Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Hi there and thank you kindly; for being kind all of you to me. I have no desire for any money off anyone- unless the Lord leads, but I would like to address, the lady with sclera: I understand as I have some lung problems actually and this is a worry, BUT, I think you should read on Syndrome I and a have this very severely and it is very alikened what you are describing. I see the only expert on this and as does Kris in London. IT IS MORE COMMON TO BE SERO NEGATIVE ON THIS THAN ANY OTHER DISEASE OF AUTO-IMMUNE DISEASES'. THIS IS LACK OF OXYGEN AND CAUSES MEMORY LOSE AND LIVEDO RETICULARIS = WHICH IS SEEN ON THE BODY ALIKENED TOO MOTTLED PATCHES SWIRLING ALLOVER THE BODY AS THOUGH YOU ARE VERY COLD. I am on warfarin as is kris -we don't show- and are text book cases. However, you must know is this that 1-3 people with MS DON'T HAVE MS -but this treatable disease. It causes severe raynauds as like the sclera and also brain problems and can cause hemiplegic migraine. IT IS MORE COMMON THAN ANYTHING ELSE I HAVE OR ANY OF YOU HAVE, IT IS UNFORTUNATELY RARELY DIAGNOSED BECAUSE SO MANY ARE NEGATIVE. The man who discovered it treats the likes of us. Look on the site for more details, I don't get on much as I am fighting a huge battle in my body right now and kris will answer any other questions we can and also would like, and want your help, because WE WILL CRACK THIS DISEASE AND DISEASES. To the person, sorry my memory is terrible-whom wrote about the doc in surrey - I so appreciate this and thank you we may ask him to help. I am going to the top of Baylor for help and God graciously gave this help. We also are going to Canada -we hope- and have been asked to work with microbiologists who will extract our DNA and that's all I can say right now, you see this i why I believe it is time for us who have this disease SEEING THAT= so much is happening. Oh, I remembered a name--I am glad its working for you and please share any thing else that would help us. My dear friends, we are not beggars, this foundation is set by God - just read a portion of what occurred to me; the rest will come out. Plus I am not a scammer; I am, and Kris is a compassionate woman who have simply suffered terribly and wish to help others at last. God Bless. Lena and Kris AND . ps. the site was not just set for money WE WANT TO HELP: READ ON THE INFO and FUTHERMORE, AND GET WELL. www.liberate-lena-foundation.com Quote Link to comment Share on other sites More sharing options...
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