Jump to content
RemedySpot.com

Re: More questions from me....Raynaud's - Pierre

Rate this topic


Guest guest

Recommended Posts

I would move to San Diego in a heartbeat too! Especially since my oldest

transferred there in May and that is where my grandson lives :-) I keep asking

my husband if we can move.

However, there is the little problem of me having my health insurance through

his work, which is in Sunnyvale...aw well...guess I am " stuck " in Northern CA

;-)

In a message dated 12/30/2004 12:54:06 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ,

>

> In Calgary, it often gets to -20 or -30 for a week or two every

> winter (in fact, these next few days!). It's very annoying, but as

> long as you bundle up well and don't stay out too long, you can

> still go outside.

>

> However, California - esp San Diego where Kris used to live - would

> be WAY more preferable. I'd move there in a heartbeat if I

> could. : )

>

> Sophia

Link to comment
Share on other sites

I would move to San Diego in a heartbeat too! Especially since my oldest

transferred there in May and that is where my grandson lives :-) I keep asking

my husband if we can move.

However, there is the little problem of me having my health insurance through

his work, which is in Sunnyvale...aw well...guess I am " stuck " in Northern CA

;-)

In a message dated 12/30/2004 12:54:06 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ,

>

> In Calgary, it often gets to -20 or -30 for a week or two every

> winter (in fact, these next few days!). It's very annoying, but as

> long as you bundle up well and don't stay out too long, you can

> still go outside.

>

> However, California - esp San Diego where Kris used to live - would

> be WAY more preferable. I'd move there in a heartbeat if I

> could. : )

>

> Sophia

Link to comment
Share on other sites

I am the first one to count my blessings Pierre, but I am not sure the threat

of termites could get me to agree to bear the cold.

My Father-in-law used to live in Lake Tahoe before he passed away and I would

hate to go outside to even get in the car during winter. It seems to take me

forever to thaw out even after a short while in that kind of cold, and Tahoe

cold is nothing like what you have.

In other words, I am a wimp :-)

In a message dated 12/30/2004 1:03:01 PM Pacific Standard Time,

pgl-groups@... writes:

> Well, at least we don't have any termites. They can't survive the cold : )

> Pierre

Link to comment
Share on other sites

I am the first one to count my blessings Pierre, but I am not sure the threat

of termites could get me to agree to bear the cold.

My Father-in-law used to live in Lake Tahoe before he passed away and I would

hate to go outside to even get in the car during winter. It seems to take me

forever to thaw out even after a short while in that kind of cold, and Tahoe

cold is nothing like what you have.

In other words, I am a wimp :-)

In a message dated 12/30/2004 1:03:01 PM Pacific Standard Time,

pgl-groups@... writes:

> Well, at least we don't have any termites. They can't survive the cold : )

> Pierre

Link to comment
Share on other sites

Pierre,

The Winterlude festival does sound beautiful though...I will give you that.

The virtual skate is really neat. Does the virtual skate count as exercise

for the day? I have not been able to get on the treadmill since last Thursday.

In a message dated 12/30/2004 11:08:21 AM Pacific Standard Time,

pgl-groups@... writes:

> The cold does have some compensations though. For example, not that I use

> it

> myself nowadays, but the longest skating rink in the world opened for the

> season yesterday. The skating surface on the Rideau Canal is about 8

> kilometres long, and it's really wonderful, especially with all the ice

> sculptures and other things during the Winterlude festival in February.

>

> It would be worse if the cold was steady all winter, but as long as it's

> intersperced with milder weather it's not too bad. I sure love my

> underground parking though!

>

> Pierre

>

>

Link to comment
Share on other sites

Pierre,

The Winterlude festival does sound beautiful though...I will give you that.

The virtual skate is really neat. Does the virtual skate count as exercise

for the day? I have not been able to get on the treadmill since last Thursday.

In a message dated 12/30/2004 11:08:21 AM Pacific Standard Time,

pgl-groups@... writes:

> The cold does have some compensations though. For example, not that I use

> it

> myself nowadays, but the longest skating rink in the world opened for the

> season yesterday. The skating surface on the Rideau Canal is about 8

> kilometres long, and it's really wonderful, especially with all the ice

> sculptures and other things during the Winterlude festival in February.

>

> It would be worse if the cold was steady all winter, but as long as it's

> intersperced with milder weather it's not too bad. I sure love my

> underground parking though!

>

> Pierre

>

>

Link to comment
Share on other sites

You should try spending winter in Ottawa, the second coldest national

capital in the world after Ulan Bator. Moscow is actually milder : )

Actually, it's fairly mild today, just at about the freezing point, but we

just came out of a 2 week-long cold snap. On those days, when it's like

minus 20-30 Celsius, I just don't go out much. What happens is that if

exposed to cold, my finger tips turn white and they hurt. Same thing with

the toes and the earlobes. I know I don't have lupus, so, who knows? I kind

of think it's just the chronic renal failure that put my system over the

edge for things like that.

Pierre

Re: More questions from me....Raynaud's - Pierre

>

>

>

> Pierre Lachaine wrote:

> For example, I started having the symptoms of Raynaud's Syndrome around

1995-96.

>

> Pierre, I first had symptoms of Raynaud's in 1991. I was at the

supermarket holding on to a cold shopping cart. On my way home my fingers

turned completely gray and very painful. I continue with it till this day.

My daughter, a, has had Raynaud's since 14 years of age - she's now

23. I hope and pray that it is not connected to IgAN. I believe at one

time I read that a symptom of Lupus is Raynauds. Somehow it all does seem

connected by a faulty immune system. Hugs, Rita

>

>

> Sorry Kris, I've never heard of anything called IGEN. Like the

> immunoglobulin A in IgAN, there is an immunoglobulin (IgE) which is mainly

> involved with allergies, but I have no idea what the " N " would mean.

>

> I have had allergies myself, since I was young (skin and respiratory), and

I

> eventually developed asthma, but I don't relate it to having IgAN in any

> way. We can all have multiple medical conditions that are there, but

> unrelated. Do we know for sure? No.

>

> Cold intolerance is common in people who have renal problems ranging

chronic

> renal insufficiency right into end-stage renal disease. But the renal

> failure usually has to be relatively advanced. Having anemia also causes

> this, and kidney disease does cause anemia. Again, sometimes we just don't

> know if something we have is related to something else we also have. For

> example, I started having the symptoms of Raynaud's Syndrome around

1995-96.

> Why? I don't know. I never had it before. I was around 35-40% kidney

> function at the time. Maybe related, maybe not. Not much I could do about

it

> anyway. At the time, I thought it might be caused by the BP meds, but now

I

> don't think so, because I've been on different classes of BP meds and

> nothing changed.

>

> I don't know of any relation with IgAN for the other things you mention.

>

Link to comment
Share on other sites

Brrrrr Pierre. I think I would freeze to death in Ottawa. I don't even think I

could go outside if it was minus 20-30 C. I think I will stick with California

:-)

I also have Raynauds, and have had symptoms since my late teens. I also had

symptoms of IgAN since my mid-teens, but I never thought the two were related. I

guess we can never really know for sure what is related to the IgAN and what is

not.

In a message dated 12/30/2004 11:49:56 AM Eastern Standard Time, " Pierre

Lachaine " writes:

>

>You should try spending winter in Ottawa, the second coldest national

>capital in the world after Ulan Bator. Moscow is actually milder : )

>

>Actually, it's fairly mild today, just at about the freezing point, but we

>just came out of a 2 week-long cold snap. On those days, when it's like

>minus 20-30 Celsius, I just don't go out much. What happens is that if

>exposed to cold, my finger tips turn white and they hurt. Same thing with

>the toes and the earlobes. I know I don't have lupus, so, who knows? I kind

>of think it's just the chronic renal failure that put my system over the

>edge for things like that.

>

>Pierre

>

> Re: More questions from me....Raynaud's - Pierre

>

>

>>

>>

>>

>> Pierre Lachaine wrote:

>> For example, I started having the symptoms of Raynaud's Syndrome around

>1995-96.

>>

>> Pierre, I first had symptoms of Raynaud's in 1991.  I was at the

>supermarket holding on to a cold shopping cart.  On my way home my fingers

>turned completely gray and very painful.  I continue with it till this day.

>My daughter, a, has had Raynaud's since 14 years of age - she's now

>23.  I hope and pray that it is not connected to IgAN.  I believe at one

>time I read that a symptom of Lupus is Raynauds.  Somehow it all does seem

>connected by a faulty immune system.  Hugs, Rita

>>

>>

>> Sorry Kris, I've never heard of anything called IGEN. Like the

>> immunoglobulin A in IgAN, there is an immunoglobulin (IgE) which is mainly

>> involved with allergies, but I have no idea what the " N " would mean.

>>

>> I have had allergies myself, since I was young (skin and respiratory), and

>I

>> eventually developed asthma, but I don't relate it to having IgAN in any

>> way. We can all have multiple medical conditions that are there, but

>> unrelated. Do we know for sure? No.

>>

>> Cold intolerance is common in people who have renal problems ranging

>chronic

>> renal insufficiency right into end-stage renal disease. But the renal

>> failure usually has to be relatively advanced. Having anemia also causes

>> this, and kidney disease does cause anemia. Again, sometimes we just don't

>> know if something we have is related to something else we also have. For

>> example, I started having the symptoms of Raynaud's Syndrome around

>1995-96.

>> Why? I don't know. I never had it before. I was around 35-40% kidney

>> function at the time. Maybe related, maybe not. Not much I could do about

>it

>> anyway. At the time, I thought it might be caused by the BP meds, but now

>I

>> don't think so, because I've been on different classes of BP meds and

>> nothing changed.

>>

>> I don't know of any relation with IgAN for the other things you mention.

>>

>

>

>

>

>

>To edit your settings for the group, go to our Yahoo Group

>home page:

>http://groups.yahoo.com/group/iga-nephropathy/

>

>To unsubcribe via email,

>iga-nephropathy-unsubscribe

>Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

>http://www.igan.ca/id62.htm

>

>Thank you

>

Link to comment
Share on other sites

The cold does have some compensations though. For example, not that I use it

myself nowadays, but the longest skating rink in the world opened for the

season yesterday. The skating surface on the Rideau Canal is about 8

kilometres long, and it's really wonderful, especially with all the ice

sculptures and other things during the Winterlude festival in February.

It would be worse if the cold was steady all winter, but as long as it's

intersperced with milder weather it's not too bad. I sure love my

underground parking though!

Pierre

Re: More questions from me....Raynaud's - Pierre

> >

> >

> >>

> >>

> >>

> >> Pierre Lachaine wrote:

> >> For example, I started having the symptoms of Raynaud's Syndrome around

> >1995-96.

> >>

> >> Pierre, I first had symptoms of Raynaud's in 1991. I was at the

> >supermarket holding on to a cold shopping cart. On my way home my fingers

> >turned completely gray and very painful. I continue with it till this

day.

> >My daughter, a, has had Raynaud's since 14 years of age - she's now

> >23. I hope and pray that it is not connected to IgAN. I believe at one

> >time I read that a symptom of Lupus is Raynauds. Somehow it all does seem

> >connected by a faulty immune system. Hugs, Rita

> >>

> >>

> >> Sorry Kris, I've never heard of anything called IGEN. Like the

> >> immunoglobulin A in IgAN, there is an immunoglobulin (IgE) which is

mainly

> >> involved with allergies, but I have no idea what the " N " would mean.

> >>

> >> I have had allergies myself, since I was young (skin and respiratory),

and

> >I

> >> eventually developed asthma, but I don't relate it to having IgAN in

any

> >> way. We can all have multiple medical conditions that are there, but

> >> unrelated. Do we know for sure? No.

> >>

> >> Cold intolerance is common in people who have renal problems ranging

> >chronic

> >> renal insufficiency right into end-stage renal disease. But the renal

> >> failure usually has to be relatively advanced. Having anemia also

causes

> >> this, and kidney disease does cause anemia. Again, sometimes we just

don't

> >> know if something we have is related to something else we also have.

For

> >> example, I started having the symptoms of Raynaud's Syndrome around

> >1995-96.

> >> Why? I don't know. I never had it before. I was around 35-40% kidney

> >> function at the time. Maybe related, maybe not. Not much I could do

about

> >it

> >> anyway. At the time, I thought it might be caused by the BP meds, but

now

> >I

> >> don't think so, because I've been on different classes of BP meds and

> >> nothing changed.

> >>

> >> I don't know of any relation with IgAN for the other things you

mention.

> >>

> >

> >

> >

> >

> >

> >To edit your settings for the group, go to our Yahoo Group

> >home page:

> >http://groups.yahoo.com/group/iga-nephropathy/

> >

> >To unsubcribe via email,

> >iga-nephropathy-unsubscribe

> >Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> >http://www.igan.ca/id62.htm

> >

> >Thank you

> >

Link to comment
Share on other sites

I can attest to what Pierre says about Ottawa. When I was in Ottawa

one winter, a windy -18 deg C felt A LOT colder than -30 deg C here

in Calgary!

Sophia

> You should try spending winter in Ottawa, the second coldest

national

> capital in the world after Ulan Bator. Moscow is actually

milder : )

Link to comment
Share on other sites

,

In Calgary, it often gets to -20 or -30 for a week or two every

winter (in fact, these next few days!). It's very annoying, but as

long as you bundle up well and don't stay out too long, you can

still go outside.

However, California - esp San Diego where Kris used to live - would

be WAY more preferable. I'd move there in a heartbeat if I

could. : )

Sophia

> >> For example, I started having the symptoms of Raynaud's

Syndrome around

> >1995-96.

> >>

> >> Pierre, I first had symptoms of Raynaud's in 1991.  I was at the

> >supermarket holding on to a cold shopping cart.  On my way home

my fingers

> >turned completely gray and very painful.  I continue with it till

this day.

> >My daughter, a, has had Raynaud's since 14 years of age -

she's now

> >23.  I hope and pray that it is not connected to IgAN.  I believe

at one

> >time I read that a symptom of Lupus is Raynauds.  Somehow it all

does seem

> >connected by a faulty immune system.  Hugs, Rita

> >>

> >>

> >> Sorry Kris, I've never heard of anything called IGEN. Like the

> >> immunoglobulin A in IgAN, there is an immunoglobulin (IgE)

which is mainly

> >> involved with allergies, but I have no idea what the " N " would

mean.

> >>

> >> I have had allergies myself, since I was young (skin and

respiratory), and

> >I

> >> eventually developed asthma, but I don't relate it to having

IgAN in any

> >> way. We can all have multiple medical conditions that are

there, but

> >> unrelated. Do we know for sure? No.

> >>

> >> Cold intolerance is common in people who have renal problems

ranging

> >chronic

> >> renal insufficiency right into end-stage renal disease. But the

renal

> >> failure usually has to be relatively advanced. Having anemia

also causes

> >> this, and kidney disease does cause anemia. Again, sometimes we

just don't

> >> know if something we have is related to something else we also

have. For

> >> example, I started having the symptoms of Raynaud's Syndrome

around

> >1995-96.

> >> Why? I don't know. I never had it before. I was around 35-40%

kidney

> >> function at the time. Maybe related, maybe not. Not much I

could do about

> >it

> >> anyway. At the time, I thought it might be caused by the BP

meds, but now

> >I

> >> don't think so, because I've been on different classes of BP

meds and

> >> nothing changed.

> >>

> >> I don't know of any relation with IgAN for the other things you

mention.

> >>

> >

> >

> >

> >

> >

> >To edit your settings for the group, go to our Yahoo Group

> >home page:

> >http://groups.yahoo.com/group/iga-nephropathy/

> >

> >To unsubcribe via email,

> >iga-nephropathy-unsubscribe

> >Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> >http://www.igan.ca/id62.htm

> >

> >Thank you

> >

Link to comment
Share on other sites

,

In Calgary, it often gets to -20 or -30 for a week or two every

winter (in fact, these next few days!). It's very annoying, but as

long as you bundle up well and don't stay out too long, you can

still go outside.

However, California - esp San Diego where Kris used to live - would

be WAY more preferable. I'd move there in a heartbeat if I

could. : )

Sophia

> >> For example, I started having the symptoms of Raynaud's

Syndrome around

> >1995-96.

> >>

> >> Pierre, I first had symptoms of Raynaud's in 1991.  I was at the

> >supermarket holding on to a cold shopping cart.  On my way home

my fingers

> >turned completely gray and very painful.  I continue with it till

this day.

> >My daughter, a, has had Raynaud's since 14 years of age -

she's now

> >23.  I hope and pray that it is not connected to IgAN.  I believe

at one

> >time I read that a symptom of Lupus is Raynauds.  Somehow it all

does seem

> >connected by a faulty immune system.  Hugs, Rita

> >>

> >>

> >> Sorry Kris, I've never heard of anything called IGEN. Like the

> >> immunoglobulin A in IgAN, there is an immunoglobulin (IgE)

which is mainly

> >> involved with allergies, but I have no idea what the " N " would

mean.

> >>

> >> I have had allergies myself, since I was young (skin and

respiratory), and

> >I

> >> eventually developed asthma, but I don't relate it to having

IgAN in any

> >> way. We can all have multiple medical conditions that are

there, but

> >> unrelated. Do we know for sure? No.

> >>

> >> Cold intolerance is common in people who have renal problems

ranging

> >chronic

> >> renal insufficiency right into end-stage renal disease. But the

renal

> >> failure usually has to be relatively advanced. Having anemia

also causes

> >> this, and kidney disease does cause anemia. Again, sometimes we

just don't

> >> know if something we have is related to something else we also

have. For

> >> example, I started having the symptoms of Raynaud's Syndrome

around

> >1995-96.

> >> Why? I don't know. I never had it before. I was around 35-40%

kidney

> >> function at the time. Maybe related, maybe not. Not much I

could do about

> >it

> >> anyway. At the time, I thought it might be caused by the BP

meds, but now

> >I

> >> don't think so, because I've been on different classes of BP

meds and

> >> nothing changed.

> >>

> >> I don't know of any relation with IgAN for the other things you

mention.

> >>

> >

> >

> >

> >

> >

> >To edit your settings for the group, go to our Yahoo Group

> >home page:

> >http://groups.yahoo.com/group/iga-nephropathy/

> >

> >To unsubcribe via email,

> >iga-nephropathy-unsubscribe

> >Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> >http://www.igan.ca/id62.htm

> >

> >Thank you

> >

Link to comment
Share on other sites

,

In Calgary, it often gets to -20 or -30 for a week or two every

winter (in fact, these next few days!). It's very annoying, but as

long as you bundle up well and don't stay out too long, you can

still go outside.

However, California - esp San Diego where Kris used to live - would

be WAY more preferable. I'd move there in a heartbeat if I

could. : )

Sophia

> >> For example, I started having the symptoms of Raynaud's

Syndrome around

> >1995-96.

> >>

> >> Pierre, I first had symptoms of Raynaud's in 1991.  I was at the

> >supermarket holding on to a cold shopping cart.  On my way home

my fingers

> >turned completely gray and very painful.  I continue with it till

this day.

> >My daughter, a, has had Raynaud's since 14 years of age -

she's now

> >23.  I hope and pray that it is not connected to IgAN.  I believe

at one

> >time I read that a symptom of Lupus is Raynauds.  Somehow it all

does seem

> >connected by a faulty immune system.  Hugs, Rita

> >>

> >>

> >> Sorry Kris, I've never heard of anything called IGEN. Like the

> >> immunoglobulin A in IgAN, there is an immunoglobulin (IgE)

which is mainly

> >> involved with allergies, but I have no idea what the " N " would

mean.

> >>

> >> I have had allergies myself, since I was young (skin and

respiratory), and

> >I

> >> eventually developed asthma, but I don't relate it to having

IgAN in any

> >> way. We can all have multiple medical conditions that are

there, but

> >> unrelated. Do we know for sure? No.

> >>

> >> Cold intolerance is common in people who have renal problems

ranging

> >chronic

> >> renal insufficiency right into end-stage renal disease. But the

renal

> >> failure usually has to be relatively advanced. Having anemia

also causes

> >> this, and kidney disease does cause anemia. Again, sometimes we

just don't

> >> know if something we have is related to something else we also

have. For

> >> example, I started having the symptoms of Raynaud's Syndrome

around

> >1995-96.

> >> Why? I don't know. I never had it before. I was around 35-40%

kidney

> >> function at the time. Maybe related, maybe not. Not much I

could do about

> >it

> >> anyway. At the time, I thought it might be caused by the BP

meds, but now

> >I

> >> don't think so, because I've been on different classes of BP

meds and

> >> nothing changed.

> >>

> >> I don't know of any relation with IgAN for the other things you

mention.

> >>

> >

> >

> >

> >

> >

> >To edit your settings for the group, go to our Yahoo Group

> >home page:

> >http://groups.yahoo.com/group/iga-nephropathy/

> >

> >To unsubcribe via email,

> >iga-nephropathy-unsubscribe

> >Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> >http://www.igan.ca/id62.htm

> >

> >Thank you

> >

Link to comment
Share on other sites

Well, at least we don't have any termites. They can't survive the cold : )

Pierre

Re: More questions from me....Raynaud's - Pierre

,

In Calgary, it often gets to -20 or -30 for a week or two every

winter (in fact, these next few days!). It's very annoying, but as

long as you bundle up well and don't stay out too long, you can

still go outside.

However, California - esp San Diego where Kris used to live - would

be WAY more preferable. I'd move there in a heartbeat if I

could. : )

Sophia

> >> For example, I started having the symptoms of Raynaud's

Syndrome around

> >1995-96.

> >>

> >> Pierre, I first had symptoms of Raynaud's in 1991. I was at the

> >supermarket holding on to a cold shopping cart. On my way home

my fingers

> >turned completely gray and very painful. I continue with it till

this day.

> >My daughter, a, has had Raynaud's since 14 years of age -

she's now

> >23. I hope and pray that it is not connected to IgAN. I believe

at one

> >time I read that a symptom of Lupus is Raynauds. Somehow it all

does seem

> >connected by a faulty immune system. Hugs, Rita

> >>

> >>

> >> Sorry Kris, I've never heard of anything called IGEN. Like the

> >> immunoglobulin A in IgAN, there is an immunoglobulin (IgE)

which is mainly

> >> involved with allergies, but I have no idea what the " N " would

mean.

> >>

> >> I have had allergies myself, since I was young (skin and

respiratory), and

> >I

> >> eventually developed asthma, but I don't relate it to having

IgAN in any

> >> way. We can all have multiple medical conditions that are

there, but

> >> unrelated. Do we know for sure? No.

> >>

> >> Cold intolerance is common in people who have renal problems

ranging

> >chronic

> >> renal insufficiency right into end-stage renal disease. But the

renal

> >> failure usually has to be relatively advanced. Having anemia

also causes

> >> this, and kidney disease does cause anemia. Again, sometimes we

just don't

> >> know if something we have is related to something else we also

have. For

> >> example, I started having the symptoms of Raynaud's Syndrome

around

> >1995-96.

> >> Why? I don't know. I never had it before. I was around 35-40%

kidney

> >> function at the time. Maybe related, maybe not. Not much I

could do about

> >it

> >> anyway. At the time, I thought it might be caused by the BP

meds, but now

> >I

> >> don't think so, because I've been on different classes of BP

meds and

> >> nothing changed.

> >>

> >> I don't know of any relation with IgAN for the other things you

mention.

> >>

> >

> >

> >

> >

> >

> >To edit your settings for the group, go to our Yahoo Group

> >home page:

> >http://groups.yahoo.com/group/iga-nephropathy/

> >

> >To unsubcribe via email,

> >iga-nephropathy-unsubscribe

> >Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> >http://www.igan.ca/id62.htm

> >

> >Thank you

> >

Link to comment
Share on other sites

Well, at least we don't have any termites. They can't survive the cold : )

Pierre

Re: More questions from me....Raynaud's - Pierre

,

In Calgary, it often gets to -20 or -30 for a week or two every

winter (in fact, these next few days!). It's very annoying, but as

long as you bundle up well and don't stay out too long, you can

still go outside.

However, California - esp San Diego where Kris used to live - would

be WAY more preferable. I'd move there in a heartbeat if I

could. : )

Sophia

> >> For example, I started having the symptoms of Raynaud's

Syndrome around

> >1995-96.

> >>

> >> Pierre, I first had symptoms of Raynaud's in 1991. I was at the

> >supermarket holding on to a cold shopping cart. On my way home

my fingers

> >turned completely gray and very painful. I continue with it till

this day.

> >My daughter, a, has had Raynaud's since 14 years of age -

she's now

> >23. I hope and pray that it is not connected to IgAN. I believe

at one

> >time I read that a symptom of Lupus is Raynauds. Somehow it all

does seem

> >connected by a faulty immune system. Hugs, Rita

> >>

> >>

> >> Sorry Kris, I've never heard of anything called IGEN. Like the

> >> immunoglobulin A in IgAN, there is an immunoglobulin (IgE)

which is mainly

> >> involved with allergies, but I have no idea what the " N " would

mean.

> >>

> >> I have had allergies myself, since I was young (skin and

respiratory), and

> >I

> >> eventually developed asthma, but I don't relate it to having

IgAN in any

> >> way. We can all have multiple medical conditions that are

there, but

> >> unrelated. Do we know for sure? No.

> >>

> >> Cold intolerance is common in people who have renal problems

ranging

> >chronic

> >> renal insufficiency right into end-stage renal disease. But the

renal

> >> failure usually has to be relatively advanced. Having anemia

also causes

> >> this, and kidney disease does cause anemia. Again, sometimes we

just don't

> >> know if something we have is related to something else we also

have. For

> >> example, I started having the symptoms of Raynaud's Syndrome

around

> >1995-96.

> >> Why? I don't know. I never had it before. I was around 35-40%

kidney

> >> function at the time. Maybe related, maybe not. Not much I

could do about

> >it

> >> anyway. At the time, I thought it might be caused by the BP

meds, but now

> >I

> >> don't think so, because I've been on different classes of BP

meds and

> >> nothing changed.

> >>

> >> I don't know of any relation with IgAN for the other things you

mention.

> >>

> >

> >

> >

> >

> >

> >To edit your settings for the group, go to our Yahoo Group

> >home page:

> >http://groups.yahoo.com/group/iga-nephropathy/

> >

> >To unsubcribe via email,

> >iga-nephropathy-unsubscribe

> >Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> >http://www.igan.ca/id62.htm

> >

> >Thank you

> >

Link to comment
Share on other sites

Pierre,

Yoiks! Time to start rewriting the Russian novel .... Canadian style.

Cy

Re: More questions from me....Raynaud's - Pierre

>

>

> >

> >

> >

> > Pierre Lachaine wrote:

> > For example, I started having the symptoms of Raynaud's Syndrome around

> 1995-96.

> >

> > Pierre, I first had symptoms of Raynaud's in 1991. I was at the

> supermarket holding on to a cold shopping cart. On my way home my fingers

> turned completely gray and very painful. I continue with it till this

day.

> My daughter, a, has had Raynaud's since 14 years of age - she's now

> 23. I hope and pray that it is not connected to IgAN. I believe at one

> time I read that a symptom of Lupus is Raynauds. Somehow it all does seem

> connected by a faulty immune system. Hugs, Rita

> >

> >

> > Sorry Kris, I've never heard of anything called IGEN. Like the

> > immunoglobulin A in IgAN, there is an immunoglobulin (IgE) which is

mainly

> > involved with allergies, but I have no idea what the " N " would mean.

> >

> > I have had allergies myself, since I was young (skin and respiratory),

and

> I

> > eventually developed asthma, but I don't relate it to having IgAN in any

> > way. We can all have multiple medical conditions that are there, but

> > unrelated. Do we know for sure? No.

> >

> > Cold intolerance is common in people who have renal problems ranging

> chronic

> > renal insufficiency right into end-stage renal disease. But the renal

> > failure usually has to be relatively advanced. Having anemia also causes

> > this, and kidney disease does cause anemia. Again, sometimes we just

don't

> > know if something we have is related to something else we also have. For

> > example, I started having the symptoms of Raynaud's Syndrome around

> 1995-96.

> > Why? I don't know. I never had it before. I was around 35-40% kidney

> > function at the time. Maybe related, maybe not. Not much I could do

about

> it

> > anyway. At the time, I thought it might be caused by the BP meds, but

now

> I

> > don't think so, because I've been on different classes of BP meds and

> > nothing changed.

> >

> > I don't know of any relation with IgAN for the other things you mention.

> >

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

Link to comment
Share on other sites

Better hold off on that Dr. Zhivago novel : )

It's 34 degrees F this morning, going up to 46 today, and raining. I see

people down on the street have traded their tuques (Canadian-speak for a

funny tube bonnet with a pom-pom on top) for an umbrella : )

So much for skating on the Rideau Canal. It probably won't reopen now for a

couple of weeks.

It's only 28 in Moscow : )

Pierre

Re: More questions from me....Raynaud's - Pierre

>

>

> >

> > You should try spending winter in Ottawa, the second coldest national

> > capital in the world after Ulan Bator. Moscow is actually milder : )

> >

Link to comment
Share on other sites

Pierre,

I'm very jealous of you right now, it's -9 F here and snowing, and

it's been around this mark for the past week. Wish I could be in

Ottawa right now. ; )

> Better hold off on that Dr. Zhivago novel : )

>

> It's 34 degrees F this morning, going up to 46 today, and raining.

I see

> people down on the street have traded their tuques (Canadian-speak

for a

> funny tube bonnet with a pom-pom on top) for an umbrella : )

>

> So much for skating on the Rideau Canal. It probably won't reopen

now for a

> couple of weeks.

>

> It's only 28 in Moscow : )

>

> Pierre

>

> Re: More questions from me....Raynaud's - Pierre

> >

> >

> > >

> > > You should try spending winter in Ottawa, the second coldest

national

> > > capital in the world after Ulan Bator. Moscow is actually

milder : )

> > >

Link to comment
Share on other sites

Pierre,

I'm very jealous of you right now, it's -9 F here and snowing, and

it's been around this mark for the past week. Wish I could be in

Ottawa right now. ; )

> Better hold off on that Dr. Zhivago novel : )

>

> It's 34 degrees F this morning, going up to 46 today, and raining.

I see

> people down on the street have traded their tuques (Canadian-speak

for a

> funny tube bonnet with a pom-pom on top) for an umbrella : )

>

> So much for skating on the Rideau Canal. It probably won't reopen

now for a

> couple of weeks.

>

> It's only 28 in Moscow : )

>

> Pierre

>

> Re: More questions from me....Raynaud's - Pierre

> >

> >

> > >

> > > You should try spending winter in Ottawa, the second coldest

national

> > > capital in the world after Ulan Bator. Moscow is actually

milder : )

> > >

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...