Time to go! (and another idiot doctor story)

[Guest guest]

Hi friends,

I hope 2004 is off to good start for all of you! May you all be showered with blessings this year - you are certainly deserving.

It's 1:00a.m. Friday. I wanted to send a quick message before I go to bed. I'll spend tomorrow packing and catch the first of 3 flights en route to Mayo Clinic at 9:50 Saturday morning. I'm feeling apprehensive, but excited. I promise to give you all the play by play when I return. I'm hoping for answers - whether they bring good news or bad news.

This has been a rough week as I've adjusted to coming off my latest Pred burst. Pain has increased big time, breathing has been a chore, and I've been running a fever (for months) that keeps my hair drenched most of the time. Not very glamorous. I've spent a lot of time in bed.

Now the idiot doctor story; As I've organized my records for Mayo this past week, I obtained the report of my gallium scan that was done OVER A YEAR AGO - September 2002. My GP had told me that the scan showed nothing. This test was important to me because Dr. Baughman recommended it. He said that if nothing showed up on my gallium scan, it was very unlikely that sarc was my diagnosis. So, hearing that the scan was clear, I had to face the fact that sarc was probably not my problem, despite my own gut feeling, Well, guess what...

I read the report myself as I was organizing my files. It reads, in part, "There is an abnormal uptake noted in the right lung base of unknown etiology. Could represent a peripheral pneumonia. Correlation with chest xray and CT scan is recommended."

I couldn't believe it!! Even if I don't have sarc, I'm a lifelong asthmatic! How could she overlook this!! I even asked her to check it again months later because of a finding in my blood work! She NEVER mentioned anything about abnormal uptake in the lung - even though I constantly complain about shortness of breath (unlike my asthma). This may be a meaningless red herring - but she should have told me! And I think she should have ordered the chest xray!

Am I overreacting here??? Oh well, the good news is I'll have some very good doctors to (hopefully) sort it all out for me.

Sorry, guys - just had to get that one off my chest. I know you all can relate. And I wanted to touch base with you once more before I go.

My love to all of you. Thanks for listening.

Sandy

[Guest guest]

Dear Sandy,

Good luck with Mayo. Take the gallium scan with you and perhaps they will do

another? Wishing you the best!

Love Aisha

-- Time to go! (and another idiot doctor story)

Hi friends,

I hope 2004 is off to good start for all of you! May you all be showered

with blessings this year - you are certainly deserving.

It's 1:00a.m. Friday. I wanted to send a quick message before I go to bed. I

ll spend tomorrow packing and catch the first of 3 flights en route to Mayo

Clinic at 9:50 Saturday morning. I'm feeling apprehensive, but excited. I

promise to give you all the play by play when I return. I'm hoping for

answers - whether they bring good news or bad news.

This has been a rough week as I've adjusted to coming off my latest Pred

burst. Pain has increased big time, breathing has been a chore, and I've

been running a fever (for months) that keeps my hair drenched most of the

time. Not very glamorous. I've spent a lot of time in bed.

Now the idiot doctor story; As I've organized my records for Mayo this past

week, I obtained the report of my gallium scan that was done OVER A YEAR AGO

- September 2002. My GP had told me that the scan showed nothing. This test

was important to me because Dr. Baughman recommended it. He said that if

nothing showed up on my gallium scan, it was very unlikely that sarc was my

diagnosis. So, hearing that the scan was clear, I had to face the fact that

sarc was probably not my problem, despite my own gut feeling, Well, guess

what...

I read the report myself as I was organizing my files. It reads, in part,

There is an abnormal uptake noted in the right lung base of unknown etiology

Could represent a peripheral pneumonia. Correlation with chest xray and CT

scan is recommended. "

I couldn't believe it!! Even if I don't have sarc, I'm a lifelong asthmatic!

How could she overlook this!! I even asked her to check it again months

later because of a finding in my blood work! She NEVER mentioned anything

about abnormal uptake in the lung - even though I constantly complain about

shortness of breath (unlike my asthma). This may be a meaningless red

herring - but she should have told me! And I think she should have ordered

the chest xray!

Am I overreacting here??? Oh well, the good news is I'll have some very good

doctors to (hopefully) sort it all out for me.

Sorry, guys - just had to get that one off my chest. I know you all can

relate. And I wanted to touch base with you once more before I go.

My love to all of you. Thanks for listening.

Sandy

[Guest guest]

good luck Sandy,,,and I hope that you find the answers that you are

looking for.

Lynne

> Hi friends,

>

> I hope 2004 is off to good start for all of you! May you all be

showered

> with blessings this year - you are certainly deserving.

>

> It's 1:00a.m. Friday. I wanted to send a quick message before I

go to bed.

> I'll spend tomorrow packing and catch the first of 3 flights en

route to Mayo

> Clinic at 9:50 Saturday morning. I'm feeling apprehensive, but

excited. I

> promise to give you all the play by play when I return. I'm

hoping for answers

> - whether they bring good news or bad news.

>

> This has been a rough week as I've adjusted to coming off my

latest Pred

> burst. Pain has increased big time, breathing has been a chore,

and I've been

> running a fever (for months) that keeps my hair drenched most of

the time. Not

> very glamorous. I've spent a lot of time in bed.

>

> Now the idiot doctor story; As I've organized my records for

Mayo this past

> week, I obtained the report of my gallium scan that was done OVER

A YEAR AGO

> - September 2002. My GP had told me that the scan showed

nothing. This test

> was important to me because Dr. Baughman recommended it. He said

that if

> nothing showed up on my gallium scan, it was very unlikely that

sarc was my

> diagnosis. So, hearing that the scan was clear, I had to face the

fact that sarc

> was probably not my problem, despite my own gut feeling, Well,

guess what...

>

> I read the report myself as I was organizing my files. It reads,

in part,

> " There is an abnormal uptake noted in the right lung base of

unknown etiology.

> Could represent a peripheral pneumonia. Correlation with chest

xray and CT

> scan is recommended. "

>

> I couldn't believe it!! Even if I don't have sarc, I'm a lifelong

asthmatic!

> How could she overlook this!! I even asked her to check it again

months

> later because of a finding in my blood work! She NEVER mentioned

anything about

> abnormal uptake in the lung - even though I constantly complain

about

> shortness of breath (unlike my asthma). This may be a meaningless

red herring - but

> she should have told me! And I think she should have ordered the

chest xray!

>

> Am I overreacting here??? Oh well, the good news is I'll have

some very good

> doctors to (hopefully) sort it all out for me.

>

> Sorry, guys - just had to get that one off my chest. I know you

all can

> relate. And I wanted to touch base with you once more before I go.

>

> My love to all of you. Thanks for listening.

>

> Sandy

[Guest guest]

Faith makes all things possible,Love makes it easy!

Janjanbovi@...

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Sandy,

I so understand your frustration, I have had doctors do such things to me as well and its very hurtful and to say the least they make you feel like a fool cause if anyone goes with you they look up to the doctor and they listen to what and take what the doctor says to be the gospel truth, well honey I have found them to be no different than you or I and no you aren't making too much out of this and I would demand some answers before I go from the doctors.

Hope this reassures you that you aren't doing anything wrong here, ok...........

Jan

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[Guest guest]

This sounds like some of the things I found out.

You need to make a copy of this report and give it to Dr.Baughman.

I bet he never got a copy of the report.

Sharon

Time to go! (and another idiot doctor story)

Hi friends, I hope 2004 is off to good start for all of you! May you all be showered with blessings this year - you are certainly deserving.It's 1:00a.m. Friday. I wanted to send a quick message before I go to bed. I'll spend tomorrow packing and catch the first of 3 flights en route to Mayo Clinic at 9:50 Saturday morning. I'm feeling apprehensive, but excited. I promise to give you all the play by play when I return. I'm hoping for answers - whether they bring good news or bad news.This has been a rough week as I've adjusted to coming off my latest Pred burst. Pain has increased big time, breathing has been a chore, and I've been running a fever (for months) that keeps my hair drenched most of the time. Not very glamorous. I've spent a lot of time in bed.Now the idiot doctor story; As I've organized my records for Mayo this past week, I obtained the report of my gallium scan that was done OVER A YEAR AGO - September 2002. My GP had told me that the scan showed nothing. This test was important to me because Dr. Baughman recommended it. He said that if nothing showed up on my gallium scan, it was very unlikely that sarc was my diagnosis. So, hearing that the scan was clear, I had to face the fact that sarc was probably not my problem, despite my own gut feeling, Well, guess what...I read the report myself as I was organizing my files. It reads, in part, "There is an abnormal uptake noted in the right lung base of unknown etiology. Could represent a peripheral pneumonia. Correlation with chest xray and CT scan is recommended."I couldn't believe it!! Even if I don't have sarc, I'm a lifelong asthmatic! How could she overlook this!! I even asked her to check it again months later because of a finding in my blood work! She NEVER mentioned anything about abnormal uptake in the lung - even though I constantly complain about shortness of breath (unlike my asthma). This may be a meaningless red herring - but she should have told me! And I think she should have ordered the chest xray!Am I overreacting here??? Oh well, the good news is I'll have some very good doctors to (hopefully) sort it all out for me.Sorry, guys - just had to get that one off my chest. I know you all can relate. And I wanted to touch base with you once more before I go.My love to all of you. Thanks for listening.Sandy ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

This sounds like some of the things I found out.

You need to make a copy of this report and give it to Dr.Baughman.

I bet he never got a copy of the report.

Sharon

Time to go! (and another idiot doctor story)

Hi friends, I hope 2004 is off to good start for all of you! May you all be showered with blessings this year - you are certainly deserving.It's 1:00a.m. Friday. I wanted to send a quick message before I go to bed. I'll spend tomorrow packing and catch the first of 3 flights en route to Mayo Clinic at 9:50 Saturday morning. I'm feeling apprehensive, but excited. I promise to give you all the play by play when I return. I'm hoping for answers - whether they bring good news or bad news.This has been a rough week as I've adjusted to coming off my latest Pred burst. Pain has increased big time, breathing has been a chore, and I've been running a fever (for months) that keeps my hair drenched most of the time. Not very glamorous. I've spent a lot of time in bed.Now the idiot doctor story; As I've organized my records for Mayo this past week, I obtained the report of my gallium scan that was done OVER A YEAR AGO - September 2002. My GP had told me that the scan showed nothing. This test was important to me because Dr. Baughman recommended it. He said that if nothing showed up on my gallium scan, it was very unlikely that sarc was my diagnosis. So, hearing that the scan was clear, I had to face the fact that sarc was probably not my problem, despite my own gut feeling, Well, guess what...I read the report myself as I was organizing my files. It reads, in part, "There is an abnormal uptake noted in the right lung base of unknown etiology. Could represent a peripheral pneumonia. Correlation with chest xray and CT scan is recommended."I couldn't believe it!! Even if I don't have sarc, I'm a lifelong asthmatic! How could she overlook this!! I even asked her to check it again months later because of a finding in my blood work! She NEVER mentioned anything about abnormal uptake in the lung - even though I constantly complain about shortness of breath (unlike my asthma). This may be a meaningless red herring - but she should have told me! And I think she should have ordered the chest xray!Am I overreacting here??? Oh well, the good news is I'll have some very good doctors to (hopefully) sort it all out for me.Sorry, guys - just had to get that one off my chest. I know you all can relate. And I wanted to touch base with you once more before I go.My love to all of you. Thanks for listening.Sandy ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hi Sandy...

Bloody Hell...I thought it was jsut our English Doctors that get

things wrong!! hahahaha..

I hope all went ok, at the Mayo?

I will be thinking of you.

Take care

Love Alison x