Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 --- Proteus wrote: > Just a note on the TV show, SOUND AND FURY, .... but also > lets you see a deaf person's view on getting a > Cochlear implant, whether I > agree or not is another issue...... > Later, > JD > Try this scenario: Mom and Dad are both in a wheelchair. Little ny falls and breaks his legs. Rather that fix his leg, they celebrate the fact that now, he, too will be in a wheelchair..... Nate- back to being Obnoxious! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 I totally agree with you Nate. I couldn't believe the father would not want to help his own child. JD Re: time slots > > --- Proteus wrote: > > Just a note on the TV show, SOUND AND FURY, .... > but also > > lets you see a deaf person's view on getting a > > Cochlear implant, whether I > > agree or not is another issue...... > > Later, > > JD > > > > > Try this scenario: > > Mom and Dad are both in a wheelchair. Little ny > falls and breaks his legs. Rather that fix his leg, > they celebrate the fact that now, he, too will be in a > wheelchair..... > > Nate- back to being Obnoxious! > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Hi JD and Nate, Well, I wasn't gonna say anything 'cause you guys are entitled to your opinions and it's basically a moot point because you guys aren't born Deaf parents with Deaf kids. It seems maybe with your back-and-forth here you're really searching for someone to give a decent justification for some parents choosing not to have their deaf child implanted with a CI. Even though I see several perspectives and am still open to deepening my understand of all of them, I'll take up the task and give you a few things to consider from what I perceive from the area opposite your own. There are risks involved with the procedure of getting a CI. Ok, well, it's not brain surgery and they aren't messing with the brainstem (nice standards we NF2ers have, eh?), but as with any medical procedure, there are risks--and they unpredictably affect some people more than others. So a basically healthy kid who happens to be deaf has a CI installed... and ends up with all kinds of complications. Hardly my idea of an improvement in quality of life. It's a risk many parents are willing to take and that gives us all the impression that it's a risk all parents should take. If you do some research and show us that there are no instances of complications from surgery, then go ahead and deride parents for not grabbing that " opportunity " for their child to " hear. " Additionally, you guys need to realize there is a whole lot involved with the initial adjustment that has to be made to a CI and the ongoing programming and maintenance that needs to be committed to. It's not a one-shot deal like correcting a broken bone is. CIs aren't a magic fix to deafness: there's a wide range in what people can hear with them... again, unpredictable until it's too late to reverse mental and physical damage done by the implant. Do either of you have an implant? Do you know what it's like to have a mechanical, foreign object in your bodies which wasn't placed there due to a life-threatening ordeal? If you do/have, you're welcome to share your experiences to support your viewpoint. In the meantime, hugs to you... Best, As a footnote: Rather than trying to point out the failings of the minority of parents out there who are opposed to CIs for their deaf children, wouldn't it make a whole lot more sense to advocate and follow with action to ensure a society that is more accessible to individuals with hearing impairments? Those CIs can't help the majority of the folks with profound hearing losses, but more wide-ranging speech-to-text kinds of things and captioning, etc, etc sure would open up a lot of opportunities that CIs are assumed to. Jeff Daharsh wrote: > I totally agree with you Nate. I couldn't believe the father would not want > to help his own child. JD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Yeah, it's a shocking position to have. " ER " touched on this a couple of years ago, with Dr. Benton's deaf son. When they were looking into implants, he was chastised by a deaf doctor for that reasoning. Ah, well... CIs aren't NF2-related, so I better ignore the subject. Obnoxious Nate --- Jeff Daharsh wrote: > I totally agree with you Nate. I couldn't believe > the father would not want > to help his own child. JD > > Re: time slots > > > > > > --- Proteus wrote: > > > Just a note on the TV show, SOUND AND FURY, .... > > but also > > > lets you see a deaf person's view on getting a > > > Cochlear implant, whether I > > > agree or not is another issue...... > > > Later, > > > JD > > > > > > > > > Try this scenario: > > > > Mom and Dad are both in a wheelchair. Little > ny > > falls and breaks his legs. Rather that fix his > leg, > > they celebrate the fact that now, he, too will be > in a > > wheelchair..... > > > > Nate- back to being Obnoxious! > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 I think besides the more physical risks that brought up, there is also the feeling in the Deaf Community that Deafness isn't something that needs to be " fixed. " Sort of Akin to a Homosexual being offered an operation to make them straight. Some deaf people don't see deafness as a disability but just the way they are. Pete Re: time slots Yeah, it's a shocking position to have. " ER " touched on this a couple of years ago, with Dr. Benton's deaf son. When they were looking into implants, he was chastised by a deaf doctor for that reasoning. Ah, well... CIs aren't NF2-related, so I better ignore the subject. Obnoxious Nate --- Jeff Daharsh wrote: > I totally agree with you Nate. I couldn't believe > the father would not want > to help his own child. JD > > Re: time slots > > > > > > --- Proteus wrote: > > > Just a note on the TV show, SOUND AND FURY, .... > > but also > > > lets you see a deaf person's view on getting a > > > Cochlear implant, whether I > > > agree or not is another issue...... > > > Later, > > > JD > > > > > > > > > Try this scenario: > > > > Mom and Dad are both in a wheelchair. Little > ny > > falls and breaks his legs. Rather that fix his > leg, > > they celebrate the fact that now, he, too will be > in a > > wheelchair..... > > > > Nate- back to being Obnoxious! > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Marie, I'm fully deaf but my son is a hearing 10 year old boy. I went deaf when he was 3 (that time communication was tough). Now, he's pretty much fluent in sign language, I can lip read him almost 100% and I know his personality (if he looks guilty there's something going on with his radio/T.V.). Our communication is A-ok. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Thats it is`nt it. Each to there own. I have a large lump to be removed sometime(maybe never)and was offered implants, but it`s not something I would have. I`m glad that my son is old enough to make his own decisions regarding his treatment because it would be soooo very very hard to decide for him. What seems logical and right to some people is not at all right for others. in New Zealand. >From: " L. Przybysz" >Reply-To: NF2_Crew >To: NF2_Crew >Subject: Re: time slots >Date: Fri, 11 Jan 2002 02:56:59 -0500 > >Hi JD and Nate, Well, I wasn't gonna say anything 'cause you guys are entitled >to your opinions and it's basically a moot point because you guys aren't born >Deaf parents with Deaf kids. It seems maybe with your back-and-forth here >you're really searching for someone to give a decent justification for some >parents choosing not to have their deaf child implanted with a CI. Even though >I see several perspectives and am still open to deepening my understand of all >of them, I'll take up the task and give you a few things to consider from what >I perceive from the area opposite your own. > >There are risks involved with the procedure of getting a CI. Ok, well, it's >not brain surgery and they aren't messing with the brainstem (nice standards we >NF2ers have, eh?), but as with any medical procedure, there are risks--and they >unpredictably affect some people more than others. So a basically healthy kid >who happens to be deaf has a CI installed... and ends up with all kinds of >complications. Hardly my idea of an improvement in quality of life. It's a >risk many parents are willing to take and that gives us all the impression that >it's a risk all parents should take. If you do some research and show us that >there are no instances of complications from surgery, then go ahead and deride >parents for not grabbing that "opportunity" for their child to "hear." >Additionally, you guys need to realize there is a whole lot involved with the >initial adjustment that has to be made to a CI and the ongoing programming and >maintenance that needs to be committed to. It's not a one-shot deal like >correcting a broken bone is. CIs aren't a magic fix to deafness: there's a >wide range in what people can hear with them... again, unpredictable until it's >too late to reverse mental and physical damage done by the implant. Do either >of you have an implant? Do you know what it's like to have a mechanical, >foreign object in your bodies which wasn't placed there due to a >life-threatening ordeal? If you do/have, you're welcome to share your >experiences to support your viewpoint. In the meantime, hugs to >you... Best, > >As a footnote: Rather than trying to point out the failings of the minority of >parents out there who are opposed to CIs for their deaf children, wouldn't it >make a whole lot more sense to advocate and follow with action to ensure a >society that is more accessible to individuals with hearing impairments? Those >CIs can't help the majority of the folks with profound hearing losses, but more >wide-ranging speech-to-text kinds of things and captioning, etc, etc sure would >open up a lot of opportunities that CIs are assumed to. > > > >Jeff Daharsh wrote: > > > I totally agree with you Nate. I couldn't believe the father would not want > > to help his own child. JD > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 You are so right . Hats off to the Moms and Dads here that have to deal with that. I cannot imagine a worse hell then watching your child suffer:(~~Lowi who has 2 young boys that arent tested yet:( because im chicken:( Re: time slots >Date: Fri, 11 Jan 2002 02:56:59 -0500 > >Hi JD and Nate, Well, I wasn't gonna say anything 'cause you guys are entitled >to your opinions and it's basically a moot point because you guys aren't born >Deaf parents with Deaf kids. It seems maybe with your back-and-forth here >you're really searching for someone to give a decent justification for some >parents choosing not to have their deaf child implanted with a CI. Even though >I see several perspectives and am still open to deepening my understand of all >of them, I'll take up the task and give you a few things to consider from what >I perceive from the area opposite your own. > >There are risks involved with the procedure of getting a CI. Ok, well, it's >not brain surgery and they aren't messing with the brainstem (nice standards we >NF2ers have, eh?), but as with any medical procedure, there are risks--and they >unpredictably affect some people more than others. So a basically healthy kid >who happens to be deaf has a CI installed... and ends up with all kinds of >complications. Hardly my idea of an improvement in quality of life. It's a >risk many parents are willing to take and that gives us all the impression that >it's a risk all parents should take. If you do some research and show us that >there are no instances of complications from surgery, then go ahead and deride >parents for not grabbing that "opportunity" for their child to "hear." >Additionally, you guys need to realize there is a whole lot involved with the >initial adjustment that has to be made to a CI and the ongoing programming and >maintenance that needs to be committed to. It's not a one-shot deal like >correcting a broken bone is. CIs aren't a magic fix to deafness: there's a >wide range in what people can hear with them... again, unpredictable until it's >too late to reverse mental and physical damage done by the implant. Do either >of you have an implant? Do you know what it's like to have a mechanical, >foreign object in your bodies which wasn't placed there due to a >life-threatening ordeal? If you do/have, you're welcome to share your >experiences to support your viewpoint. In the meantime, hugs to >you... Best, > >As a footnote: Rather than trying to point out the failings of the minority of >parents out there who are opposed to CIs for their deaf children, wouldn't it >make a whole lot more sense to advocate and follow with action to ensure a >society that is more accessible to individuals with hearing impairments? Those >CIs can't help the majority of the folks with profound hearing losses, but more >wide-ranging speech-to-text kinds of things and captioning, etc, etc sure would >open up a lot of opportunities that CIs are assumed to. > > > >Jeff Daharsh wrote: > > > I totally agree with you Nate. I couldn't believe the father would not want > > to help his own child. JD > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Well as someone who only has one four year old grand child who lives far away and I only see about twice a year; I did have her for 3 weeks last year, and she can't spell and I can't hear, and she is not around me enough to learn sign. So we got by, but you folks who are deaf and raise hearing children have my admiration! Just trying to cope with the computer games--with audiio instructions; the toys--that make sounds--talk about frustrating! My hats off to you! Marie Re: time slots You are so right . Hats off to the Moms and Dads here that have to deal with that. I cannot imagine a worse hell then watching your child suffer:(~~Lowi who has 2 young boys that arent tested yet:( because im chicken:( Re: time slots >Date: Fri, 11 Jan 2002 02:56:59 -0500 > >Hi JD and Nate, Well, I wasn't gonna say anything 'cause you guys are entitled >to your opinions and it's basically a moot point because you guys aren't born >Deaf parents with Deaf kids. It seems maybe with your back-and-forth here >you're really searching for someone to give a decent justification for some >parents choosing not to have their deaf child implanted with a CI. Even though >I see several perspectives and am still open to deepening my understand of all >of them, I'll take up the task and give you a few things to consider from what >I perceive from the area opposite your own. > >There are risks involved with the procedure of getting a CI. Ok, well, it's >not brain surgery and they aren't messing with the brainstem (nice standards we >NF2ers have, eh?), but as with any medical procedure, there are risks--and they >unpredictably affect some people more than others. So a basically healthy kid >who happens to be deaf has a CI installed... and ends up with all kinds of >complications. Hardly my idea of an improvement in quality of life. It's a >risk many parents are willing to take and that gives us all the impression that >it's a risk all parents should take. If you do some research and show us that >there are no instances of complications from surgery, then go ahead and deride >parents for not grabbing that "opportunity" for their child to "hear." >Additionally, you guys need to realize there is a whole lot involved with the >initial adjustment that has to be made to a CI and the ongoing programming and >maintenance that needs to be committed to. It's not a one-shot deal like >correcting a broken bone is. CIs aren't a magic fix to deafness: there's a >wide range in what people can hear with them... again, unpredictable until it's >too late to reverse mental and physical damage done by the implant. Do either >of you have an implant? Do you know what it's like to have a mechanical, >foreign object in your bodies which wasn't placed there due to a >life-threatening ordeal? If you do/have, you're welcome to share your >experiences to support your viewpoint. In the meantime, hugs to >you... Best, > >As a footnote: Rather than trying to point out the failings of the minority of >parents out there who are opposed to CIs for their deaf children, wouldn't it >make a whole lot more sense to advocate and follow with action to ensure a >society that is more accessible to individuals with hearing impairments? Those >CIs can't help the majority of the folks with profound hearing losses, but more >wide-ranging speech-to-text kinds of things and captioning, etc, etc sure would >open up a lot of opportunities that CIs are assumed to. > > > >Jeff Daharsh wrote: > > > I totally agree with you Nate. I couldn't believe the father would not want > > to help his own child. JD > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Hi I know you are RIGHT on that one and I for one am just so glad that my son will be calling all the shots this time around concerning his care ... A MOM Re: time slots >Date: Fri, 11 Jan 2002 02:56:59 -0500 > >Hi JD and Nate, Well, I wasn't gonna say anything 'cause you guys are entitled >to your opinions and it's basically a moot point because you guys aren't born >Deaf parents with Deaf kids. It seems maybe with your back-and-forth here >you're really searching for someone to give a decent justification for some >parents choosing not to have their deaf child implanted with a CI. Even though >I see several perspectives and am still open to deepening my understand of all >of them, I'll take up the task and give you a few things to consider from what >I perceive from the area opposite your own. > >There are risks involved with the procedure of getting a CI. Ok, well, it's >not brain surgery and they aren't messing with the brainstem (nice standards we >NF2ers have, eh?), but as with any medical procedure, there are risks--and they >unpredictably affect some people more than others. So a basically healthy kid >who happens to be deaf has a CI installed... and ends up with all kinds of >complications. Hardly my idea of an improvement in quality of life. It's a >risk many parents are willing to take and that gives us all the impression that >it's a risk all parents should take. If you do some research and show us that >there are no instances of complications from surgery, then go ahead and deride >parents for not grabbing that "opportunity" for their child to "hear." >Additionally, you guys need to realize there is a whole lot involved with the >initial adjustment that has to be made to a CI and the ongoing programming and >maintenance that needs to be committed to. It's not a one-shot deal like >correcting a broken bone is. CIs aren't a magic fix to deafness: there's a >wide range in what people can hear with them... again, unpredictable until it's >too late to reverse mental and physical damage done by the implant. Do either >of you have an implant? Do you know what it's like to have a mechanical, >foreign object in your bodies which wasn't placed there due to a >life-threatening ordeal? If you do/have, you're welcome to share your >experiences to support your viewpoint. In the meantime, hugs to >you... Best, > >As a footnote: Rather than trying to point out the failings of the minority of >parents out there who are opposed to CIs for their deaf children, wouldn't it >make a whole lot more sense to advocate and follow with action to ensure a >society that is more accessible to individuals with hearing impairments? Those >CIs can't help the majority of the folks with profound hearing losses, but more >wide-ranging speech-to-text kinds of things and captioning, etc, etc sure would >open up a lot of opportunities that CIs are assumed to. > > > >Jeff Daharsh wrote: > > > I totally agree with you Nate. I couldn't believe the father would not want > > to help his own child. JD > > > > > Quote Link to comment Share on other sites More sharing options...
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