Re: Re: question for those who have been on SCD for a long time

[Guest guest]

>

> How did you arrive at the conclusion that it was KP that was the

> troublemaker?

I can't say I have any clinical evidence to prove it in my case but

I've read quite a bit of Ebringer et al's work about Kp and the theory

seems to hang together. If it isn't Kp it's something similar...or

it's something else entirely that behaves exactly as the theory

speculates :-)

--

Cheers,

DF in MA

UC June '07

SCD Nov '08

[Guest guest]

>

> How did you arrive at the conclusion that it was KP that was the

> troublemaker?

I can't say I have any clinical evidence to prove it in my case but

I've read quite a bit of Ebringer et al's work about Kp and the theory

seems to hang together. If it isn't Kp it's something similar...or

it's something else entirely that behaves exactly as the theory

speculates :-)

--

Cheers,

DF in MA

UC June '07

SCD Nov '08

[Guest guest]

---- Original message ----

>Date: Thu, 30 Apr 2009 14:32:26 -0400

>

>Subject: Re: Re: question for those who have been on SCD for a

long time

>To: BTVC-SCD

>

>On Wed, Apr 29, 2009 at 2:12 PM, smdsmom2008

wrote:

>>

>> How did you arrive at the conclusion that it was KP that was the

>> troublemaker?

>

>I can't say I have any clinical evidence to prove it in my case but

>I've read quite a bit of Ebringer et al's work about Kp and the theory

>seems to hang together. If it isn't Kp it's something similar...or

>it's something else entirely that behaves exactly as the theory

>speculates :-)

Do you have a handy citation for that to share?

Mara

[Guest guest]

---- Original message ----

>Date: Thu, 30 Apr 2009 14:32:26 -0400

>

>Subject: Re: Re: question for those who have been on SCD for a

long time

>To: BTVC-SCD

>

>On Wed, Apr 29, 2009 at 2:12 PM, smdsmom2008

wrote:

>>

>> How did you arrive at the conclusion that it was KP that was the

>> troublemaker?

>

>I can't say I have any clinical evidence to prove it in my case but

>I've read quite a bit of Ebringer et al's work about Kp and the theory

>seems to hang together. If it isn't Kp it's something similar...or

>it's something else entirely that behaves exactly as the theory

>speculates :-)

Do you have a handy citation for that to share?

Mara

[Guest guest]

>

> Do you have a handy citation for that to share?

Handy, no. I have 13 or so highly referenced papers that cover a

whole range of related topics but if you dig through them you can see

how it all ties together.

If you're interested in them contact me off list.

--

Cheers,

DF in MA

UC June '07

SCD Nov '08

[Guest guest]

>

> You should ask Grammy Bauer for AJ's from Arizona email address from her

> Google group. He is a wealth of knowledge about this and has set up his own

> home-brew lab..

It's the scdiet.net group: http://www.scdiet.net/

You can contact me and I can put you in touch with him if you want.

And yeah, he's responsible for everything I know about Ebringer's

reseach and the Kp information.

--

Cheers,

DF in MA

UC June '07

SCD Nov '08

[Guest guest]

>

> You should ask Grammy Bauer for AJ's from Arizona email address from her

> Google group. He is a wealth of knowledge about this and has set up his own

> home-brew lab..

It's the scdiet.net group: http://www.scdiet.net/

You can contact me and I can put you in touch with him if you want.

And yeah, he's responsible for everything I know about Ebringer's

reseach and the Kp information.

--

Cheers,

DF in MA

UC June '07

SCD Nov '08

[Guest guest]

Yes, this was really interesting. Thanks for posting.--

This is absolutely amazing- thank you for this explanation. Keep them coming. Please don't avoid us. I am new here and we all crave answers.

Thanks again.

PJ

> > >

> > > How did you arrive at the conclusion that it was KP that was the

> > > troublemaker?

> >

> > I can't say I have any clinical evidence to prove it in my case but

> > I've read quite a bit of Ebringer et al's work about Kp and the theory

> > seems to hang together. If it isn't Kp it's something similar...or

> > it's something else entirely that behaves exactly as the theory

> > speculates :-)

> >

> > --

> > Cheers,

> > DF in MA

> > UC June '07

> > SCD Nov '08

> >

>

[Guest guest]

At 01:55 PM 5/2/2009, you wrote:

I should apologize in advance. I

hear so many people who hear about the SCD and then complain about it

being too hard-

AJ,

LOL! They should try being SCD in a hurricane-destroyed city when they've

lost around $5000 in home-prepared SCD foods! Man, you would have found

the biological experiments in my freezer and refrigerator after they'd

been sitting in New Orleans summer heat with no power for five weeks to

be... of interest.

I stay SCD even when I travel -- it requires planning, but it can be

done, even with co-workers. In fact, I'm attending a conference in June

which provides all meals. I'll be bringing my own safe food, and my

non-SCD husband will join me at meal-times and eat the food my membership

paid for. ly, I'm getting the better deal... and he's likely to be

really tired for a week from all the unaccustomed carbs.

I can agree with you that the Lutz idea of carb grams goals is a good one

-- I do best when I stay below around 60-70 grams, myself.

>> Unfortunately, I am one of those for which the trace components

don't seem to cause problems, so I will try to shut up about advocating

them. <<

Check -- whereas I am one for whom it IS a problem, so I'm intensely

conscious of it. But there's room for differing comments. I, for

instance, get an awful lot of my calories from healthy fats. Whereas Kim

M has to be extremely careful about her fat consumption, yet we're both

SCD.

<g> I could be envious of your ability to eat trace items with

impunity!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

>

> Someone at the Healing Well forums (

> http://www.healingwell.com/community/default.aspx?f=17 & m=1458626 & p=1 ) often

> posts about Kp. He thinks that even with a healthy gut lining, other sources

> of collagen fragments will still trigger the autoimmune response. What's

> your opinion of this?

I read that thread several days ago and even began composing a

response -- got sidetracked though. You're talking about Keeper,

right?

It's a good question and I certainly don't know enough about it to add

or detract anything from the theory. My hunch is with reduced

Kp-related reactivity the whole autoimmune response will simmer down

and the attack on the collagen will eventually go away. I also don't

know enough about T cells -- specifically how they find their targets

and get to their destination -- to make a call on that either.

I wonder what Keeper suspects is the source of the loose collagen?

For example, if collagen from muscle or tendon ends up floating around

will that cause an attack on gut collagen? I'd guess that it would

have to be the same type as that of the lining of the intestines in

order to perpetuate the autoimmune response. My *hunch* is if/when

the gut becomes less permeable there will be less blood transfer,

therefore less reactivity and the onset of the " gentle " cycle begins

(gentle being the antonym of vicious). Regardless I'd expect this

rogue collagen -- and associated reactivity -- to be temporary.

Again, I don't know enough about it but I'd imagine an autoimmune

response needs some external stimulus to remain active over the long

term.

--

Cheers,

DF in MA

UC June '07

SCD Nov '08