Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Those look like they are just dipstick test numbers, from dipping a little measuring stick in a urine sample, rather than from a full urine analysis. It changes colour depending on how much blood or protein there is in it. If so, these numbers are not really that meaningful, as the dipstick test done in the doctor's office is only very approximate. The protein/creatinine ratio is what they commonly use now to avoid having to have kids collect urine for 24 hours. 's is a little elevated. Those numbers seems pretty mild though. Books? Anything you could ever want to know is found on the internet somewhere, if it's not already on www.igan.ca . If you go down the page when you go to www.igan.ca , you will see a search box there. You can search the website only, or the whole internet from there. Pierre Called the doctor > > > Hi everyone, well I called the doctor and they called me back, > 's levels are > > Protien 1+ > Blood 2+ > > Protien/cret 0.72 > > They did tell me that normal for protien/cret is 0.2 > > The nurse told me that it was what the doctor was expecting and that > the doctor will talk to us about her levels when we see them in 3 > weeks. What do you guys think. Her protien and blood aren't going > down, of course nether is the cretitian level. I don't know. Are > there any books out there that I could buy that would explain all > this too me?? > > Thanks everyone Lori > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Thank you, I was wondering about the blood and protien and whether it was from the dipstick or the blood that they drew. I have to tell you, loves 's Tomato soup and I called the s Company they make soups that are low in sodium Tomato 1 can 50mg Cream of Mush 1 can 65mg I asked where I could buy it for my daughter after looking under my zip code the closest one was 98 miles away, so the customer service rep put me on hold and when she came back she asked for my phone number, address and full name. s is sending a case of each of their low sodium soups. I couldn't believe it, what a company. Lori > Those look like they are just dipstick test numbers, from dipping a little > measuring stick in a urine sample, rather than from a full urine analysis. > It changes colour depending on how much blood or protein there is in it. If > so, these numbers are not really that meaningful, as the dipstick test done > in the doctor's office is only very approximate. The protein/creatinine > ratio is what they commonly use now to avoid having to have kids collect > urine for 24 hours. 's is a little elevated. Those numbers seems > pretty mild though. > > Books? Anything you could ever want to know is found on the internet > somewhere, if it's not already on www.igan.ca . If you go down the page when > you go to www.igan.ca , you will see a search box there. You can search the > website only, or the whole internet from there. > > Pierre > > > Called the doctor > > > > > > > > Hi everyone, well I called the doctor and they called me back, > > 's levels are > > > > Protien 1+ > > Blood 2+ > > > > Protien/cret 0.72 > > > > They did tell me that normal for protien/cret is 0.2 > > > > The nurse told me that it was what the doctor was expecting and that > > the doctor will talk to us about her levels when we see them in 3 > > weeks. What do you guys think. Her protien and blood aren't going > > down, of course nether is the cretitian level. I don't know. Are > > there any books out there that I could buy that would explain all > > this too me?? > > > > Thanks everyone Lori > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Thanks for the info on the soup - my favorite soup in the whole world is 's tomato soup and I thought I couldn't have it anymore since I'm on low-sodium. I'll have to look in my grocery store to see if they carry it. Thanks again. Deb Called the doctor >> >> >> > >> > >> > Hi everyone, well I called the doctor and they called me back, >> > 's levels are >> > >> > Protien 1+ >> > Blood 2+ >> > >> > Protien/cret 0.72 >> > >> > They did tell me that normal for protien/cret is 0.2 >> > >> > The nurse told me that it was what the doctor was expecting and > that >> > the doctor will talk to us about her levels when we see them in 3 >> > weeks. What do you guys think. Her protien and blood aren't > going >> > down, of course nether is the cretitian level. I don't know. > Are >> > there any books out there that I could buy that would explain all >> > this too me?? >> > >> > Thanks everyone Lori >> > >> > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hi Lori, The blood and protein will fluctuate somewhat. The protein/creatinine ratio gives you an idea of what the current 24 hour proteinuria is, in this case that would be: 720 mg a day, which is not bad for someone with kidney disease (nephrotic syndrome is at about 3500 mg . day) What was her proteinuria when she was diagnosed? Best wishes to you and , and good job getting all that low sodium soup from 's! -beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hi Lori, I just want to second Pierre's comments. Dipstick test numbers are useful, but they have a limited value. If the dipstick test is off, you can generally assume something may be wrong. However, they only provide an armwaving estimate - and with respect to hematuria, a frequently inaccurate one at that. A more accurate measure is the protein:creatine ratio. Here, urine creatinine is used as a standard (because it rarely wavers) compared to urine protein (which can fluctuate with respect to hydration and other factors). The result is a very accurate measure. The last measure of urine protein - a 24 urine - is probably the most accurate. However this is a phenomenal drag for only slightly improved information. Holding out for this kind of test is generally not a wise move. As Pierre pointed out, 's protein;creatine ratio is a bit high. This is something you want to get down. Proteins are big complex molecules - filtering them through the glomeruli damages the glomeruli (rather like trying to filter gravel through a very fine sieve). It may take a bit of time to get her protein down. For example, it took about a month to respond to treatment. On the other hand, I think Crystal's daughter April took months and months to respond. Shortly after was diagnosed, his protein:creatinine ratio was 6.0 (this is very, very high). Presently, his protein:creatine ratio has been bounced around undetectable to 0.35. I offer these numbers by way of comparison. As I indicated, you will probably want to get 's protein:creatinine ratio down, but it is not presenting an emergency situation. Cy Pierre Lachaine wrote: Those look like they are just dipstick test numbers, from dipping a little measuring stick in a urine sample, rather than from a full urine analysis. It changes colour depending on how much blood or protein there is in it. If so, these numbers are not really that meaningful, as the dipstick test done in the doctor's office is only very approximate. The protein/creatinine ratio is what they commonly use now to avoid having to have kids collect urine for 24 hours. 's is a little elevated. Those numbers seems pretty mild though. Books? Anything you could ever want to know is found on the internet somewhere, if it's not already on www.igan.ca . If you go down the page when you go to www.igan.ca , you will see a search box there. You can search the website only, or the whole internet from there. Pierre Called the doctor > > > Hi everyone, well I called the doctor and they called me back, > 's levels are > > Protien 1+ > Blood 2+ > > Protien/cret 0.72 > > They did tell me that normal for protien/cret is 0.2 > > The nurse told me that it was what the doctor was expecting and that > the doctor will talk to us about her levels when we see them in 3 > weeks. What do you guys think. Her protien and blood aren't going > down, of course nether is the cretitian level. I don't know. Are > there any books out there that I could buy that would explain all > this too me?? > > Thanks everyone Lori > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 What can I do to get it down. The doctor is weaning her off her predisone, she was taking 80mg a day and now is taking 60mg every other day. Also the doctor did put her on a low-sodium diet 2000mg to 2500mg and she averages about 1700mg a day. If you have any suggestions I would love to hear them. Thank you Lori > > Those look like they are just dipstick test numbers, from dipping a little > measuring stick in a urine sample, rather than from a full urine analysis. > It changes colour depending on how much blood or protein there is in it. If > so, these numbers are not really that meaningful, as the dipstick test done > in the doctor's office is only very approximate. The protein/creatinine > ratio is what they commonly use now to avoid having to have kids collect > urine for 24 hours. 's is a little elevated. Those numbers seems > pretty mild though. > > Books? Anything you could ever want to know is found on the internet > somewhere, if it's not already on www.igan.ca . If you go down the page when > you go to www.igan.ca , you will see a search box there. You can search the > website only, or the whole internet from there. > > Pierre > > > Called the doctor > > > > > > > > Hi everyone, well I called the doctor and they called me back, > > 's levels are > > > > Protien 1+ > > Blood 2+ > > > > Protien/cret 0.72 > > > > They did tell me that normal for protien/cret is 0.2 > > > > The nurse told me that it was what the doctor was expecting and that > > the doctor will talk to us about her levels when we see them in 3 > > weeks. What do you guys think. Her protien and blood aren't going > > down, of course nether is the cretitian level. I don't know. Are > > there any books out there that I could buy that would explain all > > this too me?? > > > > Thanks everyone Lori > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 What can I do to get it down. The doctor is weaning her off her predisone, she was taking 80mg a day and now is taking 60mg every other day. Also the doctor did put her on a low-sodium diet 2000mg to 2500mg and she averages about 1700mg a day. If you have any suggestions I would love to hear them. Thank you Lori > > Those look like they are just dipstick test numbers, from dipping a little > measuring stick in a urine sample, rather than from a full urine analysis. > It changes colour depending on how much blood or protein there is in it. If > so, these numbers are not really that meaningful, as the dipstick test done > in the doctor's office is only very approximate. The protein/creatinine > ratio is what they commonly use now to avoid having to have kids collect > urine for 24 hours. 's is a little elevated. Those numbers seems > pretty mild though. > > Books? Anything you could ever want to know is found on the internet > somewhere, if it's not already on www.igan.ca . If you go down the page when > you go to www.igan.ca , you will see a search box there. You can search the > website only, or the whole internet from there. > > Pierre > > > Called the doctor > > > > > > > > Hi everyone, well I called the doctor and they called me back, > > 's levels are > > > > Protien 1+ > > Blood 2+ > > > > Protien/cret 0.72 > > > > They did tell me that normal for protien/cret is 0.2 > > > > The nurse told me that it was what the doctor was expecting and that > > the doctor will talk to us about her levels when we see them in 3 > > weeks. What do you guys think. Her protien and blood aren't going > > down, of course nether is the cretitian level. I don't know. Are > > there any books out there that I could buy that would explain all > > this too me?? > > > > Thanks everyone Lori > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Wow Lori, that's so awesome! I know that 's produces low sodium broth now which they sell in the grocery stores, but I did not realize they have low sodium soups, never mind send them! I think I will talk to them too...hope they can do the same in Canada.... Sophia > > Those look like they are just dipstick test numbers, from dipping > a little > > measuring stick in a urine sample, rather than from a full urine > analysis. > > It changes colour depending on how much blood or protein there is > in it. If > > so, these numbers are not really that meaningful, as the dipstick > test done > > in the doctor's office is only very approximate. The > protein/creatinine > > ratio is what they commonly use now to avoid having to have kids > collect > > urine for 24 hours. 's is a little elevated. Those numbers > seems > > pretty mild though. > > > > Books? Anything you could ever want to know is found on the > internet > > somewhere, if it's not already on www.igan.ca . If you go down the > page when > > you go to www.igan.ca , you will see a search box there. You can > search the > > website only, or the whole internet from there. > > > > Pierre > > > > > > Called the doctor > > > > > > > > > > > > > Hi everyone, well I called the doctor and they called me back, > > > 's levels are > > > > > > Protien 1+ > > > Blood 2+ > > > > > > Protien/cret 0.72 > > > > > > They did tell me that normal for protien/cret is 0.2 > > > > > > The nurse told me that it was what the doctor was expecting and > that > > > the doctor will talk to us about her levels when we see them in 3 > > > weeks. What do you guys think. Her protien and blood aren't > going > > > down, of course nether is the cretitian level. I don't know. > Are > > > there any books out there that I could buy that would explain all > > > this too me?? > > > > > > Thanks everyone Lori > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 First off, low sodium won't touch it - and there it bears repeating there is no sense going way low with that one. That's a blood pressure thing, not a urine protein thing. A woman name Crystal who used to frequent this board has a daughter named April who was on prednisone for what seemed to be a very long time ( 5-6 months? Longer? My memory is fuzzy) before prednisone kicked in and brought the protein down.- although usually it tends not to take quite so long. I can understand why your doc tweaked the dose down from 80 mg because that it a pretty hefty dose. There's no reason why an extended period of 60 mg - or even a bit less wouldn't turn the trick. Ace inhibitors also help. I know you want everything better now, but a bit of patience helps. Some parents on nephkids have reported success with a particular preparation of prednisone when other different preparations have failed. If all else fails, there are other heavy hitting drugs (i.e. cyclosporine) if the pred doesn't do the trick, but they really aren't applicable for proteinuria that low - and you certainly don't want to go there without having exhausted options. One of the problems with chronic disease, is it calls for lots of patience. Cy Called the doctor > > > > > > > > > > > > > Hi everyone, well I called the doctor and they called me back, > > > 's levels are > > > > > > Protien 1+ > > > Blood 2+ > > > > > > Protien/cret 0.72 > > > > > > They did tell me that normal for protien/cret is 0.2 > > > > > > The nurse told me that it was what the doctor was expecting and > that > > > the doctor will talk to us about her levels when we see them in 3 > > > weeks. What do you guys think. Her protien and blood aren't going > > > down, of course nether is the cretitian level. I don't know. Are > > > there any books out there that I could buy that would explain all > > > this too me?? > > > > > > Thanks everyone Lori > > > > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely > supported by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 I agree with Cy, it takes a lot of patience. I'm an adult and just finished my prednisone treatment completely....it took 3 months of the pred in my case before there was an effect on the proteinuria and the blood in the urine. Sophia > > > > > > Those look like they are just dipstick test numbers, from dipping > > a little > > > measuring stick in a urine sample, rather than from a full urine > > analysis. > > > It changes colour depending on how much blood or protein there is > > in it. If > > > so, these numbers are not really that meaningful, as the dipstick > > test done > > > in the doctor's office is only very approximate. The > > protein/creatinine > > > ratio is what they commonly use now to avoid having to have kids > > collect > > > urine for 24 hours. 's is a little elevated. Those numbers > > seems > > > pretty mild though. > > > > > > Books? Anything you could ever want to know is found on the > > internet > > > somewhere, if it's not already on www.igan.ca . If you go down the > > page when > > > you go to www.igan.ca , you will see a search box there. You can > > search the > > > website only, or the whole internet from there. > > > > > > Pierre > > > > > > > > > Called the doctor > > > > > > > > > > > > > > > > > > Hi everyone, well I called the doctor and they called me back, > > > > 's levels are > > > > > > > > Protien 1+ > > > > Blood 2+ > > > > > > > > Protien/cret 0.72 > > > > > > > > They did tell me that normal for protien/cret is 0.2 > > > > > > > > The nurse told me that it was what the doctor was expecting and > > that > > > > the doctor will talk to us about her levels when we see them in 3 > > > > weeks. What do you guys think. Her protien and blood aren't going > > > > down, of course nether is the cretitian level. I don't know. Are > > > > there any books out there that I could buy that would explain all > > > > this too me?? > > > > > > > > Thanks everyone Lori > > > > > > > > > > > > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > > supported by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 I wouldn't worry too much about the low sodium part. That's to help with BP control. 720 mg protein/24 hours is not that bad, it really isn't. And the prednisone is working, just it takes time. Is on an ACE inhibitor or ARB drug? If so, then there is nothing else to do but wait- but really it doesn't sound bad at all. I had similar numbers about a year ago and my neph said, " get out of here! You're healthy as a horse! " - so I stopped worrying about it. Only when my protein got up to around 3,500 mg again did she start to worry and then we worked together to get it back under control. When you're first diagnosed you tend to worry about it alot, then as you go along you realize that as long as you're being monitored and not doing anything that could hurt your kidneys, you pretty much live a normal life. -beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 You would be better off just making your own soup at home without adding salt. As I've posted before, I use Luda brand no sodium soup base mix (recommended by the renal dieticians). In my case, since I'm on dialysis, I do have to limit my potassium, so I boil any veggies separately and drain them before I put them in the soup. Mind you, saltless soup isn't the tastiest thing in the world. Pierre Re: Called the doctor > > > Wow Lori, that's so awesome! I know that 's produces low > sodium broth now which they sell in the grocery stores, but I did > not realize they have low sodium soups, never mind send them! I > think I will talk to them too...hope they can do the same in > Canada.... > > Sophia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 Amen to that. And it also calls for some reasonable trusting that our doctors know what they are doing when they are adjusting doses of things. Pierre Re: Called the doctor [snipped] > > One of the problems with chronic disease, is it calls for lots of patience. > > Cy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 Hi Lori, As others have responded, the dipstick readings of +1 and +2 are not precise, but the ratio is not too bad at all. My ratios range from 1.5 to 2.5. I think my Neph would do backflips if I got down to 0.72 :-) There is a good website that I will put the link here for that gives information on normal values that will probably be more helpful than any book you can buy. Any information can be easily found on the Internet, and that is free! I also wanted to underscore that should not be limited on potassium without checking with her doctor first. Since we have so many new members, this is a good time to send out a reminder that no member should start any renal diet without consulting with their nephrologist because the diet needs to be in accordance with your particular lab results. What is good for one person may be harmful for another depending on how progressed your renal disease is and what your individual labs are. I am pleased that is doing so well though. In a message dated 1/4/2005 8:02:38 PM Pacific Standard Time, littlell523@... writes: > Hi everyone, well I called the doctor and they called me back, > 's levels are > > Protien 1+ > Blood 2+ > > Protien/cret 0.72 > > They did tell me that normal for protien/cret is 0.2 > > The nurse told me that it was what the doctor was expecting and that > the doctor will talk to us about her levels when we see them in 3 > weeks. What do you guys think. Her protien and blood aren't going > down, of course nether is the cretitian level. I don't know. Are > there any books out there that I could buy that would explain all > this too me?? > > Thanks everyone Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 Boy, you must have been biting nails Sophia! Three months is a long time. I think that wait was one of the higher stress times that surrounded 's diagnosis. We started to get relatively small changes maybe 1.5 - 2.0 months after the pred IVs. I was pretty down in the dumps about it because MPGN kids can be pretty steroid resistant. I think we were just about the same as you - by three months, both the proteinuria and complement had more or less normalized. Cyu Called the doctor > > > > > > > > > > > > > > > > > > > > > > > Hi everyone, well I called the doctor and they called me > back, > > > > > 's levels are > > > > > > > > > > Protien 1+ > > > > > Blood 2+ > > > > > > > > > > Protien/cret 0.72 > > > > > > > > > > They did tell me that normal for protien/cret is 0.2 > > > > > > > > > > The nurse told me that it was what the doctor was expecting > and > > > that > > > > > the doctor will talk to us about her levels when we see them > in 3 > > > > > weeks. What do you guys think. Her protien and blood aren't > going > > > > > down, of course nether is the cretitian level. I don't know. > Are > > > > > there any books out there that I could buy that would > explain all > > > > > this too me?? > > > > > > > > > > Thanks everyone Lori > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > > home page: > > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > > > To unsubcribe via email, > > > > iga-nephropathy-unsubscribe > > > > Visit our companion website at www.igan.ca. The site is > entirely > > > supported by donations. If you would like to help, go to: > > > > http://www.igan.ca/id62.htm > > > > > > > > Thank you > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 Boy, you must have been biting nails Sophia! Three months is a long time. I think that wait was one of the higher stress times that surrounded 's diagnosis. We started to get relatively small changes maybe 1.5 - 2.0 months after the pred IVs. I was pretty down in the dumps about it because MPGN kids can be pretty steroid resistant. I think we were just about the same as you - by three months, both the proteinuria and complement had more or less normalized. Cyu Called the doctor > > > > > > > > > > > > > > > > > > > > > > > Hi everyone, well I called the doctor and they called me > back, > > > > > 's levels are > > > > > > > > > > Protien 1+ > > > > > Blood 2+ > > > > > > > > > > Protien/cret 0.72 > > > > > > > > > > They did tell me that normal for protien/cret is 0.2 > > > > > > > > > > The nurse told me that it was what the doctor was expecting > and > > > that > > > > > the doctor will talk to us about her levels when we see them > in 3 > > > > > weeks. What do you guys think. Her protien and blood aren't > going > > > > > down, of course nether is the cretitian level. I don't know. > Are > > > > > there any books out there that I could buy that would > explain all > > > > > this too me?? > > > > > > > > > > Thanks everyone Lori > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > > home page: > > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > > > To unsubcribe via email, > > > > iga-nephropathy-unsubscribe > > > > Visit our companion website at www.igan.ca. The site is > entirely > > > supported by donations. If you would like to help, go to: > > > > http://www.igan.ca/id62.htm > > > > > > > > Thank you > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 Like someone said, you're not paying for the time expended in that 5 minute visit, you're paying for the years of experience that preceded it. Cy Re: Called the doctor > > > [snipped] > > > > One of the problems with chronic disease, is it calls for lots of > patience. > > > > Cy > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 Like someone said, you're not paying for the time expended in that 5 minute visit, you're paying for the years of experience that preceded it. Cy Re: Called the doctor > > > [snipped] > > > > One of the problems with chronic disease, is it calls for lots of > patience. > > > > Cy > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Hi Pierre, I agree with you, the ideal soup is the one you can make at home from scratch, so that you can control the amt of sodium used (if at all). My husband makes the most awesome soup broth in the world, despite the lack of sodium, if I may say so. ; ) However, both my husband and I are busy pple and don't often have enough time at home to make broth, and so we have gone with 's reduced sodium soup broth (only reduced by 25%, but hey, I'll take any reduction). I also looked at the ingredients, and I believe that they use yeast not potassium to make it " salty " . Yeast I understand is ok as a salt substitute. If s had low sodium soup too, it would be great to have once in a while, although I doubt it will change our preferences for homemade broth. I will also try out this Luda brand also, thanks for the suggestion. No sodium but quick preparation is a sure winner for us. Sophia > You would be better off just making your own soup at home without adding > salt. As I've posted before, I use Luda brand no sodium soup base mix > (recommended by the renal dieticians). In my case, since I'm on dialysis, I > do have to limit my potassium, so I boil any veggies separately and drain > them before I put them in the soup. Mind you, saltless soup isn't the > tastiest thing in the world. > Pierre > > Re: Called the doctor > > > > > > > > Wow Lori, that's so awesome! I know that 's produces low > > sodium broth now which they sell in the grocery stores, but I did > > not realize they have low sodium soups, never mind send them! I > > think I will talk to them too...hope they can do the same in > > Canada.... > > > > Sophia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Hi Pierre, I agree with you, the ideal soup is the one you can make at home from scratch, so that you can control the amt of sodium used (if at all). My husband makes the most awesome soup broth in the world, despite the lack of sodium, if I may say so. ; ) However, both my husband and I are busy pple and don't often have enough time at home to make broth, and so we have gone with 's reduced sodium soup broth (only reduced by 25%, but hey, I'll take any reduction). I also looked at the ingredients, and I believe that they use yeast not potassium to make it " salty " . Yeast I understand is ok as a salt substitute. If s had low sodium soup too, it would be great to have once in a while, although I doubt it will change our preferences for homemade broth. I will also try out this Luda brand also, thanks for the suggestion. No sodium but quick preparation is a sure winner for us. Sophia > You would be better off just making your own soup at home without adding > salt. As I've posted before, I use Luda brand no sodium soup base mix > (recommended by the renal dieticians). In my case, since I'm on dialysis, I > do have to limit my potassium, so I boil any veggies separately and drain > them before I put them in the soup. Mind you, saltless soup isn't the > tastiest thing in the world. > Pierre > > Re: Called the doctor > > > > > > > > Wow Lori, that's so awesome! I know that 's produces low > > sodium broth now which they sell in the grocery stores, but I did > > not realize they have low sodium soups, never mind send them! I > > think I will talk to them too...hope they can do the same in > > Canada.... > > > > Sophia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 Hi Cy, Yes, 3 months was a very long time! But my neph warned me at the first prednisone followup appt that it would take at least that long before any result showed, if at all. So I tried to worry less. As it was, I had other issues meantime to keep me occupied, the increasingly high bp, the glaucoma, the acne. Sophia > > > > > > > > > > Those look like they are just dipstick test numbers, from > > dipping > > > > a little > > > > > measuring stick in a urine sample, rather than from a full > > urine > > > > analysis. > > > > > It changes colour depending on how much blood or protein there > > is > > > > in it. If > > > > > so, these numbers are not really that meaningful, as the > > dipstick > > > > test done > > > > > in the doctor's office is only very approximate. The > > > > protein/creatinine > > > > > ratio is what they commonly use now to avoid having to have > > kids > > > > collect > > > > > urine for 24 hours. 's is a little elevated. Those > > numbers > > > > seems > > > > > pretty mild though. > > > > > > > > > > Books? Anything you could ever want to know is found on the > > > > internet > > > > > somewhere, if it's not already on www.igan.ca . If you go down > > the > > > > page when > > > > > you go to www.igan.ca , you will see a search box there. You > > can > > > > search the > > > > > website only, or the whole internet from there. > > > > > > > > > > Pierre > > > > > > > > > > > > > > > Called the doctor > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi everyone, well I called the doctor and they called me > > back, > > > > > > 's levels are > > > > > > > > > > > > Protien 1+ > > > > > > Blood 2+ > > > > > > > > > > > > Protien/cret 0.72 > > > > > > > > > > > > They did tell me that normal for protien/cret is 0.2 > > > > > > > > > > > > The nurse told me that it was what the doctor was expecting > > and > > > > that > > > > > > the doctor will talk to us about her levels when we see them > > in 3 > > > > > > weeks. What do you guys think. Her protien and blood aren't > > going > > > > > > down, of course nether is the cretitian level. I don't know. > > Are > > > > > > there any books out there that I could buy that would > > explain all > > > > > > this too me?? > > > > > > > > > > > > Thanks everyone Lori > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > > > home page: > > > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > > > > > To unsubcribe via email, > > > > > iga-nephropathy-unsubscribe > > > > > Visit our companion website at www.igan.ca. The site is > > entirely > > > > supported by donations. If you would like to help, go to: > > > > > http://www.igan.ca/id62.htm > > > > > > > > > > Thank you > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 Yes, there are certain specific kinds of yeast that actually taste a little salty, without being any kind of salt. Those are Ok. I've mentioned it on the group before, but if you go to your local health food store, you should be able to pick up a shaker of " Vegit " . This is a yeast-based salt substitute. It actually tastes a bit salty. It has a bit of a special taste, but, on some foods, it's tastes pretty good. I like it on vegetables, mashed potatoes, egg salad, etc. It's a perfectly acceptable product for a renal diet. With regard to commercial low sodium soups, as someone else already mentioned, you do have to watch out that they don't use potassium salt in them. They might not necessarily put it on the label. Potassium salt COULD BE A PROBLEM even for people who don't otherwise have to watch their potassium - because it would be kind of the same as being on an ACE inhibitor and using a product like NoSalt, which is mostly potassium chloride. That could potentially elevate potassium to dangerous levels. For any product like that, I would phone the 1-800 number for nutritional information. They should be able to tell you the potassium content. Pierre Re: Called the doctor > > > Hi Pierre, > > I agree with you, the ideal soup is the one you can make at home > from scratch, so that you can control the amt of sodium used (if at > all). My husband makes the most awesome soup broth in the world, > despite the lack of sodium, if I may say so. ; ) > > However, both my husband and I are busy pple and don't often have > enough time at home to make broth, and so we have gone with > 's reduced sodium soup broth (only reduced by 25%, but hey, > I'll take any reduction). I also looked at the ingredients, and I > believe that they use yeast not potassium to make it " salty " . Yeast > I understand is ok as a salt substitute. > > If s had low sodium soup too, it would be great to have once > in a while, although I doubt it will change our preferences for > homemade broth. > > I will also try out this Luda brand also, thanks for the > suggestion. No sodium but quick preparation is a sure winner for us. > > Sophia > Quote Link to comment Share on other sites More sharing options...
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