Submucosal Fibroids / Adenomyosis & Lap Myo

[Guest guest]

I've also been to U of M hospital. I think I saw a doctor by the name of Quinn

or was it Quint, last year. She has an Alternatives to Hysterectomy Clinic

there.

Deb

[Guest guest]

I can't respond to #s 1 & 2, but re #3: I had 3 ultrasounds in which the

first one didn't say where my fibroid was located, the second said it was

submucosal, the third said it was subserosal, and the MRI I had prior to my

UAE said that it was part intramural and part subserosal. So go figure.

The MRI was correct.

B.

Submucosal Fibroids / Adenomyosis & Lap Myo

> Hi Girls....

> I had my visit today with the specialist at the University of Michigan. I

thought this day would never come!!! To my surprise, I was told that the

only way that I could be bleeding like I am...(almost every day...on and off

hemorraging with huge clots and flooding) is if I have a Submucosal fibroid

or Adenomyosis....I was told that an intramural fibroid WOULD NOT CAUSE SUCH

BLEEDING....HE SAID IT COULD BE AS BIG AS A TRUCK AND IT WOULD NOT CAUSE

HEMMORAGING AS LONG AS IT IS NOT INVADING THE UTERINE CAVITY. Well....guess

what? Back in August I had a Laporoscopy, D & C and Hysteroscopy and I was

told at that time I had a large INTRAMURAL, fundal fibroid...and that there

was nothing I could do except for a complete abdominal hysterectomy. I

asked my gyn at that time if I could have an MRI to rule anything else out

and she said no. Being dissatisfied about her lack of concern to

investigate further before " gutting " me, I went for a second opinion, to

the jerk that suggested I just have a baby and stay on Lupron for two years,

and I also asked him the same thing about having an MRI to rule anything

else out and he also said no...I dumped him faster than a boyfriend found

cheating on me with my brother. ;-) ~smile~ On to doc number

three....~wink~ Well......today this new doctor (a wonderful,energetic &

caring young man) immediatly, without my prompting at all, suggested I have

an MRI to rule out Andenomyosis!!!! I was so shocked I almost fell off the

table. And to hear that I may actually have a Submucosal Fibroid rather

than just an Intramural Fibroid just blew me away....I ended up forgetting

all of my questions because I was in such disbelieve about the whole

situation! I asked why my original gyn would not have known this and he

said that sometimes when you use the gas with the laporoscopy, you can't

always see clearly because it can become cloudy....He uses saline and says

it is much easier to see everything. He thinks he will be able to do a

laproscopic myomectomy to remove the fibroid and endometriosis....and I am

rather excited. Scared yet relieved that I found someone who actually

thinks they can help me without taking it all out without a blink. He said

that there is a chance that it could be the Andenomyosis so we will see with

the MRI. I am tentatively scheduled for April 24th for a lap-myo. If it

turns out that I do infact have Adenomyosis, then we will talk about the

options at that point. Oh! By the way....this new guy said that the Lupron

that I took for five months would not have helped with a Submucosal

fibroid...because it is in the cavity and it will only shrink it but not

prevent the hemmorraging. So damn it....I probably took that crap for

ABSOLUTELY NOTHING!!!! I am so ticked about the lack of good, medical care

out there. I feel lucky that I am close enough to such a wonderful teaching

hospital like U of M...I only wish I would have gone sooner...but

anyhow....on to the questions....

>

> 1.) How do those of you that have Adenomyosis cope? What are your

symptoms with Adenomyosis?

> 2.) Anyone out there have a Laproscopic Myomectomy? How long did it

take for recovery? Was it successful? How are your symptoms post-op?

> 3.) Has anyone else out there been told that they had one thing

(Intramural) only to be told the fibroid was actually a Submucosal Fibroid

instead?

>

> Ok, I gotta get to bed....Thanks for listening Girls!!! Waiting anxiously

to hear from you all!

>

> Jenine

>

>

>

[Guest guest]

My ultrasound reports stated that all my fibroids were intramural.

After the MRI prior to UAE I was told that my largest fibroid is

submucosal. I believe I read somewhere that U/S were a better

indication of size, but MRIs a better indication of type.

[Guest guest]

...oops ... forgot to add that maybe it is also because it is partially

intramural?? not sure...just speculating...

Re: Submucosal Fibroids / Adenomyosis & Lap Myo

Hi,

I was wondering why the doctor you went to would recommend a lap myo

for a submucosal fibroid. Why not do a hysteroscopic resection if you

have a submucosal fibroid?

[Guest guest]

At 2/18/03 07:43 AM, GlitterGirl69 wrote:

>.) How do those of you that have Adenomyosis cope? What are your

>symptoms with Adenomyosis?

>2.) Anyone out there have a Laproscopic Myomectomy? How long did it take

>for recovery? Was it successful? How are your symptoms post-op?

>3.) Has anyone else out there been told that they had one thing

>(Intramural) only to be told the fibroid was actually a Submucosal Fibroid

>instead?

I have endo, adeno and a very large fibroid. Right now, I take off work

1-2 days each month because of severe bleeding (read " stand up and pour -

and then pass huge clots " ).

I am so frustrated with this whole mess I don't know what causes more

problems - endo, adeno or fibroids!

I have had lap myos before and they are wonderful. Recovery is off work

for a week and then back to work. Of course, the incisions are still quite

tender around the middle. The worst part has been getting rid of the gas

they inflate you with. It moves up around the shoulders and is so

uncomfortable.

I hope I am talking about the same thing you are. I have had the three

small incisions with laser surgery through a laporascope and fibroids and

adhesions removed that way. That is what I explained above.

I have also had fibroids and adhesions removed vaginally using

cauterization. The laser version gives the least pain and fastest recovery

at least for me.

[Guest guest]

At 2/18/03 07:43 AM, GlitterGirl69 wrote:

>.) How do those of you that have Adenomyosis cope? What are your

>symptoms with Adenomyosis?

>2.) Anyone out there have a Laproscopic Myomectomy? How long did it take

>for recovery? Was it successful? How are your symptoms post-op?

>3.) Has anyone else out there been told that they had one thing

>(Intramural) only to be told the fibroid was actually a Submucosal Fibroid

>instead?

Oops - forgot!

The vaginal surgery (hysteroscopic myo?) removed a pedunculated fibroid

that almost killed me. The others were, I believe, on the outside of the

uterus.

The huge invader I have now, though, is right in the wall of my uterus and

pretty much engulfs the uterus. I am hoping to goodness I am not headed

for a hyst!

[Guest guest]

Which state is " U of M " in?? Hopefully MN.

Re: Submucosal Fibroids / Adenomyosis & Lap

Myo

I've also been to U of M hospital. I think I saw a doctor by the name

of Quinn or was it Quint, last year. She has an Alternatives to

Hysterectomy Clinic there.

Deb

[Guest guest]

, It's the University of Michigan Hospital.

[Guest guest]

Jan,

I guess it was wishful thinking on my part. Still struggling to find a

surgeon who will do a myomectomy on a 45 year old in MN.

Re: Submucosal Fibroids / Adenomyosis & Lap

Myo

, It's the University of Michigan Hospital.

[Guest guest]

: If you haven't already checked this resource,

go to: www.uterinefibroid.com It is the web site of

the Fibroid Uterine Treatment Center which is located

in Chicago. They can refer you to a qualified surgeon

in your area or closest to you. The site is a

tremendous source for education. I too am seeking a

surgeon for a laparoscopic myomectomy through my

health plan. Once you make a decision on the desired

type of treatment, then it is easier to find the right

doctor. For me, from San Diego I had to travel to N.

Calif. for a consultation and now I am requesting the

same service thru my HMO or asking that they authorize

tx from the consultation doctor. It is quite a maize

to finally get to the bottom of things.... Best

Wishes. Shirley

--- Studders wrote:

> I guess it was wishful thinking on my part. Still

> struggling to find a surgeon who will do a myomectomy on a 45 year old in

> MN.

[Guest guest]

& Shirley:

The correct web address for the Fibroid Uterine Treatment Center in

Chicago is www.fibroid.com. The phone number has been disconnected,

possibly due to Dr. Stringer's death in November, so I'm not sure

what's going on; but the web site still has all the helpful

information available.

Debbie