Re: A quick note this morning

[Guest guest]

Hang in there Jeanna... I want to write some encouraging words to

you but am finding myself at a loss other than to say that I will

pray for you. My heart goes out to you... Praise God He is with you

each step of the way!

Christy

Your friend from Denton

> Hi to everyone, thought I would get a quick note wrote. I went and

had my MRI yesterday, got there at 11:30am for the MRI with contrast

at 12:00, the MRI department said they hadn't received orders from my

doctor, oh yeah, especially since they didn't let me know till 1pm.

Anyway to make that a short story instead of a long one. The clerk

just left a message on their answering machine so I waited and

waited. Finally, I called the doctors office myself and the fax

didn't go through to the MRI department so no telling how long I

would've waited. Then I finally get back to the MRI, and naturally

they can't get a vein after 6 or eight attempts I am not sure I lost

track so they finally call and see if they can use my port, or course

this after they have already taken me off the MRI table because it is

taking to long to get an IV so I am put back in line after they get

the IV. Anyway to make that a short story instead of a long one,

they access my port put the gad in and I finally get the rest of the

MRI, I left the hospital at 4:30pm. Some day. I got my copies for

the doctor, but my appointment isn't until the 19th so I won't know

anything till then unless it is life threatening and MS isn't life

threatening nor is NS as far as that goes as far as neurosurgeon's

are concerned. I think the only time they called me immediately was

when they found the hydrocephalus and that was life threatening. I

am going to pick up the report today and maybe it will tell me

something. I just want to find out basically about the eye thing. I

hate not being able to drive at all. How is everyone else's day

starting off? I hope things are looking up for everyone at least a

little bit. I asked about the cataracts that I know I already have

from the steroids but they said that is not the problems they are

seeing with my eyes it is nerve problem. I will write more later and

check in on everyone, just thought I would update on how lovely

yesterday went but today is another day, hopefully the MRI will

answer the questions about my eyes I hope so that at least something

will be simple for once without having to go through a lot of other

tests to find out what is wrong. Not that I particularly want MS

just want to know what is wrong and what we can do about it, but I

guess that is what we all want. Take care, Your friend in Texas,

Jeanna

[Guest guest]

Christy, just knowing that someone out there is listening is enough for me. Prayers will go a long way for sure. Sometimes I wish if I was going to be sick it would've waited until I could"ve finished college so maybe I could at least read my xrays. Most of what I know is from working with doctors but unfortunately did not work in the Xray department, just the ER and did not get much hands on with Xrays. I do know I still have the dura thickening I can tell that and there is quite a bit of areas which are highlighted after the gad was put in. I could tell more if I had my old scans but I don't. Hopefully, I can pick up the report later today. I don't know if it will tell me much but maybe it will. I just hate to have to wait till the nineteenth not that it will make that much difference in my treatment. I am already on immunosupressives but maybe they will up them to get some of the inflammation down. I don't know. Your friend in Texas, Jeanna

-- Re: A quick note this morning

Hang in there Jeanna... I want to write some encouraging words to you but am finding myself at a loss other than to say that I will pray for you. My heart goes out to you... Praise God He is with you each step of the way!ChristyYour friend from Denton> Hi to everyone, thought I would get a quick note wrote. I went and had my MRI yesterday, got there at 11:30am for the MRI with contrast at 12:00, the MRI department said they hadn't received orders from my doctor, oh yeah, especially since they didn't let me know till 1pm. Anyway to make that a short story instead of a long one. The clerk just left a message on their answering machine so I waited and waited. Finally, I called the doctors office myself and the fax didn't go through to the MRI department so no telling how long I would've waited. Then I finally get back to the MRI, and naturally they can't get a vein after 6 or eight attempts I am not sure I lost track so they finally call and see if they can use my port, or course this after they have already taken me off the MRI table because it is taking to long to get an IV so I am put back in line after they get the IV. Anyway to make that a short story instead of a long one, they access my port put the gad in and I finally get the rest of the MRI, I left the hospital at 4:30pm. Some day. I got my copies for the doctor, but my appointment isn't until the 19th so I won't know anything till then unless it is life threatening and MS isn't life threatening nor is NS as far as that goes as far as neurosurgeon's are concerned. I think the only time they called me immediately was when they found the hydrocephalus and that was life threatening. I am going to pick up the report today and maybe it will tell me something. I just want to find out basically about the eye thing. I hate not being able to drive at all. How is everyone else's day starting off? I hope things are looking up for everyone at least a little bit. I asked about the cataracts that I know I already have from the steroids but they said that is not the problems they are seeing with my eyes it is nerve problem. I will write more later and check in on everyone, just thought I would update on how lovely yesterday went but today is another day, hopefully the MRI will answer the questions about my eyes I hope so that at least something will be simple for once without having to go through a lot of other tests to find out what is wrong. Not that I particularly want MS just want to know what is wrong and what we can do about it, but I guess that is what we all want. Take care, Your friend in Texas, Jeanna~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Oh, yeah Christy, maybe if we ever get back to functioning half way decent we can meet halfway and have lunch or something. Take care and my prayers are with you always.

-- Re: A quick note this morning

Hang in there Jeanna... I want to write some encouraging words to you but am finding myself at a loss other than to say that I will pray for you. My heart goes out to you... Praise God He is with you each step of the way!ChristyYour friend from Denton> Hi to everyone, thought I would get a quick note wrote. I went and had my MRI yesterday, got there at 11:30am for the MRI with contrast at 12:00, the MRI department said they hadn't received orders from my doctor, oh yeah, especially since they didn't let me know till 1pm. Anyway to make that a short story instead of a long one. The clerk just left a message on their answering machine so I waited and waited. Finally, I called the doctors office myself and the fax didn't go through to the MRI department so no telling how long I would've waited. Then I finally get back to the MRI, and naturally they can't get a vein after 6 or eight attempts I am not sure I lost track so they finally call and see if they can use my port, or course this after they have already taken me off the MRI table because it is taking to long to get an IV so I am put back in line after they get the IV. Anyway to make that a short story instead of a long one, they access my port put the gad in and I finally get the rest of the MRI, I left the hospital at 4:30pm. Some day. I got my copies for the doctor, but my appointment isn't until the 19th so I won't know anything till then unless it is life threatening and MS isn't life threatening nor is NS as far as that goes as far as neurosurgeon's are concerned. I think the only time they called me immediately was when they found the hydrocephalus and that was life threatening. I am going to pick up the report today and maybe it will tell me something. I just want to find out basically about the eye thing. I hate not being able to drive at all. How is everyone else's day starting off? I hope things are looking up for everyone at least a little bit. I asked about the cataracts that I know I already have from the steroids but they said that is not the problems they are seeing with my eyes it is nerve problem. I will write more later and check in on everyone, just thought I would update on how lovely yesterday went but today is another day, hopefully the MRI will answer the questions about my eyes I hope so that at least something will be simple for once without having to go through a lot of other tests to find out what is wrong. Not that I particularly want MS just want to know what is wrong and what we can do about it, but I guess that is what we all want. Take care, Your friend in Texas, Jeanna~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Jeanna,

Sorry about the MRi giving you such a hard time but I will be praying for you and the results hang in the I know its hard its easy to get discouraged.

~Trust in the Lord with all your heart and lean not on your own understanding, in all your ways acknowledge him and he will make your paths straight..............

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan

[Guest guest]

Jan, thanks for the encouraging words, I have wanted several times to call you and talk but somehow I guess your number got erased from the caller id or else I am not sure which one is it. I guess I need to figure out how to get it off the data base if it is on there. I called the MRI dept., they said my report was completed and sent to the doctor at 3pm yesterday but I know he is not back in until the 19th because I have an appointment, and I know unless the hydrocephalus is worse it is not an emergency to him being a neurosurgeon and all but I would like to know something before then so guess I will try and make it over to the hospital today and get the report and hopefully it will tell me something so I can decide what to do about my eyes. I hope that things are going somewhat better with you and I am glad you liked your new doc, I think I read somewhere that things went well with him, if they didn't please disregard my retarded statement. Well it is 7:30am here and guess I should get a shower if I want to make it to the hospital before 9am and all the rush gets out again for lunch. Take care and I will write more later. Your friend in Texas, Jeanna

-- Re: Re: A quick note this morning

Jeanna,

Sorry about the MRi giving you such a hard time but I will be praying for you and the results hang in the I know its hard its easy to get discouraged.

~Trust in the Lord with all your heart and lean not on your own understanding, in all your ways acknowledge him and he will make your paths straight..............

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Would love to do that Jeanna! I am on " Spring Break " next week and

just have a few appointments sprinkled here and there so I could

probably actually meet you in or closer to Plano. My son will be on

a ski trip with the youth group from Saturday night through Thursday

morning. If next week is not good for you then we'll just wait and

keep praying for each other in the meantime.

Take care...

Christy

> > Hi to everyone, thought I would get a quick note wrote. I went

and

> had my MRI yesterday, got there at 11:30am for the MRI with

contrast

> at 12:00, the MRI department said they hadn't received orders from

my

> doctor, oh yeah, especially since they didn't let me know till

1pm.

> Anyway to make that a short story instead of a long one. The clerk

> just left a message on their answering machine so I waited and

> waited. Finally, I called the doctors office myself and the fax

> didn't go through to the MRI department so no telling how long I

> would've waited. Then I finally get back to the MRI, and naturally

> they can't get a vein after 6 or eight attempts I am not sure I

lost

> track so they finally call and see if they can use my port, or

course

> this after they have already taken me off the MRI table because it

is

> taking to long to get an IV so I am put back in line after they get

> the IV. Anyway to make that a short story instead of a long one,

> they access my port put the gad in and I finally get the rest of

the

> MRI, I left the hospital at 4:30pm. Some day. I got my copies for

> the doctor, but my appointment isn't until the 19th so I won't know

> anything till then unless it is life threatening and MS isn't life

> threatening nor is NS as far as that goes as far as neurosurgeon's

> are concerned. I think the only time they called me immediately

was

> when they found the hydrocephalus and that was life threatening. I

> am going to pick up the report today and maybe it will tell me

> something. I just want to find out basically about the eye thing.

I

> hate not being able to drive at all. How is everyone else's day

> starting off? I hope things are looking up for everyone at least a

> little bit. I asked about the cataracts that I know I already have

> from the steroids but they said that is not the problems they are

> seeing with my eyes it is nerve problem. I will write more later

and

> check in on everyone, just thought I would update on how lovely

> yesterday went but today is another day, hopefully the MRI will

> answer the questions about my eyes I hope so that at least

something

> will be simple for once without having to go through a lot of other

> tests to find out what is wrong. Not that I particularly want MS

> just want to know what is wrong and what we can do about it, but I

> guess that is what we all want. Take care, Your friend in Texas,

> Jeanna

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Would love to do that Jeanna! I am on " Spring Break " next week and

just have a few appointments sprinkled here and there so I could

probably actually meet you in or closer to Plano. My son will be on

a ski trip with the youth group from Saturday night through Thursday

morning. If next week is not good for you then we'll just wait and

keep praying for each other in the meantime.

Take care...

Christy

> > Hi to everyone, thought I would get a quick note wrote. I went

and

> had my MRI yesterday, got there at 11:30am for the MRI with

contrast

> at 12:00, the MRI department said they hadn't received orders from

my

> doctor, oh yeah, especially since they didn't let me know till

1pm.

> Anyway to make that a short story instead of a long one. The clerk

> just left a message on their answering machine so I waited and

> waited. Finally, I called the doctors office myself and the fax

> didn't go through to the MRI department so no telling how long I

> would've waited. Then I finally get back to the MRI, and naturally

> they can't get a vein after 6 or eight attempts I am not sure I

lost

> track so they finally call and see if they can use my port, or

course

> this after they have already taken me off the MRI table because it

is

> taking to long to get an IV so I am put back in line after they get

> the IV. Anyway to make that a short story instead of a long one,

> they access my port put the gad in and I finally get the rest of

the

> MRI, I left the hospital at 4:30pm. Some day. I got my copies for

> the doctor, but my appointment isn't until the 19th so I won't know

> anything till then unless it is life threatening and MS isn't life

> threatening nor is NS as far as that goes as far as neurosurgeon's

> are concerned. I think the only time they called me immediately

was

> when they found the hydrocephalus and that was life threatening. I

> am going to pick up the report today and maybe it will tell me

> something. I just want to find out basically about the eye thing.

I

> hate not being able to drive at all. How is everyone else's day

> starting off? I hope things are looking up for everyone at least a

> little bit. I asked about the cataracts that I know I already have

> from the steroids but they said that is not the problems they are

> seeing with my eyes it is nerve problem. I will write more later

and

> check in on everyone, just thought I would update on how lovely

> yesterday went but today is another day, hopefully the MRI will

> answer the questions about my eyes I hope so that at least

something

> will be simple for once without having to go through a lot of other

> tests to find out what is wrong. Not that I particularly want MS

> just want to know what is wrong and what we can do about it, but I

> guess that is what we all want. Take care, Your friend in Texas,

> Jeanna

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Jan,

I am having a rough day emotionally, and reading your kind words here, and the closing touched my heart. I can tell you are a very special person, I wish we lived closer, so we could get to know each other. I wish we all lived closer for support. but you all are exceptional people. and even though I hardly ever post, as my problems these days are so minor to all of yours, I read and pray for you all.

Trust in the Lord with all your heart.... That is how I get through each day!!

Jan you are a gift!

God Bless,

Marla

Re: Re: A quick note this morning

Jeanna,

Sorry about the MRi giving you such a hard time but I will be praying for you and the results hang in the I know its hard its easy to get discouraged.

~Trust in the Lord with all your heart and lean not on your own understanding, in all your ways acknowledge him and he will make your paths straight..............

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Christy, next week would be great with me, I am free most any day except Friday the 19th I am supposed to go back to the neurosurgeon. Let me know. I hope your son has a good time. My husband sure has been wanting to take the kids again and go skiing, he loves it. I think we have decided to go on a cruise though and everyone go including my soon to be son in law after June. My husband and I got a cheap rate on one leaving in December on the 10th if I can hold up that long. I really would like to do something for a change without my health interfering. your friend in Plano, Jeanna

-- Re: A quick note this morning

Would love to do that Jeanna! I am on "Spring Break" next week and just have a few appointments sprinkled here and there so I could probably actually meet you in or closer to Plano. My son will be on a ski trip with the youth group from Saturday night through Thursday morning. If next week is not good for you then we'll just wait and keep praying for each other in the meantime.Take care...Christy> > Hi to everyone, thought I would get a quick note wrote. I went and > had my MRI yesterday, got there at 11:30am for the MRI with contrast > at 12:00, the MRI department said they hadn't received orders from my > doctor, oh yeah, especially since they didn't let me know till 1pm. > Anyway to make that a short story instead of a long one. The clerk > just left a message on their answering machine so I waited and > waited. Finally, I called the doctors office myself and the fax > didn't go through to the MRI department so no telling how long I > would've waited. Then I finally get back to the MRI, and naturally > they can't get a vein after 6 or eight attempts I am not sure I lost > track so they finally call and see if they can use my port, or course > this after they have already taken me off the MRI table because it is > taking to long to get an IV so I am put back in line after they get > the IV. Anyway to make that a short story instead of a long one, > they access my port put the gad in and I finally get the rest of the > MRI, I left the hospital at 4:30pm. Some day. I got my copies for > the doctor, but my appointment isn't until the 19th so I won't know > anything till then unless it is life threatening and MS isn't life > threatening nor is NS as far as that goes as far as neurosurgeon's > are concerned. I think the only time they called me immediately was > when they found the hydrocephalus and that was life threatening. I > am going to pick up the report today and maybe it will tell me > something. I just want to find out basically about the eye thing. I > hate not being able to drive at all. How is everyone else's day > starting off? I hope things are looking up for everyone at least a > little bit. I asked about the cataracts that I know I already have > from the steroids but they said that is not the problems they are > seeing with my eyes it is nerve problem. I will write more later and > check in on everyone, just thought I would update on how lovely > yesterday went but today is another day, hopefully the MRI will > answer the questions about my eyes I hope so that at least something > will be simple for once without having to go through a lot of other > tests to find out what is wrong. Not that I particularly want MS > just want to know what is wrong and what we can do about it, but I > guess that is what we all want. Take care, Your friend in Texas, > Jeanna> > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > Live Group Chat:-> Mondays & Fridays 10pm EST USA> http://www.elderwyn.com/neurosarcoidosis/chat.php> > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >

[Guest guest]

Jeanna,

How does Tuesday (March 16th) sound? Any time of day is fine with

me. Just let me know what time and where to meet you. If you need

to reach me for any reason you can call me at home () or

on my cell phone ().

Looking forward to meeting. Have a blessed weekend!

Christy

> > > Hi to everyone, thought I would get a quick note wrote. I went

> and

> > had my MRI yesterday, got there at 11:30am for the MRI with

> contrast

> > at 12:00, the MRI department said they hadn't received orders

from

> my

> > doctor, oh yeah, especially since they didn't let me know till

> 1pm.

> > Anyway to make that a short story instead of a long one. The

clerk

> > just left a message on their answering machine so I waited and

> > waited. Finally, I called the doctors office myself and the fax

> > didn't go through to the MRI department so no telling how long I

> > would've waited. Then I finally get back to the MRI, and

naturally

> > they can't get a vein after 6 or eight attempts I am not sure I

> lost

> > track so they finally call and see if they can use my port, or

> course

> > this after they have already taken me off the MRI table because

it

> is

> > taking to long to get an IV so I am put back in line after they

get

> > the IV. Anyway to make that a short story instead of a long one,

> > they access my port put the gad in and I finally get the rest of

> the

> > MRI, I left the hospital at 4:30pm. Some day. I got my copies

for

> > the doctor, but my appointment isn't until the 19th so I won't

know

> > anything till then unless it is life threatening and MS isn't

life

> > threatening nor is NS as far as that goes as far as

neurosurgeon's

> > are concerned. I think the only time they called me immediately

> was

> > when they found the hydrocephalus and that was life threatening.

I

> > am going to pick up the report today and maybe it will tell me

> > something. I just want to find out basically about the eye

thing.

> I

> > hate not being able to drive at all. How is everyone else's day

> > starting off? I hope things are looking up for everyone at least

a

> > little bit. I asked about the cataracts that I know I already

have

> > from the steroids but they said that is not the problems they are

> > seeing with my eyes it is nerve problem. I will write more later

> and

> > check in on everyone, just thought I would update on how lovely

> > yesterday went but today is another day, hopefully the MRI will

> > answer the questions about my eyes I hope so that at least

> something

> > will be simple for once without having to go through a lot of

other

> > tests to find out what is wrong. Not that I particularly want MS

> > just want to know what is wrong and what we can do about it, but

I

> > guess that is what we all want. Take care, Your friend in Texas,

> > Jeanna

> >

> >

> >

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Neurosarcoidosis Community

> >

> > Live Group Chat:-

> > Mondays & Fridays 10pm EST USA

> > http://www.elderwyn.com/neurosarcoidosis/chat.php

> >

> > Message Archives:-

> > http://groups.yahoo.com/group/Neurosarcoidosis/messages

> >

> > Members Database:-

> > Listings of locations, phone numbers, and instant messengers.

> > http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

> >

[Guest guest]

Jeanna,

How does Tuesday (March 16th) sound? Any time of day is fine with

me. Just let me know what time and where to meet you. If you need

to reach me for any reason you can call me at home () or

on my cell phone ().

Looking forward to meeting. Have a blessed weekend!

Christy

> > > Hi to everyone, thought I would get a quick note wrote. I went

> and

> > had my MRI yesterday, got there at 11:30am for the MRI with

> contrast

> > at 12:00, the MRI department said they hadn't received orders

from

> my

> > doctor, oh yeah, especially since they didn't let me know till

> 1pm.

> > Anyway to make that a short story instead of a long one. The

clerk

> > just left a message on their answering machine so I waited and

> > waited. Finally, I called the doctors office myself and the fax

> > didn't go through to the MRI department so no telling how long I

> > would've waited. Then I finally get back to the MRI, and

naturally

> > they can't get a vein after 6 or eight attempts I am not sure I

> lost

> > track so they finally call and see if they can use my port, or

> course

> > this after they have already taken me off the MRI table because

it

> is

> > taking to long to get an IV so I am put back in line after they

get

> > the IV. Anyway to make that a short story instead of a long one,

> > they access my port put the gad in and I finally get the rest of

> the

> > MRI, I left the hospital at 4:30pm. Some day. I got my copies

for

> > the doctor, but my appointment isn't until the 19th so I won't

know

> > anything till then unless it is life threatening and MS isn't

life

> > threatening nor is NS as far as that goes as far as

neurosurgeon's

> > are concerned. I think the only time they called me immediately

> was

> > when they found the hydrocephalus and that was life threatening.

I

> > am going to pick up the report today and maybe it will tell me

> > something. I just want to find out basically about the eye

thing.

> I

> > hate not being able to drive at all. How is everyone else's day

> > starting off? I hope things are looking up for everyone at least

a

> > little bit. I asked about the cataracts that I know I already

have

> > from the steroids but they said that is not the problems they are

> > seeing with my eyes it is nerve problem. I will write more later

> and

> > check in on everyone, just thought I would update on how lovely

> > yesterday went but today is another day, hopefully the MRI will

> > answer the questions about my eyes I hope so that at least

> something

> > will be simple for once without having to go through a lot of

other

> > tests to find out what is wrong. Not that I particularly want MS

> > just want to know what is wrong and what we can do about it, but

I

> > guess that is what we all want. Take care, Your friend in Texas,

> > Jeanna

> >

> >

> >

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Neurosarcoidosis Community

> >

> > Live Group Chat:-

> > Mondays & Fridays 10pm EST USA

> > http://www.elderwyn.com/neurosarcoidosis/chat.php

> >

> > Message Archives:-

> > http://groups.yahoo.com/group/Neurosarcoidosis/messages

> >

> > Members Database:-

> > Listings of locations, phone numbers, and instant messengers.

> > http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

> >

[Guest guest]

Greetings friends:

So sorry that I do not particpate everyday, but Jeanna, I just had to

write you today.

As well, I had my determining MRI today. 11:00 AM, contrast at 11:20

and out the door at 11:50 AM for lunch; I saw my doctor at 1:30PM and

he confirmed that yes I have MS and Sarc. I am blessed to have a

great team of doctors...after talking with Aisha and educating myself

and THEM - - -mainly that they work for me and not vice versa; they

started taking me seriously. I document everything and get it all in

writing, yet I am kind and courteous and respectful, that they are

doctors.

All of my care is coordinated through the MS Mellen Center, Cleveland

Clinic, Dr. Francois Bethoux is my Neurologist. Jeanna I don't know

where you are located, but for now Cleveland Clinic is tops for me in

care, coordination and EDUCATION. My sight is slowly returning, too.

I am on Presnisone, Methotrexate, Fosamax, folic acid and my pain

medication of choice, Tylenol.

We all are different, but I say exercise your rights, ask questions

and be informed. I will be praying for you as well as all of my NS

buddies out there, we will all get better.

Love and blessings,

Madonna the MS/Sarc Queen

[Guest guest]

Hi Jeanna!

How well we know all of those type experiences! Hang in there, Honey, and know

we are with you!

Love,

Jeri

[Guest guest]

Marla,

Thank you for your kind reply you too always have the kindest and seems to be be just the thing I need to hear at that moment.

I'm sorry you are having a hard time right now but I'm hear for you if you ever want to talk or just vent you may even e-mail me privately if you wish my e-mail is janbovi@... or if you ever want to call me anytime my phone number is i'm here for you anytime.

These are tough times for us all and we need each other and the strength we can draw from each other and our prayers. You are in my prayers too sweetie.

~~Take time to notice all the usually unnoticed, simple things in life...... Delight in the never-ending hope that's available every day!...............

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan

[Guest guest]

Marla,

Thank you for your kind reply you too always have the kindest and seems to be be just the thing I need to hear at that moment.

I'm sorry you are having a hard time right now but I'm hear for you if you ever want to talk or just vent you may even e-mail me privately if you wish my e-mail is janbovi@... or if you ever want to call me anytime my phone number is i'm here for you anytime.

These are tough times for us all and we need each other and the strength we can draw from each other and our prayers. You are in my prayers too sweetie.

~~Take time to notice all the usually unnoticed, simple things in life...... Delight in the never-ending hope that's available every day!...............

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan

[Guest guest]

Jeanna,

You are going thru so much right now. I can't imagine what it would be like to have to deal with both NS and MS. I hope I never find out.

I know Stinson sent you a note saying to schedule with an ENT to see if there is a nasal polyp or sarc gran in the sinuses effecting your vision. I don't know if you're established with an ENT-- but it wouldn't hurt to call around Monday. That part may be something simple to take care of.

I was telling Stinson that I felt it kind of (sad) funny that we get these reports, start looking for the answers because no one is around to answer our questions-- and by the time we get into the MD that ordered the tests-- we pretty well have researched the hell out of everything-- and end up in trouble with the MD because we come in armed with all our info.

Jeanna, know this-- we are all holding you in our thoughts and prayers, and really want you to find the answers you need so you can get on a path to better health.

Compassionately,

Tracie

[Guest guest]

Madonna, I looked up some of the things on my MRI results as my doctor won't be back until the 19th and I know one thing from neurosurgeons they like to take care of their own stuff. When I looked up under two separate items on my scan both said they could occur with MS. I am not sure if he is looking to change my diagnosis from NS to MS or what. This is the second time something has happened that really threw me a loop. I hope that the doctors can get you on an aggressive therapy and possibly halt some of the damage of the NS/Ms problems that you are having. I am just afraid of it not being MS related to where I could gain the eye defiencies back if it is something else and they are not treating it. I hope you have a great day, with no pain, and lots of fun. Your friend in Texas, Jeanna

-- Re: A quick note this morning

Greetings friends:So sorry that I do not particpate everyday, but Jeanna, I just had to write you today.As well, I had my determining MRI today. 11:00 AM, contrast at 11:20 and out the door at 11:50 AM for lunch; I saw my doctor at 1:30PM and he confirmed that yes I have MS and Sarc. I am blessed to have a great team of doctors...after talking with Aisha and educating myself and THEM - - -mainly that they work for me and not vice versa; they started taking me seriously. I document everything and get it all in writing, yet I am kind and courteous and respectful, that they are doctors.All of my care is coordinated through the MS Mellen Center, Cleveland Clinic, Dr. Francois Bethoux is my Neurologist. Jeanna I don't know where you are located, but for now Cleveland Clinic is tops for me in care, coordination and EDUCATION. My sight is slowly returning, too. I am on Presnisone, Methotrexate, Fosamax, folic acid and my pain medication of choice, Tylenol.We all are different, but I say exercise your rights, ask questions and be informed. I will be praying for you as well as all of my NS buddies out there, we will all get better.Love and blessings,Madonna the MS/Sarc Queen~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hey Jeanna, I don't know why I haven't put my two cents in here.. I have sarc in my sinuses.. and yes my vision goes blurry and even double...I didn't realize it could possibly due to the sarc. I always just that since I've become a steriod induced diabetic, that my sugars would go up, however it doesn't always coincide with meals or no meals.. I have horrible nose bleeds on the right side and I know this is not diabetic related.. I don't have the insurance to see a ent right now, but I get medicare in May, so I hope I can see one ASAP... before I go blind... I had 20/20 vision before all this started and as I write to you know , I can barely see the writing on the screen... I wish you wellness, sweetie and if you are able Please seek out a ENT.. to look into this problem and let me know what he says...

Hugs,

-- Re: Re: A quick note this morning

Jeanna,You are going thru so much right now. I can't imagine what it would be like to have to deal with both NS and MS. I hope I never find out. I know Stinson sent you a note saying to schedule with an ENT to see if there is a nasal polyp or sarc gran in the sinuses effecting your vision. I don't know if you're established with an ENT-- but it wouldn't hurt to call around Monday. That part may be something simple to take care of. I was telling Stinson that I felt it kind of (sad) funny that we get these reports, start looking for the answers because no one is around to answer our questions-- and by the time we get into the MD that ordered the tests-- we pretty well have researched the hell out of everything-- and end up in trouble with the MD because we come in armed with all our info. Jeanna, know this-- we are all holding you in our thoughts and prayers, and really want you to find the answers you need so you can get on a path to better health.Compassionately,Tracie ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hey Jeanna, I don't know why I haven't put my two cents in here.. I have sarc in my sinuses.. and yes my vision goes blurry and even double...I didn't realize it could possibly due to the sarc. I always just that since I've become a steriod induced diabetic, that my sugars would go up, however it doesn't always coincide with meals or no meals.. I have horrible nose bleeds on the right side and I know this is not diabetic related.. I don't have the insurance to see a ent right now, but I get medicare in May, so I hope I can see one ASAP... before I go blind... I had 20/20 vision before all this started and as I write to you know , I can barely see the writing on the screen... I wish you wellness, sweetie and if you are able Please seek out a ENT.. to look into this problem and let me know what he says...

Hugs,

-- Re: Re: A quick note this morning

Jeanna,You are going thru so much right now. I can't imagine what it would be like to have to deal with both NS and MS. I hope I never find out. I know Stinson sent you a note saying to schedule with an ENT to see if there is a nasal polyp or sarc gran in the sinuses effecting your vision. I don't know if you're established with an ENT-- but it wouldn't hurt to call around Monday. That part may be something simple to take care of. I was telling Stinson that I felt it kind of (sad) funny that we get these reports, start looking for the answers because no one is around to answer our questions-- and by the time we get into the MD that ordered the tests-- we pretty well have researched the hell out of everything-- and end up in trouble with the MD because we come in armed with all our info. Jeanna, know this-- we are all holding you in our thoughts and prayers, and really want you to find the answers you need so you can get on a path to better health.Compassionately,Tracie ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

as I write to you know , I can barely see the writing on the scree

,

You keep so much of your battle to yourself. I am so sorry to hear that you're having problems with your vision.

I know you can't do anything right now about it, but use alot of artificial tears to keep your eyes lubed, and try to keep your sugar under close control.

Hugs,

Tracie

[Guest guest]

as I write to you know , I can barely see the writing on the scree

,

You keep so much of your battle to yourself. I am so sorry to hear that you're having problems with your vision.

I know you can't do anything right now about it, but use alot of artificial tears to keep your eyes lubed, and try to keep your sugar under close control.

Hugs,

Tracie

[Guest guest]

Jeanna,

Can't read because of the background print. any ideas?

<image.tiff>

>

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<image.tiff>  IncrediMail - Email has finally evolved - Click Here

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

, I hope this will be better for you, I am having so much difficulty with my vision lately, I should have realized that others would have the vision problems also. I have to have larger print to be really comfortable with what I am reading but usually the picture isn't causing me problems. I will try and remember to put your messages in this print if it is clearer for you. I am hoping that you will continue to get better and that whatever medicine that have you on will have the least side effects. I am always thinking about you and praying for you. I think this last year has been really hard for a lot of us. I am to see the neurosurgeon again on Friday and hopefully he can tell me what is happening with my eyes and the damage that I am getting in my brain tissue as if I had any to lose, ha. Again, take care of yourself and remember I am here to listen and pray for you. Your friend in Texas, Jeanna

-- Re: Re: A quick note this morning

Jeanna,

Can't read because of the background print. any ideas?

<image.tiff>

>

> ____________________________________________________

<image.tiff> IncrediMail - Email has finally evolved - Click Here

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

thanksso much and right back at you. you are in my prayers nightly.

renee

<image.tiff>

>

> ____________________________________________________

<image.tiff>  IncrediMail - Email has finally evolved - Click Here

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

thanksso much and right back at you. you are in my prayers nightly.

renee

<image.tiff>

>

> ____________________________________________________

<image.tiff>  IncrediMail - Email has finally evolved - Click Here

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>