Re: Introduction and Questions, Questions

[Guest guest]

Janet,

Check your email. I sent you a loooong reply in there. Didn't want to take up a lot of space in the group.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Introduction and Questions, Questions

Hello all,I am a new member and have been lurking for about 2 weeks. I was just diagnosed with infiltrating ductal carcinoma of the left breast, grade 2, stage not yet determined, no palpable lymph nodes, ER and PR postive, HER-2 negative. Based on the size of the tumor (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be having chemo after surgery.Really, I'm still in a state of shock as I had a needle aspiration in the ob/gyn's office with pathology results of "benign fibroadenoma". I did my recommended follow-up mammogram and ultrasound the following week, and the radiologist was waffling on whether to go ahead with a core biopsy as most of the tumor was round, but there were a few "funny looking edges". I said if there was any question, let's jut do it. Then, "the call". Then the FEAR set in.I have so many questions and I hope you will indulge me with my long email. I am looking to anyone in the group who is willing to GENEROUSLY share their experience and opinions.FEAR - How do you all conquer and control the fear? I have purchased a few meditational tapes by Bernie Siegel which do help a bit. But I'm not by nature a positive person, I wish I was!, and I am overly analytical. I need to get this fear under control!SURGERY DECISIONS - I have met with 2 surgeons who have offered up lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go forward with the lumpectomy, an MRI is recommended to rule out other tumors and confirm the size of the tumor in relation to the size of my breasts (I'm on the small side.) I've read various pros and cons regarding the MRI and am concerned that it will show a lot of false positives.The surgeon that I like the best is the one who offered up the bi-lateral masectomy based on the density of my breasts. She said that it will be an ongoing challenge to find any other tumors even with ultrasound and/or MRI. I posed the "if it were you" scenario, and she said that she has a history of breast cancer in her family but her mammograms are readable, but she would go forward with the bi-lateral masectomy. On the other hand, I've read that lumpectomy + radiation is actually more aggressive in treatment. Masectomy apparently still has a possibility of cancer recurrence in the scar or chest as well.Since I am PR/ER positive, I am assuming that I will be put on an estrogen-blocker at some point. I read that estrogen-blockers decrease the density of breast tissue. Has anyone proceeded with a bi-lateral masectomy due to dense breasts? This is an absolutely mind-boggling decision and I'd love to hear some of your experiences.A GREAT BIG THANK YOU and HUGS to those who post! I have found a lot of comfort in reading your posts and great information and resources.Janet B.Hi to the other Janet; I've never met anyone else with our name! (smile)

[Guest guest]

Janet,

Sorry to hear you joined the group... ok, didn't mean that the way it sounded, just sorry to hear you joined the group because you have bc but glad to know you were able to find this group. It is the best.

I, too, had a needle biopsy in the surgeon's office that came back negative and was in shock with the core biopsy as it came back positive.

Fear is common, can't imagine any of us that weren't or aren't afraid of this disease and the outcome or afraid it will come back. Just don't let fear rule your life. I've always been a 'glass half full' person and yet I think I've done pretty good keeping a positive attitude. Doesn't mean I don't have my days. I allow myself time to FEAR, to MOURN, to CRY and then I move on. No one asked for this diagnosis, we have little control over what will be. I have a faith in God that He knows what He's doing, even if I don't. For whatever reason, this is the path I am suppose to follow. Any other path isn't mine and I would go that path alone. I don't know a magic way to get FEAR undercontrol. I'd say accept it and move on. Use your energy to fight this disease.

I don't know how accurate the MRI is. I didn't have one and wish I had. I had a lumpectomy first and then another tumor showed up so I had a mastectomy which showed lots of other tumors (or many nodules connected). If I had known that, I would have gone right to the mastectomy, saved myself the first surgery and additional biopsy and time in getting this treatment started. The mammogram only showed one tumor. If I had had an MRI and it showed only 1 tumor (even if there were more) I would still have started with the lumpectomy and nothing would have changed. So I guess what I'm saying, is I'd get the MRI and see what it says and then make my decision.

I did not go for a bi-lateral. I was informed by the surgeon that instead of going in for another lumpectomy he wanted to do a mastectomy and I basically had a couple hours to give him my answer as surgery was already scheduled for the next day. I was in shock and very upset... no preparation, so I didn't even think about doing both. At times, I think it would be nice not to worry about bras and breasts, but I suspect I'd still have only gone with the one. My left (the one removed) has always given me problems with being dense, the other not as much.

Have you talked to an Oncologist? He/She may give you a better idea of what treatment is required with a lumpectomy on a 1.9 cm tumor. I was told by my surgeon that if the margins were clean on the lumpectomy and no lymph nodes were involved, I would not need chemo. Unfortunately, lymph nodes were involved and I am currently in the middle of chemo treatments.

Since I am ER/PR- I cannot have hormone therapy... it won't help. But plenty of women here do take hormone therapy and I'm sure you'll get some help there.

Sounds like you are currently in the state of ALL QUESTIONS, which we have all gone through (and I am still going through). Take a deep breath. You'll get a lot of help here and remember, we are all in various stages of this treatment. We all react differently to treatment, but you'll get many of your questions answered and lots and lots of support. Keep a positive outlook, keep your head up and you'll do just fine. You'll find you are a lot stronger than you think you are. Good Luck. I'll keep you in my prayers.

Barb

Introduction and Questions, Questions

Hello all,I am a new member and have been lurking for about 2 weeks. I was just diagnosed with infiltrating ductal carcinoma of the left breast, grade 2, stage not yet determined, no palpable lymph nodes, ER and PR postive, HER-2 negative. Based on the size of the tumor (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be having chemo after surgery.Really, I'm still in a state of shock as I had a needle aspiration in the ob/gyn's office with pathology results of "benign fibroadenoma". I did my recommended follow-up mammogram and ultrasound the following week, and the radiologist was waffling on whether to go ahead with a core biopsy as most of the tumor was round, but there were a few "funny looking edges". I said if there was any question, let's jut do it. Then, "the call". Then the FEAR set in.I have so many questions and I hope you will indulge me with my long email. I am looking to anyone in the group who is willing to GENEROUSLY share their experience and opinions.FEAR - How do you all conquer and control the fear? I have purchased a few meditational tapes by Bernie Siegel which do help a bit. But I'm not by nature a positive person, I wish I was!, and I am overly analytical. I need to get this fear under control!SURGERY DECISIONS - I have met with 2 surgeons who have offered up lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go forward with the lumpectomy, an MRI is recommended to rule out other tumors and confirm the size of the tumor in relation to the size of my breasts (I'm on the small side.) I've read various pros and cons regarding the MRI and am concerned that it will show a lot of false positives.The surgeon that I like the best is the one who offered up the bi-lateral masectomy based on the density of my breasts. She said that it will be an ongoing challenge to find any other tumors even with ultrasound and/or MRI. I posed the "if it were you" scenario, and she said that she has a history of breast cancer in her family but her mammograms are readable, but she would go forward with the bi-lateral masectomy. On the other hand, I've read that lumpectomy + radiation is actually more aggressive in treatment. Masectomy apparently still has a possibility of cancer recurrence in the scar or chest as well.Since I am PR/ER positive, I am assuming that I will be put on an estrogen-blocker at some point. I read that estrogen-blockers decrease the density of breast tissue. Has anyone proceeded with a bi-lateral masectomy due to dense breasts? This is an absolutely mind-boggling decision and I'd love to hear some of your experiences.A GREAT BIG THANK YOU and HUGS to those who post! I have found a lot of comfort in reading your posts and great information and resources.Janet B.Hi to the other Janet; I've never met anyone else with our name! (smile)

[Guest guest]

Janet B.

I hear ya! I have yet to find my inner Polly . Sounds like you

are in the same boat I was last January. Infiltrating, stage 2. I

also have dense breasts (this 2.4 cm mass hid behind that density for

a good long time) that are VERY small. Have the MRI. It accurately

defined my tumor within 4mm. I had a mastectomy, no choice, with

sentinel node biopsy, March 29th. The nodes were clear. The

oncologist offered chemo. I declined because the type offered can

have effects on the heart and congestive heart failure runs in the

family. He did a computer generated profile on me taking into

consideration my unique set of circumstances age, size of tumor

Estrogen +, clear nodes and it turns out the chemo would have only

increased my 10 year chance of disease free survival by 2%! The

Aromatase inhibitor (Arimidex) gave me a 17% better chance. (both

together 19%) The aromatase inhibitor prevents your body from making

estrogen and is for post menopausal women. Needless to say I went

with JUST the Arimidex! Do your research and trust your gut. Do not

be talked into anything you are not comfortable with. It is your

life, your body and most importantly your quality of life!

Ruth

>

> Hello all,

>

> I am a new member and have been lurking for about 2 weeks. I was

> just diagnosed with infiltrating ductal carcinoma of the left

> breast, grade 2, stage not yet determined, no palpable lymph nodes,

> ER and PR postive, HER-2 negative. Based on the size of the tumor

> (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be

> having chemo after surgery.

>

> Really, I'm still in a state of shock as I had a needle aspiration

> in the ob/gyn's office with pathology results of " benign

> fibroadenoma " . I did my recommended follow-up mammogram and

> ultrasound the following week, and the radiologist was waffling on

> whether to go ahead with a core biopsy as most of the tumor was

> round, but there were a few " funny looking edges " . I said if there

> was any question, let's jut do it. Then, " the call " . Then the FEAR

> set in.

>

> I have so many questions and I hope you will indulge me with my long

> email. I am looking to anyone in the group who is willing to

> GENEROUSLY share their experience and opinions.

>

> FEAR - How do you all conquer and control the fear? I have

> purchased a few meditational tapes by Bernie Siegel which do help a

> bit. But I'm not by nature a positive person, I wish I was!, and I

> am overly analytical. I need to get this fear under control!

>

> SURGERY DECISIONS - I have met with 2 surgeons who have offered up

> lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go

> forward with the lumpectomy, an MRI is recommended to rule out other

> tumors and confirm the size of the tumor in relation to the size of

> my breasts (I'm on the small side.) I've read various pros and cons

> regarding the MRI and am concerned that it will show a lot of false

> positives.

>

> The surgeon that I like the best is the one who offered up the bi-

> lateral masectomy based on the density of my breasts. She said that

> it will be an ongoing challenge to find any other tumors even with

> ultrasound and/or MRI. I posed the " if it were you " scenario, and

> she said that she has a history of breast cancer in her family but

> her mammograms are readable, but she would go forward with the bi-

> lateral masectomy. On the other hand, I've read that lumpectomy +

> radiation is actually more aggressive in treatment. Masectomy

> apparently still has a possibility of cancer recurrence in the scar

> or chest as well.

>

> Since I am PR/ER positive, I am assuming that I will be put on an

> estrogen-blocker at some point. I read that estrogen-blockers

> decrease the density of breast tissue.

>

> Has anyone proceeded with a bi-lateral masectomy due to dense

> breasts? This is an absolutely mind-boggling decision and I'd love

> to hear some of your experiences.

>

> A GREAT BIG THANK YOU and HUGS to those who post! I have found a

> lot of comfort in reading your posts and great information and

> resources.

>

> Janet B.

>

> Hi to the other Janet; I've never met anyone else with our name!

> (smile)

>

[Guest guest]

Janet B.

I hear ya! I have yet to find my inner Polly . Sounds like you

are in the same boat I was last January. Infiltrating, stage 2. I

also have dense breasts (this 2.4 cm mass hid behind that density for

a good long time) that are VERY small. Have the MRI. It accurately

defined my tumor within 4mm. I had a mastectomy, no choice, with

sentinel node biopsy, March 29th. The nodes were clear. The

oncologist offered chemo. I declined because the type offered can

have effects on the heart and congestive heart failure runs in the

family. He did a computer generated profile on me taking into

consideration my unique set of circumstances age, size of tumor

Estrogen +, clear nodes and it turns out the chemo would have only

increased my 10 year chance of disease free survival by 2%! The

Aromatase inhibitor (Arimidex) gave me a 17% better chance. (both

together 19%) The aromatase inhibitor prevents your body from making

estrogen and is for post menopausal women. Needless to say I went

with JUST the Arimidex! Do your research and trust your gut. Do not

be talked into anything you are not comfortable with. It is your

life, your body and most importantly your quality of life!

Ruth

>

> Hello all,

>

> I am a new member and have been lurking for about 2 weeks. I was

> just diagnosed with infiltrating ductal carcinoma of the left

> breast, grade 2, stage not yet determined, no palpable lymph nodes,

> ER and PR postive, HER-2 negative. Based on the size of the tumor

> (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be

> having chemo after surgery.

>

> Really, I'm still in a state of shock as I had a needle aspiration

> in the ob/gyn's office with pathology results of " benign

> fibroadenoma " . I did my recommended follow-up mammogram and

> ultrasound the following week, and the radiologist was waffling on

> whether to go ahead with a core biopsy as most of the tumor was

> round, but there were a few " funny looking edges " . I said if there

> was any question, let's jut do it. Then, " the call " . Then the FEAR

> set in.

>

> I have so many questions and I hope you will indulge me with my long

> email. I am looking to anyone in the group who is willing to

> GENEROUSLY share their experience and opinions.

>

> FEAR - How do you all conquer and control the fear? I have

> purchased a few meditational tapes by Bernie Siegel which do help a

> bit. But I'm not by nature a positive person, I wish I was!, and I

> am overly analytical. I need to get this fear under control!

>

> SURGERY DECISIONS - I have met with 2 surgeons who have offered up

> lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go

> forward with the lumpectomy, an MRI is recommended to rule out other

> tumors and confirm the size of the tumor in relation to the size of

> my breasts (I'm on the small side.) I've read various pros and cons

> regarding the MRI and am concerned that it will show a lot of false

> positives.

>

> The surgeon that I like the best is the one who offered up the bi-

> lateral masectomy based on the density of my breasts. She said that

> it will be an ongoing challenge to find any other tumors even with

> ultrasound and/or MRI. I posed the " if it were you " scenario, and

> she said that she has a history of breast cancer in her family but

> her mammograms are readable, but she would go forward with the bi-

> lateral masectomy. On the other hand, I've read that lumpectomy +

> radiation is actually more aggressive in treatment. Masectomy

> apparently still has a possibility of cancer recurrence in the scar

> or chest as well.

>

> Since I am PR/ER positive, I am assuming that I will be put on an

> estrogen-blocker at some point. I read that estrogen-blockers

> decrease the density of breast tissue.

>

> Has anyone proceeded with a bi-lateral masectomy due to dense

> breasts? This is an absolutely mind-boggling decision and I'd love

> to hear some of your experiences.

>

> A GREAT BIG THANK YOU and HUGS to those who post! I have found a

> lot of comfort in reading your posts and great information and

> resources.

>

> Janet B.

>

> Hi to the other Janet; I've never met anyone else with our name!

> (smile)

>

[Guest guest]

Janet B.

I hear ya! I have yet to find my inner Polly . Sounds like you

are in the same boat I was last January. Infiltrating, stage 2. I

also have dense breasts (this 2.4 cm mass hid behind that density for

a good long time) that are VERY small. Have the MRI. It accurately

defined my tumor within 4mm. I had a mastectomy, no choice, with

sentinel node biopsy, March 29th. The nodes were clear. The

oncologist offered chemo. I declined because the type offered can

have effects on the heart and congestive heart failure runs in the

family. He did a computer generated profile on me taking into

consideration my unique set of circumstances age, size of tumor

Estrogen +, clear nodes and it turns out the chemo would have only

increased my 10 year chance of disease free survival by 2%! The

Aromatase inhibitor (Arimidex) gave me a 17% better chance. (both

together 19%) The aromatase inhibitor prevents your body from making

estrogen and is for post menopausal women. Needless to say I went

with JUST the Arimidex! Do your research and trust your gut. Do not

be talked into anything you are not comfortable with. It is your

life, your body and most importantly your quality of life!

Ruth

>

> Hello all,

>

> I am a new member and have been lurking for about 2 weeks. I was

> just diagnosed with infiltrating ductal carcinoma of the left

> breast, grade 2, stage not yet determined, no palpable lymph nodes,

> ER and PR postive, HER-2 negative. Based on the size of the tumor

> (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be

> having chemo after surgery.

>

> Really, I'm still in a state of shock as I had a needle aspiration

> in the ob/gyn's office with pathology results of " benign

> fibroadenoma " . I did my recommended follow-up mammogram and

> ultrasound the following week, and the radiologist was waffling on

> whether to go ahead with a core biopsy as most of the tumor was

> round, but there were a few " funny looking edges " . I said if there

> was any question, let's jut do it. Then, " the call " . Then the FEAR

> set in.

>

> I have so many questions and I hope you will indulge me with my long

> email. I am looking to anyone in the group who is willing to

> GENEROUSLY share their experience and opinions.

>

> FEAR - How do you all conquer and control the fear? I have

> purchased a few meditational tapes by Bernie Siegel which do help a

> bit. But I'm not by nature a positive person, I wish I was!, and I

> am overly analytical. I need to get this fear under control!

>

> SURGERY DECISIONS - I have met with 2 surgeons who have offered up

> lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go

> forward with the lumpectomy, an MRI is recommended to rule out other

> tumors and confirm the size of the tumor in relation to the size of

> my breasts (I'm on the small side.) I've read various pros and cons

> regarding the MRI and am concerned that it will show a lot of false

> positives.

>

> The surgeon that I like the best is the one who offered up the bi-

> lateral masectomy based on the density of my breasts. She said that

> it will be an ongoing challenge to find any other tumors even with

> ultrasound and/or MRI. I posed the " if it were you " scenario, and

> she said that she has a history of breast cancer in her family but

> her mammograms are readable, but she would go forward with the bi-

> lateral masectomy. On the other hand, I've read that lumpectomy +

> radiation is actually more aggressive in treatment. Masectomy

> apparently still has a possibility of cancer recurrence in the scar

> or chest as well.

>

> Since I am PR/ER positive, I am assuming that I will be put on an

> estrogen-blocker at some point. I read that estrogen-blockers

> decrease the density of breast tissue.

>

> Has anyone proceeded with a bi-lateral masectomy due to dense

> breasts? This is an absolutely mind-boggling decision and I'd love

> to hear some of your experiences.

>

> A GREAT BIG THANK YOU and HUGS to those who post! I have found a

> lot of comfort in reading your posts and great information and

> resources.

>

> Janet B.

>

> Hi to the other Janet; I've never met anyone else with our name!

> (smile)

>

[Guest guest]

Hi Ruth, I do have to agree with you. Quality of life is really important and if I had known about some of the side effects I am having, I would not have agreed with Taxol. Now I am facing another decision. Do I go with the doctor and keep on Zoladex for 3 more years, really risking premature menopause, and then tamoxifen , or do I cut it short? I feel trapped. And I was even planning kids for this year, before I found out about BC. Anyway, it seems that doctors do not think about how the side effects and the demage they can cause affects our lives. They are very set on "curing" and forget about everything else. It is very important, in my opinion, keep quality of life in our minds. I am 38 now, childless, stage IIB and ER+/PG+. How to balance all life expectations and plans and cancer treatment? I haven't figured out yet. well, just my thoughts. ruthiema36

wrote: Janet B.I hear ya! I have yet to find my inner Polly . Sounds like youare in the same boat I was last January. Infiltrating, stage 2. Ialso have dense breasts (this 2.4 cm mass hid behind that density fora good long time) that are VERY small. Have the MRI. It accuratelydefined my tumor within 4mm. I had a mastectomy, no choice, withsentinel node biopsy, March 29th. The nodes were clear. Theoncologist offered chemo. I declined because the type offered canhave effects on the heart and congestive heart failure runs in thefamily. He did a computer generated profile on me taking intoconsideration my unique set of circumstances age, size of tumorEstrogen +, clear nodes and it turns out the chemo would have

onlyincreased my 10 year chance of disease free survival by 2%! TheAromatase inhibitor (Arimidex) gave me a 17% better chance. (bothtogether 19%) The aromatase inhibitor prevents your body from makingestrogen and is for post menopausal women. Needless to say I wentwith JUST the Arimidex! Do your research and trust your gut. Do notbe talked into anything you are not comfortable with. It is yourlife, your body and most importantly your quality of life!Ruth>> Hello all,> > I am a new member and have been lurking for about 2 weeks. I was > just diagnosed with infiltrating ductal carcinoma of the left > breast, grade 2, stage not yet determined, no palpable lymph nodes, > ER and PR postive, HER-2 negative. Based on the size of the tumor > (approx. 1.7 x 1.9

measured by ultrasound), I will definitely be > having chemo after surgery.> > Really, I'm still in a state of shock as I had a needle aspiration > in the ob/gyn's office with pathology results of "benign > fibroadenoma". I did my recommended follow-up mammogram and > ultrasound the following week, and the radiologist was waffling on > whether to go ahead with a core biopsy as most of the tumor was > round, but there were a few "funny looking edges". I said if there > was any question, let's jut do it. Then, "the call". Then the FEAR > set in.> > I have so many questions and I hope you will indulge me with my long > email. I am looking to anyone in the group who is willing to > GENEROUSLY share their experience and opinions.> > FEAR - How do you all conquer and control the fear? I have > purchased a few meditational

tapes by Bernie Siegel which do help a > bit. But I'm not by nature a positive person, I wish I was!, and I > am overly analytical. I need to get this fear under control!> > SURGERY DECISIONS - I have met with 2 surgeons who have offered up > lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go > forward with the lumpectomy, an MRI is recommended to rule out other > tumors and confirm the size of the tumor in relation to the size of > my breasts (I'm on the small side.) I've read various pros and cons > regarding the MRI and am concerned that it will show a lot of false > positives.> > The surgeon that I like the best is the one who offered up the bi-> lateral masectomy based on the density of my breasts. She said that > it will be an ongoing challenge to find any other tumors even with > ultrasound and/or MRI. I posed

the "if it were you" scenario, and > she said that she has a history of breast cancer in her family but > her mammograms are readable, but she would go forward with the bi-> lateral masectomy. On the other hand, I've read that lumpectomy + > radiation is actually more aggressive in treatment. Masectomy > apparently still has a possibility of cancer recurrence in the scar > or chest as well.> > Since I am PR/ER positive, I am assuming that I will be put on an > estrogen-blocker at some point. I read that estrogen-blockers > decrease the density of breast tissue. > > Has anyone proceeded with a bi-lateral masectomy due to dense > breasts? This is an absolutely mind-boggling decision and I'd love > to hear some of your experiences.> > A GREAT BIG THANK YOU and HUGS to those who post! I have found a > lot of comfort in

reading your posts and great information and > resources.> > Janet B.> > Hi to the other Janet; I've never met anyone else with our name! > (smile)> __________________________________________________

[Guest guest]

Hi Ruth, I do have to agree with you. Quality of life is really important and if I had known about some of the side effects I am having, I would not have agreed with Taxol. Now I am facing another decision. Do I go with the doctor and keep on Zoladex for 3 more years, really risking premature menopause, and then tamoxifen , or do I cut it short? I feel trapped. And I was even planning kids for this year, before I found out about BC. Anyway, it seems that doctors do not think about how the side effects and the demage they can cause affects our lives. They are very set on "curing" and forget about everything else. It is very important, in my opinion, keep quality of life in our minds. I am 38 now, childless, stage IIB and ER+/PG+. How to balance all life expectations and plans and cancer treatment? I haven't figured out yet. well, just my thoughts. ruthiema36

wrote: Janet B.I hear ya! I have yet to find my inner Polly . Sounds like youare in the same boat I was last January. Infiltrating, stage 2. Ialso have dense breasts (this 2.4 cm mass hid behind that density fora good long time) that are VERY small. Have the MRI. It accuratelydefined my tumor within 4mm. I had a mastectomy, no choice, withsentinel node biopsy, March 29th. The nodes were clear. Theoncologist offered chemo. I declined because the type offered canhave effects on the heart and congestive heart failure runs in thefamily. He did a computer generated profile on me taking intoconsideration my unique set of circumstances age, size of tumorEstrogen +, clear nodes and it turns out the chemo would have

onlyincreased my 10 year chance of disease free survival by 2%! TheAromatase inhibitor (Arimidex) gave me a 17% better chance. (bothtogether 19%) The aromatase inhibitor prevents your body from makingestrogen and is for post menopausal women. Needless to say I wentwith JUST the Arimidex! Do your research and trust your gut. Do notbe talked into anything you are not comfortable with. It is yourlife, your body and most importantly your quality of life!Ruth>> Hello all,> > I am a new member and have been lurking for about 2 weeks. I was > just diagnosed with infiltrating ductal carcinoma of the left > breast, grade 2, stage not yet determined, no palpable lymph nodes, > ER and PR postive, HER-2 negative. Based on the size of the tumor > (approx. 1.7 x 1.9

measured by ultrasound), I will definitely be > having chemo after surgery.> > Really, I'm still in a state of shock as I had a needle aspiration > in the ob/gyn's office with pathology results of "benign > fibroadenoma". I did my recommended follow-up mammogram and > ultrasound the following week, and the radiologist was waffling on > whether to go ahead with a core biopsy as most of the tumor was > round, but there were a few "funny looking edges". I said if there > was any question, let's jut do it. Then, "the call". Then the FEAR > set in.> > I have so many questions and I hope you will indulge me with my long > email. I am looking to anyone in the group who is willing to > GENEROUSLY share their experience and opinions.> > FEAR - How do you all conquer and control the fear? I have > purchased a few meditational

tapes by Bernie Siegel which do help a > bit. But I'm not by nature a positive person, I wish I was!, and I > am overly analytical. I need to get this fear under control!> > SURGERY DECISIONS - I have met with 2 surgeons who have offered up > lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go > forward with the lumpectomy, an MRI is recommended to rule out other > tumors and confirm the size of the tumor in relation to the size of > my breasts (I'm on the small side.) I've read various pros and cons > regarding the MRI and am concerned that it will show a lot of false > positives.> > The surgeon that I like the best is the one who offered up the bi-> lateral masectomy based on the density of my breasts. She said that > it will be an ongoing challenge to find any other tumors even with > ultrasound and/or MRI. I posed

the "if it were you" scenario, and > she said that she has a history of breast cancer in her family but > her mammograms are readable, but she would go forward with the bi-> lateral masectomy. On the other hand, I've read that lumpectomy + > radiation is actually more aggressive in treatment. Masectomy > apparently still has a possibility of cancer recurrence in the scar > or chest as well.> > Since I am PR/ER positive, I am assuming that I will be put on an > estrogen-blocker at some point. I read that estrogen-blockers > decrease the density of breast tissue. > > Has anyone proceeded with a bi-lateral masectomy due to dense > breasts? This is an absolutely mind-boggling decision and I'd love > to hear some of your experiences.> > A GREAT BIG THANK YOU and HUGS to those who post! I have found a > lot of comfort in

reading your posts and great information and > resources.> > Janet B.> > Hi to the other Janet; I've never met anyone else with our name! > (smile)> __________________________________________________

[Guest guest]

I had ductal cancer in the right breast, and an lump

in the left breast, but because I use to perform

mammogram on women, I knew what to look for. I had a

double mastectomy, because of the denseness of my

breast. I was misdiagnosed 3x before I insisted on an

biopsy.

I could not take tamoxifen because of the side effect,

I am now on Femara, It is just tolerable, but I cannot

wear anything on my chest, but very loose blouses and

shirt. My Quality of life is not the best, but my

niece did not take any follow up med, after the chemo

and now she is stage 4, so I am surviving. I cannot

walk through stores like Wal-mart anymore without

breaking out in a sweat, and having to sit down, but I

am alive and I have adjusted.

--- Pinheiro wrote:

> Hi Ruth,

>

> I do have to agree with you. Quality of life is

> really important and if I had known about some of

> the side effects I am having, I would not have

> agreed with Taxol. Now I am facing another decision.

> Do I go with the doctor and keep on Zoladex for 3

> more years, really risking premature menopause, and

> then tamoxifen , or do I cut it short? I feel

> trapped. And I was even planning kids for this year,

> before I found out about BC. Anyway, it seems that

> doctors do not think about how the side effects and

> the demage they can cause affects our lives. They

> are very set on " curing " and forget about everything

> else. It is very important, in my opinion, keep

> quality of life in our minds. I am 38 now,

> childless, stage IIB and ER+/PG+. How to balance all

> life expectations and plans and cancer treatment? I

> haven't figured out yet.

> well, just my thoughts.

>

>

> ruthiema36 wrote:

> Janet B.

> I hear ya! I have yet to find my inner Polly .

> Sounds like you

> are in the same boat I was last January.

> Infiltrating, stage 2. I

> also have dense breasts (this 2.4 cm mass hid behind

> that density for

> a good long time) that are VERY small. Have the

> MRI. It accurately

> defined my tumor within 4mm. I had a mastectomy, no

> choice, with

> sentinel node biopsy, March 29th. The nodes were

> clear. The

> oncologist offered chemo. I declined because the

> type offered can

> have effects on the heart and congestive heart

> failure runs in the

> family. He did a computer generated profile on me

> taking into

> consideration my unique set of circumstances age,

> size of tumor

> Estrogen +, clear nodes and it turns out the chemo

> would have only

> increased my 10 year chance of disease free survival

> by 2%! The

> Aromatase inhibitor (Arimidex) gave me a 17% better

> chance. (both

> together 19%) The aromatase inhibitor prevents your

> body from making

> estrogen and is for post menopausal women. Needless

> to say I went

> with JUST the Arimidex! Do your research and trust

> your gut. Do not

> be talked into anything you are not comfortable

> with. It is your

> life, your body and most importantly your quality of

> life!

> Ruth

>

>

> >

> > Hello all,

> >

> > I am a new member and have been lurking for about

> 2 weeks. I was

> > just diagnosed with infiltrating ductal carcinoma

> of the left

> > breast, grade 2, stage not yet determined, no

> palpable lymph nodes,

> > ER and PR postive, HER-2 negative. Based on the

> size of the tumor

> > (approx. 1.7 x 1.9 measured by ultrasound), I will

> definitely be

> > having chemo after surgery.

> >

> > Really, I'm still in a state of shock as I had a

> needle aspiration

> > in the ob/gyn's office with pathology results of

> " benign

> > fibroadenoma " . I did my recommended follow-up

> mammogram and

> > ultrasound the following week, and the radiologist

> was waffling on

> > whether to go ahead with a core biopsy as most of

> the tumor was

> > round, but there were a few " funny looking edges " .

> I said if there

> > was any question, let's jut do it. Then, " the

> call " . Then the FEAR

> > set in.

> >

> > I have so many questions and I hope you will

> indulge me with my long

> > email. I am looking to anyone in the group who is

> willing to

> > GENEROUSLY share their experience and opinions.

> >

> > FEAR - How do you all conquer and control the

> fear? I have

> > purchased a few meditational tapes by Bernie

> Siegel which do help a

> > bit. But I'm not by nature a positive person, I

> wish I was!, and I

> > am overly analytical. I need to get this fear

> under control!

> >

> > SURGERY DECISIONS - I have met with 2 surgeons who

> have offered up

> > lumpectomy + radiation, masectomy, and bi-lateral

> masectomy. To go

> > forward with the lumpectomy, an MRI is recommended

> to rule out other

> > tumors and confirm the size of the tumor in

> relation to the size of

> > my breasts (I'm on the small side.) I've read

> various pros and cons

> > regarding the MRI and am concerned that it will

> show a lot of false

> > positives.

> >

> > The surgeon that I like the best is the one who

> offered up the bi-

> > lateral masectomy based on the density of my

> breasts. She said that

> > it will be an ongoing challenge to find any other

> tumors even with

> > ultrasound and/or MRI. I posed the " if it were

> you " scenario, and

> > she said that she has a history of breast cancer

> in her family but

> > her mammograms are readable, but she would go

> forward with the bi-

> > lateral masectomy. On the other hand, I've read

> that lumpectomy +

> > radiation is actually more aggressive in

> treatment. Masectomy

> > apparently still has a possibility of cancer

> recurrence in the scar

> > or chest as well.

> >

> > Since I am PR/ER positive, I am assuming that I

> will be put on an

> > estrogen-blocker at some point. I read that

> estrogen-blockers

> > decrease the density of breast tissue.

> >

> > Has anyone proceeded with a bi-lateral masectomy

> due to dense

> > breasts? This is an absolutely mind-boggling

> decision and I'd love

> > to hear some of your experiences.

> >

> > A GREAT BIG THANK YOU and HUGS to those who post!

> I have found a

> > lot of comfort in reading your posts and great

> information and

> > resources.

> >

> > Janet B.

> >

> > Hi to the other Janet; I've never met anyone else

> with our name!

> > (smile)

> >

>

>

>

>

>

>

>

[Guest guest]

Janice,

Sorry to hear you are having problems. You will be in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Re: Re: Introduction and Questions, Questions

I had ductal cancer in the right breast, and an lumpin the left breast, but because I use to performmammogram on women, I knew what to look for. I had adouble mastectomy, because of the denseness of mybreast. I was misdiagnosed 3x before I insisted on anbiopsy. I could not take tamoxifen because of the side effect,I am now on Femara, It is just tolerable, but I cannotwear anything on my chest, but very loose blouses andshirt. My Quality of life is not the best, but myniece did not take any follow up med, after the chemoand now she is stage 4, so I am surviving. I cannotwalk through stores like Wal-mart anymore withoutbreaking out in a sweat, and having to sit down, but Iam alive and I have adjusted. --- Pinheiro wrote:> Hi Ruth,> > I do have to agree with you. Quality of life is> really important and if I had known about some of> the side effects I am having, I would not have> agreed with Taxol. Now I am facing another decision.> Do I go with the doctor and keep on Zoladex for 3> more years, really risking premature menopause, and> then tamoxifen , or do I cut it short? I feel> trapped. And I was even planning kids for this year,> before I found out about BC. Anyway, it seems that> doctors do not think about how the side effects and> the demage they can cause affects our lives. They> are very set on "curing" and forget about everything> else. It is very important, in my opinion, keep> quality of life in our minds. I am 38 now,> childless, stage IIB and ER+/PG+. How to balance all> life expectations and plans and cancer treatment? I> haven't figured out yet.> well, just my thoughts.> > > ruthiema36 wrote:> Janet B.> I hear ya! I have yet to find my inner Polly . > Sounds like you> are in the same boat I was last January. > Infiltrating, stage 2. I> also have dense breasts (this 2.4 cm mass hid behind> that density for> a good long time) that are VERY small. Have the> MRI. It accurately> defined my tumor within 4mm. I had a mastectomy, no> choice, with> sentinel node biopsy, March 29th. The nodes were> clear. The> oncologist offered chemo. I declined because the> type offered can> have effects on the heart and congestive heart> failure runs in the> family. He did a computer generated profile on me> taking into> consideration my unique set of circumstances age,> size of tumor> Estrogen +, clear nodes and it turns out the chemo> would have only> increased my 10 year chance of disease free survival> by 2%! The> Aromatase inhibitor (Arimidex) gave me a 17% better> chance. (both> together 19%) The aromatase inhibitor prevents your> body from making> estrogen and is for post menopausal women. Needless> to say I went> with JUST the Arimidex! Do your research and trust> your gut. Do not> be talked into anything you are not comfortable> with. It is your> life, your body and most importantly your quality of> life!> Ruth> > > >> > Hello all,> > > > I am a new member and have been lurking for about> 2 weeks. I was > > just diagnosed with infiltrating ductal carcinoma> of the left > > breast, grade 2, stage not yet determined, no> palpable lymph nodes, > > ER and PR postive, HER-2 negative. Based on the> size of the tumor > > (approx. 1.7 x 1.9 measured by ultrasound), I will> definitely be > > having chemo after surgery.> > > > Really, I'm still in a state of shock as I had a> needle aspiration > > in the ob/gyn's office with pathology results of> "benign > > fibroadenoma". I did my recommended follow-up> mammogram and > > ultrasound the following week, and the radiologist> was waffling on > > whether to go ahead with a core biopsy as most of> the tumor was > > round, but there were a few "funny looking edges".> I said if there > > was any question, let's jut do it. Then, "the> call". Then the FEAR > > set in.> > > > I have so many questions and I hope you will> indulge me with my long > > email. I am looking to anyone in the group who is> willing to > > GENEROUSLY share their experience and opinions.> > > > FEAR - How do you all conquer and control the> fear? I have > > purchased a few meditational tapes by Bernie> Siegel which do help a > > bit. But I'm not by nature a positive person, I> wish I was!, and I > > am overly analytical. I need to get this fear> under control!> > > > SURGERY DECISIONS - I have met with 2 surgeons who> have offered up > > lumpectomy + radiation, masectomy, and bi-lateral> masectomy. To go > > forward with the lumpectomy, an MRI is recommended> to rule out other > > tumors and confirm the size of the tumor in> relation to the size of > > my breasts (I'm on the small side.) I've read> various pros and cons > > regarding the MRI and am concerned that it will> show a lot of false > > positives.> > > > The surgeon that I like the best is the one who> offered up the bi-> > lateral masectomy based on the density of my> breasts. She said that > > it will be an ongoing challenge to find any other> tumors even with > > ultrasound and/or MRI. I posed the "if it were> you" scenario, and > > she said that she has a history of breast cancer> in her family but > > her mammograms are readable, but she would go> forward with the bi-> > lateral masectomy. On the other hand, I've read> that lumpectomy + > > radiation is actually more aggressive in> treatment. Masectomy > > apparently still has a possibility of cancer> recurrence in the scar > > or chest as well.> > > > Since I am PR/ER positive, I am assuming that I> will be put on an > > estrogen-blocker at some point. I read that> estrogen-blockers > > decrease the density of breast tissue. > > > > Has anyone proceeded with a bi-lateral masectomy> due to dense > > breasts? This is an absolutely mind-boggling> decision and I'd love > > to hear some of your experiences.> > > > A GREAT BIG THANK YOU and HUGS to those who post! > I have found a > > lot of comfort in reading your posts and great> information and > > resources.> > > > Janet B.> > > > Hi to the other Janet; I've never met anyone else> with our name! > > (smile)> >> > > > > > >

[Guest guest]

Janice,

Sorry to hear you are having problems. You will be in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Re: Re: Introduction and Questions, Questions

I had ductal cancer in the right breast, and an lumpin the left breast, but because I use to performmammogram on women, I knew what to look for. I had adouble mastectomy, because of the denseness of mybreast. I was misdiagnosed 3x before I insisted on anbiopsy. I could not take tamoxifen because of the side effect,I am now on Femara, It is just tolerable, but I cannotwear anything on my chest, but very loose blouses andshirt. My Quality of life is not the best, but myniece did not take any follow up med, after the chemoand now she is stage 4, so I am surviving. I cannotwalk through stores like Wal-mart anymore withoutbreaking out in a sweat, and having to sit down, but Iam alive and I have adjusted. --- Pinheiro wrote:> Hi Ruth,> > I do have to agree with you. Quality of life is> really important and if I had known about some of> the side effects I am having, I would not have> agreed with Taxol. Now I am facing another decision.> Do I go with the doctor and keep on Zoladex for 3> more years, really risking premature menopause, and> then tamoxifen , or do I cut it short? I feel> trapped. And I was even planning kids for this year,> before I found out about BC. Anyway, it seems that> doctors do not think about how the side effects and> the demage they can cause affects our lives. They> are very set on "curing" and forget about everything> else. It is very important, in my opinion, keep> quality of life in our minds. I am 38 now,> childless, stage IIB and ER+/PG+. How to balance all> life expectations and plans and cancer treatment? I> haven't figured out yet.> well, just my thoughts.> > > ruthiema36 wrote:> Janet B.> I hear ya! I have yet to find my inner Polly . > Sounds like you> are in the same boat I was last January. > Infiltrating, stage 2. I> also have dense breasts (this 2.4 cm mass hid behind> that density for> a good long time) that are VERY small. Have the> MRI. It accurately> defined my tumor within 4mm. I had a mastectomy, no> choice, with> sentinel node biopsy, March 29th. The nodes were> clear. The> oncologist offered chemo. I declined because the> type offered can> have effects on the heart and congestive heart> failure runs in the> family. He did a computer generated profile on me> taking into> consideration my unique set of circumstances age,> size of tumor> Estrogen +, clear nodes and it turns out the chemo> would have only> increased my 10 year chance of disease free survival> by 2%! The> Aromatase inhibitor (Arimidex) gave me a 17% better> chance. (both> together 19%) The aromatase inhibitor prevents your> body from making> estrogen and is for post menopausal women. Needless> to say I went> with JUST the Arimidex! Do your research and trust> your gut. Do not> be talked into anything you are not comfortable> with. It is your> life, your body and most importantly your quality of> life!> Ruth> > > >> > Hello all,> > > > I am a new member and have been lurking for about> 2 weeks. I was > > just diagnosed with infiltrating ductal carcinoma> of the left > > breast, grade 2, stage not yet determined, no> palpable lymph nodes, > > ER and PR postive, HER-2 negative. Based on the> size of the tumor > > (approx. 1.7 x 1.9 measured by ultrasound), I will> definitely be > > having chemo after surgery.> > > > Really, I'm still in a state of shock as I had a> needle aspiration > > in the ob/gyn's office with pathology results of> "benign > > fibroadenoma". I did my recommended follow-up> mammogram and > > ultrasound the following week, and the radiologist> was waffling on > > whether to go ahead with a core biopsy as most of> the tumor was > > round, but there were a few "funny looking edges".> I said if there > > was any question, let's jut do it. Then, "the> call". Then the FEAR > > set in.> > > > I have so many questions and I hope you will> indulge me with my long > > email. I am looking to anyone in the group who is> willing to > > GENEROUSLY share their experience and opinions.> > > > FEAR - How do you all conquer and control the> fear? I have > > purchased a few meditational tapes by Bernie> Siegel which do help a > > bit. But I'm not by nature a positive person, I> wish I was!, and I > > am overly analytical. I need to get this fear> under control!> > > > SURGERY DECISIONS - I have met with 2 surgeons who> have offered up > > lumpectomy + radiation, masectomy, and bi-lateral> masectomy. To go > > forward with the lumpectomy, an MRI is recommended> to rule out other > > tumors and confirm the size of the tumor in> relation to the size of > > my breasts (I'm on the small side.) I've read> various pros and cons > > regarding the MRI and am concerned that it will> show a lot of false > > positives.> > > > The surgeon that I like the best is the one who> offered up the bi-> > lateral masectomy based on the density of my> breasts. She said that > > it will be an ongoing challenge to find any other> tumors even with > > ultrasound and/or MRI. I posed the "if it were> you" scenario, and > > she said that she has a history of breast cancer> in her family but > > her mammograms are readable, but she would go> forward with the bi-> > lateral masectomy. On the other hand, I've read> that lumpectomy + > > radiation is actually more aggressive in> treatment. Masectomy > > apparently still has a possibility of cancer> recurrence in the scar > > or chest as well.> > > > Since I am PR/ER positive, I am assuming that I> will be put on an > > estrogen-blocker at some point. I read that> estrogen-blockers > > decrease the density of breast tissue. > > > > Has anyone proceeded with a bi-lateral masectomy> due to dense > > breasts? This is an absolutely mind-boggling> decision and I'd love > > to hear some of your experiences.> > > > A GREAT BIG THANK YOU and HUGS to those who post! > I have found a > > lot of comfort in reading your posts and great> information and > > resources.> > > > Janet B.> > > > Hi to the other Janet; I've never met anyone else> with our name! > > (smile)> >> > > > > > >

[Guest guest]

Janice,

Sorry to hear you are having problems. You will be in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Re: Re: Introduction and Questions, Questions

I had ductal cancer in the right breast, and an lumpin the left breast, but because I use to performmammogram on women, I knew what to look for. I had adouble mastectomy, because of the denseness of mybreast. I was misdiagnosed 3x before I insisted on anbiopsy. I could not take tamoxifen because of the side effect,I am now on Femara, It is just tolerable, but I cannotwear anything on my chest, but very loose blouses andshirt. My Quality of life is not the best, but myniece did not take any follow up med, after the chemoand now she is stage 4, so I am surviving. I cannotwalk through stores like Wal-mart anymore withoutbreaking out in a sweat, and having to sit down, but Iam alive and I have adjusted. --- Pinheiro wrote:> Hi Ruth,> > I do have to agree with you. Quality of life is> really important and if I had known about some of> the side effects I am having, I would not have> agreed with Taxol. Now I am facing another decision.> Do I go with the doctor and keep on Zoladex for 3> more years, really risking premature menopause, and> then tamoxifen , or do I cut it short? I feel> trapped. And I was even planning kids for this year,> before I found out about BC. Anyway, it seems that> doctors do not think about how the side effects and> the demage they can cause affects our lives. They> are very set on "curing" and forget about everything> else. It is very important, in my opinion, keep> quality of life in our minds. I am 38 now,> childless, stage IIB and ER+/PG+. How to balance all> life expectations and plans and cancer treatment? I> haven't figured out yet.> well, just my thoughts.> > > ruthiema36 wrote:> Janet B.> I hear ya! I have yet to find my inner Polly . > Sounds like you> are in the same boat I was last January. > Infiltrating, stage 2. I> also have dense breasts (this 2.4 cm mass hid behind> that density for> a good long time) that are VERY small. Have the> MRI. It accurately> defined my tumor within 4mm. I had a mastectomy, no> choice, with> sentinel node biopsy, March 29th. The nodes were> clear. The> oncologist offered chemo. I declined because the> type offered can> have effects on the heart and congestive heart> failure runs in the> family. He did a computer generated profile on me> taking into> consideration my unique set of circumstances age,> size of tumor> Estrogen +, clear nodes and it turns out the chemo> would have only> increased my 10 year chance of disease free survival> by 2%! The> Aromatase inhibitor (Arimidex) gave me a 17% better> chance. (both> together 19%) The aromatase inhibitor prevents your> body from making> estrogen and is for post menopausal women. Needless> to say I went> with JUST the Arimidex! Do your research and trust> your gut. Do not> be talked into anything you are not comfortable> with. It is your> life, your body and most importantly your quality of> life!> Ruth> > > >> > Hello all,> > > > I am a new member and have been lurking for about> 2 weeks. I was > > just diagnosed with infiltrating ductal carcinoma> of the left > > breast, grade 2, stage not yet determined, no> palpable lymph nodes, > > ER and PR postive, HER-2 negative. Based on the> size of the tumor > > (approx. 1.7 x 1.9 measured by ultrasound), I will> definitely be > > having chemo after surgery.> > > > Really, I'm still in a state of shock as I had a> needle aspiration > > in the ob/gyn's office with pathology results of> "benign > > fibroadenoma". I did my recommended follow-up> mammogram and > > ultrasound the following week, and the radiologist> was waffling on > > whether to go ahead with a core biopsy as most of> the tumor was > > round, but there were a few "funny looking edges".> I said if there > > was any question, let's jut do it. Then, "the> call". Then the FEAR > > set in.> > > > I have so many questions and I hope you will> indulge me with my long > > email. I am looking to anyone in the group who is> willing to > > GENEROUSLY share their experience and opinions.> > > > FEAR - How do you all conquer and control the> fear? I have > > purchased a few meditational tapes by Bernie> Siegel which do help a > > bit. But I'm not by nature a positive person, I> wish I was!, and I > > am overly analytical. I need to get this fear> under control!> > > > SURGERY DECISIONS - I have met with 2 surgeons who> have offered up > > lumpectomy + radiation, masectomy, and bi-lateral> masectomy. To go > > forward with the lumpectomy, an MRI is recommended> to rule out other > > tumors and confirm the size of the tumor in> relation to the size of > > my breasts (I'm on the small side.) I've read> various pros and cons > > regarding the MRI and am concerned that it will> show a lot of false > > positives.> > > > The surgeon that I like the best is the one who> offered up the bi-> > lateral masectomy based on the density of my> breasts. She said that > > it will be an ongoing challenge to find any other> tumors even with > > ultrasound and/or MRI. I posed the "if it were> you" scenario, and > > she said that she has a history of breast cancer> in her family but > > her mammograms are readable, but she would go> forward with the bi-> > lateral masectomy. On the other hand, I've read> that lumpectomy + > > radiation is actually more aggressive in> treatment. Masectomy > > apparently still has a possibility of cancer> recurrence in the scar > > or chest as well.> > > > Since I am PR/ER positive, I am assuming that I> will be put on an > > estrogen-blocker at some point. I read that> estrogen-blockers > > decrease the density of breast tissue. > > > > Has anyone proceeded with a bi-lateral masectomy> due to dense > > breasts? This is an absolutely mind-boggling> decision and I'd love > > to hear some of your experiences.> > > > A GREAT BIG THANK YOU and HUGS to those who post! > I have found a > > lot of comfort in reading your posts and great> information and > > resources.> > > > Janet B.> > > > Hi to the other Janet; I've never met anyone else> with our name! > > (smile)> >> > > > > > >

[Guest guest]

Hello . I have many questions, too. You said, " ...I had

enough breast tissue to conserve the breast. " I really don't know

what will happen with me. I have finished my AC and had 2 Taxol

treatments to shrink my tumor before I have surgery. The doctors

have told me that I will either have a mastectomy, or

lumpectomy/radiation. I am so tired of treatments that I am

considering mastectomy. I just want it to be over.

But now, the more I investigate, the more I learn. I know now about

the problem with lymphodema (sp?)and mastectomy - but I guess I

would have that with the lumpectomy too. My tumor was misdiagnosed

as " not bc " . When I read the radiologists reports, they said that I

had " very dense breast tissue " , so I want to make future diagnoses

easy.

Anyway, my docs have told me that I will see the surgeon between my

3rd & 4th Taxol treatment -so I guess I make that appointment next

time I visit the onc.

My problem is that I don't seem to be getting enough info to make

the kind of decision I will have to make. (mastectomy vs.

lumpectomy). I want to be as healthy as I can be, and I am

frightened that the bc will come back. Before this I never had a

sick day in my life (slight exaggeration!), but I hardly even caught

a cold. This has been a real adjustment for me, especially since I

have always taken good care of my body. I am worried about the long

term effects of chemo, etc. too - but since I don't have much

choice, I suppose I accept this as something I have to do.

My question to the group is, how do you decide whether to have a

lumpectomy or mastectomy? How about double mastectomy? I am a 36C,

but a bit heavy on my thighs & stomach. My tumor was very large (5

cm), but had only spread to 1 (maybe 2) nodes.

I figured since I have to have reconstruction anyway, I may as well

have something " good " . That is, perhaps something I hear many of

you girls discussing - a trans flap. This way I may look a bit more

attractive - especially since I know I now look such a fright!

Perhaps I don't even know enough about this to make any kind of

decisions. I feel so helpless in this! I don't really know the

options I will have, or how to decide. Of course my main concern is

to be as healthy as possible, and keep the bc away. This seems like

a huge decision for me, something that will stay with me forever.

Girls, if I have said something that is inaccurate according to your

experience, please correct me! I really want to understand my

options! Thanks in advance for any help.

> Hello all,

>

> I am a new member and have been lurking for about 2 weeks. I was

> just diagnosed with infiltrating ductal carcinoma of the left

> breast, grade 2, stage not yet determined, no palpable lymph

nodes,

> ER and PR postive, HER-2 negative. Based on the size of the tumor

> (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be

> having chemo after surgery.

>

> Really, I'm still in a state of shock as I had a needle aspiration

> in the ob/gyn's office with pathology results of " benign

> fibroadenoma " . I did my recommended follow-up mammogram and

> ultrasound the following week, and the radiologist was waffling on

> whether to go ahead with a core biopsy as most of the tumor was

> round, but there were a few " funny looking edges " . I said if

there

> was any question, let's jut do it. Then, " the call " . Then the

FEAR

> set in.

>

> I have so many questions and I hope you will indulge me with my

long

> email. I am looking to anyone in the group who is willing to

> GENEROUSLY share their experience and opinions.

>

> FEAR - How do you all conquer and control the fear? I have

> purchased a few meditational tapes by Bernie Siegel which do help

a

> bit. But I'm not by nature a positive person, I wish I was!, and

I

> am overly analytical. I need to get this fear under control!

>

> SURGERY DECISIONS - I have met with 2 surgeons who have offered up

> lumpectomy + radiation, masectomy, and bi-lateral masectomy. To

go

> forward with the lumpectomy, an MRI is recommended to rule out

other

> tumors and confirm the size of the tumor in relation to the size

of

> my breasts (I'm on the small side.) I've read various pros and

cons

> regarding the MRI and am concerned that it will show a lot of

false

> positives.

>

> The surgeon that I like the best is the one who offered up the bi-

> lateral masectomy based on the density of my breasts. She said

that

> it will be an ongoing challenge to find any other tumors even with

> ultrasound and/or MRI. I posed the " if it were you " scenario, and

> she said that she has a history of breast cancer in her family but

> her mammograms are readable, but she would go forward with the bi-

> lateral masectomy. On the other hand, I've read that lumpectomy +

> radiation is actually more aggressive in treatment. Masectomy

> apparently still has a possibility of cancer recurrence in the

scar

> or chest as well.

>

> Since I am PR/ER positive, I am assuming that I will be put on an

> estrogen-blocker at some point. I read that estrogen-blockers

> decrease the density of breast tissue.

>

> Has anyone proceeded with a bi-lateral masectomy due to dense

> breasts? This is an absolutely mind-boggling decision and I'd

love

> to hear some of your experiences.

>

> A GREAT BIG THANK YOU and HUGS to those who post! I have found a

> lot of comfort in reading your posts and great information and

> resources.

>

> Janet B.

>

> Hi to the other Janet; I've never met anyone else with our name!

> (smile)

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hello . I have many questions, too. You said, " ...I had

enough breast tissue to conserve the breast. " I really don't know

what will happen with me. I have finished my AC and had 2 Taxol

treatments to shrink my tumor before I have surgery. The doctors

have told me that I will either have a mastectomy, or

lumpectomy/radiation. I am so tired of treatments that I am

considering mastectomy. I just want it to be over.

But now, the more I investigate, the more I learn. I know now about

the problem with lymphodema (sp?)and mastectomy - but I guess I

would have that with the lumpectomy too. My tumor was misdiagnosed

as " not bc " . When I read the radiologists reports, they said that I

had " very dense breast tissue " , so I want to make future diagnoses

easy.

Anyway, my docs have told me that I will see the surgeon between my

3rd & 4th Taxol treatment -so I guess I make that appointment next

time I visit the onc.

My problem is that I don't seem to be getting enough info to make

the kind of decision I will have to make. (mastectomy vs.

lumpectomy). I want to be as healthy as I can be, and I am

frightened that the bc will come back. Before this I never had a

sick day in my life (slight exaggeration!), but I hardly even caught

a cold. This has been a real adjustment for me, especially since I

have always taken good care of my body. I am worried about the long

term effects of chemo, etc. too - but since I don't have much

choice, I suppose I accept this as something I have to do.

My question to the group is, how do you decide whether to have a

lumpectomy or mastectomy? How about double mastectomy? I am a 36C,

but a bit heavy on my thighs & stomach. My tumor was very large (5

cm), but had only spread to 1 (maybe 2) nodes.

I figured since I have to have reconstruction anyway, I may as well

have something " good " . That is, perhaps something I hear many of

you girls discussing - a trans flap. This way I may look a bit more

attractive - especially since I know I now look such a fright!

Perhaps I don't even know enough about this to make any kind of

decisions. I feel so helpless in this! I don't really know the

options I will have, or how to decide. Of course my main concern is

to be as healthy as possible, and keep the bc away. This seems like

a huge decision for me, something that will stay with me forever.

Girls, if I have said something that is inaccurate according to your

experience, please correct me! I really want to understand my

options! Thanks in advance for any help.

> Hello all,

>

> I am a new member and have been lurking for about 2 weeks. I was

> just diagnosed with infiltrating ductal carcinoma of the left

> breast, grade 2, stage not yet determined, no palpable lymph

nodes,

> ER and PR postive, HER-2 negative. Based on the size of the tumor

> (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be

> having chemo after surgery.

>

> Really, I'm still in a state of shock as I had a needle aspiration

> in the ob/gyn's office with pathology results of " benign

> fibroadenoma " . I did my recommended follow-up mammogram and

> ultrasound the following week, and the radiologist was waffling on

> whether to go ahead with a core biopsy as most of the tumor was

> round, but there were a few " funny looking edges " . I said if

there

> was any question, let's jut do it. Then, " the call " . Then the

FEAR

> set in.

>

> I have so many questions and I hope you will indulge me with my

long

> email. I am looking to anyone in the group who is willing to

> GENEROUSLY share their experience and opinions.

>

> FEAR - How do you all conquer and control the fear? I have

> purchased a few meditational tapes by Bernie Siegel which do help

a

> bit. But I'm not by nature a positive person, I wish I was!, and

I

> am overly analytical. I need to get this fear under control!

>

> SURGERY DECISIONS - I have met with 2 surgeons who have offered up

> lumpectomy + radiation, masectomy, and bi-lateral masectomy. To

go

> forward with the lumpectomy, an MRI is recommended to rule out

other

> tumors and confirm the size of the tumor in relation to the size

of

> my breasts (I'm on the small side.) I've read various pros and

cons

> regarding the MRI and am concerned that it will show a lot of

false

> positives.

>

> The surgeon that I like the best is the one who offered up the bi-

> lateral masectomy based on the density of my breasts. She said

that

> it will be an ongoing challenge to find any other tumors even with

> ultrasound and/or MRI. I posed the " if it were you " scenario, and

> she said that she has a history of breast cancer in her family but

> her mammograms are readable, but she would go forward with the bi-

> lateral masectomy. On the other hand, I've read that lumpectomy +

> radiation is actually more aggressive in treatment. Masectomy

> apparently still has a possibility of cancer recurrence in the

scar

> or chest as well.

>

> Since I am PR/ER positive, I am assuming that I will be put on an

> estrogen-blocker at some point. I read that estrogen-blockers

> decrease the density of breast tissue.

>

> Has anyone proceeded with a bi-lateral masectomy due to dense

> breasts? This is an absolutely mind-boggling decision and I'd

love

> to hear some of your experiences.

>

> A GREAT BIG THANK YOU and HUGS to those who post! I have found a

> lot of comfort in reading your posts and great information and

> resources.

>

> Janet B.

>

> Hi to the other Janet; I've never met anyone else with our name!

> (smile)

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hello . I have many questions, too. You said, " ...I had

enough breast tissue to conserve the breast. " I really don't know

what will happen with me. I have finished my AC and had 2 Taxol

treatments to shrink my tumor before I have surgery. The doctors

have told me that I will either have a mastectomy, or

lumpectomy/radiation. I am so tired of treatments that I am

considering mastectomy. I just want it to be over.

But now, the more I investigate, the more I learn. I know now about

the problem with lymphodema (sp?)and mastectomy - but I guess I

would have that with the lumpectomy too. My tumor was misdiagnosed

as " not bc " . When I read the radiologists reports, they said that I

had " very dense breast tissue " , so I want to make future diagnoses

easy.

Anyway, my docs have told me that I will see the surgeon between my

3rd & 4th Taxol treatment -so I guess I make that appointment next

time I visit the onc.

My problem is that I don't seem to be getting enough info to make

the kind of decision I will have to make. (mastectomy vs.

lumpectomy). I want to be as healthy as I can be, and I am

frightened that the bc will come back. Before this I never had a

sick day in my life (slight exaggeration!), but I hardly even caught

a cold. This has been a real adjustment for me, especially since I

have always taken good care of my body. I am worried about the long

term effects of chemo, etc. too - but since I don't have much

choice, I suppose I accept this as something I have to do.

My question to the group is, how do you decide whether to have a

lumpectomy or mastectomy? How about double mastectomy? I am a 36C,

but a bit heavy on my thighs & stomach. My tumor was very large (5

cm), but had only spread to 1 (maybe 2) nodes.

I figured since I have to have reconstruction anyway, I may as well

have something " good " . That is, perhaps something I hear many of

you girls discussing - a trans flap. This way I may look a bit more

attractive - especially since I know I now look such a fright!

Perhaps I don't even know enough about this to make any kind of

decisions. I feel so helpless in this! I don't really know the

options I will have, or how to decide. Of course my main concern is

to be as healthy as possible, and keep the bc away. This seems like

a huge decision for me, something that will stay with me forever.

Girls, if I have said something that is inaccurate according to your

experience, please correct me! I really want to understand my

options! Thanks in advance for any help.

> Hello all,

>

> I am a new member and have been lurking for about 2 weeks. I was

> just diagnosed with infiltrating ductal carcinoma of the left

> breast, grade 2, stage not yet determined, no palpable lymph

nodes,

> ER and PR postive, HER-2 negative. Based on the size of the tumor

> (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be

> having chemo after surgery.

>

> Really, I'm still in a state of shock as I had a needle aspiration

> in the ob/gyn's office with pathology results of " benign

> fibroadenoma " . I did my recommended follow-up mammogram and

> ultrasound the following week, and the radiologist was waffling on

> whether to go ahead with a core biopsy as most of the tumor was

> round, but there were a few " funny looking edges " . I said if

there

> was any question, let's jut do it. Then, " the call " . Then the

FEAR

> set in.

>

> I have so many questions and I hope you will indulge me with my

long

> email. I am looking to anyone in the group who is willing to

> GENEROUSLY share their experience and opinions.

>

> FEAR - How do you all conquer and control the fear? I have

> purchased a few meditational tapes by Bernie Siegel which do help

a

> bit. But I'm not by nature a positive person, I wish I was!, and

I

> am overly analytical. I need to get this fear under control!

>

> SURGERY DECISIONS - I have met with 2 surgeons who have offered up

> lumpectomy + radiation, masectomy, and bi-lateral masectomy. To

go

> forward with the lumpectomy, an MRI is recommended to rule out

other

> tumors and confirm the size of the tumor in relation to the size

of

> my breasts (I'm on the small side.) I've read various pros and

cons

> regarding the MRI and am concerned that it will show a lot of

false

> positives.

>

> The surgeon that I like the best is the one who offered up the bi-

> lateral masectomy based on the density of my breasts. She said

that

> it will be an ongoing challenge to find any other tumors even with

> ultrasound and/or MRI. I posed the " if it were you " scenario, and

> she said that she has a history of breast cancer in her family but

> her mammograms are readable, but she would go forward with the bi-

> lateral masectomy. On the other hand, I've read that lumpectomy +

> radiation is actually more aggressive in treatment. Masectomy

> apparently still has a possibility of cancer recurrence in the

scar

> or chest as well.

>

> Since I am PR/ER positive, I am assuming that I will be put on an

> estrogen-blocker at some point. I read that estrogen-blockers

> decrease the density of breast tissue.

>

> Has anyone proceeded with a bi-lateral masectomy due to dense

> breasts? This is an absolutely mind-boggling decision and I'd

love

> to hear some of your experiences.

>

> A GREAT BIG THANK YOU and HUGS to those who post! I have found a

> lot of comfort in reading your posts and great information and

> resources.

>

> Janet B.

>

> Hi to the other Janet; I've never met anyone else with our name!

> (smile)

>

>

>

>

>

>

>

>

>

>

[Guest guest]

,

All I can say is that if I had known anyone with breast cancer before my surgery, or had access to a group such as this, I would have opted for a double mastectomy. As it was I went with a mastectomy with no recostruction. I wanted ALL the cancer gone. I know the drs say there is the same survival rate but there are a lot of ladies that would disagree. If you have a lumpectomy there is always the chance you might have to go back for a mastectomy. But its a personal decision.

I had little to no side effects from chemo. Just slight nausea and the meds helped that. My hair just thinned but if the cancer comes back I will shave my head. I don't have the energy I had but then I am 16 yrs older than when I was diagnosed. The worst part for me is chemo brain. But not everyone has that problem. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Re: Introduction and Questions, Questions

Hello . I have many questions, too. You said, "...I had enough breast tissue to conserve the breast." I really don't know what will happen with me. I have finished my AC and had 2 Taxol treatments to shrink my tumor before I have surgery. The doctors have told me that I will either have a mastectomy, or lumpectomy/radiation. I am so tired of treatments that I am considering mastectomy. I just want it to be over. But now, the more I investigate, the more I learn. I know now about the problem with lymphodema (sp?)and mastectomy - but I guess I would have that with the lumpectomy too. My tumor was misdiagnosed as "not bc". When I read the radiologists reports, they said that I had "very dense breast tissue", so I want to make future diagnoses easy. Anyway, my docs have told me that I will see the surgeon between my 3rd & 4th Taxol treatment -so I guess I make that appointment next time I visit the onc. My problem is that I don't seem to be getting enough info to make the kind of decision I will have to make. (mastectomy vs. lumpectomy). I want to be as healthy as I can be, and I am frightened that the bc will come back. Before this I never had a sick day in my life (slight exaggeration!), but I hardly even caught a cold. This has been a real adjustment for me, especially since I have always taken good care of my body. I am worried about the long term effects of chemo, etc. too - but since I don't have much choice, I suppose I accept this as something I have to do. My question to the group is, how do you decide whether to have a lumpectomy or mastectomy? How about double mastectomy? I am a 36C, but a bit heavy on my thighs & stomach. My tumor was very large (5 cm), but had only spread to 1 (maybe 2) nodes. I figured since I have to have reconstruction anyway, I may as well have something "good". That is, perhaps something I hear many of you girls discussing - a trans flap. This way I may look a bit more attractive - especially since I know I now look such a fright! Perhaps I don't even know enough about this to make any kind of decisions. I feel so helpless in this! I don't really know the options I will have, or how to decide. Of course my main concern is to be as healthy as possible, and keep the bc away. This seems like a huge decision for me, something that will stay with me forever. Girls, if I have said something that is inaccurate according to your experience, please correct me! I really want to understand my options! Thanks in advance for any help. > Hello all,> > I am a new member and have been lurking for about 2 weeks. I was > just diagnosed with infiltrating ductal carcinoma of the left > breast, grade 2, stage not yet determined, no palpable lymph nodes, > ER and PR postive, HER-2 negative. Based on the size of the tumor > (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be > having chemo after surgery.> > Really, I'm still in a state of shock as I had a needle aspiration > in the ob/gyn's office with pathology results of "benign > fibroadenoma". I did my recommended follow-up mammogram and > ultrasound the following week, and the radiologist was waffling on > whether to go ahead with a core biopsy as most of the tumor was > round, but there were a few "funny looking edges". I said if there > was any question, let's jut do it. Then, "the call". Then the FEAR > set in.> > I have so many questions and I hope you will indulge me with my long > email. I am looking to anyone in the group who is willing to > GENEROUSLY share their experience and opinions.> > FEAR - How do you all conquer and control the fear? I have > purchased a few meditational tapes by Bernie Siegel which do help a > bit. But I'm not by nature a positive person, I wish I was!, and I > am overly analytical. I need to get this fear under control!> > SURGERY DECISIONS - I have met with 2 surgeons who have offered up > lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go > forward with the lumpectomy, an MRI is recommended to rule out other > tumors and confirm the size of the tumor in relation to the size of > my breasts (I'm on the small side.) I've read various pros and cons > regarding the MRI and am concerned that it will show a lot of false > positives.> > The surgeon that I like the best is the one who offered up the bi-> lateral masectomy based on the density of my breasts. She said that > it will be an ongoing challenge to find any other tumors even with > ultrasound and/or MRI. I posed the "if it were you" scenario, and > she said that she has a history of breast cancer in her family but > her mammograms are readable, but she would go forward with the bi-> lateral masectomy. On the other hand, I've read that lumpectomy + > radiation is actually more aggressive in treatment. Masectomy > apparently still has a possibility of cancer recurrence in the scar > or chest as well.> > Since I am PR/ER positive, I am assuming that I will be put on an > estrogen-blocker at some point. I read that estrogen-blockers > decrease the density of breast tissue. > > Has anyone proceeded with a bi-lateral masectomy due to dense > breasts? This is an absolutely mind-boggling decision and I'd love > to hear some of your experiences.> > A GREAT BIG THANK YOU and HUGS to those who post! I have found a > lot of comfort in reading your posts and great information and > resources.> > Janet B.> > Hi to the other Janet; I've never met anyone else with our name! > (smile)> > > > > > > > > >

[Guest guest]

,

All I can say is that if I had known anyone with breast cancer before my surgery, or had access to a group such as this, I would have opted for a double mastectomy. As it was I went with a mastectomy with no recostruction. I wanted ALL the cancer gone. I know the drs say there is the same survival rate but there are a lot of ladies that would disagree. If you have a lumpectomy there is always the chance you might have to go back for a mastectomy. But its a personal decision.

I had little to no side effects from chemo. Just slight nausea and the meds helped that. My hair just thinned but if the cancer comes back I will shave my head. I don't have the energy I had but then I am 16 yrs older than when I was diagnosed. The worst part for me is chemo brain. But not everyone has that problem. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Re: Introduction and Questions, Questions

Hello . I have many questions, too. You said, "...I had enough breast tissue to conserve the breast." I really don't know what will happen with me. I have finished my AC and had 2 Taxol treatments to shrink my tumor before I have surgery. The doctors have told me that I will either have a mastectomy, or lumpectomy/radiation. I am so tired of treatments that I am considering mastectomy. I just want it to be over. But now, the more I investigate, the more I learn. I know now about the problem with lymphodema (sp?)and mastectomy - but I guess I would have that with the lumpectomy too. My tumor was misdiagnosed as "not bc". When I read the radiologists reports, they said that I had "very dense breast tissue", so I want to make future diagnoses easy. Anyway, my docs have told me that I will see the surgeon between my 3rd & 4th Taxol treatment -so I guess I make that appointment next time I visit the onc. My problem is that I don't seem to be getting enough info to make the kind of decision I will have to make. (mastectomy vs. lumpectomy). I want to be as healthy as I can be, and I am frightened that the bc will come back. Before this I never had a sick day in my life (slight exaggeration!), but I hardly even caught a cold. This has been a real adjustment for me, especially since I have always taken good care of my body. I am worried about the long term effects of chemo, etc. too - but since I don't have much choice, I suppose I accept this as something I have to do. My question to the group is, how do you decide whether to have a lumpectomy or mastectomy? How about double mastectomy? I am a 36C, but a bit heavy on my thighs & stomach. My tumor was very large (5 cm), but had only spread to 1 (maybe 2) nodes. I figured since I have to have reconstruction anyway, I may as well have something "good". That is, perhaps something I hear many of you girls discussing - a trans flap. This way I may look a bit more attractive - especially since I know I now look such a fright! Perhaps I don't even know enough about this to make any kind of decisions. I feel so helpless in this! I don't really know the options I will have, or how to decide. Of course my main concern is to be as healthy as possible, and keep the bc away. This seems like a huge decision for me, something that will stay with me forever. Girls, if I have said something that is inaccurate according to your experience, please correct me! I really want to understand my options! Thanks in advance for any help. > Hello all,> > I am a new member and have been lurking for about 2 weeks. I was > just diagnosed with infiltrating ductal carcinoma of the left > breast, grade 2, stage not yet determined, no palpable lymph nodes, > ER and PR postive, HER-2 negative. Based on the size of the tumor > (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be > having chemo after surgery.> > Really, I'm still in a state of shock as I had a needle aspiration > in the ob/gyn's office with pathology results of "benign > fibroadenoma". I did my recommended follow-up mammogram and > ultrasound the following week, and the radiologist was waffling on > whether to go ahead with a core biopsy as most of the tumor was > round, but there were a few "funny looking edges". I said if there > was any question, let's jut do it. Then, "the call". Then the FEAR > set in.> > I have so many questions and I hope you will indulge me with my long > email. I am looking to anyone in the group who is willing to > GENEROUSLY share their experience and opinions.> > FEAR - How do you all conquer and control the fear? I have > purchased a few meditational tapes by Bernie Siegel which do help a > bit. But I'm not by nature a positive person, I wish I was!, and I > am overly analytical. I need to get this fear under control!> > SURGERY DECISIONS - I have met with 2 surgeons who have offered up > lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go > forward with the lumpectomy, an MRI is recommended to rule out other > tumors and confirm the size of the tumor in relation to the size of > my breasts (I'm on the small side.) I've read various pros and cons > regarding the MRI and am concerned that it will show a lot of false > positives.> > The surgeon that I like the best is the one who offered up the bi-> lateral masectomy based on the density of my breasts. She said that > it will be an ongoing challenge to find any other tumors even with > ultrasound and/or MRI. I posed the "if it were you" scenario, and > she said that she has a history of breast cancer in her family but > her mammograms are readable, but she would go forward with the bi-> lateral masectomy. On the other hand, I've read that lumpectomy + > radiation is actually more aggressive in treatment. Masectomy > apparently still has a possibility of cancer recurrence in the scar > or chest as well.> > Since I am PR/ER positive, I am assuming that I will be put on an > estrogen-blocker at some point. I read that estrogen-blockers > decrease the density of breast tissue. > > Has anyone proceeded with a bi-lateral masectomy due to dense > breasts? This is an absolutely mind-boggling decision and I'd love > to hear some of your experiences.> > A GREAT BIG THANK YOU and HUGS to those who post! I have found a > lot of comfort in reading your posts and great information and > resources.> > Janet B.> > Hi to the other Janet; I've never met anyone else with our name! > (smile)> > > > > > > > > >

[Guest guest]

,

All I can say is that if I had known anyone with breast cancer before my surgery, or had access to a group such as this, I would have opted for a double mastectomy. As it was I went with a mastectomy with no recostruction. I wanted ALL the cancer gone. I know the drs say there is the same survival rate but there are a lot of ladies that would disagree. If you have a lumpectomy there is always the chance you might have to go back for a mastectomy. But its a personal decision.

I had little to no side effects from chemo. Just slight nausea and the meds helped that. My hair just thinned but if the cancer comes back I will shave my head. I don't have the energy I had but then I am 16 yrs older than when I was diagnosed. The worst part for me is chemo brain. But not everyone has that problem. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Re: Introduction and Questions, Questions

Hello . I have many questions, too. You said, "...I had enough breast tissue to conserve the breast." I really don't know what will happen with me. I have finished my AC and had 2 Taxol treatments to shrink my tumor before I have surgery. The doctors have told me that I will either have a mastectomy, or lumpectomy/radiation. I am so tired of treatments that I am considering mastectomy. I just want it to be over. But now, the more I investigate, the more I learn. I know now about the problem with lymphodema (sp?)and mastectomy - but I guess I would have that with the lumpectomy too. My tumor was misdiagnosed as "not bc". When I read the radiologists reports, they said that I had "very dense breast tissue", so I want to make future diagnoses easy. Anyway, my docs have told me that I will see the surgeon between my 3rd & 4th Taxol treatment -so I guess I make that appointment next time I visit the onc. My problem is that I don't seem to be getting enough info to make the kind of decision I will have to make. (mastectomy vs. lumpectomy). I want to be as healthy as I can be, and I am frightened that the bc will come back. Before this I never had a sick day in my life (slight exaggeration!), but I hardly even caught a cold. This has been a real adjustment for me, especially since I have always taken good care of my body. I am worried about the long term effects of chemo, etc. too - but since I don't have much choice, I suppose I accept this as something I have to do. My question to the group is, how do you decide whether to have a lumpectomy or mastectomy? How about double mastectomy? I am a 36C, but a bit heavy on my thighs & stomach. My tumor was very large (5 cm), but had only spread to 1 (maybe 2) nodes. I figured since I have to have reconstruction anyway, I may as well have something "good". That is, perhaps something I hear many of you girls discussing - a trans flap. This way I may look a bit more attractive - especially since I know I now look such a fright! Perhaps I don't even know enough about this to make any kind of decisions. I feel so helpless in this! I don't really know the options I will have, or how to decide. Of course my main concern is to be as healthy as possible, and keep the bc away. This seems like a huge decision for me, something that will stay with me forever. Girls, if I have said something that is inaccurate according to your experience, please correct me! I really want to understand my options! Thanks in advance for any help. > Hello all,> > I am a new member and have been lurking for about 2 weeks. I was > just diagnosed with infiltrating ductal carcinoma of the left > breast, grade 2, stage not yet determined, no palpable lymph nodes, > ER and PR postive, HER-2 negative. Based on the size of the tumor > (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be > having chemo after surgery.> > Really, I'm still in a state of shock as I had a needle aspiration > in the ob/gyn's office with pathology results of "benign > fibroadenoma". I did my recommended follow-up mammogram and > ultrasound the following week, and the radiologist was waffling on > whether to go ahead with a core biopsy as most of the tumor was > round, but there were a few "funny looking edges". I said if there > was any question, let's jut do it. Then, "the call". Then the FEAR > set in.> > I have so many questions and I hope you will indulge me with my long > email. I am looking to anyone in the group who is willing to > GENEROUSLY share their experience and opinions.> > FEAR - How do you all conquer and control the fear? I have > purchased a few meditational tapes by Bernie Siegel which do help a > bit. But I'm not by nature a positive person, I wish I was!, and I > am overly analytical. I need to get this fear under control!> > SURGERY DECISIONS - I have met with 2 surgeons who have offered up > lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go > forward with the lumpectomy, an MRI is recommended to rule out other > tumors and confirm the size of the tumor in relation to the size of > my breasts (I'm on the small side.) I've read various pros and cons > regarding the MRI and am concerned that it will show a lot of false > positives.> > The surgeon that I like the best is the one who offered up the bi-> lateral masectomy based on the density of my breasts. She said that > it will be an ongoing challenge to find any other tumors even with > ultrasound and/or MRI. I posed the "if it were you" scenario, and > she said that she has a history of breast cancer in her family but > her mammograms are readable, but she would go forward with the bi-> lateral masectomy. On the other hand, I've read that lumpectomy + > radiation is actually more aggressive in treatment. Masectomy > apparently still has a possibility of cancer recurrence in the scar > or chest as well.> > Since I am PR/ER positive, I am assuming that I will be put on an > estrogen-blocker at some point. I read that estrogen-blockers > decrease the density of breast tissue. > > Has anyone proceeded with a bi-lateral masectomy due to dense > breasts? This is an absolutely mind-boggling decision and I'd love > to hear some of your experiences.> > A GREAT BIG THANK YOU and HUGS to those who post! I have found a > lot of comfort in reading your posts and great information and > resources.> > Janet B.> > Hi to the other Janet; I've never met anyone else with our name! > (smile)> > > > > > > > > >

[Guest guest]

I understand this desire to be over. It seems that it never does. But the women who have gone through it years ago can say that it does go way. Before surgery I talked to my oncologist about treating before surgery but he said that I would have to do chemo after anyway and the tumor wasn’t that big in comparison with my breast size. Now I am going to my 4th and last taxol treatment. It happens though that I am having some very unsettling side effects from taxol and I am afraid of those. So if they do not go way by my next treatment, I am going to ask him for something else. They were supposed to have gone way by now and nothing. You

said you did taxol, so, did you have tingling and itching all over your body? This is maddening, and many nights I can barely sleep. Lymphoedema is something you may have once your lymph nodes are all removed. It seems that it happens out of the blue. So it can happen even years after the surgery or never happen. There are some precautions you have to take like keeping your arm way from heat, being careful about cuts, careful about circulation or pressure, not lifting too much weight, etc. For me it is tough; I used to do rock climbing… My tumor was 2.3 cm and spread to 2 nodes. I read a lot of articles and there is

no evidence to say that the mastectomy is better than lumpectomy plus radiation, but I guess this is a personal decision. In my case I would not hear about mastectomy. The assistant doctor said I was vain. I said life is not only about keeping living. So, you being a 36C have a lot of breast tissue, so it may not be necessary to have a mastectomy. But this is something for you and your doctor to decide. And as they do surgery they will find out about the lump and the margins, too. Me too, I have always been healthy and active and no cases in my family, so it was a shock. As for reconstruction for mastectomy I do not know much. Since I decided I would not do it, I didn’t get much info. I just know some women who have done and they are satisfied. They even got a new flat stomach! Anyway, I always try to remember that there is life after BC and there are things I would not compromise. For example, I have already compromised my life style, my fertility, my sexual response, my physical activity and other things. When is it enough? Am I supposed to compromise everything and be half a woman I used to be? Now these last side effects are scary and to think I may have these for the rest of my life raise the question of if it is worth the risk. So many questions… no wonder I am seeing the shrink. I hope I didn’t make you more confused. Hugs wrote: Hello . I have many questions, too. You said, "...I had enough breast tissue to conserve the breast." I really don't know what will happen with me. I have finished my AC and had 2 Taxol treatments to shrink my tumor before I have surgery. The doctors have told me that I will either have a mastectomy, or lumpectomy/radiation. I am so

tired of treatments that I am considering mastectomy. I just want it to be over. But now, the more I investigate, the more I learn. I know now about the problem with lymphodema (sp?)and mastectomy - but I guess I would have that with the lumpectomy too. My tumor was misdiagnosed as "not bc". When I read the radiologists reports, they said that I had "very dense breast tissue", so I want to make future diagnoses easy. Anyway, my docs have told me that I will see the surgeon between my 3rd & 4th Taxol treatment -so I guess I make that appointment next time I visit the onc. My problem is that I don't seem to be getting enough info to make the kind of decision I will have to make. (mastectomy vs. lumpectomy). I want to be as healthy as I can be, and I am frightened that the bc will come back. Before this I never had a sick day in my life (slight exaggeration!), but I hardly even caught a cold. This has

been a real adjustment for me, especially since I have always taken good care of my body. I am worried about the long term effects of chemo, etc. too - but since I don't have much choice, I suppose I accept this as something I have to do. My question to the group is, how do you decide whether to have a lumpectomy or mastectomy? How about double mastectomy? I am a 36C, but a bit heavy on my thighs & stomach. My tumor was very large (5 cm), but had only spread to 1 (maybe 2) nodes. I figured since I have to have reconstruction anyway, I may as well have something "good". That is, perhaps something I hear many of you girls discussing - a trans flap. This way I may look a bit more attractive - especially since I know I now look such a fright! Perhaps I don't even know enough about this to make any kind of decisions. I feel so helpless in this! I don't really know the options I will have, or how to decide. Of course my

main concern is to be as healthy as possible, and keep the bc away. This seems like a huge decision for me, something that will stay with me forever. Girls, if I have said something that is inaccurate according to your experience, please correct me! I really want to understand my options! Thanks in advance for any help. > Hello all,> > I am a new member and have been lurking for about 2 weeks. I was > just diagnosed with infiltrating ductal carcinoma of the left > breast, grade 2, stage not yet determined,

no palpable lymph nodes, > ER and PR postive, HER-2 negative. Based on the size of the tumor > (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be > having chemo after surgery.> > Really, I'm still in a state of shock as I had a needle aspiration > in the ob/gyn's office with pathology results of "benign > fibroadenoma". I did my recommended follow-up mammogram and > ultrasound the following week, and the radiologist was waffling on > whether to go ahead with a core biopsy as most of the tumor was > round, but there were a few "funny looking edges". I said if there > was any question, let's jut do it. Then, "the call". Then the FEAR > set in.> > I have so many questions and I hope you will indulge me with my long > email. I am looking to anyone in the group who is willing to > GENEROUSLY share their experience and

opinions.> > FEAR - How do you all conquer and control the fear? I have > purchased a few meditational tapes by Bernie Siegel which do help a > bit. But I'm not by nature a positive person, I wish I was!, and I > am overly analytical. I need to get this fear under control!> > SURGERY DECISIONS - I have met with 2 surgeons who have offered up > lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go > forward with the lumpectomy, an MRI is recommended to rule out other > tumors and confirm the size of the tumor in relation to the size of > my breasts (I'm on the small side.) I've read various pros and cons > regarding the MRI and am concerned that it will show a lot of false > positives.> > The surgeon that I like the best is the one who offered up the bi-> lateral masectomy based on the density of my breasts. She said

that > it will be an ongoing challenge to find any other tumors even with > ultrasound and/or MRI. I posed the "if it were you" scenario, and > she said that she has a history of breast cancer in her family but > her mammograms are readable, but she would go forward with the bi-> lateral masectomy. On the other hand, I've read that lumpectomy + > radiation is actually more aggressive in treatment. Masectomy > apparently still has a possibility of cancer recurrence in the scar > or chest as well.> > Since I am PR/ER positive, I am assuming that I will be put on an > estrogen-blocker at some point. I read that estrogen-blockers > decrease the density of breast tissue. > > Has anyone proceeded with a bi-lateral masectomy due to dense > breasts? This is an absolutely mind-boggling decision and I'd love > to hear some of your experiences.> >

A GREAT BIG THANK YOU and HUGS to those who post! I have found a > lot of comfort in reading your posts and great information and > resources.> > Janet B.> > Hi to the other Janet; I've never met anyone else with our name! > (smile)> > > > > > > > > >

[Guest guest]

I understand this desire to be over. It seems that it never does. But the women who have gone through it years ago can say that it does go way. Before surgery I talked to my oncologist about treating before surgery but he said that I would have to do chemo after anyway and the tumor wasn’t that big in comparison with my breast size. Now I am going to my 4th and last taxol treatment. It happens though that I am having some very unsettling side effects from taxol and I am afraid of those. So if they do not go way by my next treatment, I am going to ask him for something else. They were supposed to have gone way by now and nothing. You

said you did taxol, so, did you have tingling and itching all over your body? This is maddening, and many nights I can barely sleep. Lymphoedema is something you may have once your lymph nodes are all removed. It seems that it happens out of the blue. So it can happen even years after the surgery or never happen. There are some precautions you have to take like keeping your arm way from heat, being careful about cuts, careful about circulation or pressure, not lifting too much weight, etc. For me it is tough; I used to do rock climbing… My tumor was 2.3 cm and spread to 2 nodes. I read a lot of articles and there is

no evidence to say that the mastectomy is better than lumpectomy plus radiation, but I guess this is a personal decision. In my case I would not hear about mastectomy. The assistant doctor said I was vain. I said life is not only about keeping living. So, you being a 36C have a lot of breast tissue, so it may not be necessary to have a mastectomy. But this is something for you and your doctor to decide. And as they do surgery they will find out about the lump and the margins, too. Me too, I have always been healthy and active and no cases in my family, so it was a shock. As for reconstruction for mastectomy I do not know much. Since I decided I would not do it, I didn’t get much info. I just know some women who have done and they are satisfied. They even got a new flat stomach! Anyway, I always try to remember that there is life after BC and there are things I would not compromise. For example, I have already compromised my life style, my fertility, my sexual response, my physical activity and other things. When is it enough? Am I supposed to compromise everything and be half a woman I used to be? Now these last side effects are scary and to think I may have these for the rest of my life raise the question of if it is worth the risk. So many questions… no wonder I am seeing the shrink. I hope I didn’t make you more confused. Hugs wrote: Hello . I have many questions, too. You said, "...I had enough breast tissue to conserve the breast." I really don't know what will happen with me. I have finished my AC and had 2 Taxol treatments to shrink my tumor before I have surgery. The doctors have told me that I will either have a mastectomy, or lumpectomy/radiation. I am so

tired of treatments that I am considering mastectomy. I just want it to be over. But now, the more I investigate, the more I learn. I know now about the problem with lymphodema (sp?)and mastectomy - but I guess I would have that with the lumpectomy too. My tumor was misdiagnosed as "not bc". When I read the radiologists reports, they said that I had "very dense breast tissue", so I want to make future diagnoses easy. Anyway, my docs have told me that I will see the surgeon between my 3rd & 4th Taxol treatment -so I guess I make that appointment next time I visit the onc. My problem is that I don't seem to be getting enough info to make the kind of decision I will have to make. (mastectomy vs. lumpectomy). I want to be as healthy as I can be, and I am frightened that the bc will come back. Before this I never had a sick day in my life (slight exaggeration!), but I hardly even caught a cold. This has

been a real adjustment for me, especially since I have always taken good care of my body. I am worried about the long term effects of chemo, etc. too - but since I don't have much choice, I suppose I accept this as something I have to do. My question to the group is, how do you decide whether to have a lumpectomy or mastectomy? How about double mastectomy? I am a 36C, but a bit heavy on my thighs & stomach. My tumor was very large (5 cm), but had only spread to 1 (maybe 2) nodes. I figured since I have to have reconstruction anyway, I may as well have something "good". That is, perhaps something I hear many of you girls discussing - a trans flap. This way I may look a bit more attractive - especially since I know I now look such a fright! Perhaps I don't even know enough about this to make any kind of decisions. I feel so helpless in this! I don't really know the options I will have, or how to decide. Of course my

main concern is to be as healthy as possible, and keep the bc away. This seems like a huge decision for me, something that will stay with me forever. Girls, if I have said something that is inaccurate according to your experience, please correct me! I really want to understand my options! Thanks in advance for any help. > Hello all,> > I am a new member and have been lurking for about 2 weeks. I was > just diagnosed with infiltrating ductal carcinoma of the left > breast, grade 2, stage not yet determined,

no palpable lymph nodes, > ER and PR postive, HER-2 negative. Based on the size of the tumor > (approx. 1.7 x 1.9 measured by ultrasound), I will definitely be > having chemo after surgery.> > Really, I'm still in a state of shock as I had a needle aspiration > in the ob/gyn's office with pathology results of "benign > fibroadenoma". I did my recommended follow-up mammogram and > ultrasound the following week, and the radiologist was waffling on > whether to go ahead with a core biopsy as most of the tumor was > round, but there were a few "funny looking edges". I said if there > was any question, let's jut do it. Then, "the call". Then the FEAR > set in.> > I have so many questions and I hope you will indulge me with my long > email. I am looking to anyone in the group who is willing to > GENEROUSLY share their experience and

opinions.> > FEAR - How do you all conquer and control the fear? I have > purchased a few meditational tapes by Bernie Siegel which do help a > bit. But I'm not by nature a positive person, I wish I was!, and I > am overly analytical. I need to get this fear under control!> > SURGERY DECISIONS - I have met with 2 surgeons who have offered up > lumpectomy + radiation, masectomy, and bi-lateral masectomy. To go > forward with the lumpectomy, an MRI is recommended to rule out other > tumors and confirm the size of the tumor in relation to the size of > my breasts (I'm on the small side.) I've read various pros and cons > regarding the MRI and am concerned that it will show a lot of false > positives.> > The surgeon that I like the best is the one who offered up the bi-> lateral masectomy based on the density of my breasts. She said

that > it will be an ongoing challenge to find any other tumors even with > ultrasound and/or MRI. I posed the "if it were you" scenario, and > she said that she has a history of breast cancer in her family but > her mammograms are readable, but she would go forward with the bi-> lateral masectomy. On the other hand, I've read that lumpectomy + > radiation is actually more aggressive in treatment. Masectomy > apparently still has a possibility of cancer recurrence in the scar > or chest as well.> > Since I am PR/ER positive, I am assuming that I will be put on an > estrogen-blocker at some point. I read that estrogen-blockers > decrease the density of breast tissue. > > Has anyone proceeded with a bi-lateral masectomy due to dense > breasts? This is an absolutely mind-boggling decision and I'd love > to hear some of your experiences.> >

A GREAT BIG THANK YOU and HUGS to those who post! I have found a > lot of comfort in reading your posts and great information and > resources.> > Janet B.> > Hi to the other Janet; I've never met anyone else with our name! > (smile)> > > > > > > > > >

[Guest guest]

Hi ,

I feel for you and your difficult decision. There's so much you have to

consider, and each women's situation is different.

Remember, you can have several consults with your surgeon before you

make your decision. At the first meeting he or she will be presenting

alot of information, as well as gathering information from you. The

surgeon will make a recommendation or give you several options.

Things that would make you lean towards mastectomy:

family history

dense breasts

location of tumor

avoiding radiation (if no positive lymph nodes)

I had a lumpectomy first, but did not have clear margins, so decided on

the mastectomy. Also, my tumor(s) - plural as it turned out, were right

under my nipple, so I would have had to have a mastectomy. The pathology

report found more DCIS and a possible microinvasion. It all confirmed my

decision was the right one.

Though, I'm not sorry I did the lumpectomy. I'm the kind of person who

spends way too much time 2nd-guessing myself, so I know I tried to do

the less invasive surgery first.

As for bilateral mastectomy, I didn't really consider it. Perhaps if you

had a family history, it would make sense. It's possible even if you

don't do a bilateral that your surgeon may have to do some surgery on

your breast to get it to 'match' your reconstruction.

I've heard that DIEP reconstruction, though longer surgery, is less

painful to recover from than trans-flap, and keeps the stomach muscles

intact. I considered that, but aversion of any elected medical procedure

is keeping me from exploring it further. I guess you have to have some

positive outcome - and a flatter stomach would be nice.

-

[Guest guest]

Hi ,

I feel for you and your difficult decision. There's so much you have to

consider, and each women's situation is different.

Remember, you can have several consults with your surgeon before you

make your decision. At the first meeting he or she will be presenting

alot of information, as well as gathering information from you. The

surgeon will make a recommendation or give you several options.

Things that would make you lean towards mastectomy:

family history

dense breasts

location of tumor

avoiding radiation (if no positive lymph nodes)

I had a lumpectomy first, but did not have clear margins, so decided on

the mastectomy. Also, my tumor(s) - plural as it turned out, were right

under my nipple, so I would have had to have a mastectomy. The pathology

report found more DCIS and a possible microinvasion. It all confirmed my

decision was the right one.

Though, I'm not sorry I did the lumpectomy. I'm the kind of person who

spends way too much time 2nd-guessing myself, so I know I tried to do

the less invasive surgery first.

As for bilateral mastectomy, I didn't really consider it. Perhaps if you

had a family history, it would make sense. It's possible even if you

don't do a bilateral that your surgeon may have to do some surgery on

your breast to get it to 'match' your reconstruction.

I've heard that DIEP reconstruction, though longer surgery, is less

painful to recover from than trans-flap, and keeps the stomach muscles

intact. I considered that, but aversion of any elected medical procedure

is keeping me from exploring it further. I guess you have to have some

positive outcome - and a flatter stomach would be nice.

-

[Guest guest]

Hi ,

I feel for you and your difficult decision. There's so much you have to

consider, and each women's situation is different.

Remember, you can have several consults with your surgeon before you

make your decision. At the first meeting he or she will be presenting

alot of information, as well as gathering information from you. The

surgeon will make a recommendation or give you several options.

Things that would make you lean towards mastectomy:

family history

dense breasts

location of tumor

avoiding radiation (if no positive lymph nodes)

I had a lumpectomy first, but did not have clear margins, so decided on

the mastectomy. Also, my tumor(s) - plural as it turned out, were right

under my nipple, so I would have had to have a mastectomy. The pathology

report found more DCIS and a possible microinvasion. It all confirmed my

decision was the right one.

Though, I'm not sorry I did the lumpectomy. I'm the kind of person who

spends way too much time 2nd-guessing myself, so I know I tried to do

the less invasive surgery first.

As for bilateral mastectomy, I didn't really consider it. Perhaps if you

had a family history, it would make sense. It's possible even if you

don't do a bilateral that your surgeon may have to do some surgery on

your breast to get it to 'match' your reconstruction.

I've heard that DIEP reconstruction, though longer surgery, is less

painful to recover from than trans-flap, and keeps the stomach muscles

intact. I considered that, but aversion of any elected medical procedure

is keeping me from exploring it further. I guess you have to have some

positive outcome - and a flatter stomach would be nice.

-

[Guest guest]

Thanks, , and everyone who answered with help. What is DIEP?

>

> Hi ,

>

> I feel for you and your difficult decision. There's so much you

have to

> consider, and each women's situation is different.

>

> Remember, you can have several consults with your surgeon before

you

> make your decision. At the first meeting he or she will be

presenting

> alot of information, as well as gathering information from you.

The

> surgeon will make a recommendation or give you several options.

>

> Things that would make you lean towards mastectomy:

> family history

> dense breasts

> location of tumor

> avoiding radiation (if no positive lymph nodes)

>

> I had a lumpectomy first, but did not have clear margins, so

decided on

> the mastectomy. Also, my tumor(s) - plural as it turned out, were

right

> under my nipple, so I would have had to have a mastectomy. The

pathology

> report found more DCIS and a possible microinvasion. It all

confirmed my

> decision was the right one.

>

> Though, I'm not sorry I did the lumpectomy. I'm the kind of person

who

> spends way too much time 2nd-guessing myself, so I know I tried to

do

> the less invasive surgery first.

>

> As for bilateral mastectomy, I didn't really consider it. Perhaps

if you

> had a family history, it would make sense. It's possible even if

you

> don't do a bilateral that your surgeon may have to do some surgery

on

> your breast to get it to 'match' your reconstruction.

>

> I've heard that DIEP reconstruction, though longer surgery, is

less

> painful to recover from than trans-flap, and keeps the stomach

muscles

> intact. I considered that, but aversion of any elected medical

procedure

> is keeping me from exploring it further. I guess you have to have

some

> positive outcome - and a flatter stomach would be nice.

>

> -

>

[Guest guest]

from breastcancer.org

DIEP tissue flap [also called deep inferior epigastric perforator tissue

flap]

(DEEP TISH-yoo FLAP)

This is a flap of skin and fat taken from the lower abdomen. It is used

for breast reconstruction. Its advantage over the TRAM flap method of

breast reconstruction is that it does not use the abdominal wall muscle.

This tends to shorten recovery time. It also keeps the abdominal wall

strong. Some women consider the " tummy tuck " that this procedure gives

to be an added benefit. Its disadvantage relative to the TRAM flap is

that it requires surgery with a microscope. This is because the surgeon

has to reattach the belly blood vessel to a new blood supply in the

breast area. This technique is not widely available.

wrote on 6/6/2006, 7:52 AM:

> Thanks, , and everyone who answered with help. What is DIEP?

>

[Guest guest]

from breastcancer.org

DIEP tissue flap [also called deep inferior epigastric perforator tissue

flap]

(DEEP TISH-yoo FLAP)

This is a flap of skin and fat taken from the lower abdomen. It is used

for breast reconstruction. Its advantage over the TRAM flap method of

breast reconstruction is that it does not use the abdominal wall muscle.

This tends to shorten recovery time. It also keeps the abdominal wall

strong. Some women consider the " tummy tuck " that this procedure gives

to be an added benefit. Its disadvantage relative to the TRAM flap is

that it requires surgery with a microscope. This is because the surgeon

has to reattach the belly blood vessel to a new blood supply in the

breast area. This technique is not widely available.

wrote on 6/6/2006, 7:52 AM:

> Thanks, , and everyone who answered with help. What is DIEP?

>