Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 , I have been on MTX in the past for a total of 3 and 1/2 years. I do not have a NS diagnosis at this time. I would take it at night to reduce side effects at bedtime. It is also important to take 1 mg of folic acid a day to cut down on side effects. The first time I was on it it took 6 weeks to take effect. It helped me mostly with pain and fatigue symptoms, not with neuro or iritis ones. I take prednisone for that. I did have stomach discomfort from it and hair loss. It reduced my pain from severe to moderate. I couldn't cut back on the pred when I was on it though. I am thinking of going back on it. I have been off it for a year now. I wish I could take Enbrel or Remicade but the Rheum says no. If you have any more questions feel free to e-mail me. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 , I have been on MTX in the past for a total of 3 and 1/2 years. I do not have a NS diagnosis at this time. I would take it at night to reduce side effects at bedtime. It is also important to take 1 mg of folic acid a day to cut down on side effects. The first time I was on it it took 6 weeks to take effect. It helped me mostly with pain and fatigue symptoms, not with neuro or iritis ones. I take prednisone for that. I did have stomach discomfort from it and hair loss. It reduced my pain from severe to moderate. I couldn't cut back on the pred when I was on it though. I am thinking of going back on it. I have been off it for a year now. I wish I could take Enbrel or Remicade but the Rheum says no. If you have any more questions feel free to e-mail me. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Hi , I am on methotrexate. After I take it I am so tried and want to sleep. I take it Friday night so I can sleep through some of this side effect. I am week all weakened. I do feel better around the middle of the weak. It has helped me. I don't have as much brain fog as I did before and my speech is not as slurred.I also can walk around the house better without looking like a drunk person. I do have days that I feel better and have more energy to do some things. I just hate the way I feel right after I take it. I think this drug has helped me more than the other drugs I have been on. I am on 20 mg. a weak. I was talking 18 and I was not as tried as I am on the 20. How much are you on? I need to cut down on my pred. because of my sugar. So they increased my meth. It seems as soon as I feel better I have to take the med. again and it starts all over. I still would rather have some bad days to get those good days. That is better than I was before because I never really had a good day. Good luck! Love to ya, I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 that is just your bodys PH i used to get that all the time when i was due for my period the Dr said yoru ph changes and that the gold just reacts that way and only real gold does it Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 you need to be taking 2 800mcg of Folic Acid. I was having extremely sore mouth could not chew anything. My teeth hurt so bad that I could not have them touch. Once I learned about the Folic Acid, I haven't had any problems since I started the Folic Acid. Sharon > > > Date: Tue Apr 27, 12:27 AM > To: " neurosarcoidosis " <neurosarcoidosis > > Subject: Methotrexate Question > > Hi, > > I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. > > Thanks > > Hi, I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. Thanks ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 you need to be taking 2 800mcg of Folic Acid. I was having extremely sore mouth could not chew anything. My teeth hurt so bad that I could not have them touch. Once I learned about the Folic Acid, I haven't had any problems since I started the Folic Acid. Sharon > > > Date: Tue Apr 27, 12:27 AM > To: " neurosarcoidosis " <neurosarcoidosis > > Subject: Methotrexate Question > > Hi, > > I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. > > Thanks > > Hi, I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. Thanks ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 I have a Methotrexate question. I have been on it for about a year, and have a terrible time with my fingers turing black from my rings, like my wedding set, which is not cheap. (I remember in middle school having a cheap ring that did that). So has anyone had this problem and if so what to do about it? Other wise I've done well on the drug, I take it Monday night, and then feel tired on monday, a little run down. but the rest of the week is fine. Good luck, I better also say, that I have been overall feeling much better since starting it. I also take Plaquanil. God Bless, Marla Methotrexate Question> > Hi,> > I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well.> > Thanks > > ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 For each 15mg of Methotrexate we're on, we should be on 1mg of Folic Acid. Your MD can write a script for it, and it is super cheap! I think I pay $1.17 for a 30 day supply-- so it's not even worth it for me to use my mail order where I'd pay $6.00 for 90 days. Also if you use a pharmacy script, you're assured that what you're getting is actually 1mg of Folic acid. Over the counter, the rules aren't as strict. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Thanks Kim, but did he say there was anything we could take to balance our ph. Is it to much acid in the system, or not enough. I read that we should be taking extra folate. I take a multiple with 800mcg daily, I wonder if I should be on more?? I guess I should buy cheap rings!lol!! Marla Re: Methotrexate Question that is just your bodys PH i used to get that all the time when i was due for my period the Dr said yoru ph changes and that the gold just reacts that way and only real gold does it Kim~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 , I was started on 10mg of Methotrexate and I didn't really see much improvement until I was given 20mg with that I mainly have had sores in the corner of my mouth and nose but they generally go away after treatment within three or four days. I hope the info helps. So far the only medication I have taken for the disease that has caused me major problems has been the high dose Solu-Medrol even though it sure did make me feel energetic the side effects were two many such as bone loss, easily broken bones, cataracts,cushings syndrome, and lots of weight gain. Take care of yourself and I hope the info helps your friend in Texas, Jeanna > >Reply-To: Neurosarcoidosis >To: "neurosarcoidosis" <neurosarcoidosis > >Subject: Methotrexate Question >Date: Mon, 26 Apr 2004 23:27:43 -0500 > >Hi, > >I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. > >Thanks > Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Marla, The question never came up this was a few years back I wasnt concerned as long as it wasnt harmful. Whether it is to much or not enough Im not sure. Hope it was informative anyway Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Marla, The question never came up this was a few years back I wasnt concerned as long as it wasnt harmful. Whether it is to much or not enough Im not sure. Hope it was informative anyway Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Jeanna, I am wondering are you taking any Folic Acid supplement? Two ladies in the list and myself went to the Sarcoidosis Conference in Indianapolis last fall and they got to talking about Folic Acid. I never knew or was told that with Methotrexate one needs to take Folic Acid along with it. I then asked what milligram and was told they take 2 800mcg Folic Acid pills a day even when the dosage of Methotrexate is one day. When I started this, my sore mouth stopped being sore. It is worth a try. Sharon > > > Date: Wed Apr 28, 4:54 AM > To: Neurosarcoidosis > Subject: RE: Methotrexate Question > > , I was started on 10mg of Methotrexate and I didn't really see much improvement until I was given 20mg with that I mainly have had sores in the corner of my mouth and nose but they generally go away after treatment within three or four days. I hope the info helps. So far the only medication I have taken for the disease that has caused me major problems has been the high dose Solu-Medrol even though it sure did make me feel energetic the side effects were two many such as bone loss, easily broken bones, cataracts,cushings syndrome, and lots of weight gain. Take care of yourself and I hope the info helps your friend in Texas, Jeanna > >Reply-To: Neurosarcoidosis >To: "neurosarcoidosis" <neurosarcoidosis > >Subject: Methotrexate Question >Date: Mon, 26 Apr 2004 23:27:43 -0500 > >Hi, > >I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. > >Thanks > Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Jeanna, I am wondering are you taking any Folic Acid supplement? Two ladies in the list and myself went to the Sarcoidosis Conference in Indianapolis last fall and they got to talking about Folic Acid. I never knew or was told that with Methotrexate one needs to take Folic Acid along with it. I then asked what milligram and was told they take 2 800mcg Folic Acid pills a day even when the dosage of Methotrexate is one day. When I started this, my sore mouth stopped being sore. It is worth a try. Sharon > > > Date: Wed Apr 28, 4:54 AM > To: Neurosarcoidosis > Subject: RE: Methotrexate Question > > , I was started on 10mg of Methotrexate and I didn't really see much improvement until I was given 20mg with that I mainly have had sores in the corner of my mouth and nose but they generally go away after treatment within three or four days. I hope the info helps. So far the only medication I have taken for the disease that has caused me major problems has been the high dose Solu-Medrol even though it sure did make me feel energetic the side effects were two many such as bone loss, easily broken bones, cataracts,cushings syndrome, and lots of weight gain. Take care of yourself and I hope the info helps your friend in Texas, Jeanna > >Reply-To: Neurosarcoidosis >To: "neurosarcoidosis" <neurosarcoidosis > >Subject: Methotrexate Question >Date: Mon, 26 Apr 2004 23:27:43 -0500 > >Hi, > >I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. > >Thanks > Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Jeanna, I am wondering are you taking any Folic Acid supplement? Two ladies in the list and myself went to the Sarcoidosis Conference in Indianapolis last fall and they got to talking about Folic Acid. I never knew or was told that with Methotrexate one needs to take Folic Acid along with it. I then asked what milligram and was told they take 2 800mcg Folic Acid pills a day even when the dosage of Methotrexate is one day. When I started this, my sore mouth stopped being sore. It is worth a try. Sharon > > > Date: Wed Apr 28, 4:54 AM > To: Neurosarcoidosis > Subject: RE: Methotrexate Question > > , I was started on 10mg of Methotrexate and I didn't really see much improvement until I was given 20mg with that I mainly have had sores in the corner of my mouth and nose but they generally go away after treatment within three or four days. I hope the info helps. So far the only medication I have taken for the disease that has caused me major problems has been the high dose Solu-Medrol even though it sure did make me feel energetic the side effects were two many such as bone loss, easily broken bones, cataracts,cushings syndrome, and lots of weight gain. Take care of yourself and I hope the info helps your friend in Texas, Jeanna > >Reply-To: Neurosarcoidosis >To: "neurosarcoidosis" <neurosarcoidosis > >Subject: Methotrexate Question >Date: Mon, 26 Apr 2004 23:27:43 -0500 > >Hi, > >I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. > >Thanks > Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Hi , I am taking 15 mg. I take it on Saturday at 12 noon. On Sunday I am wiped out. I thought it was all in my head. I just have to sleep. There's no getting around it. I wonder why this med has this effect ? I haven't felt any benefit yet. As a matter a fact I feel rather ill. But I believe this is from lack of sleep and not eating properly. No appetite even on 15 mg of predisone. Re: Methotrexate Question Hi , I am on methotrexate. After I take it I am so tried and want to sleep. I take it Friday night so I can sleep through some of this side effect. I am week all weakened. I do feel better around the middle of the weak. It has helped me. I don't have as much brain fog as I did before and my speech is not as slurred.I also can walk around the house better without looking like a drunk person. I do have days that I feel better and have more energy to do some things. I just hate the way I feel right after I take it. I think this drug has helped me more than the other drugs I have been on. I am on 20 mg. a weak. I was talking 18 and I was not as tried as I am on the 20. How much are you on? I need to cut down on my pred. because of my sugar. So they increased my meth. It seems as soon as I feel better I have to take the med. again and it starts all over. I still would rather have some bad days to get those good days. That is better than I was before because I never really had a good day.Good luck!Love to ya, I started taking Methotrexate and I'm interested to know what some of your experiences with it are ? This is only my 2nd week on the med. I initially felt very lethargic and really hot. I also felt like I need to sleep in the beginning of the dosing. My questions are - Have you found it beneficial in reducing NS symptoms and what side effects have you experienced ? I know this is really a chemo drug used for RA as well. Thanks ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 casmar38@... wrote: > Marla, > > The question never came up this was a few years back I wasnt > concerned as long as it wasnt harmful. Whether it is to much or not > enough Im not sure. Hope it was informative anyway > > > Kim > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Hi , I am taking 15 mg. I take it on Saturday at 12 noon. On Sunday I am wiped out. I thought it was all in my head. I just have to sleep. There's no getting around it. I wonder why this med has this effect ? I haven't felt any benefit yet. As a matter a fact I feel rather ill. But I believe this is from lack of sleep and not eating properly. No appetite even on 15 mg of predisone. --- , Tried to take it Friday night. I was taking it Sat. morning at first and I would feel the effects in about a hr. I also would get real dizzy. They said it was ok to back it up to Friday night.Let me know how you are going. Have you been sick in the stomach? Once in a while I get a little sick in the stomach but not bad. Love to ya, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Marla, I take two 800mcg capsules every day. The Methotrexate didn't cause any problems after I started the Folic Acid. Sharon Re: Methotrexate Question that is just your bodys PH i used to get that all the time when i was due for my period the Dr said yoru ph changes and that the gold just reacts that way and only real gold does it Kim~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Marla, I take two 800mcg capsules every day. The Methotrexate didn't cause any problems after I started the Folic Acid. Sharon Re: Methotrexate Question that is just your bodys PH i used to get that all the time when i was due for my period the Dr said yoru ph changes and that the gold just reacts that way and only real gold does it Kim~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Sharon, Thank you for the info. I think I need to increase my folate. Thanks, Marla > *Marla, I take two 800mcg capsules every day.* > ** > *The Methotrexate didn't cause any problems after I started the Folic > Acid.* > ** > *Sharon* > > * Re: Methotrexate Question > > that is just your bodys PH i used to get that all the time > when i was due for my period the Dr said yoru ph changes and > that the gold just reacts that way and only real gold does it > > > Kim > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 You are welcome. Sharon * Re: Methotrexate Question>> that is just your bodys PH i used to get that all the time> when i was due for my period the Dr said yoru ph changes and> that the gold just reacts that way and only real gold does it> > > Kim>>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> Live Group Chat:-> Mondays & Fridays 10pm EST USA> http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 I'm taking the folic acid rx my doctor gave me but I also take a multi-vitamin and B12 complex that have folic acid. Is this too much ? Can you take too much folic acid ? Re: Methotrexate Question For each 15mg of Methotrexate we're on, we should be on 1mg of Folic Acid. Your MD can write a script for it, and it is super cheap! I think I pay $1.17 for a 30 day supply-- so it's not even worth it for me to use my mail order where I'd pay $6.00 for 90 days. Also if you use a pharmacy script, you're assured that what you're getting is actually 1mg of Folic acid. Over the counter, the rules aren't as strict. Tracie ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 I'm taking the folic acid rx my doctor gave me but I also take a multi-vitamin and B12 complex that have folic acid. Is this too much ? Can you take too much folic acid ? Re: Methotrexate Question For each 15mg of Methotrexate we're on, we should be on 1mg of Folic Acid. Your MD can write a script for it, and it is super cheap! I think I pay $1.17 for a 30 day supply-- so it's not even worth it for me to use my mail order where I'd pay $6.00 for 90 days. Also if you use a pharmacy script, you're assured that what you're getting is actually 1mg of Folic acid. Over the counter, the rules aren't as strict. Tracie ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 , Yes I have had a bit of nausea. I also started having a larger number 2's and then a little diarrhea after I stared taking the folic acid. That horrible achy flu feeling is starting to go away I think. Re: Methotrexate Question Hi , I am taking 15 mg. I take it on Saturday at 12 noon. On Sunday I am wiped out. I thought it was all in my head. I just have to sleep. There's no getting around it. I wonder why this med has this effect ? I haven't felt any benefit yet. As a matter a fact I feel rather ill. But I believe this is from lack of sleep and not eating properly. No appetite even on 15 mg of predisone. ---, Tried to take it Friday night. I was taking it Sat. morning at first and I would feel the effects in about a hr. I also would get real dizzy. They said it was ok to back it up to Friday night.Let me know how you are going. Have you been sick in the stomach? Once in a while I get a little sick in the stomach but not bad.Love to ya,~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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