8-yr-old son's pancreatitis

[Guest guest]

Dear Folks,

I am a new member here. I just " stumbled " on to this site as I was

trying to research whatever I could find regarding juvenile

pancreatitis. My son (Cameron) just returned home from his 3rd

hospital stay since Sept 2000. His cause is unknown. He has been an

extremely healthy child before our summer diagnosis of pancreatitis.

I would so love to chat online with anyone who can help me find

information or just let me " compare notes " .

My husband and I tried for 8 years to conceive and finally had our

son in October 1992. He is our life. And we are so lost. Please

help me if you have any ideas. We are in Fort Worth, TX and if there

is anything such as a support group for kids, then I think this would

be a tremendous asset for him to get involved in.

He is a gifted child and has been tested at the 15 year old

maturity level, therefore his comprehension of the information we can

find is quite good.

Thank you to anyone who has time to respond,

Donna

[Guest guest]

Donna

I have been a member of this group for a while, but I do much more

reading than posting. I, also, am the mother of a child with

pancreatitis. My son, , is 11-years-old and has had pancreatitis for

6 years. The doctors have no idea why. I don't want to scare you with

all that he has been through, especially because everyone is different.

I do want to welcome you and hope that somehow we can help each other

deal with this terrible disease. We live in western Massachusetts and

have to travel to Boston for 's care (about a 3 hour drive). We have

two other children, , 14 and Stevie, 19 months. I'm sure you have

realized by now, that there isn't much information about pancreatitis in

children. We have to deal with pediatric specialists as well as adult

specialists because it's so rare in children. Please feel free to

contact me either through the group or if you would like to e-mail me

personally.

Suzanne

On Mon, 05 Feb 2001 02:58:06 -0000 DJWmck@... writes:

> Dear Folks,

> I am a new member here. I just " stumbled " on to this site as I

> was

> trying to research whatever I could find regarding juvenile

> pancreatitis. My son (Cameron) just returned home from his 3rd

> hospital stay since Sept 2000. His cause is unknown. He has been

> an

> extremely healthy child before our summer diagnosis of pancreatitis.

>

> I would so love to chat online with anyone who can help me find

> information or just let me " compare notes " .

> My husband and I tried for 8 years to conceive and finally had our

>

> son in October 1992. He is our life. And we are so lost. Please

> help me if you have any ideas. We are in Fort Worth, TX and if

> there

> is anything such as a support group for kids, then I think this

> would

> be a tremendous asset for him to get involved in.

> He is a gifted child and has been tested at the 15 year old

> maturity level, therefore his comprehension of the information we

> can

> find is quite good.

> Thank you to anyone who has time to respond,

>

> Donna

>

>

>