Elaine...cu symptoms

[Guest guest]

Hi Elaine,

I am beginning to think that we have the same " type "

of CU. My theory (for whatever its worth) is this,

histamine is needed in the healing process, especially

with wounds, (yes we do really need some histamine)

when our bodies are fighting off illness or healing

wounds, our histamine is busy doing it's job and we

experience fewer CU symptoms. When all is well with

our bodies, that excess histamine has nothing to do

and it gives us those nasty itchies, hives, etc. Kind

of like children who are bored, so they decide to

drive you crazy for entertainment!!!!!!

I am having a flare-up now and it is making me crazy.

Itching, restless, anxious, skin overly sensitive,

that " tingling feeling " around my mouth, very tired

for no good reason!!!!!

I have taken one extra doxepin (I do have my docs

permission to do this as needed) and more allegra to

try and combat the extra histamine. I find myself

asking " what did I eat lately " " what could have caused

this " but there are no obvious answers....

My ANA was checked about 18 months ago, probably would

not hurt to have a re-check, will ask doctor to do

that at next appt. I have 2-3 symptoms of lupus, but

not usually all at the same time, (canker sores in

mouth, fatigue, CU). I have been checked for tons of

things, all are within normal limits.

Happy New Year!!!

Joan

--- Elaine W wrote:

>

> Hey....more things in common here. I had the flu

> back in 1999 and my

> allergist at that time thought it very unusual that

> during the time I was so

> ill with the flu that my cu symptoms were gone. He

> said he thought it should

> be just the opposite. I am often around my

> grandchildren, colds, viruses,

> bacterial infections....yet I have never caught

> anything from them. Because

> I have such bad sinuses I always feel as if I have a

> head cold, and

> sometimes wheezing and coughing, but it is not

> really a cold. I got this

> symptom after the first yr with cu. It is related to

> the cu because when I

> flare the sinuses are worse. I have had bronchitis a

> few times.

>

> Yes, my symptoms have changed over the past 5 yrs.

> Some for the better, some

> much worse. Fatigue is par for the course with my

> cu. It is somewhat better

> since I began taking a multi-vitamin with iron, but

> I always feel tired.

> Most of the time I cannot shave my legs because they

> are usually covered

> with hives. Can't even scratch my legs or stand to

> have clothing rub them

> when they are flushing. That really hurts. My joint

> pain was so severe a

> couple yrs ago that there were times I couldn't even

> get up to go to the

> bathroom without help, or climb our stairs. I still

> get the joint pain but

> it isn't as bad now.

>

> Do you have your ANA checked regularly? My Dr tests

> me for Lupus every 6

> months...says it can take yrs for the Lupus to show

> up in lab results.

> But even with an elevated ANA they don't call it

> Lupus or RA unless there

> are other symptoms to back up the lab test.

>

> Hugs, Elaine in IN

>

>

>

>

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