way he left in a hurry I think he was a

little

> > offended so I didn't ask him which lab...

> >

> >

>

> Since IGenex is a specialty lab (doing Lyme and related co-

infection tests is

> the ONLY thing they do) and testing with them requires a special

kit, i'd say

> that it's pretty clear it's NOT going to them.

>

> If your test results come back negative, you could always consider

a second

> test with IGenex. They really are the best and most reliable lab

in the

> country

> for these serum tests.

>

> Hollis

>

[Guest guest]

hmmm... I don't know. I'm in SC and the closest regional office for Quest Diagnostics is in GA. LabCorp has a regional office in NC... would that be a determining factor?

I probably should have pressed that issue but...

are the other labs really that bad? I'm just wondering...

has anyone been diagnosed positively that you know by one of the other labs...other than Igenex I mean?

Re: possible lyme and genital pain story....SHERRI

I agree with Hollis - doesn't sound like Igenex at all. In fact it sound an awful lot like Quest Diagnostics, which is a good lab overall but NOT for Lyme.I am very proud of you to request the Western Blots and confront the Dr. with your information even though he was uncomfortable. It's your health. Congratulations!HugsMolly>> > > > > He was polite but by the way he left in a hurry I think he was a little > > offended so I didn't ask him which lab... > > > > > > Since IGenex is a specialty lab (doing Lyme and related co-infection tests is> the ONLY thing they do) and testing with them requires a special kit, i'd say> that it's pretty clear it's NOT going to them. > > If your test results come back negative, you could always consider a second> test with IGenex. They really are the best and most reliable lab in the > country> for these serum tests.> > Hollis>

[Guest guest]

So, what do you think of this?

http://www.cdc.gov/mmwr/preview/mmwrhtml/00038469.htm

Notice to Readers Recommendations for Test Performance and Interpretation from the Second National Conference on Serologic Diagnosis of Lyme Disease

The Association of State and Territorial Public Health Laboratory Directors, CDC, the Food and Drug Administration, the National Institutes of Health, the Council of State and Territorial Epidemiologists, and the National Committee for Clinical Laboratory Standards cosponsored the Second National Conference on Serologic Diagnosis of Lyme Disease held October 27-29, 1994. Conference recommendations were grouped into four categories: 1) serologic test performance and interpretation, 2) quality-assurance practices, 3) new test evaluation and clearance, and 4) communication of developments in Lyme disease (LD) testing. This report presents recommendations for serologic test performance and interpretation, which included substantial changes in the recommended tests and their interpretation for the serodiagnosis of LD.

A two-test approach for active disease and for previous infection using a sensitive enzyme immunoassay (EIA) or immunofluorescent assay (IFA) followed by a Western immunoblot was the algorithm of choice. All specimens positive or equivocal by a sensitive EIA or IFA should be tested by a standardized Western immunoblot. Specimens negative by a sensitive EIA or IFA need not be tested further. When Western immunoblot is used during the first 4 weeks of disease onset (early LD), both immuno- globulin M (IgM) and immunoglobulin G (IgG) procedures should be performed. A positive IgM test result alone is not recommended for use in determining active disease in persons with illness greater than 1 month's duration because the likelihood of a false-positive test result for a current infection is high for these persons. If a patient with suspected early LD has a negative serology, serologic evidence of infection is best obtained by testing of paired acute- and convalescent-phase serum samples. Serum samples from persons with disseminated or late-stage LD almost always have a strong IgG response to Borrelia burgdorferi antigens.

It was recommended that an IgM immunoblot be considered positive if two of the following three bands are present: 24 kDa (OspC) * , 39 kDa (BmpA), and 41 kDa (Fla) (1). It was further recommended that an that IgG immunoblot be considered positive if five of the following 10 bands are present: 18 kDa, 21 kDa (OspC) *, 28 kDa, 30 kDa, 39 kDa (BmpA), 41 kDa (Fla), 45 kDa, 58 kDa (not GroEL), 66 kDa, and 93 kDa (2).

The details of both plenary sessions and the work group deliberations are included in the publication of the proceedings, which is available from the Association of State and Territorial Public Health Laboratory Directors; telephone .

References

Engstrom SM, Shoop E, RC. Immunoblot interpretation criteria for serodiagnosis of early Lyme disease. J Clin Microbiol 1995;33:419-22.

Dressler F, Whelan JA, Reinhart BN, Steere AC. Western blotting in the serodiagnosis of Lyme disease. J Infect Dis 1993;167:392-400.

The apparent molecular mass of OspC is dependent on the strain of B. burgdorferi being tested. The 24 kDa and 21 kDa proteins referred to are the same.

[Guest guest]

Hello,

If he refuses to help I'd suggest to find another dr. My Dr.

didnt believe I should be tested either. He said my symptoms matched

300 other diseases. Which is true but, I do have Lyme and found out

3 months ago. I had my first test done through Quest which was

negative. I then pushed for IGenex and was able to get tested their.

IGenex is the best for Lyme. When I called the Michigan Lyme 1-800 #

and I also talked to Lynda my moderator on the Lyme support group

she said IGenex is the best to test for Lyme because they test for

more bands than all the other labs. I'll ask her again because it

was a couple of months ago when she told me why IGenex was the place

to go to be tested for Lyme. Of course my memory is bad. Thank God

im getting treatment because Ive been able to cut back my pain

meds. which is GREAT. Im functioning better after only 2 weeks on

the new meds. So im hopeful that I'll get much better by next summer.

Kind Regards, Tami

> >

> > In a message dated 9/26/2006 8:48:35 PM Eastern Daylight Time,

> > lberry@ writes:

> >

> >

> > > He was polite but by the way he left in a hurry I think he was

a

> little

> > > offended so I didn't ask him which lab...

> > >

> > >

> >

> > Since IGenex is a specialty lab (doing Lyme and related co-

> infection tests is

> > the ONLY thing they do) and testing with them requires a special

> kit, i'd say

> > that it's pretty clear it's NOT going to them.

> >

> > If your test results come back negative, you could always

consider

> a second

> > test with IGenex. They really are the best and most reliable

lab

> in the

> > country

> > for these serum tests.

> >

> > Hollis

> >

>

[Guest guest]

Hello,

Also if you have Medicare they cover all the tests. I had over

$2000 worth of Lyme testing at IGenex and they covered all of it. I

had more than the western blot done. I also had Babesia Wa-1

serology IFA, B. Henselae antibody G/M, HGE panel (granulocytic),

HME panel (monocytic), B. Microti antibody G/M, Babesia WA-1

serology IFA

Kind Regards, Tami

> > > Hi :

> > >

> > > Which antibiotic are you taking? I will probably

> > > be starting Vancomycin. Can't get rid of the Strep

> > > B and had a culture show E Coli. Glad to hear you

> > > have some improvement.

> > >

> > > Sherri

> > >

> > > to . He reviewed my options -

> > > > start treatment on antibiotics> etc. So I started

> > > antibiotics with Dr. Cameron. Within 3 weeks all

> > > > my gynecological symptoms had disappeared. After 3

> > > years of

> > > > deterioration! It's like I have a new lease on

> > > life. My joints are

> > > > getting better too. But I have been exercising a

> > > lot, and I don't

> > > > know if the improvement there is due to the

> > > antibiotics. >

> > > >

> > > >

> > > >

> > > >

> > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > > POST, THANKS**

> > > >

> > > > Our HOME page is

> > > http://groups.yahoo.com/group/VulvarDisorders

> > > > to search our archives, files, articles, etc.

> > > >

> > > > ***

[Guest guest]

Hello,

Also if you have Medicare they cover all the tests. I had over

$2000 worth of Lyme testing at IGenex and they covered all of it. I

had more than the western blot done. I also had Babesia Wa-1

serology IFA, B. Henselae antibody G/M, HGE panel (granulocytic),

HME panel (monocytic), B. Microti antibody G/M, Babesia WA-1

serology IFA

Kind Regards, Tami

> > > Hi :

> > >

> > > Which antibiotic are you taking? I will probably

> > > be starting Vancomycin. Can't get rid of the Strep

> > > B and had a culture show E Coli. Glad to hear you

> > > have some improvement.

> > >

> > > Sherri

> > >

> > > to . He reviewed my options -

> > > > start treatment on antibiotics> etc. So I started

> > > antibiotics with Dr. Cameron. Within 3 weeks all

> > > > my gynecological symptoms had disappeared. After 3

> > > years of

> > > > deterioration! It's like I have a new lease on

> > > life. My joints are

> > > > getting better too. But I have been exercising a

> > > lot, and I don't

> > > > know if the improvement there is due to the

> > > antibiotics. >

> > > >

> > > >

> > > >

> > > >

> > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > > POST, THANKS**

> > > >

> > > > Our HOME page is

> > > http://groups.yahoo.com/group/VulvarDisorders

> > > > to search our archives, files, articles, etc.

> > > >

> > > > ***

[Guest guest]

Hello,

Also if you have Medicare they cover all the tests. I had over

$2000 worth of Lyme testing at IGenex and they covered all of it. I

had more than the western blot done. I also had Babesia Wa-1

serology IFA, B. Henselae antibody G/M, HGE panel (granulocytic),

HME panel (monocytic), B. Microti antibody G/M, Babesia WA-1

serology IFA

Kind Regards, Tami

> > > Hi :

> > >

> > > Which antibiotic are you taking? I will probably

> > > be starting Vancomycin. Can't get rid of the Strep

> > > B and had a culture show E Coli. Glad to hear you

> > > have some improvement.

> > >

> > > Sherri

> > >

> > > to . He reviewed my options -

> > > > start treatment on antibiotics> etc. So I started

> > > antibiotics with Dr. Cameron. Within 3 weeks all

> > > > my gynecological symptoms had disappeared. After 3

> > > years of

> > > > deterioration! It's like I have a new lease on

> > > life. My joints are

> > > > getting better too. But I have been exercising a

> > > lot, and I don't

> > > > know if the improvement there is due to the

> > > antibiotics. >

> > > >

> > > >

> > > >

> > > >

> > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > > POST, THANKS**

> > > >

> > > > Our HOME page is

> > > http://groups.yahoo.com/group/VulvarDisorders

> > > > to search our archives, files, articles, etc.

> > > >

> > > > ***

[Guest guest]

Hello,

I actually talked to Dr at IGenex he's the Owner and

President. He told me I was in active Lyme disease and to go to a

Lyme literate dr. he gave me a list of Lyme literate drs. for my

stae. Maybe he could give you a couple of suggestions as to which

Lyme literate drs. to see in your state. I left him a message and he

called with in a day. Very nice man.

Kind Regards, Tami

> > > Hi :

> > >

> > > Which antibiotic are you taking? I will probably

> > > be starting Vancomycin. Can't get rid of the Strep

> > > B and had a culture show E Coli. Glad to hear you

> > > have some improvement.

> > >

> > > Sherri

> > >

> > > to . He reviewed my options -

> > > > start treatment on antibiotics> etc. So I started

> > > antibiotics with Dr. Cameron. Within 3 weeks all

> > > > my gynecological symptoms had disappeared. After 3

> > > years of

> > > > deterioration! It's like I have a new lease on

> > > life. My joints are

> > > > getting better too. But I have been exercising a

> > > lot, and I don't

> > > > know if the improvement there is due to the

> > > antibiotics. >

> > > >

> > > >

> > > >

> > > >

> > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > > POST, THANKS**

> > > >

> > > > Our HOME page is

> > > http://groups.yahoo.com/group/VulvarDisorders

> > > > to search our archives, files, articles, etc.

> > > >

> > > > ***

[Guest guest]

Hello,

I actually talked to Dr at IGenex he's the Owner and

President. He told me I was in active Lyme disease and to go to a

Lyme literate dr. he gave me a list of Lyme literate drs. for my

stae. Maybe he could give you a couple of suggestions as to which

Lyme literate drs. to see in your state. I left him a message and he

called with in a day. Very nice man.

Kind Regards, Tami

> > > Hi :

> > >

> > > Which antibiotic are you taking? I will probably

> > > be starting Vancomycin. Can't get rid of the Strep

> > > B and had a culture show E Coli. Glad to hear you

> > > have some improvement.

> > >

> > > Sherri

> > >

> > > to . He reviewed my options -

> > > > start treatment on antibiotics> etc. So I started

> > > antibiotics with Dr. Cameron. Within 3 weeks all

> > > > my gynecological symptoms had disappeared. After 3

> > > years of

> > > > deterioration! It's like I have a new lease on

> > > life. My joints are

> > > > getting better too. But I have been exercising a

> > > lot, and I don't

> > > > know if the improvement there is due to the

> > > antibiotics. >

> > > >

> > > >

> > > >

> > > >

> > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > > POST, THANKS**

> > > >

> > > > Our HOME page is

> > > http://groups.yahoo.com/group/VulvarDisorders

> > > > to search our archives, files, articles, etc.

> > > >

> > > > ***

[Guest guest]

Hello,

I actually talked to Dr at IGenex he's the Owner and

President. He told me I was in active Lyme disease and to go to a

Lyme literate dr. he gave me a list of Lyme literate drs. for my

stae. Maybe he could give you a couple of suggestions as to which

Lyme literate drs. to see in your state. I left him a message and he

called with in a day. Very nice man.

Kind Regards, Tami

> > > Hi :

> > >

> > > Which antibiotic are you taking? I will probably

> > > be starting Vancomycin. Can't get rid of the Strep

> > > B and had a culture show E Coli. Glad to hear you

> > > have some improvement.

> > >

> > > Sherri

> > >

> > > to . He reviewed my options -

> > > > start treatment on antibiotics> etc. So I started

> > > antibiotics with Dr. Cameron. Within 3 weeks all

> > > > my gynecological symptoms had disappeared. After 3

> > > years of

> > > > deterioration! It's like I have a new lease on

> > > life. My joints are

> > > > getting better too. But I have been exercising a

> > > lot, and I don't

> > > > know if the improvement there is due to the

> > > antibiotics. >

> > > >

> > > >

> > > >

> > > >

> > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > > POST, THANKS**

> > > >

> > > > Our HOME page is

> > > http://groups.yahoo.com/group/VulvarDisorders

> > > > to search our archives, files, articles, etc.

> > > >

> > > > ***

[Guest guest]

Thanks, I appreciate that. I'll see what these test results say and if they are negative I think I'll do that.

Has anyone just started taking the Cat's Claw on their own.. does it work?

Re: possible lyme and genital pain story....SHERRI

Hello,I actually talked to Dr at IGenex he's the Owner and President. He told me I was in active Lyme disease and to go to a Lyme literate dr. he gave me a list of Lyme literate drs. for my stae. Maybe he could give you a couple of suggestions as to which Lyme literate drs. to see in your state. I left him a message and he called with in a day. Very nice man.Kind Regards, Tami> > > Hi :> > > > > > Which antibiotic are you taking? I will probably> > > be starting Vancomycin. Can't get rid of the Strep> > > B and had a culture show E Coli. Glad to hear you> > > have some improvement.> > > > > > Sherri> > > > > > to . He reviewed my options - > > > > start treatment on antibiotics> etc. So I started> > > antibiotics with Dr. Cameron. Within 3 weeks all > > > > my gynecological symptoms had disappeared. After 3> > > years of > > > > deterioration! It's like I have a new lease on> > > life. My joints are > > > > getting better too. But I have been exercising a> > > lot, and I don't > > > > know if the improvement there is due to the> > > antibiotics. > > > > > > > > > > > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL> > > POST, THANKS** > > > > > > > > Our HOME page is> > > http://groups.yahoo.com/group/VulvarDisorders > > > > to search our archives, files, articles, etc. > > > > > > > > ***

[Guest guest]

Hello,

One more thing lol I dont know which state you live in but

also gave me more drs. to choose from who were Lyme literate.

Dr. gave me 3 and 2 were really far and 1 had a 1 year

waiting list. So actually got me a Lyme dr. 2 miles from home

and I got right in. She is also very knowledgeable about Lyme and

the testing. I cant remember off hand but she did tell me why IGenex

was better then say Quest or any other lab. Im actually waiting to

here from her so I can write it down lol My memory is shot *smile*

Call at the Michigan Lyme Disease Association

1-888-784-LYME

> > > > Hi :

> > > >

> > > > Which antibiotic are you taking? I will probably

> > > > be starting Vancomycin. Can't get rid of the Strep

> > > > B and had a culture show E Coli. Glad to hear you

> > > > have some improvement.

> > > >

> > > > Sherri

> > > >

> > > > to . He reviewed my options -

> > > > > start treatment on antibiotics> etc. So I started

> > > > antibiotics with Dr. Cameron. Within 3 weeks all

> > > > > my gynecological symptoms had disappeared. After 3

> > > > years of

> > > > > deterioration! It's like I have a new lease on

> > > > life. My joints are

> > > > > getting better too. But I have been exercising a

> > > > lot, and I don't

> > > > > know if the improvement there is due to the

> > > > antibiotics. >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> > > > POST, THANKS**

> > > > >

> > > > > Our HOME page is

> > > > http://groups.yahoo.com/group/VulvarDisorders

> > > > > to search our archives, files, articles, etc.

> > > > >

> > > > > ***

[Guest guest]

HI ..

I certainly don't know that much about Lyme as someone who would have it, but I personally thought that last article you sent on how to read those tests from the CDC was excellent and the importance if it's a new infection or an older one.

Thank you again.

Dee~

PS I did see it was dated August 11, 1995, and just wonder if others feel it's still as valid?

----- Original Message ----- From: Berry Home

So, what do you think of this?

http://www.cdc.gov/mmwr/preview/mmwrhtml/00038469.htm

[Guest guest]

I'm in SC...

any you know of in the Southeast?

Re: possible lyme and genital pain story....SHERRI

Hello,One more thing lol I dont know which state you live in but also gave me more drs. to choose from who were Lyme literate. Dr. gave me 3 and 2 were really far and 1 had a 1 year waiting list. So actually got me a Lyme dr. 2 miles from home and I got right in. She is also very knowledgeable about Lyme and the testing. I cant remember off hand but she did tell me why IGenex was better then say Quest or any other lab. Im actually waiting to here from her so I can write it down lol My memory is shot *smile*Call at the Michigan Lyme Disease Association 1-888-784-LYME> > > > Hi :> > > > > > > > Which antibiotic are you taking? I will probably> > > > be starting Vancomycin. Can't get rid of the Strep> > > > B and had a culture show E Coli. Glad to hear you> > > > have some improvement.> > > > > > > > Sherri> > > > > > > > to . He reviewed my options - > > > > > start treatment on antibiotics> etc. So I started> > > > antibiotics with Dr. Cameron. Within 3 weeks all > > > > > my gynecological symptoms had disappeared. After 3> > > > years of > > > > > deterioration! It's like I have a new lease on> > > > life. My joints are > > > > > getting better too. But I have been exercising a> > > > lot, and I don't > > > > > know if the improvement there is due to the> > > > antibiotics. > > > > > > > > > > > > > > > > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL> > > > POST, THANKS** > > > > > > > > > > Our HOME page is> > > > http://groups.yahoo.com/group/VulvarDisorders > > > > > to search our archives, files, articles, etc. > > > > > > > > > > ***