Help!

[Guest guest]

Kukalaka:

I'm in Chicago but had a UAE. But, there are very good hospitals in Chicago,

such as Northwestern, University of Chicago, Rush (to name only a few) and I

am certain if you called their referral line and talked, you could find

someone. Chicago is a big town. I found several drs for my husband this way

and also found the IR who did my UAE. Good luck, don't give up!

[Guest guest]

Kukalaka:

I'm in Chicago but had a UAE. But, there are very good hospitals in Chicago,

such as Northwestern, University of Chicago, Rush (to name only a few) and I

am certain if you called their referral line and talked, you could find

someone. Chicago is a big town. I found several drs for my husband this way

and also found the IR who did my UAE. Good luck, don't give up!

[Guest guest]

kukalaka

I've got a myo scheduled with Dr. Koh in Milwaukee, which is not too far

from Chicago. He's reputed to be skilled in laparoscopic surgery, as is the

other doctor in the practice, Dr. Janik. I haven't had surgery yet so I

can't give any first-hand experience yet, but he was very willing to do the

myo. I think he also does a lot of laparoscopic surgery for endometriosis.

Their website is at:

http://www.reproductivecenter.com/index.html

Hope this helps!

[Guest guest]

thank you, I'll check it out!

gaited@... wrote:kukalaka

I've got a myo scheduled with Dr. Koh in Milwaukee, which is not too far

from Chicago. He's reputed to be skilled in laparoscopic surgery, as is the

other doctor in the practice, Dr. Janik. I haven't had surgery yet so I

can't give any first-hand experience yet, but he was very willing to do the

myo. I think he also does a lot of laparoscopic surgery for endometriosis.

Their website is at:

http://www.reproductivecenter.com/index.html

Hope this helps!

[Guest guest]

Would you happen to have that number? I checked for any REs in town and of

course, none. You can see why I now fear UAE here. The GYNs are not sending

anyone over from what I got told today. Do you like your UAE results? Thank you

for your help.

MLic975220@... wrote:Kukalaka:

I'm in Chicago but had a UAE. But, there are very good hospitals in Chicago,

such as Northwestern, University of Chicago, Rush (to name only a few) and I

am certain if you called their referral line and talked, you could find

someone. Chicago is a big town. I found several drs for my husband this way

and also found the IR who did my UAE. Good luck, don't give up!

[Guest guest]

get a new doc. yours does not sound very skilled. or at least get one that

sounds like she is willing to save your uterus if that is what you want. Trust

your instints and do not go in to do anything with your full confidence.

Mine changed their tune from... " it will prob have to be a hyst. " to having

a simple hysterocscopic resection after I downloaded and presented them with a

list of questions that Carls gave me to ask them. They were put on the spot and

so I did not end up being some third year surgical resident's practice patient.

gg

kukalaka wrote:

> Had my gyn appointment today after a 4 week wait. They did another u/s because

the " mid body " didn't mean a whole lot to them.

>

> It reads:

>

> The uterus is normal in size, echogenicity and contour. The endometrium is

thickened and contains a 3.4 x 2.0 x 2.2 cm fibroid. The right overy is normal

in appearace. The left ovary is normal in apperance except for an area of

shadowing at the superior aspect. This is of uncertain etiology.

>

> Thet said the left ovary could be fine. They saw a shadow. Like calcification

or something passing through the bowel. The tech said next week she could scan

and see nothing. Both overies showed fine on the first scan.

>

> First thing said was hyst. I said no hyst. Got " why do you want to keep your

uterus " . I said baby (learned that here). What do you want to do? I said maybe a

resection, myoctomy or UAE, it depended where the fibroid was and what kind. Doc

said I was the first woman to ask for myo or UAE. She said that I wouldn't meet

a woman here who had a myo. They do hysts here. She asked how I knew so much and

I said, online research, group and NUFF. She said she and other docs here were

not skilled in a lap myo so that was out. She said the tumor is more towards the

back and not in the uterine wall deep. The tech thought it was intracavity

totally. She said my options were abdominal myo, UAE ($12,000) or hyst. If there

was a lot of uncontolled bleeding, a hyst.

>

> To say the least I'm concerned about the skill level and did question the

doc's ability. She said she thought this fibroid should easily be scooped out

being most of it's inside the cavity but would do a hyst if there was too much

bleeding. I'm equally concerned about the skill level in UAE also. It's brand

new here and only one IR does it. If this tumor is inside the uterine cavity

mainly and they cut off the blood supply, could it just die and pass on out and

would I hemorage?

>

> I'm horrified at the thought that I wouldn't ever meet another myo patient

here. I doubt that I'd meet a UAE one either. I don't believe that I would have

ever been told about myo or UAE. The doc said she only percribes bc pills and

does hysts as treatments. She said hyst means no more fibroids. I said it can

mean prolaspe problems, sexual dysfunction, bladder problems and that I might be

trading a fibroid problem for a new set of problems and I wasn't interested. I

only have 1 fibroid and it's not considered big. Seems they could easily do

something.

>

> I did tell the doc about Roma's 46 removed and repeated that I only had one.

She said that must have been something to see. Makes one question how soon

Roma's doc did forget or my doc is easily impressed because of her lack of

skills.

>

> I'm in southern Indiana. Any suggestions? Louisville, St louis, Cincinatti,

Indiapolis, Chicago? I need a doc who does myos! HELP!

>

>

>

[Guest guest]

If indeed the fibroid is totally inside your uterus you need to find

a doctor who can perform a hysteroscopic resection. Isn't it insane

that your doctor would suggest major, life altering surgery when you

may be able to get that little bugger out with an outpatient

procedure?!! I was in the same situation about a year and a half ago

and had a resection done last year and have had a huge improvement in

the amount of bleeding, not to mention my pre-period is practically

nonexistent now. Unfortunately it seems that these doctors don't

want to bother to learn these skills when most women take their word

for it and get the hyst.

>The tech thought it was intracavity totally. She said my options

were abdominal myo, UAE ($12,000) or hyst. If there was a lot of

uncontolled bleeding, a hyst.

>

[Guest guest]

Kukalaka,

Post #30179 and 30204 both have referral information for doctors in

Chicago. My doctor is also in the Chicago area. If you would like

to have his contact information, you can email me directly and I will

send it to you or anyone else who would like his info. He's a great

doctor (OB/GYN) from what I've experienced during my miscarriage. He

was a friend of mine doctor and she had nothing but great comments

about him. He's done many surgeries (myos, hyster, d & c, etc.) and

everyone (hospital, staff, surgery dept, patients) I talked to had

nothing but good things to say. That adds some comfort to me

thinking about my myo.

Debbie

[Guest guest]

You're so right. The docs around here don't want to learn any new skills. It's

just bc pills and hysts. It's nuts. The doc wasn't even going to tell me any

other options. Saying most women opt for hysts. The game the doc played went

like this. You need a hyst. Me - I won't have a hyst. Doc - What other treatment

do you want? Me - hysterscope resection, myo or UAE depending on where the

fibroid is. Doc - how do you know about those treatments? Me - online research,

group and NUFF. Then I did another viginal u/s. The tech said the tumor was

inside the uterus. I said great - a resection. The doc said no, it's touching

the wall, maybe inside. The tech went silent after that. So I'm suspicious. I

got the horror story of them digging in my uterus to find my 1 fibroid,

excessive bleeding and a big cut. I replied that skilled surgeons could keep the

bleeding down to a minimal, there were different kinds of myos and they should

have a good ideal where this fibroid is before surgery. Then I got - you could

get another fibroid. With hyst no more fibroids. I replied true but sexual

dysfunction, prolapse problems, hormone problems if they take the overaries,

bladder problems among others. I told her that I could be trading one set of

problems for another and there was no way. The women here " choose " hysts because

they don't know they have options. It should be against the law. It makes me

angry. By the way, we have 2 new women's hospitals here. I was at the newest.

Too bad they don't have skilled docs for the new women's hospitals.

[Guest guest]

Could someone e-mail me back personally to help me with access to the

archives! Thanks