Re: Reclaiming Life

February 23, 2004

Hoorah! I am so glad for you that you have made a decision! That in itself is healing!

My dear friend demonstrated in her life that no matter how sick she was, she had control over one thing-- she could choose to be miserable and hate the hand she had been dealt, or she could celebrate those things that where important to her.

For her, living life, actually LIVING, meant that she would educate herself as well as she could about her illness. It also meant that she would share that information with others that were on the same path.

More importantly though, it meant that she choose to send Love, Peace, Warmth, to all humans-- even those with whom we would choose to call terrorists.

I learned from her, and was given the tools to research this unconditional Love concept, that we all can choose to live in Fear, or in Peace.

You ask what it is that I'm doing to Reclaim my Life. I am choosing to open my heart and my mind to our differences. Be it Faith, Philosophies, concepts of health or wellness and what that means to me-- (I'm learning that my physical illness is only that- physical- and that I don't have to let it take over my mind and mental, emotional health) and that for me is Healing.

That is what I am doing to reclaim my life, I am reclaiming my Spirit and Soul.

Namaste,

Tracie

February 23, 2004

Hoorah! I am so glad for you that you have made a decision! That in itself is healing!

My dear friend demonstrated in her life that no matter how sick she was, she had control over one thing-- she could choose to be miserable and hate the hand she had been dealt, or she could celebrate those things that where important to her.

For her, living life, actually LIVING, meant that she would educate herself as well as she could about her illness. It also meant that she would share that information with others that were on the same path.

More importantly though, it meant that she choose to send Love, Peace, Warmth, to all humans-- even those with whom we would choose to call terrorists.

I learned from her, and was given the tools to research this unconditional Love concept, that we all can choose to live in Fear, or in Peace.

You ask what it is that I'm doing to Reclaim my Life. I am choosing to open my heart and my mind to our differences. Be it Faith, Philosophies, concepts of health or wellness and what that means to me-- (I'm learning that my physical illness is only that- physical- and that I don't have to let it take over my mind and mental, emotional health) and that for me is Healing.

That is what I am doing to reclaim my life, I am reclaiming my Spirit and Soul.

Namaste,

Tracie

February 23, 2004

How am I reclaiming my life?

The next doctor that gives me grief is going to be told off, just for Jeanna...and whoever else needs a boost.

I think I'll start with my lung guy. He is a real pain in the ass. After treating me for over 20 years, l5 of which I coughed up about 2 quarts of phlem a day and had to use a nebulizer 4 to 5 times daily, oxygen, hospitalized several times for lack of breath and on numerous inhalers and tons of prednisione, and several skin and lymph gland biopsies, had the nerve to tell me that maybe it was sarc in my lungs but we cann't be sure!!!!! I had several chest xrays that showed it there. Or maybe it was lung cancer like they first expected????

I think the @#$% darling is trying to cover his behind cause now I need my knees and shoulders and probably my hips replaced because of prednisone damage My first operation is in November. Maybe he thinks I'm going to sue him because at one point when I complained about the side effects he told me I had no choice or spend my life in the hospital. I know now that it was a necessary evil. This was all before I found this wonderful site and was taught about alternatives.

Thank you for listening to my rant. I usually reserve this for hubby but he's on nights.

Anyhow gang keep your chin up and think positive if possible.

Love and Hugs

Joanne in Toronto

Aisha wrote:

Hey Gang,How is everyone? I know you are all doing your best to fight the good fightand keep getting weller so you can get on with your life. Same here, tests & tests & waiting on results. All in a days work isn't it?I've been reading a lot of the posts and have noticed that so many peoplehave been unhappy lately. I know I have fallen that way too over the lastfew months, but then I decided that despite my illness I was going to livemy life anyhow. Now I'm choosing pieces of music for a piano examination. Ihaven't enrolled yet nor will I until I know the pieces well because I'm notan idiot, I have to take each day as it comes, but I noticed one big thingwhen I took myself seriously and said "Yeah I'm going to do this exam evenif I feel as sick as I do today." Which we all know is quite possible.When I decided that I

was going to "Reclaim" my life and be who I wanted tobe ANYWAY even if I was sick as hell, I was happier. Sure I'm exhaustedtoday and I cried last night, but I'm still smiling because I had a greatlittle practice yesterday and I have some beautiful piano music I can listento on CD. I guess what I'm trying to say is that even though we are sick, and we mightbe sick for the rest of our lives no matter what we try or how hard we fightfor a cure, we still are alive. But are you living your life as if you arealive, or as if you are dead? I wasn't living guys. I was just existing. This has nothing to do with getting well either. We will keep fighting forour health regardless. This is something for us. Do you actually do anythingthat revives your soul? Something that means something to you. Somethingthat we love to do, just for us. You all know how important music is to me..what is important to you? It's like taking time

to stop and smell the rosesand let the light back into your life.We have an opportunity handed to us. We can do anything we want. Soundsweird huh cos we are sick? But it's true. We can pick up a dream we setaside earlier in life and start again. We may only be able to work at it alittle, or in a limited way - FOR NOW - but isn't it better to live a littlethen just exist?So guys - are you existing? Or are you living? And if you are only existingwhat can you do to bring some essence and spark back into your life? I believe we can all do a little something. If we can type on a computer wecan do something even if it's finger paint or write a poem. So give yourself permission to live your dreams - you've got the chance now.How are you going to start?Love Aisha.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST

USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

February 23, 2004

Aisha, this was good timing. I'm actually starting back to school, with a

music class, no less! I could finish my degree by Dec. if I just keep

plugging away. Thanks for the challenge. Love, Rose

Reclaiming Life

> Hey Gang,

>

> How is everyone? I know you are all doing your best to fight the good

fight

> and keep getting weller so you can get on with your life. Same here, tests

&

> tests & waiting on results. All in a days work isn't it?

>

> I've been reading a lot of the posts and have noticed that so many people

> have been unhappy lately. I know I have fallen that way too over the last

> few months, but then I decided that despite my illness I was going to live

> my life anyhow. Now I'm choosing pieces of music for a piano examination.

I

> haven't enrolled yet nor will I until I know the pieces well because I'm

not

> an idiot, I have to take each day as it comes, but I noticed one big thing

> when I took myself seriously and said " Yeah I'm going to do this exam even

> if I feel as sick as I do today. " Which we all know is quite possible.

>

> When I decided that I was going to " Reclaim " my life and be who I wanted

to

> be ANYWAY even if I was sick as hell, I was happier. Sure I'm exhausted

> today and I cried last night, but I'm still smiling because I had a great

> little practice yesterday and I have some beautiful piano music I can

listen

> to on CD.

>

> I guess what I'm trying to say is that even though we are sick, and we

might

> be sick for the rest of our lives no matter what we try or how hard we

fight

> for a cure, we still are alive. But are you living your life as if you are

> alive, or as if you are dead?

>

> I wasn't living guys. I was just existing.

>

> This has nothing to do with getting well either. We will keep fighting for

> our health regardless. This is something for us. Do you actually do

anything

> that revives your soul? Something that means something to you. Something

> that we love to do, just for us. You all know how important music is to

me..

> what is important to you? It's like taking time to stop and smell the

roses

> and let the light back into your life.

>

> We have an opportunity handed to us. We can do anything we want. Sounds

> weird huh cos we are sick? But it's true. We can pick up a dream we set

> aside earlier in life and start again. We may only be able to work at it a

> little, or in a limited way - FOR NOW - but isn't it better to live a

little

> then just exist?

>

> So guys - are you existing? Or are you living? And if you are only

existing

> what can you do to bring some essence and spark back into your life?

>

> I believe we can all do a little something. If we can type on a computer

we

> can do something even if it's finger paint or write a poem.

>

> So give yourself permission to live your dreams - you've got the chance

now.

> How are you going to start?

>

> Love Aisha.

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

February 23, 2004

I am going to remodel my kitchen this spring...........

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan

February 23, 2004

Good for you, Aisha! I decided to reclaim my life about 2 years ago

and I do think it makes a big difference! True, I am still sick and

still have some really bad times, but other days I am better and hey, I am

still alive and able to do some things at least! Just this past year, I

have learned that I can play shuffleboard......it is not real strenous and

it is certainly not bowling (which I love and cannot do) but...........it

is a game and allows me to compete (which I love to do). And an added

plus is that I am good at it! :-) My life has changed a lot since I

have come down with this sarc monster but I have chosen to live the best I

can while I can and do all I can. When I get tired, I rest.......when I

can, I do more.........I still try to do the things I love to do when I

can. I sew, crochet, quilt, (when I can and feel like it).....I look at

life in a much different way now days.......I know that I could be taken

at any time which we all can, sick or not....but when you are well, busy,

and strong, you tend to forget that. I also spend more time with my

family, especially the kids and grandkids.....I appreciate life more, I

think......

Hugs and prayers to all and go for it!!! Life is good altho we are

sick....at least we are here.

Hugs,

Darlene