Guest guest Posted July 17, 2001 Report Share Posted July 17, 2001 DEAR LEE, I KNOW you will hear from the others who have experience in this with their little ones, BUT , I do want to add 2 cents here. From the grandmom who has heard it all ....You are being exactly like we all have been, at one time or another. When my granddaughter was a widdle one, we did the same. But, for me , I had my daughter who was also not up to par, so I was the functioning one. You will get suggestions here. Take them .Call the docs & don't worry if they mind you calling-- That is why they are there. !! They are your doctors..Your wee one is sick.Your NOT paranoid. Just loving your child & upset because you " cant kiss it and make it all better " time will help ---education is the next best thing too. WRITE HERE AND ALL THE LISTS ALL THE TIME -ANYTIME you need to. I Hold you and yours ,in my thoughts & best wishes. Keep us posted on upcoming events:):) LOVE & HUGS, grandmomBEV Re: venting I am in a venting kind of mood also. I appreciate having a place to do it. Mallory was scheduled for surgery on Monday July 23 for a g-tube, a second bronch (a second attempt to clear out a partially collapsed lung), and an endoscopy. Today at her clinic appnt the Dr asked if we would consider coming in over the weekend so they could get an IV in her and start her on antibiotics, etc. - a jump start before the surgery. That was enough to get me depressed - who wants to spend a couple of extra days in the hospital? But just a few hours after we had gotten home - after Mallory had thrown up for the third time today - I realized that she had not been able to keep much of anything down. Yesterday was an awful day as far as throwing up goes too. She has been throwing up a lot more these last couple of weeks. She even lost a little weight from her last clinic appnt a month ago. I started to get kind of panicky about this and before long I went from being depressed about going in to the hospital a few days early to wanting to know if we should come in today or tomorrow! Fears of dehydration or something kind of intestinal blockage, etc. In the middle of phone calls to the hospital, I get one back from the surgeon who is placing the g-tube. Now he is delaying it until July 27. I guess he will be out of town now on the originally scheduled date. So instead of taking some comfort in having the professionals around to watch her and see if anything is really wrong, I am stuck trying to determine this on my own for another week and a half. Maybe you all are better at this than I am, maybe I will improve in time, but I hate this feeling of not knowing what is wrong - or if anything is wrong! Am I just being paranoid or is this really something to take seriously? It's the uncertainty that makes me crazy. I'm not even sure if this makes much sense to anyone else. But it feels a little better to get it off my chest. Thanks for letting me. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2001 Report Share Posted July 17, 2001 DEAR LEE, I KNOW you will hear from the others who have experience in this with their little ones, BUT , I do want to add 2 cents here. From the grandmom who has heard it all ....You are being exactly like we all have been, at one time or another. When my granddaughter was a widdle one, we did the same. But, for me , I had my daughter who was also not up to par, so I was the functioning one. You will get suggestions here. Take them .Call the docs & don't worry if they mind you calling-- That is why they are there. !! They are your doctors..Your wee one is sick.Your NOT paranoid. Just loving your child & upset because you " cant kiss it and make it all better " time will help ---education is the next best thing too. WRITE HERE AND ALL THE LISTS ALL THE TIME -ANYTIME you need to. I Hold you and yours ,in my thoughts & best wishes. Keep us posted on upcoming events:):) LOVE & HUGS, grandmomBEV Re: venting I am in a venting kind of mood also. I appreciate having a place to do it. Mallory was scheduled for surgery on Monday July 23 for a g-tube, a second bronch (a second attempt to clear out a partially collapsed lung), and an endoscopy. Today at her clinic appnt the Dr asked if we would consider coming in over the weekend so they could get an IV in her and start her on antibiotics, etc. - a jump start before the surgery. That was enough to get me depressed - who wants to spend a couple of extra days in the hospital? But just a few hours after we had gotten home - after Mallory had thrown up for the third time today - I realized that she had not been able to keep much of anything down. Yesterday was an awful day as far as throwing up goes too. She has been throwing up a lot more these last couple of weeks. She even lost a little weight from her last clinic appnt a month ago. I started to get kind of panicky about this and before long I went from being depressed about going in to the hospital a few days early to wanting to know if we should come in today or tomorrow! Fears of dehydration or something kind of intestinal blockage, etc. In the middle of phone calls to the hospital, I get one back from the surgeon who is placing the g-tube. Now he is delaying it until July 27. I guess he will be out of town now on the originally scheduled date. So instead of taking some comfort in having the professionals around to watch her and see if anything is really wrong, I am stuck trying to determine this on my own for another week and a half. Maybe you all are better at this than I am, maybe I will improve in time, but I hate this feeling of not knowing what is wrong - or if anything is wrong! Am I just being paranoid or is this really something to take seriously? It's the uncertainty that makes me crazy. I'm not even sure if this makes much sense to anyone else. But it feels a little better to get it off my chest. Thanks for letting me. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2001 Report Share Posted July 17, 2001 DEAR LEE, I KNOW you will hear from the others who have experience in this with their little ones, BUT , I do want to add 2 cents here. From the grandmom who has heard it all ....You are being exactly like we all have been, at one time or another. When my granddaughter was a widdle one, we did the same. But, for me , I had my daughter who was also not up to par, so I was the functioning one. You will get suggestions here. Take them .Call the docs & don't worry if they mind you calling-- That is why they are there. !! They are your doctors..Your wee one is sick.Your NOT paranoid. Just loving your child & upset because you " cant kiss it and make it all better " time will help ---education is the next best thing too. WRITE HERE AND ALL THE LISTS ALL THE TIME -ANYTIME you need to. I Hold you and yours ,in my thoughts & best wishes. Keep us posted on upcoming events:):) LOVE & HUGS, grandmomBEV Re: venting I am in a venting kind of mood also. I appreciate having a place to do it. Mallory was scheduled for surgery on Monday July 23 for a g-tube, a second bronch (a second attempt to clear out a partially collapsed lung), and an endoscopy. Today at her clinic appnt the Dr asked if we would consider coming in over the weekend so they could get an IV in her and start her on antibiotics, etc. - a jump start before the surgery. That was enough to get me depressed - who wants to spend a couple of extra days in the hospital? But just a few hours after we had gotten home - after Mallory had thrown up for the third time today - I realized that she had not been able to keep much of anything down. Yesterday was an awful day as far as throwing up goes too. She has been throwing up a lot more these last couple of weeks. She even lost a little weight from her last clinic appnt a month ago. I started to get kind of panicky about this and before long I went from being depressed about going in to the hospital a few days early to wanting to know if we should come in today or tomorrow! Fears of dehydration or something kind of intestinal blockage, etc. In the middle of phone calls to the hospital, I get one back from the surgeon who is placing the g-tube. Now he is delaying it until July 27. I guess he will be out of town now on the originally scheduled date. So instead of taking some comfort in having the professionals around to watch her and see if anything is really wrong, I am stuck trying to determine this on my own for another week and a half. Maybe you all are better at this than I am, maybe I will improve in time, but I hate this feeling of not knowing what is wrong - or if anything is wrong! Am I just being paranoid or is this really something to take seriously? It's the uncertainty that makes me crazy. I'm not even sure if this makes much sense to anyone else. But it feels a little better to get it off my chest. Thanks for letting me. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 we are at AFB in Illinois and they are doing Open only on base and only for a limited type of patient. I had to go down town and personally I was happy to go. the wait was alot longer but I had a much more experienced surgeon. Candi Re: Venting Tanja, Good luck and I am sure it will all work out. I too am doing all of the fun stuff w/Tricare. We are active duty AF. I had my first consultation w/the surgeon yesterday. I was so excited until I was told that as of Feb. 1st Tricare will no longer cover lap gastric bypass. They have declared it experimental and will only cover open gastric bypass. The Dr. thought I was a perfect candidate for getting it done lap but I guess I have no choice if I want it done. It seems like there are a lot of different instructions to follow with each base. Here my PCM put in for the referal.....I received it in the mail a few weeks later. I called the surgeons office for an appt.....which took 2 mo to get one. Now all I have to do is wait for them to call me with a date. Which will be no earlier then June sometime. Also I will have to pray for them to approve it. In the office visit the psyc. person and nutritionist came into the room one at a time and got all of that over with really quickly.Are you getting it done at the Army hospital? If so that would be the big difference......we have to go down town. Well anyway.....I guess I did a little venting of my own....lol I wish you all the luck and let keep me informed how things are progressing for you. pre-op stinardclan5@... > I feel like I'm in limbo. It's been almost 6 months since I went and > spoke to my doctor about having gastric by-pass. He was so upbet, > wrote the referral right there in front of me. Even had me do some > initial lab work. Things seemed so perfect, the required clinics > were calling the next day offering to set up appointments. After > some running around by one clinic ( i missed the appointment, then > rescheduled for the next month.....only they wern't there and then > they told me I needed a new referral from PCP) I've finally gotten > all but one done. The last one we were told not to call to > schedule...they would call us. So I've just been waiting.....for > what seems like forever. > > Then yesterday I called in a script renewal and my PCP actually > called me at home to ask a question about my meds; and then asked me > if I had changed my mind about having the surgery. I was confused > and told him no, that I had seen surgery, nutrition, physical therepy > and even the psychiatrist and been cleared by all of them and was > just waiting for occupational therepy to call and give me an > appointment. None of that was in my patient file that he was holding > at the time! > > I know I slacked for a bit in December between Christmas and my > husband deploying to Iraq (active duty army) and put my passion to > have the surgery on the back burner.....but now I'm ready and willing > to do any and everything I can do. But I can't do much without the > approval of this final clinic. I know it's against their > rules.....but I'm about ready to call them myselves and ask for an > appointment. I want to get to the top of that dang waiting list, > instead of just floating around the bottom. > > They have so many silly rules between the Army hospital and the > insurance that they expect us the patient to follow, but don't follow > themselves. They did surgery the other day on a lady who hadn't seen > all the clinics yet....because she somehow got put on the " on-call " > waiting list. There were some upset people in the support group who > had been waiting for a year or more, some on the on-call list > themselves and yet this woman got to go first, just because she > answered her phone. > > One the upside, my PCP told me last night that he'd look into what's > going on with my case today and see if he can find out what's holding > things up. We leave this post at the end of the year, and if I > havn't had the surgery by then, I have to start all over at the Army > hospital at the next post....which will really suck! > > ~Tanja ---------------------------------------------------------------------------- -- Quote Link to comment Share on other sites More sharing options...
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