Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 I think you hit the nail on the head Jen. There is another term, they test for it by moving their finger far left, than far right having you follow their finger, tracking it with your eyes. I think it starts with N! ; Darn, it eludes me right now. I was told it is an after effect of surgery, but usually improves. I think you are right about my worsening vision also affecting balance. na just told me I need to consider the walker, but I think " not me " --just like I used to think -deaf--not me! I know I should do it before broken bones. The thing is, it is difficult enough to handle a dog on a leash with a cane; with the walker, I think we would be a mess. I tried typing him to a cart when I went to the flea market; and when I walked away and left him, he followed me, and upset the cart!! LOL And I agree with you, it is becoming worse, so the balance is becoming worse; all this is TOTALLY not addressed by any of the docs!! At least none I have found. All the eye docs know to do is treat a dry eye! I think there is more done where the eyes are concerned during AN surgery than they understand; too many of us have poor vision post surgery. Marie balance - eyes >Didn't you say your eyesight was getting worse, Marie? When we lose our >balance nerves the eyesight plays a very very large role in balance (reason >walking in dark is hard, no shadows). As well a touch (point of reference, >like touching a wall, both feet flat on the floor, etc..) I have, not sure >how this is spelled " oscallopsia?? " which means my whole environment moves >when I do. The only way to keep everything still is if I remain still. The >minute I walk, the room begins to sway. This is dlowly becoming worse, no >one knows why I even have it (like tinnitus), hence the balance is becoming >ALOT worse too. I heard other crewbies also have " oscallopsia?? " Does >anyone have the correct spelling for this syndrome? I'm curious if eye drs >can detect this unless you explain what you see, bc I have a feeling more >crewbies have this but just do not realize it isn't " normal " to have. >Unfortunately there is no fix to this problem, but it does help me >understand why I use a walker while many of you still run, swim and ride >your bikes. > >Jennette > > Re: and her hearing ear > > >Well I have decided I am thru with NF2/tumors; the question is, it is >through with me? LOL Supposedly I should be okay, but my balance is >getting so bad, especially the past six months, I am considering a walker. >I have to wonder why, if everything is over and done, does my balance keep >getting worse? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 I AGREE WITH EVERYTHING YOU STATED MARIE. I HAVE AS MARIE WELL KNOWS BEEN DEALING WITH THE VISION PROBLEM SINCE THE LAST AN SURGERY IN 1991. SOMETIMES THE VISION IS BETTER THAN AT OTHER TIMES....WHY?WHO KNOWS SURELY NOT ANY DOCTORS I HAVE SEEN. WHEN MY VISION GOES THROUGH A BAD SPELL THE BALANCE IS WORSE. I KNOW FROM ARTICLES I HAVE READ THAT ONCE THE BALANCE NERVES ARE GONE THE BODY LEARNS TO BALANCE WITH THE OTHER SYSTEMS MAINLY THE EYES SECOND THE LEGS. SO WHEN THE VISION GETS WORSE THE LEGS TRY TO DO IT ALONE BUT THAT DOESN'T WORK WELL EITHER. CATHERINE > balance - eyes > > > >Didn't you say your eyesight was getting worse, Marie? When we lose our > >balance nerves the eyesight plays a very very large role in > balance (reason > >walking in dark is hard, no shadows). As well a touch (point of > reference, > >like touching a wall, both feet flat on the floor, etc..) I > have, not sure > >how this is spelled " oscallopsia?? " which means my whole > environment moves > >when I do. The only way to keep everything still is if I remain > still. The > >minute I walk, the room begins to sway. This is dlowly becoming worse, no > >one knows why I even have it (like tinnitus), hence the balance > is becoming > >ALOT worse too. I heard other crewbies also have " oscallopsia?? " Does > >anyone have the correct spelling for this syndrome? I'm curious > if eye drs > >can detect this unless you explain what you see, bc I have a feeling more > >crewbies have this but just do not realize it isn't " normal " to have. > >Unfortunately there is no fix to this problem, but it does help me > >understand why I use a walker while many of you still run, swim and ride > >your bikes. > > > >Jennette > > > > Re: and her hearing ear > > > > > >Well I have decided I am thru with NF2/tumors; the question is, it is > >through with me? LOL Supposedly I should be okay, but my balance is > >getting so bad, especially the past six months, I am considering > a walker. > >I have to wonder why, if everything is over and done, does my > balance keep > >getting worse? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2001 Report Share Posted November 14, 2001 I do that to, walk & move and everything moves too:( I thought it was a tumor thing:( Thanks for that imput Jenn, that explains a lot. Im only some what crazy not full bore:(~~Lowi whose world rocks for real balance - eyes > Didn't you say your eyesight was getting worse, Marie? When we lose our> balance nerves the eyesight plays a very very large role in balance (reason> walking in dark is hard, no shadows). As well a touch (point of reference,> like touching a wall, both feet flat on the floor, etc..) I have, not sure> how this is spelled "oscallopsia??" which means my whole environment moves> when I do. The only way to keep everything still is if I remain still. The> minute I walk, the room begins to sway Quote Link to comment Share on other sites More sharing options...
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