Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Dear Janet, Your post made me smile, even at this "ungodly" hour! I'm so SO proud of you, for making a choice and feeling comfortable with your decision. He sounds like a "winner" that oncologist of yours; and who better than you to have as a patient. You'll lose the weight, and think of how great you will feel then! Give yourself mini goals, like 5 lbs. to start - you're already 1/5 of the way there! Increase your veggies/fruits (if the diabetes allows), switch to only whole grains and pastas/no "white" products. You'll do great! The pounds will come off on their own, gradually the healthy way. My daughter and I are volunteering Saturday for www.kendraandfriends.com - Kendra is a 19 year old, who graduated from our high school last June, with Stage III ovarian cancer. She was going to pursue a degree in Art from Pratt before her life turned upside down. This is the second annual art show to raise money here on Long Island for "long island oceans" - ovarian and gynecological cancers. I felt compelled to help a "fellow" resident and have been in touch with her mom via e-mail for about 5 months. We're finally meeting on Friday at the volunteer meeting. Should be quite emotional. My daughter, has recruited 8 of her fellow students (8th grade) to help with volunteering for the show. I think it's good for "character" - helping others in need, and with all the negatives you hear about these kids today, I'm so proud of them for jumping in. Cancer IS cancer, Janet and although my passion is BC, we're all under one "umbrella" in this world - where compassion, love and understanding help us reach one common ground - maintaining our health. As founder of our local coalition, I've recently written the president of our local hospital, asking for assistance in living my dream of a source for women right here in my community. Wish me luck! There is no breast cancer support group here, and I would have travelled almost 25 miles for the nearest meeting during my journey. Many of our residents are below average income levels, being underinsured/no insurance, specifically minority women in this community. I was blessed with great insurance, and the ability to weigh my options, research my decisions. Time to "pay back," don't you think? There's a reason he "spared" me, and I'm going to find it! My best to you my friend, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Dear Janet, Your post made me smile, even at this "ungodly" hour! I'm so SO proud of you, for making a choice and feeling comfortable with your decision. He sounds like a "winner" that oncologist of yours; and who better than you to have as a patient. You'll lose the weight, and think of how great you will feel then! Give yourself mini goals, like 5 lbs. to start - you're already 1/5 of the way there! Increase your veggies/fruits (if the diabetes allows), switch to only whole grains and pastas/no "white" products. You'll do great! The pounds will come off on their own, gradually the healthy way. My daughter and I are volunteering Saturday for www.kendraandfriends.com - Kendra is a 19 year old, who graduated from our high school last June, with Stage III ovarian cancer. She was going to pursue a degree in Art from Pratt before her life turned upside down. This is the second annual art show to raise money here on Long Island for "long island oceans" - ovarian and gynecological cancers. I felt compelled to help a "fellow" resident and have been in touch with her mom via e-mail for about 5 months. We're finally meeting on Friday at the volunteer meeting. Should be quite emotional. My daughter, has recruited 8 of her fellow students (8th grade) to help with volunteering for the show. I think it's good for "character" - helping others in need, and with all the negatives you hear about these kids today, I'm so proud of them for jumping in. Cancer IS cancer, Janet and although my passion is BC, we're all under one "umbrella" in this world - where compassion, love and understanding help us reach one common ground - maintaining our health. As founder of our local coalition, I've recently written the president of our local hospital, asking for assistance in living my dream of a source for women right here in my community. Wish me luck! There is no breast cancer support group here, and I would have travelled almost 25 miles for the nearest meeting during my journey. Many of our residents are below average income levels, being underinsured/no insurance, specifically minority women in this community. I was blessed with great insurance, and the ability to weigh my options, research my decisions. Time to "pay back," don't you think? There's a reason he "spared" me, and I'm going to find it! My best to you my friend, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Janet, Thanks for the update. We have to do what we feel is best for us. Glad your onc is backing you up. I will continue to keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com Update Janet How interesting about having there for this last year. I have never hosted a foreign student but a close friend had Shinichi from Japan. On his leavetaking we had a party for him and I found a quote that goes like this. "Though you travel the world over to find the beautiful, you must carry it with you or you will find it not........R.W. Emerson" I saw my oncologist today and told him I am done with chemo. After my last chemo of the fourth month I had what I thought was problems with my liver and inflammation of my bladder. I am just not going to put the toxic chemos in my body anymore. My Dr. is so great........first of all he made me feel very at ease with quitting, he told me I am not quitting, I am just making a valid choice. And he was perfectly o.k. with that. He doublechecked my lymph glands, liver, etc. and is not worried at all about them. So we discussed tamoxifen and the possibilities of uterine cancer. I asked about arimidex and he thought that was a good choice. And then as I left he gave me a sweeet hug that was so unexpected for me...........I said, 'I feel like I am a survivor already.' He is so unexpectedly caring about his patients it is nice. So I am just waiting to hear from the Radiation office to start my rads. 33 days of radiation M-F. I did get 30 days of arimidex free and will start taking them tonight. I hope I don't have too many side effects from it but will have to wait and see. I go back in on Friday for my lab tests until I am back to normal........wait three months and see him again. Now I have to lose weight because my diabetes is calling me to take control. I had lost one pound already.......so I will be working on that. Unless my rads are affecting me badly. If so, then I will wait till I'm done with the rads. I am also selling on eBay so that takes some of my time during the week also. Plus I have to finish my painting by class time on Thursday. I need to ship off one of my Fenton elephants tomorrow to the eBay winner. It's good to be busy, and my carrot juice is still working great to keep me healthy. Thanks to !!! Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Hey Janet, You can be my Arimidex buddy! I have been on it a total of about one week. Took a one week break to see if it was causing the rise in my BP (wasn't) and am going back on today. Haven't really been on it long enough to have had side effects other than the hot flashes getting worse and a little weight gain. See how that goes. Good luck and glad your onc listened to you. It is your body and you get to make the final decisions. Ruth > > How interesting about having there for this last year. I have never hosted a foreign student but a close friend had Shinichi from Japan. On his leavetaking we had a party for him and I found a quote that goes like this. > > " Though you travel the world over to find the beautiful, you must carry it with you or you will find it not........R.W. Emerson " > > I saw my oncologist today and told him I am done with chemo. After my last chemo of the fourth month I had what I thought was problems with my liver and inflammation of my bladder. I am just not going to put the toxic chemos in my body anymore. My Dr. is so great........first of all he made me feel very at ease with quitting, he told me I am not quitting, I am just making a valid choice. And he was perfectly o.k. with that. > > He doublechecked my lymph glands, liver, etc. and is not worried at all about them. So we discussed tamoxifen and the possibilities of uterine cancer. I asked about arimidex and he thought that was a good choice. And then as I left he gave me a sweeet hug that was so unexpected for me...........I said, 'I feel like I am a survivor already.' > He is so unexpectedly caring about his patients it is nice. > > So I am just waiting to hear from the Radiation office to start my rads. 33 days of radiation M-F. I did get 30 days of arimidex free and will start taking them tonight. I hope I don't have too many side effects from it but will have to wait and see. I go back in on Friday for my lab tests until I am back to normal........wait three months and see him again. > > Now I have to lose weight because my diabetes is calling me to take control. I had lost one pound already.......so I will be working on that. Unless my rads are affecting me badly. If so, then I will wait till I'm done with the rads. > > I am also selling on eBay so that takes some of my time during the week also. Plus I have to finish my painting by class time on Thursday. I need to ship off one of my Fenton elephants tomorrow to the eBay winner. It's good to be busy, and my carrot juice is still working great to keep me healthy. Thanks to !!! > > Janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Janet, I have been on Arimidex for 4 months now. The only problem I have had so far is the hot flashes on top of the already hotflashes from memopause. I think it has also help me to gain some weight back that I didn't want. I was having a hard time sleeping at night becuase of the flashes and sweats so my doct. put me on Lunesta. It has helped. ttfn theresaruthiema36 wrote: Hey Janet,You can be my Arimidex buddy! I have been on it a total of about oneweek. Took a one week break to see if it was causing the rise in myBP (wasn't) and am going back on today. Haven't really been on itlong enough to have had side effects other than the hot flashesgetting worse and a little weight gain. See how that goes. Good luckand glad your onc listened to you. It is your body and you get tomake the final decisions.Ruth>> How interesting about having there for this last year. Ihave never hosted a foreign student but a close friend had Shinichifrom Japan. On his leavetaking we had a party for him and I found aquote that goes like this.> > "Though you travel the world over to find the beautiful, you mustcarry it with you or you will find it not........R.W. Emerson"> > I saw my oncologist today and told him I am done with chemo. Aftermy last chemo of the fourth month I had what I thought was problemswith my liver and inflammation of my bladder. I am just not going toput the toxic chemos in my body anymore. My Dr. is sogreat........first of all he made me feel very at ease with quitting,he told me I am not quitting, I am just making a valid choice. And hewas perfectly o.k. with that. > > He doublechecked my lymph glands, liver, etc. and is not worried atall about them. So we discussed tamoxifen and the possibilities ofuterine cancer. I asked about arimidex and he thought that was a goodchoice. And then as I left he gave me a sweeet hug that was sounexpected for me...........I said, 'I feel like I am a survivor already.'> He is so unexpectedly caring about his patients it is nice.> > So I am just waiting to hear from the Radiation office to start myrads. 33 days of radiation M-F. I did get 30 days of arimidex freeand will start taking them tonight. I hope I don't have too manyside effects from it but will have to wait and see. I go back in onFriday for my lab tests until I am back to normal........wait threemonths and see him again.> > Now I have to lose weight because my diabetes is calling me to takecontrol. I had lost one pound already.......so I will be working onthat. Unless my rads are affecting me badly. If so, then I willwait till I'm done with the rads.> > I am also selling on eBay so that takes some of my time during theweek also. Plus I have to finish my painting by class time onThursday. I need to ship off one of my Fenton elephants tomorrow tothe eBay winner. It's good to be busy, and my carrot juice is stillworking great to keep me healthy. Thanks to !!!> > Janet> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Good for you, .......Giving back is the most important thing we can do after bc. And imagine a young girl like that getting ovarian cancer. We just can't say it enough times.........see your doctor for checkups and have those mammograms. Anything that is abnormal should be reported..................and good for you for checking out your arm with the dr. Glad it is nothing to be concerned about........... Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Ruthie I am your Arimidex buddy.......I just started yesteerday and maybe I won't have any side effects. I don't remember if you had reported any yet or not. Keep up the good work! Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Ruthie I am your Arimidex buddy.......I just started yesteerday and maybe I won't have any side effects. I don't remember if you had reported any yet or not. Keep up the good work! Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Have been on Arimidex since Oct 2003 and I do get hot flashes and have weight gain...on Tamoxifin I had alot of leg cramps...I dont have a many on Arimidex just once in awhile... I have to go for a D & C on June 23rd...have thickening of the lining...I am a little scared... Betsy (NC) Note: forwarded message attached. Janet, I have been on Arimidex for 4 months now. The only problem I have had so far is the hot flashes on top of the already hotflashes from memopause. I think it has also help me to gain some weight back that I didn't want. I was having a hard time sleeping at night becuase of the flashes and sweats so my doct. put me on Lunesta. It has helped. ttfn theresaruthiema36 wrote: Hey Janet,You can be my Arimidex buddy! I have been on it a total of about oneweek. Took a one week break to see if it was causing the rise in myBP (wasn't) and am going back on today. Haven't really been on itlong enough to have had side effects other than the hot flashesgetting worse and a little weight gain. See how that goes. Good luckand glad your onc listened to you. It is your body and you get tomake the final decisions.Ruth>> How interesting about having there for this last year. Ihave never hosted a foreign student but a close friend had Shinichifrom Japan. On his leavetaking we had a party for him and I found aquote that goes like this.> > "Though you travel the world over to find the beautiful, you mustcarry it with you or you will find it not........R.W. Emerson"> > I saw my oncologist today and told him I am done with chemo. Aftermy last chemo of the fourth month I had what I thought was problemswith my liver and inflammation of my bladder. I am just not going toput the toxic chemos in my body anymore. My Dr. is sogreat........first of all he made me feel very at ease with quitting,he told me I am not quitting, I am just making a valid choice. And hewas perfectly o.k. with that. > > He doublechecked my lymph glands, liver, etc. and is not worried atall about them. So we discussed tamoxifen and the possibilities ofuterine cancer. I asked about arimidex and he thought that was a goodchoice. And then as I left he gave me a sweeet hug that was sounexpected for me...........I said, 'I feel like I am a survivor already.'> He is so unexpectedly caring about his patients it is nice.> > So I am just waiting to hear from the Radiation office to start myrads. 33 days of radiation M-F. I did get 30 days of arimidex freeand will start taking them tonight. I hope I don't have too manyside effects from it but will have to wait and see. I go back in onFriday for my lab tests until I am back to normal........wait threemonths and see him again.> > Now I have to lose weight because my diabetes is calling me to takecontrol. I had lost one pound already.......so I will be working onthat. Unless my rads are affecting me badly. If so, then I willwait till I'm done with the rads.> > I am also selling on eBay so that takes some of my time during theweek also. Plus I have to finish my painting by class time onThursday. I need to ship off one of my Fenton elephants tomorrow tothe eBay winner. It's good to be busy, and my carrot juice is stillworking great to keep me healthy. Thanks to !!!> > Janet> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Janet, I was on it for about a week and took a week off to see if it was raising my BP. It wasn't so I went back on today. In the week I was on noticed a little weight gain and a little more in the way ofhot flashes especially at night. Good luck to you too! Ruth PS Have to find out what is raising that BP! > > Ruthie > > I am your Arimidex buddy.......I just started yesteerday and maybe I won't have any side effects. I don't remember if you had reported any yet or not. > > Keep up the good work! > Janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 -Janet, I have been on Arimidex for 17 months. I felt fine for the first 4 or 5 months. Side effects started in the 6th month. More Hot flashes, muscle aches, insomnia. They lasted about 4 months. I have NO side effects now. My Hot flashes are back to a more tolerable state and the body aches have subsided. Advil did a good job. I figured the benefits I was receiving far outweighed the discomfort. Good Luck and hang in there. Nancee-- In breastcancer2 , Theresa Towner wrote: > > Janet, > I have been on Arimidex for 4 months now. The only problem I have had so far is the hot flashes on top of the already hotflashes from memopause. I think it has also help me to gain some weight back that I didn't want. I was having a hard time sleeping at night becuase of the flashes and sweats so my doct. put me on Lunesta. It has helped. ttfn theresa > > ruthiema36 wrote: > Hey Janet, > You can be my Arimidex buddy! I have been on it a total of about one > week. Took a one week break to see if it was causing the rise in my > BP (wasn't) and am going back on today. Haven't really been on it > long enough to have had side effects other than the hot flashes > getting worse and a little weight gain. See how that goes. Good luck > and glad your onc listened to you. It is your body and you get to > make the final decisions. > Ruth > > > > > > How interesting about having there for this last year. I > have never hosted a foreign student but a close friend had Shinichi > from Japan. On his leavetaking we had a party for him and I found a > quote that goes like this. > > > > " Though you travel the world over to find the beautiful, you must > carry it with you or you will find it not........R.W. Emerson " > > > > I saw my oncologist today and told him I am done with chemo. After > my last chemo of the fourth month I had what I thought was problems > with my liver and inflammation of my bladder. I am just not going to > put the toxic chemos in my body anymore. My Dr. is so > great........first of all he made me feel very at ease with quitting, > he told me I am not quitting, I am just making a valid choice. And he > was perfectly o.k. with that. > > > > He doublechecked my lymph glands, liver, etc. and is not worried at > all about them. So we discussed tamoxifen and the possibilities of > uterine cancer. I asked about arimidex and he thought that was a good > choice. And then as I left he gave me a sweeet hug that was so > unexpected for me...........I said, 'I feel like I am a survivor already.' > > He is so unexpectedly caring about his patients it is nice. > > > > So I am just waiting to hear from the Radiation office to start my > rads. 33 days of radiation M-F. I did get 30 days of arimidex free > and will start taking them tonight. I hope I don't have too many > side effects from it but will have to wait and see. I go back in on > Friday for my lab tests until I am back to normal........wait three > months and see him again. > > > > Now I have to lose weight because my diabetes is calling me to take > control. I had lost one pound already.......so I will be working on > that. Unless my rads are affecting me badly. If so, then I will > wait till I'm done with the rads. > > > > I am also selling on eBay so that takes some of my time during the > week also. Plus I have to finish my painting by class time on > Thursday. I need to ship off one of my Fenton elephants tomorrow to > the eBay winner. It's good to be busy, and my carrot juice is still > working great to keep me healthy. Thanks to !!! > > > > Janet > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 After menopause I never stopped having hot flashes and it was really bad, especially the night sweats. But sometime last year I stopped having them so frequently. Now with one Arimidex I can see it is already giving me warm times. But onward and upward.....still haven't heard from the Radiation Center about scheduling me. Thanks for the information, I appreciate it. Janet Quote Link to comment Share on other sites More sharing options...
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