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Re: A Request for Shar

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Aisha,

Of course Shar will most certainly be in my prayers now more than ever and her family too.

I'm praying for you too sweetie....... Hope you are feeling better these days, please take care of you.

I'm trying not to bother you but it's not because you are not in my thoughts and prayers hun. I love ya sweetie. :)

Still very sore Jan

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Aisha and Shar you are both definitely in my prayers, you have both been a God send to me and I hope you will both be feeling better soon, I know this disease can be a real nuisance at time and we just wish there was a way we could flush it, but I guess all we can do is love each other and pray that each day will bring renewed strength and health. Your friendly Texan, Jeanna

-- Re: A Request for Shar

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Aisha,

Of course Shar will most certainly be in my prayers now more than ever and her family too.

I'm praying for you too sweetie....... Hope you are feeling better these days, please take care of you.

I'm trying not to bother you but it's not because you are not in my thoughts and prayers hun. I love ya sweetie. :)

Still very sore Jan

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.542 / Virus Database: 336 - Release Date: 11/18/03~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Sending lots and lots of prayers.......

Hugs,

Darlene

>

>

>

>

> Shar is down to her last few days of Radiation Therapy. This week has

> been

> the Full Body Radiation treatments and they have been so hard on her frail

> body. Twice this week she has had heart troubles and they have had to use

> the fibrillates to maintain her heartbeat. She doesn't need to move to

> intensive care at this point as she has her own private nurse, and she has

> now got an intensive care doctor assigned to her, but things are pretty

> serious right now.

>

> She is at the end of this treatment and told me that they were not

> going to stop the treatment because then they couldn't do the marrow

> transplant on Monday and they did not want to have put her through all of

> this for nothing.

>

> So I'm asking you to reach into your faith & heart, and please focus

> some of

> that energy to Shar. She needs your help. Prayers, blessings, good wishes,

> candles lit, whatever works - please think of her and send out the good

> energy her way. She needs you now.

>

> Thank you!

>

>

> Love Aisha

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Aisha,

Thank you so much for the updates, I am praying daily for Shar and her

family, what great kids she has, and you to be there mentor, advisor,

etc.... You are a true blessing to Shar and her family.

I hope you are doing well. I thank God everyday for what I have, as I know

I could be so much worse off.

Please give Shar and her Kids my love.

And take care of you too!!

Love and Prayers,

Marla

A Request for Shar

> Shar is down to her last few days of Radiation Therapy. This week has been

> the Full Body Radiation treatments and they have been so hard on her frail

> body. Twice this week she has had heart troubles and they have had to use

> the fibrillates to maintain her heartbeat. She doesn't need to move to

> intensive care at this point as she has her own private nurse, and she has

> now got an intensive care doctor assigned to her, but things are pretty

> serious right now.

>

> She is at the end of this treatment and told me that they were not

> going to stop the treatment because then they couldn't do the marrow

> transplant on Monday and they did not want to have put her through all of

> this for nothing.

>

> So I'm asking you to reach into your faith & heart, and please focus some

of

> that energy to Shar. She needs your help. Prayers, blessings, good wishes,

> candles lit, whatever works - please think of her and send out the good

> energy her way. She needs you now.

>

> Thank you!

>

>

> Love Aisha

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Aisha, my prayers and thoughts are always with Shar, I wish I knew her in person, I have gained great strength from her and you as you just keep on going and going no matter what this disease throws at you and are always helping others. Take care and let Shar know I am praying for her and my thoughts will be that she will be back on her feet and really feeling good. Your friend in Texas, Jeanna

-- Re: A Request for Shar

Marla, unfortunately I am unable to speak to Shar as she is sedated and in

an isolation room. I only speak to her son , and get updates from him on

her progress and on how the family is. I am pretty blunt in what I ask

sometimes however but I do want to know how the kids are. I promised to look

after them.

Rose, I am taking care of myself which is why you havent seen much of me. In

between upping doses of medication I've been sleeping, depressed, sleeping &

depressed. When they said this drug can cause emotional swings they weren't

kidding. If I'm still alive and having these problems by next appointment I

m going to tell my immuno that he is lucky his patient hasn't slashed her

writsts yet. Especially if he so much as mentions weight issues. I might

just cry at him, he can't cope with that. Thank you for lighting me a candle

but please, focus on Shar, she really needs it right now.

Jan, thank you for your love and friendship, I am hanging in here. Again,

please focus on Shar, she is the one who needs the energy. But I so

appreicate your caring.

Love Aisha.

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

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thats all I needed to know. Thank you. 10 years ago I thought this was such a simple disease (if there is such a thing) My God what am I in for? Prayer are with her and her family

Kim

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thats all I needed to know. Thank you. 10 years ago I thought this was such a simple disease (if there is such a thing) My God what am I in for? Prayer are with her and her family

Kim

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Thanks T I guess the toughness I had last week is starting to get smothered by the reality of what is a head in my life My first thought is I dont want my life to change or my husbands or childrens but its too late for that It's changed and soooo out of my control......................................................

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Shar and Shar's family....I think and pray for all of you daily and have asked others to pray, too. lots of love and prayers S.Aisha wrote:

Shar is down to her last few days of Radiation Therapy. This week has beenthe Full Body Radiation treatments and they have been so hard on her frailbody. Twice this week she has had heart troubles and they have had to usethe fibrillates to maintain her heartbeat. She doesn't need to move tointensive care at this point as she has her own private nurse, and she hasnow got an intensive care doctor assigned to her, but things are prettyserious right now. She is at the end of this treatment and told me that they were notgoing to stop the treatment because then they couldn't do the marrowtransplant on Monday and they did not want to have put her through all ofthis for nothing. So I'm asking you to reach into your faith & heart, and please focus some ofthat energy to Shar. She needs your help. Prayers, blessings, good

wishes,candles lit, whatever works - please think of her and send out the goodenergy her way. She needs you now.Thank you!Love Aisha~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Shar and Shar's family....I think and pray for all of you daily and have asked others to pray, too. lots of love and prayers S.Aisha wrote:

Shar is down to her last few days of Radiation Therapy. This week has beenthe Full Body Radiation treatments and they have been so hard on her frailbody. Twice this week she has had heart troubles and they have had to usethe fibrillates to maintain her heartbeat. She doesn't need to move tointensive care at this point as she has her own private nurse, and she hasnow got an intensive care doctor assigned to her, but things are prettyserious right now. She is at the end of this treatment and told me that they were notgoing to stop the treatment because then they couldn't do the marrowtransplant on Monday and they did not want to have put her through all ofthis for nothing. So I'm asking you to reach into your faith & heart, and please focus some ofthat energy to Shar. She needs your help. Prayers, blessings, good

wishes,candles lit, whatever works - please think of her and send out the goodenergy her way. She needs you now.Thank you!Love Aisha~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Kim, here is the last report on Shar. S.Aisha wrote:

Shar is down to her last few days of Radiation Therapy. This week has beenthe Full Body Radiation treatments and they have been so hard on her frailbody. Twice this week she has had heart troubles and they have had to usethe fibrillates to maintain her heartbeat. She doesn't need to move tointensive care at this point as she has her own private nurse, and she hasnow got an intensive care doctor assigned to her, but things are prettyserious right now. She is at the end of this treatment and told me that they were notgoing to stop the treatment because then they couldn't do the marrowtransplant on Monday and they did not want to have put her through all ofthis for nothing. So I'm asking you to reach into your faith & heart, and please focus some ofthat energy to Shar. She needs your help. Prayers, blessings, good

wishes,candles lit, whatever works - please think of her and send out the goodenergy her way. She needs you now.Thank you!Love Aisha~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Kim, here is the last report on Shar. S.Aisha wrote:

Shar is down to her last few days of Radiation Therapy. This week has beenthe Full Body Radiation treatments and they have been so hard on her frailbody. Twice this week she has had heart troubles and they have had to usethe fibrillates to maintain her heartbeat. She doesn't need to move tointensive care at this point as she has her own private nurse, and she hasnow got an intensive care doctor assigned to her, but things are prettyserious right now. She is at the end of this treatment and told me that they were notgoing to stop the treatment because then they couldn't do the marrowtransplant on Monday and they did not want to have put her through all ofthis for nothing. So I'm asking you to reach into your faith & heart, and please focus some ofthat energy to Shar. She needs your help. Prayers, blessings, good

wishes,candles lit, whatever works - please think of her and send out the goodenergy her way. She needs you now.Thank you!Love Aisha~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Kim, she was told a couple of months ago that she had about three months left to live. She is now undergoing chemo and other treatments to prolong her life. She has brain sarc...I believe almost 85% of her brain. And most of her liver has sarc, too, I believe. Aisha knows the most about it and I am sure some of the moderators do , too. She needs alot of prayer to make it through this. This is not her first time with chemo either. May be some others can help to fill you in more. hugs S.casmar38@... wrote:

I read that email on her update but I dont know her story im new to the group does she have sarc what kind. or is this aproblem other than sarc? ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Hey Kim, Glad you asked about Shar, I'm sure alot of others that are new are wondering who she is.... Shar is a long time member of this group, she joined when it was new.., she is one of the most intelligent and down to earth people you would ever want to meet.. she had and showed compassion for all and would give you a good butt jerking if you so needed.. She herself was a doctor and then a psychologist.. she use to come to the chat room quiet often to answer question especially to the new people and help share her knowledge, and her prior experiences with others...yes she is a sarc patient, she's a teacher to her doctors, I'm sorry you didn't get to meet her, those of you that did not, I hope you get the chance....Aisha updates us weekly on her progress through her Live Journal, this is her addy, go there read it, it shares who Shar is, and what she's about.. Family, and that consist of all of us..as does her own children...www.livejournal.com/users/sharranoelle/

We all love Shar, its funny how we have all become family in this group, even though we have never met in person.. we know each others pains, sorrows, heartaches, thoughts, and yes sometimes even victories.. That's what we have managed to do here..Its not for everyone, Some people don't like to know about someone elses Birthday, or their aches and pains... Or if there is a death or a marriage in ones family.. We care...

Hugs and know we care about you too!!

teresa

-- Re: A Request for Shar

I keep hearing this Shar name does she have sarc it sounds extremly serious, or is there an additional problem along with sarc?kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Hey Kim, Glad you asked about Shar, I'm sure alot of others that are new are wondering who she is.... Shar is a long time member of this group, she joined when it was new.., she is one of the most intelligent and down to earth people you would ever want to meet.. she had and showed compassion for all and would give you a good butt jerking if you so needed.. She herself was a doctor and then a psychologist.. she use to come to the chat room quiet often to answer question especially to the new people and help share her knowledge, and her prior experiences with others...yes she is a sarc patient, she's a teacher to her doctors, I'm sorry you didn't get to meet her, those of you that did not, I hope you get the chance....Aisha updates us weekly on her progress through her Live Journal, this is her addy, go there read it, it shares who Shar is, and what she's about.. Family, and that consist of all of us..as does her own children...www.livejournal.com/users/sharranoelle/

We all love Shar, its funny how we have all become family in this group, even though we have never met in person.. we know each others pains, sorrows, heartaches, thoughts, and yes sometimes even victories.. That's what we have managed to do here..Its not for everyone, Some people don't like to know about someone elses Birthday, or their aches and pains... Or if there is a death or a marriage in ones family.. We care...

Hugs and know we care about you too!!

teresa

-- Re: A Request for Shar

I keep hearing this Shar name does she have sarc it sounds extremly serious, or is there an additional problem along with sarc?kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Please let Shar and her family know the she and they are in my

prayers,,,and we are hoping that soon she can be here with us. She

is quickly becoming my strength...

Lynne

Shar is down to her last few days of

Radiation Therapy. This week has been

> the Full Body Radiation treatments and they have been so hard on

her frail

> body. Twice this week she has had heart troubles and they have had

to use

> the fibrillates to maintain her heartbeat. She doesn't need to

move to

> intensive care at this point as she has her own private nurse, and

she has

> now got an intensive care doctor assigned to her, but things are

pretty

> serious right now.

>

> She is at the end of this treatment and told me that they

were not

> going to stop the treatment because then they couldn't do the

marrow

> transplant on Monday and they did not want to have put her through

all of

> this for nothing.

>

> So I'm asking you to reach into your faith & heart, and please

focus some of

> that energy to Shar. She needs your help. Prayers, blessings, good

wishes,

> candles lit, whatever works - please think of her and send out the

good

> energy her way. She needs you now.

>

> Thank you!

>

>

> Love Aisha

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Share on other sites

Please let Shar and her family know the she and they are in my

prayers,,,and we are hoping that soon she can be here with us. She

is quickly becoming my strength...

Lynne

Shar is down to her last few days of

Radiation Therapy. This week has been

> the Full Body Radiation treatments and they have been so hard on

her frail

> body. Twice this week she has had heart troubles and they have had

to use

> the fibrillates to maintain her heartbeat. She doesn't need to

move to

> intensive care at this point as she has her own private nurse, and

she has

> now got an intensive care doctor assigned to her, but things are

pretty

> serious right now.

>

> She is at the end of this treatment and told me that they

were not

> going to stop the treatment because then they couldn't do the

marrow

> transplant on Monday and they did not want to have put her through

all of

> this for nothing.

>

> So I'm asking you to reach into your faith & heart, and please

focus some of

> that energy to Shar. She needs your help. Prayers, blessings, good

wishes,

> candles lit, whatever works - please think of her and send out the

good

> energy her way. She needs you now.

>

> Thank you!

>

>

> Love Aisha

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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We all wish our life wouldn't change, or affect the ones we love, but it does. Talking with your husband and family, and even getting counseling when needed is helpful. My family and husband have been great, it took them awhile to see the seriousness of this disease, but once they did it was easier for all.

Welcome to our family. I don't post everyday, but read just about everyday, so that I can keep all your needs in my prayers, as I am with Shar these days.

God Bless,

Marla

Re: A Request for Shar

Thanks T I guess the toughness I had last week is starting to get smothered by the reality of what is a head in my life My first thought is I dont want my life to change or my husbands or childrens but its too late for that It's changed and soooo out of my control...................................................... ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Faith makes all things possible,Love makes it easy!

Janjanbovi@...

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Marla,

Hi, I don't always post everyday either but I do my best to read the post everyday it really hard right now with all thats going on in my life of course it seems so small in comparison when listening to some of the others here.

I just wanted to let you know how much I appreciate you too. You have always been there for me too as well have many others and I always appreciate your kind words and you many prayers. If I can ever do anything to help you let me know.

You are always in my prayers too.

Love and prayers,

Jan

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.542 / Virus Database: 336 - Release Date: 11/18/03

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Shar, I think this is late in coming but I am always praying and thinking of you, I know you have been through the mill and I hope things get better for you real soon. You have been such a good friend and inspiration to all of us here not to give up and to fight tooth and nail this cruddy mess no matter how it manifest's itself in our bodies. I will as always keep you and your family in my prayers. Take care your friend in Texas, Jeanna

-- Re: A Request for Shar

Please let Shar and her family know the she and they are in my

prayers,,,and we are hoping that soon she can be here with us. She

is quickly becoming my strength...

Lynne

Shar is down to her last few days of

Radiation Therapy. This week has been

> the Full Body Radiation treatments and they have been so hard on

her frail

> body. Twice this week she has had heart troubles and they have had

to use

> the fibrillates to maintain her heartbeat. She doesn't need to

move to

> intensive care at this point as she has her own private nurse, and

she has

> now got an intensive care doctor assigned to her, but things are

pretty

> serious right now.

>

> She is at the end of this treatment and told me that they

were not

> going to stop the treatment because then they couldn't do the

marrow

> transplant on Monday and they did not want to have put her through

all of

> this for nothing.

>

> So I'm asking you to reach into your faith & heart, and please

focus some of

> that energy to Shar. She needs your help. Prayers, blessings, good

wishes,

> candles lit, whatever works - please think of her and send out the

good

> energy her way. She needs you now.

>

> Thank you!

>

>

> Love Aisha

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> Live Group Chat:-

> Mondays & Fridays 10pm EST USA

> http://www.elderwyn.com/neurosarcoidosis/chat.php

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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