Guest guest Posted January 18, 2009 Report Share Posted January 18, 2009 At 06:04 PM 1/18/2009, you wrote: Will it be possible to eventually heal even with small amounts of illegals? Yes, but it will take longer. I have a supplement which I use for muscle spasm in my back. It's not SCD-legal. I was in a panic when I first started SCD, because my alternative is codeine -- and I didn't want to go back to that. I spoke with Elaine, and she agreed that I didn't want to go back to codeine. So I have my supplement (and no back spasms), but it's taking me longer to heal than I want to, and I must be scrupulously careful about not ingesting any other illegals to compensate for the supplement. <sigh> I was just reaching the point where MAYBE I could relax some of that when I was diagnosed with the cancer last year, so I'm back to being very careful all over again because I don't want to risk any strains on the system. (I see my oncologist next Friday for another set of tests. <fingers crossed>) — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2009 Report Share Posted January 18, 2009 Hi Holly, I also take Pentasa. If you have the prescription written for the active ingredient (mesalamine--sp unsure)--the compounding pharmacy where I live charged 1/3 of the price. Only problem was explaining to everyone 'why'. If you go into the pharmacy personally and talk to the person then your doctor, it was a pleasant surprise to find out it was so much cheaper also. Debbie 39 cd scd originally 12/05 (not current) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2009 Report Share Posted January 18, 2009 Hi Holly, I also take Pentasa. If you have the prescription written for the active ingredient (mesalamine--sp unsure)--the compounding pharmacy where I live charged 1/3 of the price. Only problem was explaining to everyone 'why'. If you go into the pharmacy personally and talk to the person then your doctor, it was a pleasant surprise to find out it was so much cheaper also. Debbie 39 cd scd originally 12/05 (not current) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Holly, I have Crohn's and have to take Dilantin which has illegals (sucrose, lactose, starch-wheat). I didn't have it compounded so have been getting those illegals throughout my healing process. I don't know what the impact will be for you, but I was able to achieve remission after 2-1/2 years on the SCD which included plenty of screw ups along the way. So in my experience, it is possible to eventually heal even with those regular small doses of illegals. Cheers, Stocker CD 1983 SCD 1/2005 Remission 8/2007 http://eatingSCD.wordpress.com http://youtube.com/eatingSCD > > I can't afford to get my meds (Pentasa, Protonix, Toprol, Effexor, > Lutera) compounded. They all have illegals, with Pentasa being the > worst offender. Will this have a major impact on my progress with the > diet? Will it be possible to eventually heal even with small amounts > of illegals? > > Holly > Crohn's > SCD 12/01/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Thanks everyone! That makes me feel better. I was worried that the few illegals would screw everything up. I'm hoping to drop the Pentasa eventually, because the Humira injections seem to do much more for me. I'll also look into getting a mesalimine prescription. I'd like to switch to sulfasalazine like Elaine recommended, but my dad is highly allergic to it, so I'm afraid to try it. Good luck with you doctor's appointment Marilyn! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Thanks everyone! That makes me feel better. I was worried that the few illegals would screw everything up. I'm hoping to drop the Pentasa eventually, because the Humira injections seem to do much more for me. I'll also look into getting a mesalimine prescription. I'd like to switch to sulfasalazine like Elaine recommended, but my dad is highly allergic to it, so I'm afraid to try it. Good luck with you doctor's appointment Marilyn! Quote Link to comment Share on other sites More sharing options...
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