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Re: lump in back?????

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Hi Jill,

I have never had that experience. I do on occasion get a mild flank pain,

but I have never found any lumps.

I would definitely check it out with your doctor Jill.

In a message dated 12/30/2004 1:59:05 PM Pacific Standard Time,

jhigby2003@... writes:

> I was wondering if anybody has had any small lumps in the lower part of

> your back near your kidneys before. i was rubbing my back and felt it. it is

> hard and round feeling, it seems to be the size of a marble. it didn't hurt

when

> i pushed on it but now that it has been about 10 minutes that area is

> throbbing. It is not the side that i had my biopsy done. I was thinking that

it may

> be scar tissue or something. Does anybody know what this could be? I have a

> appt. the 10th of February with my neph so i will ask then. Just wanted the

> groups thoughts. Thanks, JIll H

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Hi Jill,

I have never had that experience. I do on occasion get a mild flank pain,

but I have never found any lumps.

I would definitely check it out with your doctor Jill.

In a message dated 12/30/2004 1:59:05 PM Pacific Standard Time,

jhigby2003@... writes:

> I was wondering if anybody has had any small lumps in the lower part of

> your back near your kidneys before. i was rubbing my back and felt it. it is

> hard and round feeling, it seems to be the size of a marble. it didn't hurt

when

> i pushed on it but now that it has been about 10 minutes that area is

> throbbing. It is not the side that i had my biopsy done. I was thinking that

it may

> be scar tissue or something. Does anybody know what this could be? I have a

> appt. the 10th of February with my neph so i will ask then. Just wanted the

> groups thoughts. Thanks, JIll H

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I've never heard of this either.

Pierre

Re: lump in back?????

>

> Hi Jill,

>

> I have never had that experience. I do on occasion get a mild flank pain,

> but I have never found any lumps.

>

> I would definitely check it out with your doctor Jill.

>

>

>

>

> In a message dated 12/30/2004 1:59:05 PM Pacific Standard Time,

> jhigby2003@... writes:

>

> > I was wondering if anybody has had any small lumps in the lower part of

> > your back near your kidneys before. i was rubbing my back and felt it.

it is

> > hard and round feeling, it seems to be the size of a marble. it didn't

hurt when

> > i pushed on it but now that it has been about 10 minutes that area is

> > throbbing. It is not the side that i had my biopsy done. I was thinking

that it may

> > be scar tissue or something. Does anybody know what this could be? I

have a

> > appt. the 10th of February with my neph so i will ask then. Just wanted

the

> > groups thoughts. Thanks, JIll H

>

>

>

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Hi Deb,

The debate continues :-)

There are many Nephs who feel that because the kidneys are not nerve rich

organs that there can be no pain in the kidneys. On the other hand, the number

of IgAN patients who experience the flank pain in their lower back around the

kidneys would lead me to believe there must be some connection. Some of our

members experience very severe flank pain, and other like me only an occasional

very mild discomfort.

Lower back pain is common in the general public too though, so who knows.

Personally I think there must be a cause and effect, but it has not been widely

accepted by all Nephrologists.

In a message dated 12/31/2004 7:56:02 AM Pacific Standard Time,

ramfan3325@... writes:

> Jill,

> I don't have any lumps but have been experiencing a pain (not constant)

> on either side (but mostly the left side) near my kidneys. I ask the neph

> on Tuesday about this and he told me that there isn't any pain involved with

>

> the kidney. Anyone else experience this kind of pain?

> Deb

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Lots of people experience " flank pain " . Your neph is right. There are simply

no pain nerves in the part of the kidneys that is affected by IgAN. You

can't argue with physiology. So, you can't feel IgAN in your kidneys. Why

people have flank pain exactly is a bit of a mystery, but it's thought that

it perhaps is caused by swelling or stretching of the " renal capsule " , which

is sort of the envelope around the kidneys, and perhaps some tenderness of

the muscle layer in that area. Of course, there could be other reasons for

pain from the kidney area, like stones, infection, obstruction in the

urinary tract of some kind, etc.

Unfortunately, there's not too much anyone can do about the typical dull

flank pain that people with kidney disease have now and then. Some people

report that drinking or not drinking certain things seems to help.

There is also more severe pain. It's so severe that it has been given a name

of its own: loin pain hematuria syndrome. Nobody really knows why it happens

though, and it can apparently be related to various different kidney

diseases. I've never had this, but we're talking about very severe, almost

unbearable pain here, not just the typical dull flank pain.

Pierre

Re: lump in back?????

>

> Jill,

> I don't have any lumps but have been experiencing a pain (not

constant)

> on either side (but mostly the left side) near my kidneys. I ask the neph

> on Tuesday about this and he told me that there isn't any pain involved

with

> the kidney. Anyone else experience this kind of pain?

> Deb

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Lots of people experience " flank pain " . Your neph is right. There are simply

no pain nerves in the part of the kidneys that is affected by IgAN. You

can't argue with physiology. So, you can't feel IgAN in your kidneys. Why

people have flank pain exactly is a bit of a mystery, but it's thought that

it perhaps is caused by swelling or stretching of the " renal capsule " , which

is sort of the envelope around the kidneys, and perhaps some tenderness of

the muscle layer in that area. Of course, there could be other reasons for

pain from the kidney area, like stones, infection, obstruction in the

urinary tract of some kind, etc.

Unfortunately, there's not too much anyone can do about the typical dull

flank pain that people with kidney disease have now and then. Some people

report that drinking or not drinking certain things seems to help.

There is also more severe pain. It's so severe that it has been given a name

of its own: loin pain hematuria syndrome. Nobody really knows why it happens

though, and it can apparently be related to various different kidney

diseases. I've never had this, but we're talking about very severe, almost

unbearable pain here, not just the typical dull flank pain.

Pierre

Re: lump in back?????

>

> Jill,

> I don't have any lumps but have been experiencing a pain (not

constant)

> on either side (but mostly the left side) near my kidneys. I ask the neph

> on Tuesday about this and he told me that there isn't any pain involved

with

> the kidney. Anyone else experience this kind of pain?

> Deb

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Share on other sites

Lots of people experience " flank pain " . Your neph is right. There are simply

no pain nerves in the part of the kidneys that is affected by IgAN. You

can't argue with physiology. So, you can't feel IgAN in your kidneys. Why

people have flank pain exactly is a bit of a mystery, but it's thought that

it perhaps is caused by swelling or stretching of the " renal capsule " , which

is sort of the envelope around the kidneys, and perhaps some tenderness of

the muscle layer in that area. Of course, there could be other reasons for

pain from the kidney area, like stones, infection, obstruction in the

urinary tract of some kind, etc.

Unfortunately, there's not too much anyone can do about the typical dull

flank pain that people with kidney disease have now and then. Some people

report that drinking or not drinking certain things seems to help.

There is also more severe pain. It's so severe that it has been given a name

of its own: loin pain hematuria syndrome. Nobody really knows why it happens

though, and it can apparently be related to various different kidney

diseases. I've never had this, but we're talking about very severe, almost

unbearable pain here, not just the typical dull flank pain.

Pierre

Re: lump in back?????

>

> Jill,

> I don't have any lumps but have been experiencing a pain (not

constant)

> on either side (but mostly the left side) near my kidneys. I ask the neph

> on Tuesday about this and he told me that there isn't any pain involved

with

> the kidney. Anyone else experience this kind of pain?

> Deb

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Thanks ,

As long as it doesn't get too severe, I won't worry about it. The whole

debate takes me back to when my kids were little and the pediatrician swore

there was no connection between teething and diaper rash. (The nurses all

agreed with us that the majority of the moms said that it happened).

Thanks again for the info - it's nice to know that I'm not crazy or

alone.

Deb

Re: lump in back?????

>

> Hi Deb,

>

> The debate continues :-)

>

> There are many Nephs who feel that because the kidneys are not nerve rich

> organs that there can be no pain in the kidneys. On the other hand, the

> number

> of IgAN patients who experience the flank pain in their lower back around

> the

> kidneys would lead me to believe there must be some connection. Some of

> our

> members experience very severe flank pain, and other like me only an

> occasional

> very mild discomfort.

>

> Lower back pain is common in the general public too though, so who knows.

> Personally I think there must be a cause and effect, but it has not been

> widely

> accepted by all Nephrologists.

>

>

>

> In a message dated 12/31/2004 7:56:02 AM Pacific Standard Time,

> ramfan3325@... writes:

>

>> Jill,

>> I don't have any lumps but have been experiencing a pain (not constant)

>> on either side (but mostly the left side) near my kidneys. I ask the

>> neph

>> on Tuesday about this and he told me that there isn't any pain involved

>> with

>>

>> the kidney. Anyone else experience this kind of pain?

>> Deb

>

>

>

>

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Hi All

For those of you who have the flank pain like myself, you can tell

you doctors it is very real even though not everyone with IgAN

experiences it. I too can get a lump on my back right over the

kidney area and doctor can only think that it is the muscle being

pushed about due to the swelling and stretching that Pierre mentions.

I have yet talked to a doctor in my area that has heard of Loin Pain

Hematura Syndrom - yet I take daily narcotics to deal with my

chronic flank pain.

just my 2 cents to add

thanks

> Lots of people experience " flank pain " . Your neph is right. There

are simply

> no pain nerves in the part of the kidneys that is affected by

IgAN. You

> can't argue with physiology. So, you can't feel IgAN in your

kidneys. Why

> people have flank pain exactly is a bit of a mystery, but it's

thought that

> it perhaps is caused by swelling or stretching of the " renal

capsule " , which

> is sort of the envelope around the kidneys, and perhaps some

tenderness of

> the muscle layer in that area. Of course, there could be other

reasons for

> pain from the kidney area, like stones, infection, obstruction in

the

> urinary tract of some kind, etc.

>

> Unfortunately, there's not too much anyone can do about the

typical dull

> flank pain that people with kidney disease have now and then. Some

people

> report that drinking or not drinking certain things seems to help.

>

> There is also more severe pain. It's so severe that it has been

given a name

> of its own: loin pain hematuria syndrome. Nobody really knows why

it happens

> though, and it can apparently be related to various different

kidney

> diseases. I've never had this, but we're talking about very

severe, almost

> unbearable pain here, not just the typical dull flank pain.

>

> Pierre

>

> Re: lump in back?????

>

>

> >

> > Jill,

> > I don't have any lumps but have been experiencing a pain (not

> constant)

> > on either side (but mostly the left side) near my kidneys. I

ask the neph

> > on Tuesday about this and he told me that there isn't any pain

involved

> with

> > the kidney. Anyone else experience this kind of pain?

> > Deb

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