Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Barb, Glad to hear things are going along ok. Continued prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com CinDWood Crafts http://www.cindwoodcrafts.com Update - Barb Just wanted to update you all.... I have completed my 4th treatment of A/C about 10 days ago. This was by far the easiest treatment of all 4. Onc backed me off the steroids and this seemed to take care of day 3 & 4 of headache, nausea, all over crappy feeling. It's taken about a week to start to get some energy back and get my digestive system working less often and my stomach to quiet down. My red blood cells are down, but insurance will not pay for the meds until I am below a certain point. This made me a little more tired but I've been eating my liver and leafy veggies, hoping to get it back up. I talked to the onc about Abraxane instead of Taxol or Taxotere for the next 4 treatments. Although I already knew this, he said there was not enough long term experience with Abraxane and said Taxotere works the best with the radiation, so that is where we are going. He said he could put me on meds with less side effects, but they had less long term effects too. It wasn't an option for me.... I want to kick cancer butt with the strongest meds out there. I was in last week and got the simulation and tattooing done for radiation. Have to go in on Wednesday for x-rays and then radiation starts on Thursday for the common 33 treatments. Taxotere starts a week from Thursday. Taxotere plus steroids. No nausea meds given. Will see how I react to that one and will again use the backing down of steroids (with oncs approval, of course). My daughter came in on day 4 of last treatment to help out with my grandson as school was out for the summer. I wasn't sure how those first few days of him home all day was going to go. He loved having his Aunt here to play with him and take him places. I was able to take my daughter to the cancer center so she could see where the infusion room was and what everything looked like. She said she feels so disconnected because she is so far away (600 miles) and wanted to be able to imagine where I was and what was happening. She shocked me when she asked to see my scars... just to make it real. We were able to get some things done (arrangements to have someone come in and clean my house, shave my head of all the stubble and do some 'boob' shopping) and it was good to have her here. Anyway, I am doing fine... half way done and on the down side (I hope). Caren and Dianne... how are you both doing? Has anyone been able to locate Dari? It seems like forever since she has posted. Keeping you all in my prayers.... Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 yeah, Barb!!! Congratulations on making it through the AC. Hope the Taxol treats you better. Are you taking iron supplements for your low RBC in addition to beef and vegies? take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 yeah, Barb!!! Congratulations on making it through the AC. Hope the Taxol treats you better. Are you taking iron supplements for your low RBC in addition to beef and vegies? take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 no supplements.... just trying to eat good. Have another week so we'll see how I do on the next blood test. Barb Re: Update - Barb yeah, Barb!!! Congratulations on making it through the AC. Hope the Taxol treats you better. Are you taking iron supplements for your low RBC in addition to beef and vegies? take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 I had a low RBC and it took me over a month to get it back up. During treatment I got Procrit shots to boost my RBC count because I was on the every 2 week schedule, and they didn't want me to miss a treatment. Good luck, Barb Roy wrote on 6/20/2006, 10:01 PM: > no supplements.... just trying to eat good. Have another week so we'll > see how I do on the next blood test. > Barb > > Re: Update - Barb > > > yeah, Barb!!! > > Congratulations on making it through the AC. > > Hope the Taxol treats you better. > > Are you taking iron supplements for your low RBC in addition to beef > and > vegies? > > take care, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Dear Barb, Honey, it was so good to see your post. You've been on my mind lately and was hoping you were " moving right along. " No, I don't think anyone has heard from Dari, but you know sometimes we just have to walk away from the computer. All we can do is sent her our thoughts and prayer and hope everything is okay with her. Good luck with the next round of treatment. I'm glad to hear your daughter came in. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 I'm borderline and insurance won't pay until I go below a certain point for the RBC shot (something other than Procrit). Since I'm now on a 3 week schedule with the radiation, it won't be until next week to see how the count is. I feel better. Coming off the last chemo with the low count was pretty tiring, but I do feel better now. Will keep eating the right stuff and see what the blood test says. What I don't want to do is to stay where I was... either boost it on my own or fall below that point so I can get a shot of something. Next week... Barb Re: Update - Barb > > > yeah, Barb!!! > > Congratulations on making it through the AC. > > Hope the Taxol treats you better. > > Are you taking iron supplements for your low RBC in addition to beef > and > vegies? > > take care, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 I'm borderline and insurance won't pay until I go below a certain point for the RBC shot (something other than Procrit). Since I'm now on a 3 week schedule with the radiation, it won't be until next week to see how the count is. I feel better. Coming off the last chemo with the low count was pretty tiring, but I do feel better now. Will keep eating the right stuff and see what the blood test says. What I don't want to do is to stay where I was... either boost it on my own or fall below that point so I can get a shot of something. Next week... Barb Re: Update - Barb > > > yeah, Barb!!! > > Congratulations on making it through the AC. > > Hope the Taxol treats you better. > > Are you taking iron supplements for your low RBC in addition to beef > and > vegies? > > take care, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 , I have found that sometimes, even when I'm feeling good, I just don't post... just need a break, so, yes, I do know what you mean. I just hope and pray everything is okay with Dari. She was having such a hard time there for a while. Some day... some day we can pray this treatment (or cure) gets better. I'm doing well, at times, I wonder.. too good. I've heard of others doing better and others doing worse... but treatment isn't over, so I guess I should be glad and thank God (I do) for making it this far with so little problems. 15 years ago when my Dad went through chemo it was so much worse... in 15 years we can only hope things will be so much better. Having this extra week has really been a help. On to radiation tomorrow, Taxotere in a week. I hate missing my summer, but life is too important. I want to be around to watch those grandkids grow up.... and see the next ones born. Having my daughter here was a blessing. We are so close even though she is so far away. Something about that mother/daughter bond. Thanks for your comments. Hope all is well with you. Barb Re: Update - Barb Dear Barb, Honey, it was so good to see your post. You've been on my mind lately and was hoping you were " moving right along. " No, I don't think anyone has heard from Dari, but you know sometimes we just have to walk away from the computer. All we can do is sent her our thoughts and prayer and hope everything is okay with her. Good luck with the next round of treatment. I'm glad to hear your daughter came in. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Hi Barb, Glad the A/C is over. And for the huge majority of people, taxanes are not a big problem. Just watch out for the nerves. Even if you have something, catching it in the beginning can be treated and controlled. Steroids are a drag. I am all bloated and swollen with them. But my physical therapist told me to keep drinking a lot of water and tea that it will be gone much sonner. I have now a jar of 8 cups of tea in front of me! Hugs Barb Roy wrote: Just wanted to update you all.... I have completed my 4th treatment of A/C about 10 days ago. This was by far the easiest treatment of all 4. Onc backed me off the steroids and this seemed to take care of day 3 & 4 of headache, nausea, all over crappy feeling. It's taken about a week to start to get some energy back and get my digestive system working less often and my stomach to quiet down. My red blood cells are down, but insurance will not pay for the meds until I am below a certain point. This made me a little more tired but I've been eating my liver and leafy veggies, hoping to get it back up. I talked to the onc about Abraxane instead of Taxol or Taxotere for the next 4 treatments. Although I already knew this, he said there was not enough long term experience with Abraxane and said Taxotere works the best with the radiation, so that is where we are going. He said he could put me on meds with less side effects, but they had less long term effects too. It wasn't an option for me.... I want to kick cancer butt with the strongest meds out there. I was in last week and got the simulation and tattooing done for radiation. Have to go in on Wednesday for x-rays and then radiation starts on Thursday for the common 33 treatments. Taxotere starts a week from Thursday. Taxotere plus steroids. No nausea meds given. Will see how I react to that one and will again use the backing down of steroids (with oncs approval, of course). My daughter came in on day 4 of last treatment to help out with my grandson as school was out for the summer. I wasn't sure how those first few days of him home all day was going to go. He loved having his Aunt here to play with him and take him places. I was able to take my daughter to the cancer center so she could see where the infusion room was and what everything looked like. She said she feels so disconnected because she is so far away (600 miles) and wanted to be able to imagine where I was and what was happening. She shocked me when she asked to see my scars... just to make it real. We were able to get some things done (arrangements to have someone come in and clean my house, shave my head of all the stubble and do some 'boob' shopping) and it was good to have her here. Anyway, I am doing fine... half way done and on the down side (I hope). Caren and Dianne... how are you both doing? Has anyone been able to locate Dari? It seems like forever since she has posted. Keeping you all in my prayers.... Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Hi Barb, Glad the A/C is over. And for the huge majority of people, taxanes are not a big problem. Just watch out for the nerves. Even if you have something, catching it in the beginning can be treated and controlled. Steroids are a drag. I am all bloated and swollen with them. But my physical therapist told me to keep drinking a lot of water and tea that it will be gone much sonner. I have now a jar of 8 cups of tea in front of me! Hugs Barb Roy wrote: Just wanted to update you all.... I have completed my 4th treatment of A/C about 10 days ago. This was by far the easiest treatment of all 4. Onc backed me off the steroids and this seemed to take care of day 3 & 4 of headache, nausea, all over crappy feeling. It's taken about a week to start to get some energy back and get my digestive system working less often and my stomach to quiet down. My red blood cells are down, but insurance will not pay for the meds until I am below a certain point. This made me a little more tired but I've been eating my liver and leafy veggies, hoping to get it back up. I talked to the onc about Abraxane instead of Taxol or Taxotere for the next 4 treatments. Although I already knew this, he said there was not enough long term experience with Abraxane and said Taxotere works the best with the radiation, so that is where we are going. He said he could put me on meds with less side effects, but they had less long term effects too. It wasn't an option for me.... I want to kick cancer butt with the strongest meds out there. I was in last week and got the simulation and tattooing done for radiation. Have to go in on Wednesday for x-rays and then radiation starts on Thursday for the common 33 treatments. Taxotere starts a week from Thursday. Taxotere plus steroids. No nausea meds given. Will see how I react to that one and will again use the backing down of steroids (with oncs approval, of course). My daughter came in on day 4 of last treatment to help out with my grandson as school was out for the summer. I wasn't sure how those first few days of him home all day was going to go. He loved having his Aunt here to play with him and take him places. I was able to take my daughter to the cancer center so she could see where the infusion room was and what everything looked like. She said she feels so disconnected because she is so far away (600 miles) and wanted to be able to imagine where I was and what was happening. She shocked me when she asked to see my scars... just to make it real. We were able to get some things done (arrangements to have someone come in and clean my house, shave my head of all the stubble and do some 'boob' shopping) and it was good to have her here. Anyway, I am doing fine... half way done and on the down side (I hope). Caren and Dianne... how are you both doing? Has anyone been able to locate Dari? It seems like forever since she has posted. Keeping you all in my prayers.... Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Barb, I'm interested in your " boob " shopping -- and in fact I'd like to hear from anyone else w/prosthesis experience. I opted not to have reconstructive surgery, a decision which I do not regret, but I find the prosthesis itself and the bras to wear it in are not very satisfactory, mostly because every time I bend over, the weight of the prosthesis pulls it away from my body and the bra simply doesn't hold it in place. This makes me very self conscious whenever I bend over to pick something up if someone is standing near enough to see down my shirt...and it's not like I even wear shirts w/cleavage! --- Pinheiro wrote: > Hi Barb, > > Glad the A/C is over. And for the huge majority of > people, taxanes are not a big problem. Just watch > out for the nerves. Even if you have something, > catching it in the beginning can be treated and > controlled. > Steroids are a drag. I am all bloated and swollen > with them. But my physical therapist told me to keep > drinking a lot of water and tea that it will be gone > much sonner. I have now a jar of 8 cups of tea in > front of me! > Hugs > > > Barb Roy wrote: > Just wanted to update you all.... I have > completed my 4th treatment of A/C about 10 days ago. > This was by far the easiest treatment of all 4. Onc > backed me off the steroids and this seemed to take > care of day 3 & 4 of headache, nausea, all over > crappy feeling. It's taken about a week to start to > get some energy back and get my digestive system > working less often and my stomach to quiet down. My > red blood cells are down, but insurance will not pay > for the meds until I am below a certain point. This > made me a little more tired but I've been eating my > liver and leafy veggies, hoping to get it back up. > > I talked to the onc about Abraxane instead of Taxol > or Taxotere for the next 4 treatments. Although I > already knew this, he said there was not enough long > term experience with Abraxane and said Taxotere > works the best with the radiation, so that is where > we are going. He said he could put me on meds with > less side effects, but they had less long term > effects too. It wasn't an option for me.... I want > to kick cancer butt with the strongest meds out > there. > > I was in last week and got the simulation and > tattooing done for radiation. Have to go in on > Wednesday for x-rays and then radiation starts on > Thursday for the common 33 treatments. Taxotere > starts a week from Thursday. Taxotere plus steroids. > No nausea meds given. Will see how I react to that > one and will again use the backing down of steroids > (with oncs approval, of course). > > My daughter came in on day 4 of last treatment to > help out with my grandson as school was out for the > summer. I wasn't sure how those first few days of > him home all day was going to go. He loved having > his Aunt here to play with him and take him places. > I was able to take my daughter to the cancer center > so she could see where the infusion room was and > what everything looked like. She said she feels so > disconnected because she is so far away (600 miles) > and wanted to be able to imagine where I was and > what was happening. She shocked me when she asked to > see my scars... just to make it real. We were able > to get some things done (arrangements to have > someone come in and clean my house, shave my head of > all the stubble and do some 'boob' shopping) and it > was good to have her here. > > Anyway, I am doing fine... half way done and on the > down side (I hope). Caren and Dianne... how are you > both doing? Has anyone been able to locate Dari? It > seems like forever since she has posted. > > Keeping you all in my prayers.... > > Barb > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > Yahoo! Messenger with Voice. PC-to-Phone calls for > ridiculously low rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Barb, I'm interested in your " boob " shopping -- and in fact I'd like to hear from anyone else w/prosthesis experience. I opted not to have reconstructive surgery, a decision which I do not regret, but I find the prosthesis itself and the bras to wear it in are not very satisfactory, mostly because every time I bend over, the weight of the prosthesis pulls it away from my body and the bra simply doesn't hold it in place. This makes me very self conscious whenever I bend over to pick something up if someone is standing near enough to see down my shirt...and it's not like I even wear shirts w/cleavage! --- Pinheiro wrote: > Hi Barb, > > Glad the A/C is over. And for the huge majority of > people, taxanes are not a big problem. Just watch > out for the nerves. Even if you have something, > catching it in the beginning can be treated and > controlled. > Steroids are a drag. I am all bloated and swollen > with them. But my physical therapist told me to keep > drinking a lot of water and tea that it will be gone > much sonner. I have now a jar of 8 cups of tea in > front of me! > Hugs > > > Barb Roy wrote: > Just wanted to update you all.... I have > completed my 4th treatment of A/C about 10 days ago. > This was by far the easiest treatment of all 4. Onc > backed me off the steroids and this seemed to take > care of day 3 & 4 of headache, nausea, all over > crappy feeling. It's taken about a week to start to > get some energy back and get my digestive system > working less often and my stomach to quiet down. My > red blood cells are down, but insurance will not pay > for the meds until I am below a certain point. This > made me a little more tired but I've been eating my > liver and leafy veggies, hoping to get it back up. > > I talked to the onc about Abraxane instead of Taxol > or Taxotere for the next 4 treatments. Although I > already knew this, he said there was not enough long > term experience with Abraxane and said Taxotere > works the best with the radiation, so that is where > we are going. He said he could put me on meds with > less side effects, but they had less long term > effects too. It wasn't an option for me.... I want > to kick cancer butt with the strongest meds out > there. > > I was in last week and got the simulation and > tattooing done for radiation. Have to go in on > Wednesday for x-rays and then radiation starts on > Thursday for the common 33 treatments. Taxotere > starts a week from Thursday. Taxotere plus steroids. > No nausea meds given. Will see how I react to that > one and will again use the backing down of steroids > (with oncs approval, of course). > > My daughter came in on day 4 of last treatment to > help out with my grandson as school was out for the > summer. I wasn't sure how those first few days of > him home all day was going to go. He loved having > his Aunt here to play with him and take him places. > I was able to take my daughter to the cancer center > so she could see where the infusion room was and > what everything looked like. She said she feels so > disconnected because she is so far away (600 miles) > and wanted to be able to imagine where I was and > what was happening. She shocked me when she asked to > see my scars... just to make it real. We were able > to get some things done (arrangements to have > someone come in and clean my house, shave my head of > all the stubble and do some 'boob' shopping) and it > was good to have her here. > > Anyway, I am doing fine... half way done and on the > down side (I hope). Caren and Dianne... how are you > both doing? Has anyone been able to locate Dari? It > seems like forever since she has posted. > > Keeping you all in my prayers.... > > Barb > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > Yahoo! Messenger with Voice. PC-to-Phone calls for > ridiculously low rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 , I have the same problem. I haven't worn a shirt that is open at the collar or scoop necked in 16yrs since my surgery. I wear shirts that are mostly t-shirt style. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com CinDWood Crafts http://www.cindwoodcrafts.com Re: Update - Barb Barb, I'm interested in your " boob " shopping -- and in fact I'd like to hear from anyone else w/prosthesis experience. I opted not to have reconstructive surgery, a decision which I do not regret, but I find the prosthesis itself and the bras to wear it in are not very satisfactory, mostly because every time I bend over, the weight of the prosthesis pulls it away from my body and the bra simply doesn't hold it in place. This makes me very self conscious whenever I bend over to pick something up if someone is standing near enough to see down my shirt...and it's not like I even wear shirts w/cleavage! --- Pinheiro wrote: > Hi Barb, > > Glad the A/C is over. And for the huge majority of > people, taxanes are not a big problem. Just watch > out for the nerves. Even if you have something, > catching it in the beginning can be treated and > controlled. > Steroids are a drag. I am all bloated and swollen > with them. But my physical therapist told me to keep > drinking a lot of water and tea that it will be gone > much sonner. I have now a jar of 8 cups of tea in > front of me! > Hugs > > > Barb Roy wrote: > Just wanted to update you all.... I have > completed my 4th treatment of A/C about 10 days ago. > This was by far the easiest treatment of all 4. Onc > backed me off the steroids and this seemed to take > care of day 3 & 4 of headache, nausea, all over > crappy feeling. It's taken about a week to start to > get some energy back and get my digestive system > working less often and my stomach to quiet down. My > red blood cells are down, but insurance will not pay > for the meds until I am below a certain point. This > made me a little more tired but I've been eating my > liver and leafy veggies, hoping to get it back up. > > I talked to the onc about Abraxane instead of Taxol > or Taxotere for the next 4 treatments. Although I > already knew this, he said there was not enough long > term experience with Abraxane and said Taxotere > works the best with the radiation, so that is where > we are going. He said he could put me on meds with > less side effects, but they had less long term > effects too. It wasn't an option for me.... I want > to kick cancer butt with the strongest meds out > there. > > I was in last week and got the simulation and > tattooing done for radiation. Have to go in on > Wednesday for x-rays and then radiation starts on > Thursday for the common 33 treatments. Taxotere > starts a week from Thursday. Taxotere plus steroids. > No nausea meds given. Will see how I react to that > one and will again use the backing down of steroids > (with oncs approval, of course). > > My daughter came in on day 4 of last treatment to > help out with my grandson as school was out for the > summer. I wasn't sure how those first few days of > him home all day was going to go. He loved having > his Aunt here to play with him and take him places. > I was able to take my daughter to the cancer center > so she could see where the infusion room was and > what everything looked like. She said she feels so > disconnected because she is so far away (600 miles) > and wanted to be able to imagine where I was and > what was happening. She shocked me when she asked to > see my scars... just to make it real. We were able > to get some things done (arrangements to have > someone come in and clean my house, shave my head of > all the stubble and do some 'boob' shopping) and it > was good to have her here. > > Anyway, I am doing fine... half way done and on the > down side (I hope). Caren and Dianne... how are you > both doing? Has anyone been able to locate Dari? It > seems like forever since she has posted. > > Keeping you all in my prayers.... > > Barb > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > Yahoo! Messenger with Voice. PC-to-Phone calls for > ridiculously low rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 , I have the same problem. I haven't worn a shirt that is open at the collar or scoop necked in 16yrs since my surgery. I wear shirts that are mostly t-shirt style. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com CinDWood Crafts http://www.cindwoodcrafts.com Re: Update - Barb Barb, I'm interested in your " boob " shopping -- and in fact I'd like to hear from anyone else w/prosthesis experience. I opted not to have reconstructive surgery, a decision which I do not regret, but I find the prosthesis itself and the bras to wear it in are not very satisfactory, mostly because every time I bend over, the weight of the prosthesis pulls it away from my body and the bra simply doesn't hold it in place. This makes me very self conscious whenever I bend over to pick something up if someone is standing near enough to see down my shirt...and it's not like I even wear shirts w/cleavage! --- Pinheiro wrote: > Hi Barb, > > Glad the A/C is over. And for the huge majority of > people, taxanes are not a big problem. Just watch > out for the nerves. Even if you have something, > catching it in the beginning can be treated and > controlled. > Steroids are a drag. I am all bloated and swollen > with them. But my physical therapist told me to keep > drinking a lot of water and tea that it will be gone > much sonner. I have now a jar of 8 cups of tea in > front of me! > Hugs > > > Barb Roy wrote: > Just wanted to update you all.... I have > completed my 4th treatment of A/C about 10 days ago. > This was by far the easiest treatment of all 4. Onc > backed me off the steroids and this seemed to take > care of day 3 & 4 of headache, nausea, all over > crappy feeling. It's taken about a week to start to > get some energy back and get my digestive system > working less often and my stomach to quiet down. My > red blood cells are down, but insurance will not pay > for the meds until I am below a certain point. This > made me a little more tired but I've been eating my > liver and leafy veggies, hoping to get it back up. > > I talked to the onc about Abraxane instead of Taxol > or Taxotere for the next 4 treatments. Although I > already knew this, he said there was not enough long > term experience with Abraxane and said Taxotere > works the best with the radiation, so that is where > we are going. He said he could put me on meds with > less side effects, but they had less long term > effects too. It wasn't an option for me.... I want > to kick cancer butt with the strongest meds out > there. > > I was in last week and got the simulation and > tattooing done for radiation. Have to go in on > Wednesday for x-rays and then radiation starts on > Thursday for the common 33 treatments. Taxotere > starts a week from Thursday. Taxotere plus steroids. > No nausea meds given. Will see how I react to that > one and will again use the backing down of steroids > (with oncs approval, of course). > > My daughter came in on day 4 of last treatment to > help out with my grandson as school was out for the > summer. I wasn't sure how those first few days of > him home all day was going to go. He loved having > his Aunt here to play with him and take him places. > I was able to take my daughter to the cancer center > so she could see where the infusion room was and > what everything looked like. She said she feels so > disconnected because she is so far away (600 miles) > and wanted to be able to imagine where I was and > what was happening. She shocked me when she asked to > see my scars... just to make it real. We were able > to get some things done (arrangements to have > someone come in and clean my house, shave my head of > all the stubble and do some 'boob' shopping) and it > was good to have her here. > > Anyway, I am doing fine... half way done and on the > down side (I hope). Caren and Dianne... how are you > both doing? Has anyone been able to locate Dari? It > seems like forever since she has posted. > > Keeping you all in my prayers.... > > Barb > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > Yahoo! Messenger with Voice. PC-to-Phone calls for > ridiculously low rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 At the time of the surgery 4 yrs ago I could not have the implant because too many lymph nodes were infected. I never did have the implant...At the new Cancer building in Newark, Delaware there was a new store there to buy the bras and the girl running the store was so nice...her last name was the same as mine..not related at all..all I can say... In North Carolina asked my cancer dr about getting new bras and the office told me a place to go and it was not the right place had to go to two other places until I found the right store...they sell wheel chairs, crutches etc and also bras...they have a little store room to try on the bras...nothing life the plush dressing room in the store in Delaware inside the Cancer Building. Betsy (NC) Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 At the time of the surgery 4 yrs ago I could not have the implant because too many lymph nodes were infected. I never did have the implant...At the new Cancer building in Newark, Delaware there was a new store there to buy the bras and the girl running the store was so nice...her last name was the same as mine..not related at all..all I can say... In North Carolina asked my cancer dr about getting new bras and the office told me a place to go and it was not the right place had to go to two other places until I found the right store...they sell wheel chairs, crutches etc and also bras...they have a little store room to try on the bras...nothing life the plush dressing room in the store in Delaware inside the Cancer Building. Betsy (NC) Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Isn't there some better solution???? And what do you do about swimsuits? I know there are swimsuits w/prosthesis pockets, but you pretty much have to bend over if you're swimming! --- & nne Svihlik wrote: > , > I have the same problem. I haven't worn a shirt that > is open at the collar or scoop necked in 16yrs since > my surgery. I wear shirts that are mostly t-shirt > style. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > CinDWood Crafts > http://www.cindwoodcrafts.com > Re: Update - Barb > > > Barb, I'm interested in your " boob " shopping -- > and in > fact I'd like to hear from anyone else > w/prosthesis > experience. I opted not to have reconstructive > surgery, a decision which I do not regret, but I > find > the prosthesis itself and the bras to wear it in > are > not very satisfactory, mostly because every time I > bend over, the weight of the prosthesis pulls it > away > from my body and the bra simply doesn't hold it in > place. This makes me very self conscious whenever > I > bend over to pick something up if someone is > standing > near enough to see down my shirt...and it's not > like I > even wear shirts w/cleavage! > > --- Pinheiro > wrote: > > > Hi Barb, > > > > Glad the A/C is over. And for the huge majority > of > > people, taxanes are not a big problem. Just > watch > > out for the nerves. Even if you have something, > > catching it in the beginning can be treated and > > controlled. > > Steroids are a drag. I am all bloated and > swollen > > with them. But my physical therapist told me to > keep > > drinking a lot of water and tea that it will be > gone > > much sonner. I have now a jar of 8 cups of tea > in > > front of me! > > Hugs > > > > > > Barb Roy wrote: > > Just wanted to update you all.... I have > > completed my 4th treatment of A/C about 10 days > ago. > > This was by far the easiest treatment of all 4. > Onc > > backed me off the steroids and this seemed to > take > > care of day 3 & 4 of headache, nausea, all over > > crappy feeling. It's taken about a week to start > to > > get some energy back and get my digestive system > > working less often and my stomach to quiet down. > My > > red blood cells are down, but insurance will not > pay > > for the meds until I am below a certain point. > This > > made me a little more tired but I've been eating > my > > liver and leafy veggies, hoping to get it back > up. > > > > I talked to the onc about Abraxane instead of > Taxol > > or Taxotere for the next 4 treatments. Although > I > > already knew this, he said there was not enough > long > > term experience with Abraxane and said Taxotere > > works the best with the radiation, so that is > where > > we are going. He said he could put me on meds > with > > less side effects, but they had less long term > > effects too. It wasn't an option for me.... I > want > > to kick cancer butt with the strongest meds out > > there. > > > > I was in last week and got the simulation and > > tattooing done for radiation. Have to go in on > > Wednesday for x-rays and then radiation starts > on > > Thursday for the common 33 treatments. Taxotere > > starts a week from Thursday. Taxotere plus > steroids. > > No nausea meds given. Will see how I react to > that > > one and will again use the backing down of > steroids > > (with oncs approval, of course). > > > > My daughter came in on day 4 of last treatment > to > > help out with my grandson as school was out for > the > > summer. I wasn't sure how those first few days > of > > him home all day was going to go. He loved > having > > his Aunt here to play with him and take him > places. > > I was able to take my daughter to the cancer > center > > so she could see where the infusion room was and > > what everything looked like. She said she feels > so > > disconnected because she is so far away (600 > miles) > > and wanted to be able to imagine where I was and > > what was happening. She shocked me when she > asked to > > see my scars... just to make it real. We were > able > > to get some things done (arrangements to have > > someone come in and clean my house, shave my > head of > > all the stubble and do some 'boob' shopping) and > it > > was good to have her here. > > > > Anyway, I am doing fine... half way done and on > the > > down side (I hope). Caren and Dianne... how are > you > > both doing? Has anyone been able to locate Dari? > It > > seems like forever since she has posted. > > > > Keeping you all in my prayers.... > > > > Barb > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > --------------------------------- > > Yahoo! Messenger with Voice. PC-to-Phone calls > for > > ridiculously low rates. > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Isn't there some better solution???? And what do you do about swimsuits? I know there are swimsuits w/prosthesis pockets, but you pretty much have to bend over if you're swimming! --- & nne Svihlik wrote: > , > I have the same problem. I haven't worn a shirt that > is open at the collar or scoop necked in 16yrs since > my surgery. I wear shirts that are mostly t-shirt > style. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > CinDWood Crafts > http://www.cindwoodcrafts.com > Re: Update - Barb > > > Barb, I'm interested in your " boob " shopping -- > and in > fact I'd like to hear from anyone else > w/prosthesis > experience. I opted not to have reconstructive > surgery, a decision which I do not regret, but I > find > the prosthesis itself and the bras to wear it in > are > not very satisfactory, mostly because every time I > bend over, the weight of the prosthesis pulls it > away > from my body and the bra simply doesn't hold it in > place. This makes me very self conscious whenever > I > bend over to pick something up if someone is > standing > near enough to see down my shirt...and it's not > like I > even wear shirts w/cleavage! > > --- Pinheiro > wrote: > > > Hi Barb, > > > > Glad the A/C is over. And for the huge majority > of > > people, taxanes are not a big problem. Just > watch > > out for the nerves. Even if you have something, > > catching it in the beginning can be treated and > > controlled. > > Steroids are a drag. I am all bloated and > swollen > > with them. But my physical therapist told me to > keep > > drinking a lot of water and tea that it will be > gone > > much sonner. I have now a jar of 8 cups of tea > in > > front of me! > > Hugs > > > > > > Barb Roy wrote: > > Just wanted to update you all.... I have > > completed my 4th treatment of A/C about 10 days > ago. > > This was by far the easiest treatment of all 4. > Onc > > backed me off the steroids and this seemed to > take > > care of day 3 & 4 of headache, nausea, all over > > crappy feeling. It's taken about a week to start > to > > get some energy back and get my digestive system > > working less often and my stomach to quiet down. > My > > red blood cells are down, but insurance will not > pay > > for the meds until I am below a certain point. > This > > made me a little more tired but I've been eating > my > > liver and leafy veggies, hoping to get it back > up. > > > > I talked to the onc about Abraxane instead of > Taxol > > or Taxotere for the next 4 treatments. Although > I > > already knew this, he said there was not enough > long > > term experience with Abraxane and said Taxotere > > works the best with the radiation, so that is > where > > we are going. He said he could put me on meds > with > > less side effects, but they had less long term > > effects too. It wasn't an option for me.... I > want > > to kick cancer butt with the strongest meds out > > there. > > > > I was in last week and got the simulation and > > tattooing done for radiation. Have to go in on > > Wednesday for x-rays and then radiation starts > on > > Thursday for the common 33 treatments. Taxotere > > starts a week from Thursday. Taxotere plus > steroids. > > No nausea meds given. Will see how I react to > that > > one and will again use the backing down of > steroids > > (with oncs approval, of course). > > > > My daughter came in on day 4 of last treatment > to > > help out with my grandson as school was out for > the > > summer. I wasn't sure how those first few days > of > > him home all day was going to go. He loved > having > > his Aunt here to play with him and take him > places. > > I was able to take my daughter to the cancer > center > > so she could see where the infusion room was and > > what everything looked like. She said she feels > so > > disconnected because she is so far away (600 > miles) > > and wanted to be able to imagine where I was and > > what was happening. She shocked me when she > asked to > > see my scars... just to make it real. We were > able > > to get some things done (arrangements to have > > someone come in and clean my house, shave my > head of > > all the stubble and do some 'boob' shopping) and > it > > was good to have her here. > > > > Anyway, I am doing fine... half way done and on > the > > down side (I hope). Caren and Dianne... how are > you > > both doing? Has anyone been able to locate Dari? > It > > seems like forever since she has posted. > > > > Keeping you all in my prayers.... > > > > Barb > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > --------------------------------- > > Yahoo! Messenger with Voice. PC-to-Phone calls > for > > ridiculously low rates. > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 The only other solution I know of is a prosthesis that you can put a certain type of tape on your skin and then there is tape or something on the back of the prosthesis and it attaches right to your skin. I can't do that as I am allergic to tape etc. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com CinDWood Crafts http://www.cindwoodcrafts.com Re: Update - Barb > > > Barb, I'm interested in your " boob " shopping -- > and in > fact I'd like to hear from anyone else > w/prosthesis > experience. I opted not to have reconstructive > surgery, a decision which I do not regret, but I > find > the prosthesis itself and the bras to wear it in > are > not very satisfactory, mostly because every time I > bend over, the weight of the prosthesis pulls it > away > from my body and the bra simply doesn't hold it in > place. This makes me very self conscious whenever > I > bend over to pick something up if someone is > standing > near enough to see down my shirt...and it's not > like I > even wear shirts w/cleavage! > > --- Pinheiro > wrote: > > > Hi Barb, > > > > Glad the A/C is over. And for the huge majority > of > > people, taxanes are not a big problem. Just > watch > > out for the nerves. Even if you have something, > > catching it in the beginning can be treated and > > controlled. > > Steroids are a drag. I am all bloated and > swollen > > with them. But my physical therapist told me to > keep > > drinking a lot of water and tea that it will be > gone > > much sonner. I have now a jar of 8 cups of tea > in > > front of me! > > Hugs > > > > > > Barb Roy wrote: > > Just wanted to update you all.... I have > > completed my 4th treatment of A/C about 10 days > ago. > > This was by far the easiest treatment of all 4. > Onc > > backed me off the steroids and this seemed to > take > > care of day 3 & 4 of headache, nausea, all over > > crappy feeling. It's taken about a week to start > to > > get some energy back and get my digestive system > > working less often and my stomach to quiet down. > My > > red blood cells are down, but insurance will not > pay > > for the meds until I am below a certain point. > This > > made me a little more tired but I've been eating > my > > liver and leafy veggies, hoping to get it back > up. > > > > I talked to the onc about Abraxane instead of > Taxol > > or Taxotere for the next 4 treatments. Although > I > > already knew this, he said there was not enough > long > > term experience with Abraxane and said Taxotere > > works the best with the radiation, so that is > where > > we are going. He said he could put me on meds > with > > less side effects, but they had less long term > > effects too. It wasn't an option for me.... I > want > > to kick cancer butt with the strongest meds out > > there. > > > > I was in last week and got the simulation and > > tattooing done for radiation. Have to go in on > > Wednesday for x-rays and then radiation starts > on > > Thursday for the common 33 treatments. Taxotere > > starts a week from Thursday. Taxotere plus > steroids. > > No nausea meds given. Will see how I react to > that > > one and will again use the backing down of > steroids > > (with oncs approval, of course). > > > > My daughter came in on day 4 of last treatment > to > > help out with my grandson as school was out for > the > > summer. I wasn't sure how those first few days > of > > him home all day was going to go. He loved > having > > his Aunt here to play with him and take him > places. > > I was able to take my daughter to the cancer > center > > so she could see where the infusion room was and > > what everything looked like. She said she feels > so > > disconnected because she is so far away (600 > miles) > > and wanted to be able to imagine where I was and > > what was happening. She shocked me when she > asked to > > see my scars... just to make it real. We were > able > > to get some things done (arrangements to have > > someone come in and clean my house, shave my > head of > > all the stubble and do some 'boob' shopping) and > it > > was good to have her here. > > > > Anyway, I am doing fine... half way done and on > the > > down side (I hope). Caren and Dianne... how are > you > > both doing? Has anyone been able to locate Dari? > It > > seems like forever since she has posted. > > > > Keeping you all in my prayers.... > > > > Barb > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > --------------------------------- > > Yahoo! Messenger with Voice. PC-to-Phone calls > for > > ridiculously low rates. > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 The only other solution I know of is a prosthesis that you can put a certain type of tape on your skin and then there is tape or something on the back of the prosthesis and it attaches right to your skin. I can't do that as I am allergic to tape etc. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com CinDWood Crafts http://www.cindwoodcrafts.com Re: Update - Barb > > > Barb, I'm interested in your " boob " shopping -- > and in > fact I'd like to hear from anyone else > w/prosthesis > experience. I opted not to have reconstructive > surgery, a decision which I do not regret, but I > find > the prosthesis itself and the bras to wear it in > are > not very satisfactory, mostly because every time I > bend over, the weight of the prosthesis pulls it > away > from my body and the bra simply doesn't hold it in > place. This makes me very self conscious whenever > I > bend over to pick something up if someone is > standing > near enough to see down my shirt...and it's not > like I > even wear shirts w/cleavage! > > --- Pinheiro > wrote: > > > Hi Barb, > > > > Glad the A/C is over. And for the huge majority > of > > people, taxanes are not a big problem. Just > watch > > out for the nerves. Even if you have something, > > catching it in the beginning can be treated and > > controlled. > > Steroids are a drag. I am all bloated and > swollen > > with them. But my physical therapist told me to > keep > > drinking a lot of water and tea that it will be > gone > > much sonner. I have now a jar of 8 cups of tea > in > > front of me! > > Hugs > > > > > > Barb Roy wrote: > > Just wanted to update you all.... I have > > completed my 4th treatment of A/C about 10 days > ago. > > This was by far the easiest treatment of all 4. > Onc > > backed me off the steroids and this seemed to > take > > care of day 3 & 4 of headache, nausea, all over > > crappy feeling. It's taken about a week to start > to > > get some energy back and get my digestive system > > working less often and my stomach to quiet down. > My > > red blood cells are down, but insurance will not > pay > > for the meds until I am below a certain point. > This > > made me a little more tired but I've been eating > my > > liver and leafy veggies, hoping to get it back > up. > > > > I talked to the onc about Abraxane instead of > Taxol > > or Taxotere for the next 4 treatments. Although > I > > already knew this, he said there was not enough > long > > term experience with Abraxane and said Taxotere > > works the best with the radiation, so that is > where > > we are going. He said he could put me on meds > with > > less side effects, but they had less long term > > effects too. It wasn't an option for me.... I > want > > to kick cancer butt with the strongest meds out > > there. > > > > I was in last week and got the simulation and > > tattooing done for radiation. Have to go in on > > Wednesday for x-rays and then radiation starts > on > > Thursday for the common 33 treatments. Taxotere > > starts a week from Thursday. Taxotere plus > steroids. > > No nausea meds given. Will see how I react to > that > > one and will again use the backing down of > steroids > > (with oncs approval, of course). > > > > My daughter came in on day 4 of last treatment > to > > help out with my grandson as school was out for > the > > summer. I wasn't sure how those first few days > of > > him home all day was going to go. He loved > having > > his Aunt here to play with him and take him > places. > > I was able to take my daughter to the cancer > center > > so she could see where the infusion room was and > > what everything looked like. She said she feels > so > > disconnected because she is so far away (600 > miles) > > and wanted to be able to imagine where I was and > > what was happening. She shocked me when she > asked to > > see my scars... just to make it real. We were > able > > to get some things done (arrangements to have > > someone come in and clean my house, shave my > head of > > all the stubble and do some 'boob' shopping) and > it > > was good to have her here. > > > > Anyway, I am doing fine... half way done and on > the > > down side (I hope). Caren and Dianne... how are > you > > both doing? Has anyone been able to locate Dari? > It > > seems like forever since she has posted. > > > > Keeping you all in my prayers.... > > > > Barb > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > --------------------------------- > > Yahoo! Messenger with Voice. PC-to-Phone calls > for > > ridiculously low rates. > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 I think my special bra's since the mastectomy are fitted tighter than before. I never really thought about it before but if I wear an older bra that has kind of stretched out I do have that problem but not with the new ones I got last month. Sharon " H. McGill " wrote: Isn't there some better solution???? And what do you do about swimsuits? I know there are swimsuits w/prosthesis pockets, but you pretty much have to bend over if you're swimming! --- & nne Svihlik wrote: > , > I have the same problem. I haven't worn a shirt that > is open at the collar or scoop necked in 16yrs since > my surgery. I wear shirts that are mostly t-shirt > style. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > CinDWood Crafts > http://www.cindwoodcrafts.com > Re: Update - Barb > > > Barb, I'm interested in your " boob " shopping -- > and in > fact I'd like to hear from anyone else > w/prosthesis > experience. I opted not to have reconstructive > surgery, a decision which I do not regret, but I > find > the prosthesis itself and the bras to wear it in > are > not very satisfactory, mostly because every time I > bend over, the weight of the prosthesis pulls it > away > from my body and the bra simply doesn't hold it in > place. This makes me very self conscious whenever > I > bend over to pick something up if someone is > standing > near enough to see down my shirt...and it's not > like I > even wear shirts w/cleavage! > > --- Pinheiro > wrote: > > > Hi Barb, > > > > Glad the A/C is over. And for the huge majority > of > > people, taxanes are not a big problem. Just > watch > > out for the nerves. Even if you have something, > > catching it in the beginning can be treated and > > controlled. > > Steroids are a drag. I am all bloated and > swollen > > with them. But my physical therapist told me to > keep > > drinking a lot of water and tea that it will be > gone > > much sonner. I have now a jar of 8 cups of tea > in > > front of me! > > Hugs > > > > > > Barb Roy wrote: > > Just wanted to update you all.... I have > > completed my 4th treatment of A/C about 10 days > ago. > > This was by far the easiest treatment of all 4. > Onc > > backed me off the steroids and this seemed to > take > > care of day 3 & 4 of headache, nausea, all over > > crappy feeling. It's taken about a week to start > to > > get some energy back and get my digestive system > > working less often and my stomach to quiet down. > My > > red blood cells are down, but insurance will not > pay > > for the meds until I am below a certain point. > This > > made me a little more tired but I've been eating > my > > liver and leafy veggies, hoping to get it back > up. > > > > I talked to the onc about Abraxane instead of > Taxol > > or Taxotere for the next 4 treatments. Although > I > > already knew this, he said there was not enough > long > > term experience with Abraxane and said Taxotere > > works the best with the radiation, so that is > where > > we are going. He said he could put me on meds > with > > less side effects, but they had less long term > > effects too. It wasn't an option for me.... I > want > > to kick cancer butt with the strongest meds out > > there. > > > > I was in last week and got the simulation and > > tattooing done for radiation. Have to go in on > > Wednesday for x-rays and then radiation starts > on > > Thursday for the common 33 treatments. Taxotere > > starts a week from Thursday. Taxotere plus > steroids. > > No nausea meds given. Will see how I react to > that > > one and will again use the backing down of > steroids > > (with oncs approval, of course). > > > > My daughter came in on day 4 of last treatment > to > > help out with my grandson as school was out for > the > > summer. I wasn't sure how those first few days > of > > him home all day was going to go. He loved > having > > his Aunt here to play with him and take him > places. > > I was able to take my daughter to the cancer > center > > so she could see where the infusion room was and > > what everything looked like. She said she feels > so > > disconnected because she is so far away (600 > miles) > > and wanted to be able to imagine where I was and > > what was happening. She shocked me when she > asked to > > see my scars... just to make it real. We were > able > > to get some things done (arrangements to have > > someone come in and clean my house, shave my > head of > > all the stubble and do some 'boob' shopping) and > it > > was good to have her here. > > > > Anyway, I am doing fine... half way done and on > the > > down side (I hope). Caren and Dianne... how are > you > > both doing? Has anyone been able to locate Dari? > It > > seems like forever since she has posted. > > > > Keeping you all in my prayers.... > > > > Barb > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > --------------------------------- > > Yahoo! Messenger with Voice. PC-to-Phone calls > for > > ridiculously low rates. > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Hi , I know what you mean. I had a single mastectomy and it's hard 'matching.' I first ordered a prosthesis over the internet, because it was cheaper. It's not bad, but I don't like the bras & camis with the pockets. I find my prosthesis flops around too much and I end up uneven. I started slipping my prosthesis in a regular cami with a shelf bra, and that 'matched' pretty well, but it did shift occasionally. I found an underwire bra also worked fairly well, because the underwire kept the form in place (more or less). I have as yet to go to a store like Lady Grace, but I think I will at some point because they have more selection and will fit you. As for bathing suits, Lands End offers some, and they have high necks, so nothing shows when you bend over. I may try a lower neckline, but for now I have a port and a scar, so I am sticking to the high necklines. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 If you are not very big they do have stick on boobs. The swimsuits have pockets like the bras and they come up far enough so nothing shows. -- Re: Update - Barb Isn't there some better solution???? And what do you do about swimsuits? I know there are swimsuits w/prosthesis pockets, but you pretty much have to bend over if you're swimming! --- & nne Svihlik wrote: > , > I have the same problem. I haven't worn a shirt that > is open at the collar or scoop necked in 16yrs since > my surgery. I wear shirts that are mostly t-shirt > style. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > CinDWood Crafts > http://www.cindwoodcrafts.com > Re: Update - Barb > > > Barb, I'm interested in your " boob " shopping -- > and in > fact I'd like to hear from anyone else > w/prosthesis > experience. I opted not to have reconstructive > surgery, a decision which I do not regret, but I > find > the prosthesis itself and the bras to wear it in > are > not very satisfactory, mostly because every time I > bend over, the weight of the prosthesis pulls it > away > from my body and the bra simply doesn't hold it in > place. This makes me very self conscious whenever > I > bend over to pick something up if someone is > standing > near enough to see down my shirt...and it's not > like I > even wear shirts w/cleavage! > > --- Pinheiro > wrote: > > > Hi Barb, > > > > Glad the A/C is over. And for the huge majority > of > > people, taxanes are not a big problem. Just > watch > > out for the nerves. Even if you have something, > > catching it in the beginning can be treated and > > controlled. > > Steroids are a drag. I am all bloated and > swollen > > with them. But my physical therapist told me to > keep > > drinking a lot of water and tea that it will be > gone > > much sonner. I have now a jar of 8 cups of tea > in > > front of me! > > Hugs > > > > > > Barb Roy wrote: > > Just wanted to update you all.... I have > > completed my 4th treatment of A/C about 10 days > ago. > > This was by far the easiest treatment of all 4. > Onc > > backed me off the steroids and this seemed to > take > > care of day 3 & 4 of headache, nausea, all over > > crappy feeling. It's taken about a week to start > to > > get some energy back and get my digestive system > > working less often and my stomach to quiet down. > My > > red blood cells are down, but insurance will not > pay > > for the meds until I am below a certain point. > This > > made me a little more tired but I've been eating > my > > liver and leafy veggies, hoping to get it back > up. > > > > I talked to the onc about Abraxane instead of > Taxol > > or Taxotere for the next 4 treatments. Although > I > > already knew this, he said there was not enough > long > > term experience with Abraxane and said Taxotere > > works the best with the radiation, so that is > where > > we are going. He said he could put me on meds > with > > less side effects, but they had less long term > > effects too. It wasn't an option for me.... I > want > > to kick cancer butt with the strongest meds out > > there. > > > > I was in last week and got the simulation and > > tattooing done for radiation. Have to go in on > > Wednesday for x-rays and then radiation starts > on > > Thursday for the common 33 treatments. Taxotere > > starts a week from Thursday. Taxotere plus > steroids. > > No nausea meds given. Will see how I react to > that > > one and will again use the backing down of > steroids > > (with oncs approval, of course). > > > > My daughter came in on day 4 of last treatment > to > > help out with my grandson as school was out for > the > > summer. I wasn't sure how those first few days > of > > him home all day was going to go. He loved > having > > his Aunt here to play with him and take him > places. > > I was able to take my daughter to the cancer > center > > so she could see where the infusion room was and > > what everything looked like. She said she feels > so > > disconnected because she is so far away (600 > miles) > > and wanted to be able to imagine where I was and > > what was happening. She shocked me when she > asked to > > see my scars... just to make it real. We were > able > > to get some things done (arrangements to have > > someone come in and clean my house, shave my > head of > > all the stubble and do some 'boob' shopping) and > it > > was good to have her here. > > > > Anyway, I am doing fine... half way done and on > the > > down side (I hope). Caren and Dianne... how are > you > > both doing? Has anyone been able to locate Dari? > It > > seems like forever since she has posted. > > > > Keeping you all in my prayers.... > > > > Barb > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > --------------------------------- > > Yahoo! Messenger with Voice. PC-to-Phone calls > for > > ridiculously low rates. > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 You might try going back to where you got it and tell them what is going on. I have not been fitted as was told to wait until all the treatment was done to make sure any swelling was gone. My daughter said something to the woman I talked to about her friend not liking the prosthesis as it was heavy. Her response is that she probably didn't have the bra on right.... it needed to be fastened on the second group of eyelets. At this point I have decided not to do reconstruction... just don't want any more surgery. I go braless or use a sports bra. Plan to get the prosthesis that I can wear when I 'dress up', which isn't often. I'm just a t-shirt and jeans type of woman. <s> Barb Re: Update - Barb Barb, I'm interested in your " boob " shopping -- and in fact I'd like to hear from anyone else w/prosthesis experience. I opted not to have reconstructive surgery, a decision which I do not regret, but I find the prosthesis itself and the bras to wear it in are not very satisfactory, mostly because every time I bend over, the weight of the prosthesis pulls it away from my body and the bra simply doesn't hold it in place. This makes me very self conscious whenever I bend over to pick something up if someone is standing near enough to see down my shirt...and it's not like I even wear shirts w/cleavage! --- Pinheiro wrote: > Hi Barb, > > Glad the A/C is over. And for the huge majority of > people, taxanes are not a big problem. Just watch > out for the nerves. Even if you have something, > catching it in the beginning can be treated and > controlled. > Steroids are a drag. I am all bloated and swollen > with them. But my physical therapist told me to keep > drinking a lot of water and tea that it will be gone > much sonner. I have now a jar of 8 cups of tea in > front of me! > Hugs > > > Barb Roy wrote: > Just wanted to update you all.... I have > completed my 4th treatment of A/C about 10 days ago. > This was by far the easiest treatment of all 4. Onc > backed me off the steroids and this seemed to take > care of day 3 & 4 of headache, nausea, all over > crappy feeling. It's taken about a week to start to > get some energy back and get my digestive system > working less often and my stomach to quiet down. My > red blood cells are down, but insurance will not pay > for the meds until I am below a certain point. This > made me a little more tired but I've been eating my > liver and leafy veggies, hoping to get it back up. > > I talked to the onc about Abraxane instead of Taxol > or Taxotere for the next 4 treatments. Although I > already knew this, he said there was not enough long > term experience with Abraxane and said Taxotere > works the best with the radiation, so that is where > we are going. He said he could put me on meds with > less side effects, but they had less long term > effects too. It wasn't an option for me.... I want > to kick cancer butt with the strongest meds out > there. > > I was in last week and got the simulation and > tattooing done for radiation. Have to go in on > Wednesday for x-rays and then radiation starts on > Thursday for the common 33 treatments. Taxotere > starts a week from Thursday. Taxotere plus steroids. > No nausea meds given. Will see how I react to that > one and will again use the backing down of steroids > (with oncs approval, of course). > > My daughter came in on day 4 of last treatment to > help out with my grandson as school was out for the > summer. I wasn't sure how those first few days of > him home all day was going to go. He loved having > his Aunt here to play with him and take him places. > I was able to take my daughter to the cancer center > so she could see where the infusion room was and > what everything looked like. She said she feels so > disconnected because she is so far away (600 miles) > and wanted to be able to imagine where I was and > what was happening. She shocked me when she asked to > see my scars... just to make it real. We were able > to get some things done (arrangements to have > someone come in and clean my house, shave my head of > all the stubble and do some 'boob' shopping) and it > was good to have her here. > > Anyway, I am doing fine... half way done and on the > down side (I hope). Caren and Dianne... how are you > both doing? Has anyone been able to locate Dari? It > seems like forever since she has posted. > > Keeping you all in my prayers.... > > Barb > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > Yahoo! Messenger with Voice. PC-to-Phone calls for > ridiculously low rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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