Re: Re: Debbie back to Aisha

[Guest guest]

Debbie, do you have a friend or relative that you would feel comfortable

calling when you feel like this? I read your post and felt such a yearning

to be with you in person, keeping you company during these dark times. I

know that many of us would do that if we could. Cyber friends are great,

but sometimes a warm body is nice! I hope your sprains & pains heal soon.

Did you get someone to clear that ice off? Hugs from Indiana, Rose

Re: Debbie

> >

> > Hi Aisha.

> > Today didn't start out good, cause I was up most of the

> > night. Couldn't sleep - pain, of course. Yesterday morning, I

> > tried doing some stretching and light Pilates with Austin

> > tape. They had told me at the hospital to try and get some exercise

> > and that would keep me occupied as well. Well, I started off slow

> > and thought I did pretty good till last night. BAD CHOICE!!!!!!!! I

> > hurt all over even my ass and my stomach. I guess I did too much or

> > I shouldn't have done it at all. I don't know what to do anymore.

> > Well, she came on at 7:30am again today but I sure as hell wasn't

> > gonna try it again!!!! LOL Im still hurtin'!!!!

> > BUt I did kinda get some good news in the mail. The health

> > insurance company approved the pre-certification for the Remicade ,

> > (I think that's what it meant, it was a confusing letter.) I think

> > they need to go through a little more red tape with my drs.

> involved.

> > SO thats good I think!!!! I hate to get my hopes again though.....

> > I am gonna call my Rheumatologist this afternoon.

> > Thanks for listening. Luv, Debbie

>

>

>

>

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[Guest guest]

Debbie,

So glad to see your post. I sent you an e-mail the other day, when I didn't hear from you I have been worried.

Sorry you sprained your ankle. I'm glad to hear from you and glad you and your therapist hit it off that is so important.

If I can be of any help please let me know. Drop me a line some time. I hope you get to feeling better soon.

much love and support,

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan Bovitz

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.542 / Virus Database: 336 - Release Date: 11/18/03

[Guest guest]

Debbie,

So glad to see your post. I sent you an e-mail the other day, when I didn't hear from you I have been worried.

Sorry you sprained your ankle. I'm glad to hear from you and glad you and your therapist hit it off that is so important.

If I can be of any help please let me know. Drop me a line some time. I hope you get to feeling better soon.

much love and support,

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan Bovitz

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.542 / Virus Database: 336 - Release Date: 11/18/03

[Guest guest]

Debbie, after my fall...I asked all 3 of my guys to check the porch and steps and sidewalk before I left the house again. I was still very fearful of falling again but I made it through my first trip out of the house a week later even though I walked very slowly with a cane. This week I 'm only using the cane here and there. I hope you heal up quickly, too. I also got very depressed after my fall and it's like it was the last straw or something. Being so sick is a bit of a bitch anyway without something like that happening on top of it...the added pain seemed so much to bear. But it's like I felt the added prayer and it speeded my recovery. I'm quite hormonal this week and eating way too much chocolate which I know just makes it worse. I feel the added fluid on my messed up knee but my shoulders are better than when I was lifting this extra weight around on a cane and a walking stick .(I wouldn't go

to the doctor...I already have too many bills). This message board is a godsend cuz, as much as think they do, others who aren't sick do not understand the pain, the desperation, the anger, the frustration, etc.... The words spoken here are generally a healing salve to my emotions....to my soul....to my hope... I guess I figure ...someday...if I keep explaining things to those who care to listen... the lightbulb will turn on in their minds and they will get it. May God watch over you and send help your way and lots of peace and love.... Walk slow and take care hugs S.Debbie wrote:

Thanks Rose for your thoughts and concern. Yes, I do have a couple of friends that I can call when times are tough. A lot of people just don't understand how to handle it or have trouble relating. Don't you find that sometimes? But I am off the crutches now and just on splints - taking it easy. I DO believe I was more dangerous ON the crutches. I am not very coordinated to begin with, never mind with crutches! LOL Yes sometimes I wish our group could all meet together in person, but I feel the warmthness and support over the web! Its odd how close you feel to these people without ever having meeting them in person, isn't it? BTW, No, nobody has cleared off the ice! You think living with 3 males, they would. Oh well, such is life......LOLThanks Rose,

Debbie> > > Hey Sweetheart,> > >> > > Any news on the Remicade?> > >> > > How are you feeling and coping right now? You've been on my mind.> > >> > >

Keep believing in you,> > > Love Aisha.> > >> > > -- Re: Debbie> > >> > > Hi Aisha.> > > Today didn't start out good, cause I was up most of the> > > night. Couldn't sleep - pain, of course. Yesterday morning, I> > > tried doing some stretching and light Pilates with Austin> > > tape. They had told me at the hospital to try and get some exercise> > > and that would keep me occupied as well. Well, I started off slow> > > and thought I did pretty good till last night. BAD CHOICE!!!!!!!! I> > > hurt all over even my ass and my stomach. I guess I did too much

or> > > I shouldn't have done it at all. I don't know what to do anymore.> > > Well, she came on at 7:30am again today but I sure as hell wasn't> > > gonna try it again!!!! LOL Im still hurtin'!!!!> > > BUt I did kinda get some good news in the mail. The health> > > insurance company approved the pre-certification for the Remicade ,> > > (I think that's what it meant, it was a confusing letter.) I think> > > they need to go through a little more red tape with my drs.> > involved.> > > SO thats good I think!!!! I hate to get my hopes again though.....> > > I am gonna call my Rheumatologist this afternoon.> > > Thanks for listening. Luv, Debbie> >> >> >> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> > Live Group

Chat:-> > Mondays & Fridays 10pm EST USA> > http://www.elderwyn.com/neurosarcoidosis/chat.php> >> > Message Archives:-> > http://groups.yahoo.com/group/Neurosarcoidosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups.yahoo.com/group/Neurosarcoidosis/database> >> >

[Guest guest]

Debbie, after my fall...I asked all 3 of my guys to check the porch and steps and sidewalk before I left the house again. I was still very fearful of falling again but I made it through my first trip out of the house a week later even though I walked very slowly with a cane. This week I 'm only using the cane here and there. I hope you heal up quickly, too. I also got very depressed after my fall and it's like it was the last straw or something. Being so sick is a bit of a bitch anyway without something like that happening on top of it...the added pain seemed so much to bear. But it's like I felt the added prayer and it speeded my recovery. I'm quite hormonal this week and eating way too much chocolate which I know just makes it worse. I feel the added fluid on my messed up knee but my shoulders are better than when I was lifting this extra weight around on a cane and a walking stick .(I wouldn't go

to the doctor...I already have too many bills). This message board is a godsend cuz, as much as think they do, others who aren't sick do not understand the pain, the desperation, the anger, the frustration, etc.... The words spoken here are generally a healing salve to my emotions....to my soul....to my hope... I guess I figure ...someday...if I keep explaining things to those who care to listen... the lightbulb will turn on in their minds and they will get it. May God watch over you and send help your way and lots of peace and love.... Walk slow and take care hugs S.Debbie wrote:

Thanks Rose for your thoughts and concern. Yes, I do have a couple of friends that I can call when times are tough. A lot of people just don't understand how to handle it or have trouble relating. Don't you find that sometimes? But I am off the crutches now and just on splints - taking it easy. I DO believe I was more dangerous ON the crutches. I am not very coordinated to begin with, never mind with crutches! LOL Yes sometimes I wish our group could all meet together in person, but I feel the warmthness and support over the web! Its odd how close you feel to these people without ever having meeting them in person, isn't it? BTW, No, nobody has cleared off the ice! You think living with 3 males, they would. Oh well, such is life......LOLThanks Rose,

Debbie> > > Hey Sweetheart,> > >> > > Any news on the Remicade?> > >> > > How are you feeling and coping right now? You've been on my mind.> > >> > >

Keep believing in you,> > > Love Aisha.> > >> > > -- Re: Debbie> > >> > > Hi Aisha.> > > Today didn't start out good, cause I was up most of the> > > night. Couldn't sleep - pain, of course. Yesterday morning, I> > > tried doing some stretching and light Pilates with Austin> > > tape. They had told me at the hospital to try and get some exercise> > > and that would keep me occupied as well. Well, I started off slow> > > and thought I did pretty good till last night. BAD CHOICE!!!!!!!! I> > > hurt all over even my ass and my stomach. I guess I did too much

or> > > I shouldn't have done it at all. I don't know what to do anymore.> > > Well, she came on at 7:30am again today but I sure as hell wasn't> > > gonna try it again!!!! LOL Im still hurtin'!!!!> > > BUt I did kinda get some good news in the mail. The health> > > insurance company approved the pre-certification for the Remicade ,> > > (I think that's what it meant, it was a confusing letter.) I think> > > they need to go through a little more red tape with my drs.> > involved.> > > SO thats good I think!!!! I hate to get my hopes again though.....> > > I am gonna call my Rheumatologist this afternoon.> > > Thanks for listening. Luv, Debbie> >> >> >> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> > Live Group

Chat:-> > Mondays & Fridays 10pm EST USA> > http://www.elderwyn.com/neurosarcoidosis/chat.php> >> > Message Archives:-> > http://groups.yahoo.com/group/Neurosarcoidosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups.yahoo.com/group/Neurosarcoidosis/database> >> >