Re: Back from the ER again/Details about Hertoghe/New FT3 labs from last night!

[Guest guest]

If it were me, I'd print out relavent portions this letter such as

symptoms and and send it to the dr. that put you on this

regimin...deleting all references to " this group " ....and see what the

famous dr. you went to ....has to say.

send it airmail-special delivery or fedex or? so he'll pay more attention

to it?

C. Hunter

> I hope this message gets posted, I feel SO alone, and SO helpless and

> confused now! I am worried about stopping my rT3-T3-only treatment soon!

> Plus a whole lot more!

>

> Last night at 10 pm, my heart started beating very hard, slowly, and

> irregularly. For 30+ seconds. VERY MUCH, I'd say EXACTLY what happened

> back in December 2009 when I was on ERFA Thyroid for 1 week. (That time I

> thought it happened due to rT3 blocking T3, and I don't have that problem

> now!) So, I immediately called " 911 " cause my heart kept beating hard,

> slow and very irregularly, and they came in 20 minutes with an ambulance

> and did an ECG. It showed what I already know; Right blocking of the

> signals, and some kind of faulty wiring. They told me to drive to the ER

> (they didn't think I was an emergency patient!), so my father took me

> there.

>

> I must say that yesterday was my first day on DHEA 35 mg and Florinef 0.10

> mg. I took them at once, together, with HC, in my first chews of my

> breakfast. There was no liner notes to these meds, just meds made in a

> compounding pharmace in Belgium. I just trusted Hertoghe, so I took the

> meds. I have NO IDEA if it was these meds that made the irregular

> heartbeat happen. Do you think that's plausible or not? I mean, can adding

> ALDOSTERONE make the heart beat like that? Also, I forgot to tell Hertoghe

> that my Aldosterone improved after drinking sea salted water for some mo

> nths. I think he pretty much gave me aldosterone due to clinical symptoms.

> He also did a total urine test of the aldosterone. It was mid-range, but I

> told him I was drinking sea salt while doing the urine collection. So I

> guess I needed aldosterone meds then.

>

> Important:

> DUE TO MY TRIP TO BELGIUM, I  GOT APPROX 50% OF MY NORMAL DOSES OF SEA

> SALTED WATER IN THE PAST 4 DAYS - AND YESTERDAY, I WAS AFRAID OF DRINKING

> SEA SALTED WATER BECAUSE I STARTED FLORINEF.

>

> It was alread too late when told me to drink sea salted water like

> I've always done - The arrhythmia happened.

>

> So, once  got to the ER, I talked to a doctor, and I was transferred to

> the main reception of the ER, and they did electrolytes, cortisol (I know,

> I know!), thyroid panel, liver, kidney, and heart markers. Everything was

> ok, except one thing - But no doctors told me anything. I saw it myself on

> the printout:

>

> Sodium: 136 (range: 137-145)

> Bare in mind, this was AFTER drinking at least 1/2 tea spoon of sea salted

> water 1-2 hours before I did the blood sample.

>

> Can I have experienced a bad case of Arrhythmia due to TOO LOW SODIUM,

> only?

>

> My brand new thyroid panel shows:

>

> FT3 6.8 (after taking about 55 mcg T3 that day.. I didn't know I was gonna

> take this test!)

> FT4: 4.4 (still, same as last week!)TSH 0.31 (up from 0.09 last week!)

>

> I did spend the night at the hospital, with telemetry. They found nothing

> seriously wrong with my heart that night. I slept from 6 am to 9 am this

> morning. Needless to say, I feel like a complete zombie today.

>

> I told many doctors, heart specialists, and even an endo (I got 1 minute

> with him - he had " no time " for me! What a moron...) and none of them

> really understood WHY I was given Florined, nor DHEA. They also didn't

> understand why I was on T3-only, nor thyroid medications at all. Even HC.

> I don't have Hypothyroidism, nor Adrenal Fatigue according to them. Oh

> well.

>

> So, they let me go. Without doing any " real checks " . I feel horrible,

> horrible, horrible, sleepy, pressure in my head, my resting pulse is lower

> now than it was 2-3 days ago when I was in Belgium. My reduced salt intake

> during the trip COULD'VE lead to a higher resting pulse. As well as my

> infection. As for the infection, it seems like 8 days on Penicillin didn't

> really help with everything. I have lower whites in my blood now, but I

> still feel horrible in my head/sinuses/stuck nose/sleepy all the

> time/lower hearing etc.

>

> I've had no luck getting in touch with Hertoghe in the past 2 days. He's

> super-duper busy. He's " too famous " I guess! I mean, he's great and

> all.. But I wish he had fewer patients!

>

> As for my T3-only treatment, Hertoghe wants me to make the switch to ERFA

> Thyroid, dessicated thyroid. He wants me to have the " safety backup " of

> T4. I would like to have it. I just hope it works! Right now, still on 65

> mcg T3, my FT3 looks good though. But I don't feel good.

>

> My total list of supps and meds to add looks like this:

> ERFA Thyroid (change after 1 month of doing the other stuff below!)

> Testogel 10% (2 pumps)35 mg compounded DHEA0.10 mg compounded aldosterone

> Beatine HCL approx 500 mg

> Pancreatic Enzyme

> Melatonine 0.2 mgVitamin A

> SWITCH to Ferrograd 500 iron. (Ferrous sulfate - Is this safe?)Increase to

> 5000 iu D3

> Start taking Zinc Citrate againStart taking Magnesium (Aminomag) again

>

> , any thoughts on this list? It looked like he was thinking hard

> (but without straining himself, he seemed VERY secure about himself and

> his work!) when he made this list for me. He went thru my blood/urine

> samples thoroughly. I did inform him I took T3, HC and ate food before

> drawing the 9 glasses of blood, and that I didn't stop salt, vitamin or

> mineral intake while doing the urine collection.

>

> I've been drinking a full dose of sea salted water today + 2 bottles of

> mineral water and salted my food. Better get more salt, than less.

>

> Now, as for my full blood electrolytes. They look VERY weird. I'll try to

> do a scan of them soon. Sodium is VERY low. Potassium is VERY high. The

> doc in the private clinic I ordered this test thru, even called me today

> and told me I could take this test again, for free (that test is actually

> $200 USD, cause it's not analyses in Norway, but in Germany!) - Next week!

> He said the results look VERY strange and he's hoping for a lab error.

> What if my tissue sodium really IS very low and tissue potassium is VERY

> high? :-(

>

> What do you think guys? Am I ready for the grave or is there any hope?

>

> Without this group, I would have noone to turn to. Thanks for being here

> for everybody!

>

>

>

>

>

> =2

[Guest guest]

If it were me, I'd print out relavent portions this letter such as

symptoms and and send it to the dr. that put you on this

regimin...deleting all references to " this group " ....and see what the

famous dr. you went to ....has to say.

send it airmail-special delivery or fedex or? so he'll pay more attention

to it?

C. Hunter

> I hope this message gets posted, I feel SO alone, and SO helpless and

> confused now! I am worried about stopping my rT3-T3-only treatment soon!

> Plus a whole lot more!

>

> Last night at 10 pm, my heart started beating very hard, slowly, and

> irregularly. For 30+ seconds. VERY MUCH, I'd say EXACTLY what happened

> back in December 2009 when I was on ERFA Thyroid for 1 week. (That time I

> thought it happened due to rT3 blocking T3, and I don't have that problem

> now!) So, I immediately called " 911 " cause my heart kept beating hard,

> slow and very irregularly, and they came in 20 minutes with an ambulance

> and did an ECG. It showed what I already know; Right blocking of the

> signals, and some kind of faulty wiring. They told me to drive to the ER

> (they didn't think I was an emergency patient!), so my father took me

> there.

>

> I must say that yesterday was my first day on DHEA 35 mg and Florinef 0.10

> mg. I took them at once, together, with HC, in my first chews of my

> breakfast. There was no liner notes to these meds, just meds made in a

> compounding pharmace in Belgium. I just trusted Hertoghe, so I took the

> meds. I have NO IDEA if it was these meds that made the irregular

> heartbeat happen. Do you think that's plausible or not? I mean, can adding

> ALDOSTERONE make the heart beat like that? Also, I forgot to tell Hertoghe

> that my Aldosterone improved after drinking sea salted water for some mo

> nths. I think he pretty much gave me aldosterone due to clinical symptoms.

> He also did a total urine test of the aldosterone. It was mid-range, but I

> told him I was drinking sea salt while doing the urine collection. So I

> guess I needed aldosterone meds then.

>

> Important:

> DUE TO MY TRIP TO BELGIUM, I  GOT APPROX 50% OF MY NORMAL DOSES OF SEA

> SALTED WATER IN THE PAST 4 DAYS - AND YESTERDAY, I WAS AFRAID OF DRINKING

> SEA SALTED WATER BECAUSE I STARTED FLORINEF.

>

> It was alread too late when told me to drink sea salted water like

> I've always done - The arrhythmia happened.

>

> So, once  got to the ER, I talked to a doctor, and I was transferred to

> the main reception of the ER, and they did electrolytes, cortisol (I know,

> I know!), thyroid panel, liver, kidney, and heart markers. Everything was

> ok, except one thing - But no doctors told me anything. I saw it myself on

> the printout:

>

> Sodium: 136 (range: 137-145)

> Bare in mind, this was AFTER drinking at least 1/2 tea spoon of sea salted

> water 1-2 hours before I did the blood sample.

>

> Can I have experienced a bad case of Arrhythmia due to TOO LOW SODIUM,

> only?

>

> My brand new thyroid panel shows:

>

> FT3 6.8 (after taking about 55 mcg T3 that day.. I didn't know I was gonna

> take this test!)

> FT4: 4.4 (still, same as last week!)TSH 0.31 (up from 0.09 last week!)

>

> I did spend the night at the hospital, with telemetry. They found nothing

> seriously wrong with my heart that night. I slept from 6 am to 9 am this

> morning. Needless to say, I feel like a complete zombie today.

>

> I told many doctors, heart specialists, and even an endo (I got 1 minute

> with him - he had " no time " for me! What a moron...) and none of them

> really understood WHY I was given Florined, nor DHEA. They also didn't

> understand why I was on T3-only, nor thyroid medications at all. Even HC.

> I don't have Hypothyroidism, nor Adrenal Fatigue according to them. Oh

> well.

>

> So, they let me go. Without doing any " real checks " . I feel horrible,

> horrible, horrible, sleepy, pressure in my head, my resting pulse is lower

> now than it was 2-3 days ago when I was in Belgium. My reduced salt intake

> during the trip COULD'VE lead to a higher resting pulse. As well as my

> infection. As for the infection, it seems like 8 days on Penicillin didn't

> really help with everything. I have lower whites in my blood now, but I

> still feel horrible in my head/sinuses/stuck nose/sleepy all the

> time/lower hearing etc.

>

> I've had no luck getting in touch with Hertoghe in the past 2 days. He's

> super-duper busy. He's " too famous " I guess! I mean, he's great and

> all.. But I wish he had fewer patients!

>

> As for my T3-only treatment, Hertoghe wants me to make the switch to ERFA

> Thyroid, dessicated thyroid. He wants me to have the " safety backup " of

> T4. I would like to have it. I just hope it works! Right now, still on 65

> mcg T3, my FT3 looks good though. But I don't feel good.

>

> My total list of supps and meds to add looks like this:

> ERFA Thyroid (change after 1 month of doing the other stuff below!)

> Testogel 10% (2 pumps)35 mg compounded DHEA0.10 mg compounded aldosterone

> Beatine HCL approx 500 mg

> Pancreatic Enzyme

> Melatonine 0.2 mgVitamin A

> SWITCH to Ferrograd 500 iron. (Ferrous sulfate - Is this safe?)Increase to

> 5000 iu D3

> Start taking Zinc Citrate againStart taking Magnesium (Aminomag) again

>

> , any thoughts on this list? It looked like he was thinking hard

> (but without straining himself, he seemed VERY secure about himself and

> his work!) when he made this list for me. He went thru my blood/urine

> samples thoroughly. I did inform him I took T3, HC and ate food before

> drawing the 9 glasses of blood, and that I didn't stop salt, vitamin or

> mineral intake while doing the urine collection.

>

> I've been drinking a full dose of sea salted water today + 2 bottles of

> mineral water and salted my food. Better get more salt, than less.

>

> Now, as for my full blood electrolytes. They look VERY weird. I'll try to

> do a scan of them soon. Sodium is VERY low. Potassium is VERY high. The

> doc in the private clinic I ordered this test thru, even called me today

> and told me I could take this test again, for free (that test is actually

> $200 USD, cause it's not analyses in Norway, but in Germany!) - Next week!

> He said the results look VERY strange and he's hoping for a lab error.

> What if my tissue sodium really IS very low and tissue potassium is VERY

> high? :-(

>

> What do you think guys? Am I ready for the grave or is there any hope?

>

> Without this group, I would have noone to turn to. Thanks for being here

> for everybody!

>

>

>

>

>

> =2

[Guest guest]

>Sodium: 136 (range: 137-145)

>Bare in mind, this was AFTER drinking at least 1/2 tea spoon of sea salted

water 1-2 hours before I did the blood sample.

>

>Can I have experienced a bad case of Arrhythmia due to TOO LOW SODIUM, only?

Quite possibly.

It looks like you've pinned it down.

Aldosterone is related to electrolytes

http://en.wikipedia.org/wiki/Aldosterone

and if you suddenly dropped the sodium intake which was helping you

then your system will have been shaken up.

http://www.encyclopedia.com/topic/aldosterone.aspx

on Florinef

http://www.netdoctor.co.uk/medicines/100001067.html

It should be stored in the fridge according to that one

http://www.medicinenet.com/fludrocortisone-oral/article.htm

There are a few links for you to read up on

Nick

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

>Sodium: 136 (range: 137-145)

>Bare in mind, this was AFTER drinking at least 1/2 tea spoon of sea salted

water 1-2 hours before I did the blood sample.

>

>Can I have experienced a bad case of Arrhythmia due to TOO LOW SODIUM, only?

Quite possibly.

It looks like you've pinned it down.

Aldosterone is related to electrolytes

http://en.wikipedia.org/wiki/Aldosterone

and if you suddenly dropped the sodium intake which was helping you

then your system will have been shaken up.

http://www.encyclopedia.com/topic/aldosterone.aspx

on Florinef

http://www.netdoctor.co.uk/medicines/100001067.html

It should be stored in the fridge according to that one

http://www.medicinenet.com/fludrocortisone-oral/article.htm

There are a few links for you to read up on

Nick

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

Thanks for the links Nick! I'll read them!"HOW TO USE: This medication must be taken exactly as directed. Do not increase your dose or take this more often than directed. Do not suddenly stop taking this medication without your doctor's permission. An increase in side effects can occur when the medication is suddenly stopped."That worries me.I only took Florinef ONCE, yesterday morning, but stopped it. Guess that doesnt qualify for "sudden stop of medicaion" or what? Being on it for 1 day?I don't fully get the Aldosterone thing yet, but.. I've seen it raise with sea salt intake.. So having a normal range aldosterone now, why should I take florinef???Thanks!

>Sodium: 136 (range: 137-145)

>Bare in mind, this was AFTER drinking at least 1/2 tea spoon of sea salted water 1-2 hours before I did the blood sample.

>

>Can I have experienced a bad case of Arrhythmia due to TOO LOW SODIUM, only?

Quite possibly.

It looks like you've pinned it down.

Aldosterone is related to electrolytes

http://en.wikipedia .org/wiki/ Aldosterone

and if you suddenly dropped the sodium intake which was helping you

then your system will have been shaken up.

http://www.encyclop edia.com/ topic/aldosteron e.aspx

on Florinef

http://www.netdocto r.co.uk/medicine s/100001067. html

It should be stored in the fridge according to that one

http://www.medicine net.com/fludroco rtisone-oral/ article.htm

There are a few links for you to read up on

 

[Guest guest]

The sodium and potassium BOTH will be helped by aldosterone. (I would

follow his directions and try it to see if it works,.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

http://groups.yahoo.com/group/HypoPets/

[Guest guest]

Because you cannot hold on to the salt you take wihtout it. Salt does

NOT raise aldosterone.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

http://groups.yahoo.com/group/HypoPets/

[Guest guest]

So Sodium will go up, and Potassium down when I take Aldosterone?Well, I did follow the advice, yesterday morning.. And I ended up in the hospital. IT COULD BE it happened (the arrhythmia) because I drank too little sea salt in the previous 3 days.What do you think, and why did my Serum Sodium go down to 136 last night (around midnight) even after drinking half a tea spoon of sea salt? The range is 137 to 145.Today, I measured Sodium again, after drinking more sea salt, and it was 140. So I am fine NOW I guess.I just try to figure out WHY that arrhythmia happened... Due to too low salt intake OR because I took Aldosterone and DHEA yesterday morning?Subject: Re: Back from the ER again/Details about Hertoghe/New FT3 labs from last night!To: RT3_T3 Date: Friday, March 12, 2010, 8:06 PM

 

The sodium and potassium BOTH will be helped by aldosterone. (I would

follow his directions and try it to see if it works,.

--

Artistic Grooming- Hurricane WV

http://www.stopthet hyroidmadness. com/

http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/

http://health. groups.yahoo. com/group/ RT3_T3/

http://groups. yahoo.com/ group/HypoPets/

[Guest guest]

What? I can't hold onto my salt without taking Aldosterone? I think I posted my aldosterone levels here the other day.. And, my Aldosterone was towards the low range before HC/Sea Salt was started in June 2009. After starting HC/Sea Salt intake, Aldosterone went up. How can you explain that then? Maybe taking HC made my adrenals heal a bit so that my aldosterone started going up again?I'm holding the Hertoghe blood/urine sample result papers in my hands now.In 24 hour urine, while drinking sea salt, Aldosterone was 12.8. Range: 5 - 20.Hertoghe DID tell me that I had a much too large amount of urine during collection; 5800 ml, which is 1.53 US Gallons of urine. So, he took that into account... And I guess this Aldosterone level made him perscribe me the Aldosterone tablets?

 

Because you cannot hold on to the salt you take wihtout it. Salt does  

NOT raise aldosterone.

[Guest guest]

What? I can't hold onto my salt without taking Aldosterone? I think I posted my aldosterone levels here the other day.. And, my Aldosterone was towards the low range before HC/Sea Salt was started in June 2009. After starting HC/Sea Salt intake, Aldosterone went up. How can you explain that then? Maybe taking HC made my adrenals heal a bit so that my aldosterone started going up again?I'm holding the Hertoghe blood/urine sample result papers in my hands now.In 24 hour urine, while drinking sea salt, Aldosterone was 12.8. Range: 5 - 20.Hertoghe DID tell me that I had a much too large amount of urine during collection; 5800 ml, which is 1.53 US Gallons of urine. So, he took that into account... And I guess this Aldosterone level made him perscribe me the Aldosterone tablets?

 

Because you cannot hold on to the salt you take wihtout it. Salt does  

NOT raise aldosterone.

[Guest guest]

So the thing is... If I do take Aldosterone, I will have to ween down on my Sea Salt intake after like 2 weeks? Or how does that work, ?I want to do the right thing. Period.

 

Because you cannot hold on to the salt you take wihtout it. Salt does

NOT raise aldosterone.

[Guest guest]

>So the thing is... If I do take Aldosterone, I will have to ween down on my Sea

Salt intake after like 2 weeks? Or how does that work, ?

>

>I want to do the right thing. Period.

Unless Dr H told you to change the salt just carry on as you were

doing but take the additional meds AS WELL

Nick

[Guest guest]

>So the thing is... If I do take Aldosterone, I will have to ween down on my Sea

Salt intake after like 2 weeks? Or how does that work, ?

>

>I want to do the right thing. Period.

Unless Dr H told you to change the salt just carry on as you were

doing but take the additional meds AS WELL

Nick

[Guest guest]

I had no sleep before the appointment so I was a zombie. And I still feel like one due to my infection which has clogged my brain and ears it seems. I do recall that he asked me why I was drinking salt? I had a small bottle with me. He didn't recommend me doing so cause he OD'd on salt once. When I said I was drinking Sea Salt, he said it was much better. I think I recall him saying I needed to stop drinking sea salt when I started florinef. Buuuuut...... I am afraid of doing so! Look what happened to me yesterday - Possibly due to me consuming less sea salt in the past 3-4 days!As for my FT3/Thyroid labs from today, what do you think about it? 

>So the thing is... If I do take Aldosterone, I will have to ween down on my Sea Salt intake after like 2 weeks? Or how does that work, ?

>

>I want to do the right thing. Period.

Unless Dr H told you to change the salt just carry on as you were

doing but take the additional meds AS WELL

Nick

[Guest guest]

Thom,

I'm sorry to hear you are going through so much difficulties.I wanted to give

you my 2 cents for the electrolytes.Since I started my treatment with HC and T3

only I have had a problem holding sodium and I was swelling extremely. Lately I

had an extreme spinning,vertigo issue that nothing could help. Val suggested to

test my aldosterone and it came back in a high levels 22 with ranges 4-31 but on

base of my sodium very low and high potassium,and all symptoms Val suggested to

start taking some.I started with 1/4 florinef for a few days and since I felt

some improvement I bumped it to 1/2 ,which is 50mg. My swelling and

puffiness,which I taught is from high HC it disappeared,My spinning has improved

a lot,although still have some but nothing like it was it.I also think that

affected my heart pain too.I\Before I was taking salt but with the edema and the

pain from it I could not take it constantly and now I increased it a lot and no

problem.I read you are taking aldosterone,which I have read on the forum that

not everybody had effect of it and had to switch to florinef. Some people though

have a great help from aldo,so you have to try it and see if you n9itice any

improvement in some way.If you don't in a week ,you may want to try Florine.

I hope you have some relief soon.

Milena

>

>

> Subject: Re: Back from the ER again/Details about Hertoghe/New FT3

labs from last night!

> To: RT3_T3

> Date: Friday, March 12, 2010, 8:06 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> The sodium and potassium BOTH will be helped by aldosterone. (I would

>

> follow his directions and try it to see if it works,.

>

>

>

> --

>

> Artistic Grooming- Hurricane WV

>

>

>

> http://www.stopthet hyroidmadness. com/

>

> http://health. groups.yahoo. com/group/ NaturalThyroidHo

rmonesADRENALS/

>

> http://health. groups.yahoo. com/group/ RT3_T3/

>

> http://groups. yahoo.com/ group/HypoPets/

>

[Guest guest]

Thom,

I'm sorry to hear you are going through so much difficulties.I wanted to give

you my 2 cents for the electrolytes.Since I started my treatment with HC and T3

only I have had a problem holding sodium and I was swelling extremely. Lately I

had an extreme spinning,vertigo issue that nothing could help. Val suggested to

test my aldosterone and it came back in a high levels 22 with ranges 4-31 but on

base of my sodium very low and high potassium,and all symptoms Val suggested to

start taking some.I started with 1/4 florinef for a few days and since I felt

some improvement I bumped it to 1/2 ,which is 50mg. My swelling and

puffiness,which I taught is from high HC it disappeared,My spinning has improved

a lot,although still have some but nothing like it was it.I also think that

affected my heart pain too.I\Before I was taking salt but with the edema and the

pain from it I could not take it constantly and now I increased it a lot and no

problem.I read you are taking aldosterone,which I have read on the forum that

not everybody had effect of it and had to switch to florinef. Some people though

have a great help from aldo,so you have to try it and see if you n9itice any

improvement in some way.If you don't in a week ,you may want to try Florine.

I hope you have some relief soon.

Milena

>

>

> Subject: Re: Back from the ER again/Details about Hertoghe/New FT3

labs from last night!

> To: RT3_T3

> Date: Friday, March 12, 2010, 8:06 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> The sodium and potassium BOTH will be helped by aldosterone. (I would

>

> follow his directions and try it to see if it works,.

>

>

>

> --

>

> Artistic Grooming- Hurricane WV

>

>

>

> http://www.stopthet hyroidmadness. com/

>

> http://health. groups.yahoo. com/group/ NaturalThyroidHo

rmonesADRENALS/

>

> http://health. groups.yahoo. com/group/ RT3_T3/

>

> http://groups. yahoo.com/ group/HypoPets/

>

[Guest guest]

Thanks for your reply, Milena!I was given "DEHYDROISOEPIANDROSTERON 35 MG" and "FLUDROCORTISONE ACET 0.10 MG" (I thought this was the same as the brand Florinef???) - They are made in a compunding pharmacy in Brussels, Belgium - And I can't split any of these tablets, they are capsules! Tried them once two days ago, and that HORRIBLE ARRHYTHMIA happened that day (might have been from low sodium intake on my part though) - And don't wanna try them again until I talk to my new specialist, Dr. Hertoghe.I keep drinking my 1 liter of water with 1 tea spoon sea salt in it. My electrolytes have been looking good while doing so for the past 9 months now.I have so many things in my head I feel it's gonna explode soon! "What if..." is the worst thought I have. What if I don't need any of these meds.. What if I don't have Hypothyroidism at all..

You know what? Now I'm just gonna do what one of the best Hypo/Adrenal docs in the world tells me to do.But I gotta say, what I've learned from Nick and Val on here so far has helped me a lot!ThhomasSubject: Re: Back from the ER again/Details about Hertoghe/New FT3 labs from last night!To: RT3_T3 Date: Saturday, March 13, 2010, 5:17 AM

 

Thom,

I'm sorry to hear you are going through so much difficulties. I wanted to give you my 2 cents for the electrolytes. Since I started my treatment with HC and T3 only I have had a problem holding sodium and I was swelling extremely. Lately I had an extreme spinning,vertigo issue that nothing could help. Val suggested to test my aldosterone and it came back in a high levels 22 with ranges 4-31 but on base of my sodium very low and high potassium,and all symptoms Val suggested to start taking some.I started with 1/4 florinef for a few days and since I felt some improvement I bumped it to 1/2 ,which is 50mg. My swelling and puffiness,which I taught is from high HC it disappeared, My spinning has improved a lot,although still have some but nothing like it was it.I also think that affected my heart pain too.I\Before I was taking salt but with the edema and the pain from it I could not take it constantly and now I increased it a lot and no problem.I read you are

taking aldosterone, which I have read on the forum that not everybody had effect of it and had to switch to florinef. Some people though have a great help from aldo,so you have to try it and see if you n9itice any improvement in some way.If you don't in a week ,you may want to try Florine.

I hope you have some relief soon.

Milena

>

> From: <artisticgroomer@ ...>

> Subject: Re: Back from the ER again/Details about Hertoghe/New FT3 labs from last night!

> To: RT3_T3yahoogroups (DOT) com

> Date: Friday, March 12, 2010, 8:06 PM

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> Artistic Grooming- Hurricane WV

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> http://www.stopthet hyroidmadness. com/

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> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/

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> http://health. groups.yahoo. com/group/ RT3_T3/

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> http://groups. yahoo.com/ group/HypoPets/

>

[Guest guest]

Hi Nick,

What do you think about my latest labs? I am still on T3-only, 65 mcg:FT3 6.8 (taken at midnight right before my last 10 mcg dose of the day, I had 55 mcg in me!)FT4 4.4 (same!)TSH 0.30 (up from 0.09)

[Guest guest]

>What do you think about my latest labs? I am still on T3-only, 65 mcg:

>FT3 6.8 (taken at midnight right before my last 10 mcg dose of the day, I had

55 mcg in me!)

>FT4 4.4 (same!)

>TSH 0.30 (up from 0.09)

You are not hyper by any stretch of the imagination.

As long as you have enough ferritin in you and enough HC then this

amount of T3 is not an issue.

IF, and a BIG IF, you had enough ferritin I would have said time for a

raise to keep that TSH suppressed, as it is with your ferritin issues

I would agree with Val (who taught me all I know about RT3 treatment!)

and say wait a little longer before a raise.

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

>What do you think about my latest labs? I am still on T3-only, 65 mcg:

>FT3 6.8 (taken at midnight right before my last 10 mcg dose of the day, I had

55 mcg in me!)

>FT4 4.4 (same!)

>TSH 0.30 (up from 0.09)

You are not hyper by any stretch of the imagination.

As long as you have enough ferritin in you and enough HC then this

amount of T3 is not an issue.

IF, and a BIG IF, you had enough ferritin I would have said time for a

raise to keep that TSH suppressed, as it is with your ferritin issues

I would agree with Val (who taught me all I know about RT3 treatment!)

and say wait a little longer before a raise.

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

Thom,

I wish you good luck and getting better soon. Hope this doctor will help you.Val

and Nick are who I'm sticking with because even I'm still bad Val has helped me

so much,that no any doctor ever did.I'm so much better from where I started

when I came on the forum.I understand nobody can make a magic all to get better

at once. That is the reality with our sickness,we get a bit up then fall down

again and over and over ,until we just get much better.Hang in there.

Milena

>

> >

>

> > From: <artisticgroomer@ ...>

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> > Subject: Re: Back from the ER again/Details about Hertoghe/New FT3

labs from last night!

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> > To: RT3_T3yahoogroups (DOT) com

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> > Date: Friday, March 12, 2010, 8:06 PM

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rmonesADRENALS/

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> > http://health. groups.yahoo. com/group/ RT3_T3/

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> > http://groups. yahoo.com/ group/HypoPets/

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[Guest guest]

Fludrocortisone is generic florinef, that is what you want. Aldosterone is

supposed to go down when there is sodium in the body. So, drinking sea salt

will lower aldosterone. When the body senses low sodium, aldosterone is

supposed to go up. This is the problem for those with adrenal issues, it

doesn't go up. It seems to me that you took too much florinef(.1mg fludro) all

at once. It's probably a good idea to take 1/4 of that and increase every 3-5

days until you've hit 1 full pill and then re-evaluate. Plus, it takes a few

days to start working correctly anyway and then you can lower salt and see how

you do. Make sense? Heart issues are scary and a lot of us here have the same

problems.

> >

> > From: <artisticgroomer@>

> > Subject: Re: Back from the ER again/Details about Hertoghe/New FT3

labs from last night!

> > To: RT3_T3

> > Date: Friday, March 12, 2010, 8:06 PM

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> > --

> >

> > Artistic Grooming- Hurricane WV

> >

> >

> >

> > http://www.stopthet hyroidmadness. com/

> >

> > http://health. groups.yahoo. com/group/ NaturalThyroidHo

rmonesADRENALS/

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> > http://health. groups.yahoo. com/group/ RT3_T3/

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> > http://groups. yahoo.com/ group/HypoPets/

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[Guest guest]

Hi and thanks for your reply!I only tried this generic fludro once. I don't dare trying it again til I've spoken with Hertoghe himself. Now, everybody keeps telling me to split pills, but they aren't splittable! They're capsules! Plastic with powder inside! I don't get it - How can taking too much fludrocortisone the first time be bad? And how would taking fludrocortisone 0.10 mg once mak emy heart go all nuts and beat irregularly for 30 seconds? Felt like it was gonna stop! _I DID NOT DRINK SEA SALT THAT DAY TIL AFTER IT HAPPENED_ !!! And look at my urine levels of Aldosterone before and after I started HC and sea salt:May 2009, PRE-HC and PRE-Sea Salt: Aldosterone 16 (5 - 77)October 2009, ON-HC and ON-Sea Salt: Aldosterone 45 (5 - 77)Why is aldosterone going up if you say it will go down?November 2009, ON-HC and

ON-Sea Salt: Aldosterone 28 (5 - 77)Here it went down again. How can it go up and down like that when I'm taking the same sea salt every day?The latest Aldosterone lab, analyzed in Belgium (I have no idea if my huge amount of urine, diurese: 5800 ml/almsot 6 liters) would make this result something we can't trust, but:February 2009, ON-HC and ON-Sea Salt: Aldosterone 12.5 (5 - 20) - Different laboratory, different range.So what do we make out of this? I'm just confused and scared...

 

Fludrocortisone is generic florinef, that is what you want. Aldosterone is supposed to go down when there is sodium in the body. So, drinking sea salt will lower aldosterone. When the body senses low sodium, aldosterone is supposed to go up. This is the problem for those with adrenal issues, it doesn't go up. It seems to me that you took too much florinef(.1mg fludro) all at once. It's probably a good idea to take 1/4 of that and increase every 3-5 days until you've hit 1 full pill and then re-evaluate. Plus, it takes a few days to start working correctly anyway and then you can lower salt and see how you do. Make sense? Heart issues are scary and a lot of us here have the same problems.

> >

> > From: <artisticgroomer@ >

> > Subject: Re: Back from the ER again/Details about Hertoghe/New FT3 labs from last night!

> > To: RT3_T3yahoogroups (DOT) com

> > Date: Friday, March 12, 2010, 8:06 PM

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> > The sodium and potassium BOTH will be helped by aldosterone. (I would

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> > follow his directions and try it to see if it works,.

> >

> >

> >

> > --

> >

> > Artistic Grooming- Hurricane WV

> >

> >

> >

> > http://www.stopthet hyroidmadness. com/

> >

> > http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/

> >

> > http://health. groups.yahoo. com/group/ RT3_T3/

> >

> > http://groups. yahoo.com/ group/HypoPets/

> >

>

[Guest guest]

Hi

I am confused by your posts.

First you said you were given Aldosterone to take. Then Fluodrocortisone? Which

is it?

I have only taken brand name Florinef. I have seen folks say the generics seem

weaker. As to the compounded I have only heard of bioidentical Aldosterone being

done. never heard of compounded Fluodro before. It's not a slow release formula

at all? Do you know exactly what fillers are used in it?

If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at

once. You say the compounding capsules are 0.100mg each? You CAN split them up.

I do it with the Melatonin caps I buy.

Just need to get hold of empty gelatin caps. Can order online or source from a

compounding pharmacy. Then gently prise the capsule apart & split powder into 3

or 4 caps.Then you can start at lower dose & have option to take more than once

a day if needed (I need to take twice a day). Using a folded sheet of paper can

help with pouring into caps (empty onto paper, divide up with knife or razor,

then using folded paper pour into cap.

I am confused too as to why you say Serum Potassium was high? You mention a

result of 4.1 which I would consider far too low. Did you also get a RBC

Potassium same time as the serum Potassium? Was that one high? With a Potassium

of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is

atarted.

What did Dr Hertoghe say about your levels? Did he give you Lab request to

retest after starting it?

Lethal Lee

[Guest guest]

Hi

I am confused by your posts.

First you said you were given Aldosterone to take. Then Fluodrocortisone? Which

is it?

I have only taken brand name Florinef. I have seen folks say the generics seem

weaker. As to the compounded I have only heard of bioidentical Aldosterone being

done. never heard of compounded Fluodro before. It's not a slow release formula

at all? Do you know exactly what fillers are used in it?

If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at

once. You say the compounding capsules are 0.100mg each? You CAN split them up.

I do it with the Melatonin caps I buy.

Just need to get hold of empty gelatin caps. Can order online or source from a

compounding pharmacy. Then gently prise the capsule apart & split powder into 3

or 4 caps.Then you can start at lower dose & have option to take more than once

a day if needed (I need to take twice a day). Using a folded sheet of paper can

help with pouring into caps (empty onto paper, divide up with knife or razor,

then using folded paper pour into cap.

I am confused too as to why you say Serum Potassium was high? You mention a

result of 4.1 which I would consider far too low. Did you also get a RBC

Potassium same time as the serum Potassium? Was that one high? With a Potassium

of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is

atarted.

What did Dr Hertoghe say about your levels? Did he give you Lab request to

retest after starting it?

Lethal Lee